Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Dear Bonner, When I spoke of Dr. Atkins, I was not referring to his diet, which I don't believe in. He wrote a book about treatment of various illnesses, which speaks about the complementary approach to medicine. His diet is not the usual one recommended by complentary physicians, and is certainly very controversial. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Bonner, it will take time for your thyroid levels to even out. When it does, you'll notice an appetite change. I used to eat everything in sight and one night, halfway through dinner it hit me! I wasn't that hungry anymore. When is your next Endo appointment? HyperT I try not to smoke, eat or drink anything when I get up during the night. I " pound the keys " for a while and then take a nap. I'm taking 50 mg. of PTU twice a day for my hyper symptoms, but still have a voracious appetite. It seems as though I'm always hungry. Before HyperT, I skipped many meals, particularly breakfast. I think oatmeal is a good source of fiber, but I worry about carbohydrates with the cereal and infusing myself with fruit juices. HELP! ===== Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Bonner, You can find good nutritional advice at the iThyroid site. Overall, in GD you want to eat high nutrient food with adequate protein. Avoid sugar, caffeine, dairy products and saturated fats. You're right about food cravings but it's usually something in the food, not the food, that your body needs. For instance, people crave chocolate when their bodies need magnesium and copper. I think if you read all the articles on the iThyroid site, you'll put things in perspective and figure out a good eating plan that works for you. Just remember (I wish I could) that everything you put in your mouth has the potential to hinder or help the healing process. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Bonner, It's been shown that the amount of copper in copper bracelets does decrease over time so it's assumed that the body does absorb this copper. I'm not sure how, without lots of blood tests, you'd know how much you're absorbing though. If you're looking for a natural approach though, you might start eating more high copper foods like sunflower seeds. I think C was working on a list of high coppr foods but I'm not sure if it's on iThyroid yet. As for dairy products, the main reason we're told to avoid them is because of their high iodine content, and also because they cause mucus production which decreases our nutrient absorption, etc. It's recommended that we don't exceed 150 mcg of iodine daily as it aggravates hyperT so if you've cut out all other sources, like iodized salt, vitamins with iodine, etc, and don't eat any prepackaged food with salt, you could probably slip in some dairy. People with Graves' are particularly sensitive to salt even after we go into remission or become hypothyroid. Then, more than 1000mcg of iodine contributes to hypothyroidism. Some researchers consider iodine a trigger for autoimmune thyroid disease. I read your eye post and seem to recall reading somewhere that Visine wasn't recommended for TED. Probably it has phenyepherine which could have adverse effects. Maybe someone else knows about this. However, since TED is easier to deal with the earlier it's diagnosed, you might want to get checked out by your ophthalmologist. Sometimes eye swelling is sporadic and sort of comes and goes but it can also be a sign of TED. For the iThyroid site, just click onto any topic that has a line under it and it will link you to the article. There are lots of great features and links there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Bonner. Just take care of yourself and don't worry what others say. You've done all you can by sharing info and as you say the rest is up to you. And it sounds like you're on the right path. As for the hyper, hypo thing, patients with autoimmune disease can experience all different forms of the disease, including GD, Hashimoto's thyroiditis, Hashitoxicosis, and primary myxedema or atrophic thyroiditis at different times in one lifetime. Actually it's not all that unusual. One place you might want to check for more of this kind of info is www.thyroidmanager.org/thyroidbook.htm It's a thyroid medical textbook geared toward physicians so it might be a little complex in parts, but overall you should get something out of several of the chapters. Take care, and keep up the good work, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Bonner, You're right about remission. I haven't heard of a set time as they use in cancer. And when people in remission have a setback with hyperT they usually say they know exactly what caused it, and they go on ATD's for a while and go back in remisssion. As you'll see from my other post, it's not unusual to move around from one autoimmune thyroid disease to another. Don't worry too much right now about the possibility of going hypo since you're doing all you can to prevent it as it is. As for the vitamin drip, the vitamins which circulate in the blood act on specific cell receptors so they are used by the body. But so are the nutrients you take orally, at least for the most part. I used to run my own vitamin B12 levels and they were super high just from taking B complex and a multi-vite. Another place that might help you is the archives at graves_support@ e groups from about a year ago. B discusses her alternative healing routine which worked for her. You'll be surprised by the number of nutrients she needed to heal. I'm heard of similar successful protocols using lots of nutrients. I take tons and think that's why my GD was never that bad. Let me know if you have trouble finding the archive. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Elaine. You've got such useful information and are so generous to share it with the neophytes of this group! No one has yet answered the question as to whether a copper bracelet could help with autoimmune aspects of the disease. I understand some arthritics swear by them, but I wonder. I keep reading that copper and magnesium are critical to balancing our systems, so I need to do an all-out search for increasing these nutrients. I don't have a problem giving up sweets or saturated fats, but a couple of cups of coffee in the A.M. seem critical to my being able to face the world and I do love cheeses and yogurt dearly. Are these lifetime changes, or just until the GD goes inot remission? I wish someone would give a tutorial for iThyroid.com, it's difficult for me to understand how it works and how to find the information I'm looking for. I'm still new and am sure I'll get better with practice! ===== Bonner Re: HyperT > Hi Bonner, > You can find good nutritional advice at the iThyroid site. Overall, in GD you > want to eat high nutrient food with adequate protein. Avoid sugar, caffeine, > dairy products and saturated fats. You're right about food cravings but it's > usually something in the food, not the food, that your body needs. For > instance, people crave chocolate when their bodies need magnesium and copper. > I think if you read all the articles on the iThyroid site, you'll put things > in perspective and figure out a good eating plan that works for you. Just > remember (I wish I could) that everything you put in your mouth has the > potential to hinder or help the healing process. Elaine > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Sunflower seeds sound good and I'll look forward to Chris' report. All my life, I thought iodine was crucial to thyroid health and that's the reason for iodized salt. I'm not a " salt person, " so reducing table salt won't be a problem, but seafood is, right? I adore shrimp, orange roughy, red snapper, oysters, etc. Are salmon, tuna and shark filets included in the forbidden list? How about fresh water fish such as trout and catfish (a Southern girl asking a question)? I eat very few pre-packaged foods, tending towards fresh veggies, pasta and fruit. I've gotten conflicting reports on carbohydrates/high protein. In years past, the Atkins' diet provided for cheese and cottage cheese as sources of protein. I've never noticed the high level of iodine in dairy products. Perhaps it was because I thought it was a GOOD thing and I was doing what was right for my body. As I said, ignorance is a SCARY thing, isn't it? I'm worried about Visine and the possibilty of TED. I need to get an appointment. I keep feeling as though it's seasonal allergy problems, but I've become so sensititve about thyroid problems that I won't be able to rest until I get a definitive answer. I think my brower is the problem with 's website. I just see black spaces until I hover over them. I'll try to call MicroSoft to get a resolution, but you KNOW how that can be! ===== Bonner Re: HyperT > Hi Bonner, > It's been shown that the amount of copper in copper bracelets does decrease > over time so it's assumed that the body does absorb this copper. I'm not sure > how, without lots of blood tests, you'd know how much you're absorbing > though. If you're looking for a natural approach though, you might start > eating more high copper foods like sunflower seeds. I think C was > working on a list of high coppr foods but I'm not sure if it's on iThyroid > yet. > As for dairy products, the main reason we're told to avoid them is because of > their high iodine content, and also because they cause mucus production which > decreases our nutrient absorption, etc. It's recommended that we don't exceed > 150 mcg of iodine daily as it aggravates hyperT so if you've cut out all > other sources, like iodized salt, vitamins with iodine, etc, and don't eat > any prepackaged food with salt, you could probably slip in some dairy. People > with Graves' are particularly sensitive to salt even after we go into > remission or become hypothyroid. Then, more than 1000mcg of iodine > contributes to hypothyroidism. Some researchers consider iodine a trigger for > autoimmune thyroid disease. > > I read your eye post and seem to recall reading somewhere that Visine wasn't > recommended for TED. Probably it has phenyepherine which could have adverse > effects. Maybe someone else knows about this. However, since TED is easier to > deal with the earlier it's diagnosed, you might want to get checked out by > your ophthalmologist. Sometimes eye swelling is sporadic and sort of comes > and goes but it can also be a sign of TED. > > For the iThyroid site, just click onto any topic that has a line under it and > it will link you to the article. There are lots of great features and links > there. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi Bonner, The fish will do you good. The omega-3 oils in fish are great for us. But limit the seafood high in iodine content. Maybe someone knows offhand which those are. Iodine is added to milk and other dairy products in an attempt to protect against iodine deficieny. Dr. H.C.A. Vogel in The Nature Doctor writes that the type of iodine used to iodize food has the wrong balance and aggravates our condition. He feels that natural sources of iodine aren't as harmful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2000 Report Share Posted September 28, 2000 Dear Bonner, Re your family: You don't have to explain yourself to them at all! You kind of hit the nail on the head when you said they want you to go to counseling so that they can feel better. Also, you said you have lots of anger toward them, which you've been channeling as " hurt, " a more acceptable emotion. It seems you explain, and they don't want to listen. So . . . just state your case, e.g., I have thyroid trouble, or whatever you want to say, and leave it at that and let them deal with it! If they can't deal w/the illness of a family member, maybe they should go to counseling! Best, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 I'm terribly ignorant, but is ankylosing spondylitis the ALS referred to in another e-mail? Are all of us subject to a myriad of auto-immune diseases? === Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Rupal, It is best if you list the ranges for your lab (they can differ). Are you concerned that you are being kept at too high a dose of Tap? That might be my concern, depending on how long you have been taking the medication. At 12:28 PM 11/3/2003, you wrote: >Hi All >I had blood test done last week and my results are as follows: >Free T4 is normal at 1.4. >Total T3 is normal at 1.44. >TSH is slightly low at 0.15 (normal range 0.36-5.5 UIU/ML) >I am taking 10mg Tapazole and my endo said continue taking this dose and >going to check my blood again in Dec after 4-5 weeks. >Can any one had this kind of result while diagnized with HyperT? >Any suggestion please on this results? Is my endo doing right thing? >Thanks, >Rupal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Hi Rupal, It seems like your numbers are very good, and if you're feeling well, then your doctor is doing the right thing. The typical maintenance dose for Tap is between 2.5 and 10mg. Perhaps you will need a reduction next time. Just watch yourself for any hypO symptoms, and if you feel them, you should ask to have blood work done at that time. The T4 and T3 results reflect your current thyroid levels and are key for now, not the TSH, so don't worry that it is low. The TSH can take a long time to come up (probably when you approach remission). My TSH came up when I was overmedicated, but then went back down when I was on a more appropriate dose. It is best to have Free T3 and Free T4 tests, if you can; total T3 is less accurate. Maybe you can have your doctor run that one for you, at least every so often. At 02:21 PM 11/3/2003, you wrote: >Hi >I have been on 10mg Tapazole since Sep 16th. Before I was on 20mg. >The normal range for FT4 is 0.7-1.8 NG/DL >Total T3 is 0.6-1.8 NG/DL >Thanks, >Rupal Quote Link to comment Share on other sites More sharing options...
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