Re: help needed in south africa

[Guest guest]

I have a son with autism + Seizures, let me tell you what I did. (he is now seizure free) I had him on dilantin for a long time, and it finally wasn't doing the job, and then there was tegretol, even worse. I titrated them all down AGAINST my doctors wishes LOL. Let's look at the bigger picture here. I am going to number my interventions in the order in which I think were the best to persue. By the way..80% of children with autism have seizures. This is usually brought about by the lovvely DPT shot!

1. CHELATE all heavy metals out of the brain. This is coming from childhood vaccinations, water, environement, fish. Usually our kids have MERCURY, LEAD and ALUMINUM. These may be the SOLE cause of seizures and autism. The final fronteir so to speak to permantely remove this crap out of the brain may awaken the child or stop seizures all together.

(personally, I have not done this, but I think it is my next step-waiting for preliminary studies)

2. Take him off ANY sources of flouride, toothpaste, dentist visits, water, bathing. Take him off chlorine as well, all the same sources.(Swimming pools wah)

3. Titrate ALL medications down as you rise up with TMG + folic and B-12, TAURINE, B-complex with High B-6 ie www.kirkmanlabs.com . Kirkman also sells ORAL CHELATION for heavy metals, you need a physician to follow that with you and a prescription.

Look into Enzymes, substrates of enzymes, fatty acids, amino acids...that combination is mightely powerful if they are off, usually they are. Also look into AMBROTOSE from mannatech, an aloe product that helps heal the epilethial layers of the gut and helps with immune system regulation

4. Do a QEEG to find out blood flow. OR a NEUROSPECT to find blood flow. Those will show the siezures and by what part of the brain is seizing. This will be a fascinating approach for you, and why possibly the child is seizing.

5. Make sure that you have the child sleep at least 9 hours a day. I have found this is often overlooked.

6. Put in the sleeping room a negative ion machine. This helps clear virals and toxins in the environment as well as helps raise seratonin. Also get rid of a flame retardent mattress, this outgasses ANTIMONY, seen in alot of our kids metals tests. If he already has high seratonin, forget the ion machine. Most if not all of these kids have abnormal neurotransmitter function, either too much dopamine and seratonin, or too little.

7. Do an epsom salt bath every night before bed, a good soak (with a filter on the tap) for 30 minutes, dab dry, not rub dry. Kirkman will be coming out with a cream soon (per a meeting I had with them).

8. Sometimes these kids have TOO MUCH GABA. Test for that. Also Microhydin helps mainting a healthier alkalide environment in the body (royal body care). Think about how to balance the delicacy of pH, which does have a lot to do with seizure control. Look at any ketogenic sources and they will say the same thing. Basically that means most prepped foods are acidic in nature, all others are alkaline. A little on alkaline is what you want to achieve.

9. Fix the gut. This means NO GLUTEN, NO CASSEIN (milk or wheat) even in the minutia of doses, (a crumb can do them in). HIGH FATS NO TRANSFATS NO MARGARINES. Try also MONOLAURIN + )(a lauric acid supplement). Generally speaking, a PALEOLITHIC type of diet (www.paleo.com )

10. Cranial Sacral Therapy-I think there is a physical fascial blockage in our kids and or chiropractic work, which pinches nerves and blood flow to the brain. Sometimes these kids have heretofore some kind of birth injury not yet recognized.

11. Check to see if the child has THROMBAPHILIA (www.gnd.com ). This is a clotting disorder. The impact on the brain is enormous. Usually in mom there are signs of it, Chronic Fatigue, Brusiing easily, tires easily...I know, that can be confused with having an autistic child LOL. For the autistic child they are calling it immune system activation of coagulation...not good, this would reduce blood flow and kind of supports the theory of Dr Goldstein of blood flow blockage in the brains of CFS and Autism patients.

12. Check to see if the child is deficient in ZINC. Most of our kids are. This usually effects S-adenosyle-Hcy which either impairs or excess methyliation in the body. Methyliation is needed to remove metals. Most of our kids are also deficient in Magnesium and Sulphar as well (thus the epsom baths).

13. SamE, Serine, B-12 injections, Folate and B6 as well as IV C vitamins are also helpful in seizure control..

14. Do a Urine Peptide Analysis, Casomorphins or Gluteomorphns or IAG test (the opiod theory is powerful in seizures...check for yeast, parasites, bacteria and viruses)

15., Do a Urine Amino acids test. Please email Mark Schuass of CARBON BASED CORPORATION (do search). He cured his daughter of seizures PERMANATELY with amino acid targeted pharmacueitcal grades.

16. A stool analysis of parasites, dysbiosis and digestive factors. This would reveal if you need more BETAIN HCL or other things to further help the gut break down proteins. Many of our kids build up poisins becuase they are not breaking down these proteins.

17. A food and inhalent workup, blood cell element analysis or toxic chemical panel, and even oxidative stress panel

18. 5 mg of methione + DMAE, L-Glutamine, EnZYMEaid, ANTIOXIDANTS (even grape seed exctract), ZINC (not with meals), Calcium and Magnesium, Phosphytleserine, Pregnelelone, Ginko Biloba and possibly look into FGF-1 or homeopathic formulations of same. Brewers Yeast or Essiac tea some report also help.

19. Check the immune complement system (c4b anulles). This immune problem handles all the autoimmune aspects of the body, in which if screwed, can attack tissue in gut, myelin and other lovely areas. This calls for immune MODIFICATION, NOT BOOSTING, ie ambrotose, MGN-3, transfer factors(without cassein).

20. Check to see if you have an underlying thyroidal problem. TSH test are often unreliable. I give my kids a natural glandular product that has thyroid glandulars, spleen glandulars, thymus etc. At most health food stores. This is also often overlooked.

I hope this helps you.

[ ] help needed in south africa

I am posting from South Africa where we do not have a specialized doctor for autism and Epilepsy(believe it or not!) and I have yet to find a doctor ever the slightest interested in anything alternative!!!

we are seeing a pediatric neurologist next week and I need some advice beforehand, so am hoping that you, the experts, may be able to help.

we have been down the anti-convulsant route before (granted a long time ago) epilum did nothing to control the fits and tegratol almost killed him. , now almost three years has been off drugs for almost two years but in the last6 months his fits have become out of control: 1/2/3 during hislunchtime sleep and between 2/5 at night, these last for a minute and seem as if he is gagging, he also has what we call " shocks " anywhere from 1 to 10 a day which are about 10 seconds worth of jerking eye movements ( hope my descriptions are addequite). is also autistic and we have been doing the natural supplements for both conditions, but took him off everything to start from scratch as it was clear something was agreeing with him( autism improved) and something was not (fits increased).

the reason i'm writing is this...the neurologist is going to say one thing...ANTICONVULSANT! fair enough, but i want to make an informed decision.So here are my questions...

1.) Is anticonvulsants the only alternative to treat seizures?

2.) We've tried: DMG. GABA, Taurine... are we missing something???

3.) What are the dangers of anticonvulsants???? is there a safe one

4.) I've heard lots of mention of Depakote???? Anticonvulsant? What makes it different????

5.) If EEGs are comming back normal, how does it explain fitting???

6.) is it common to have three or four different types of seizures??

7.) why always when he is sleeping????

8.) I've noticed when the fits are bad the autism is good and visa versa...weird??

up untill now my main focus has been the autism, but I need to do the best for him, and that includes getting the fits under control...even if it means going the drug route....

look forward to getting a response from you... you really are a life line

regards

janine _