Re: Digest Number 1831

[Guest guest]

Hi

My name is and i am 37 years old and new to the group. I have been

diagnosed with Sero-Positive Rheumatoid Arthritis since January 2000. I also

have a disease called Relapsed Polychondritis and Fibromyalgia.

I am currently on the following medications:

Prednisone 20mgs

Methotrexate 9pills a week 2.5mgs

Remicade 620mgs every four weeks

Celebrex 200mgs 2 pills a day

Ultram as needed

Toradol injections

I have been on the Remicade treatment for a year now and so far have had VERY

minimal relief. I didnt have relief until my dosage was moved up to 500mgs at

the time which was two months ago. Its now at 620mgs. My relief only lasts

for about 2-4 days and then i am right back to normal. I have constant

swelling and pain.....

My doctor wants to order Pain Management for me in the fall when my Medicare

kicks in.

I am very worried that medicine has not really helped and scared that i am

putting all these toxics in my body that may be of no help. Are any of you on

Remicade? And if so, did you find any relief? Do any of you get it every four

weeks as i? I would love to hear from those of you who get the Remicade

treatments.

Also, what pain meds are all of you on? I am on Ultram and was on

Darvocet......Darvocet didnt work at all and Ultram certainly isnt helping

either. Are there any other meds out there for pain that a doctor would be

willing to prescribe for me that would work for pain?

And lastly, i will be starting the Toradol injections next Tuesday when i see

my doctor. He has already prescribed them for me and i will bring them in for

his nurse to teach me how to inject myself Tuesday. I am not even really sure

what this Toradol is used for-pain or anti-inflammatory? Do any of you use

this medication in this form? Any input would be appreciated.

Thanks for the opportunity to post here. Hope to hear from some of you soon.

Wishing all of you the best of health and life...

[Guest guest]

Dear :

Hi, my name is . I am not on Remicade. I have RA and fibro and other

things. I just wanted to mention that there are other pain meds out there.

It is the Doctor you have to ask to put you on something that works for you.

If this Doctor is not getting you out of pain then please find another one

that will.

Sincerely, Colletti

Anjillah@...

[Guest guest]

Hi ,

I am 33, just recently diagnosed and just beginning treatements. I

am now on MTX as of Wed. Don't have any suggestions, but I am sure

there are lot of people here who do. I just wanted to welcome you

and let you know what a great group you have joined. You will find a

lot of love and support here.

> Hi

>

> My name is and i am 37 years old and new to the group. I have

been

> diagnosed with Sero-Positive Rheumatoid Arthritis since January

2000. I also

> have a disease called Relapsed Polychondritis and Fibromyalgia.

>

> I am currently on the following medications:

>

> Prednisone 20mgs

> Methotrexate 9pills a week 2.5mgs

> Remicade 620mgs every four weeks

> Celebrex 200mgs 2 pills a day

> Ultram as needed

> Toradol injections

>

> I have been on the Remicade treatment for a year now and so far

have had VERY

> minimal relief. I didnt have relief until my dosage was moved up to

500mgs at

> the time which was two months ago. Its now at 620mgs. My relief

only lasts

> for about 2-4 days and then i am right back to normal. I have

constant

> swelling and pain.....

>

> My doctor wants to order Pain Management for me in the fall when my

Medicare

> kicks in.

>

> I am very worried that medicine has not really helped and scared

that i am

> putting all these toxics in my body that may be of no help. Are any

of you on

> Remicade? And if so, did you find any relief? Do any of you get it

every four

> weeks as i? I would love to hear from those of you who get the

Remicade

> treatments.

>

> Also, what pain meds are all of you on? I am on Ultram and was on

> Darvocet......Darvocet didnt work at all and Ultram certainly isnt

helping

> either. Are there any other meds out there for pain that a doctor

would be

> willing to prescribe for me that would work for pain?

>

> And lastly, i will be starting the Toradol injections next Tuesday

when i see

> my doctor. He has already prescribed them for me and i will bring

them in for

> his nurse to teach me how to inject myself Tuesday. I am not even

really sure

> what this Toradol is used for-pain or anti-inflammatory? Do any of

you use

> this medication in this form? Any input would be appreciated.

>

> Thanks for the opportunity to post here. Hope to hear from some of

you soon.

> Wishing all of you the best of health and life...

>

>

[Guest guest]

hi tanya, i just did my 2nd treatment with remicade on tuesday. i called my

foot dr today to schedule an appt, my feet are hurting already. also had

darvocet, tylenol 3 ultram, been on enbrel, arava, all the

anti-inflammatories.

kathy

[Guest guest]

Hi ,

Welcome to our group. I'm sorry you haven't been able to

get your RA under control with meds yet. I had toradol

injections after my knee replacements in the hospital. It

is a very potent anti-inflammatory, and was the best med

I've ever had after surgery. I didn't realize that they

prescribed it. I hope it gives you the relief that I got

from it. If it brings down your inflammation, your pain

will also be decreased since it's the inflammation that

causes a great deal of the pain.

I take vicodan for pain. I had ultram after my knee

replacement and was told that it was good for bone pain.

I'm not on Remicade, so I don't have any experience with it.

I'm on Enbrel, vioxx & MTX, and I share your concerns about

the toxic drugs. I am more afraid of the damage from the

disease than the toxicity of the meds. I've already had

both knees replaced, and my ankles are shot. The disease

is now claiming my elbow. At least they've gotten better

with elbow replacements. I also have FM, for which I take

antidepressants for. I'm looking forward to getting to know

you.

a

-----Original Message-----

From: osmonddoll@... [mailto:osmonddoll@...]

Sent: Friday, May 25, 2001 12:46 AM

Subject: Re: [ ] Digest Number 1831

Hi

My name is and i am 37 years old and new to the

group. I have been

diagnosed with Sero-Positive Rheumatoid Arthritis since

January 2000. I also

have a disease called Relapsed Polychondritis and

Fibromyalgia.

I am currently on the following medications:

Prednisone 20mgs

Methotrexate 9pills a week 2.5mgs

Remicade 620mgs every four weeks

Celebrex 200mgs 2 pills a day

Ultram as needed

Toradol injections

I have been on the Remicade treatment for a year now and

so far have had VERY

minimal relief. I didnt have relief until my dosage was

moved up to 500mgs at

the time which was two months ago. Its now at 620mgs. My

relief only lasts

for about 2-4 days and then i am right back to normal. I

have constant

swelling and pain.....

My doctor wants to order Pain Management for me in the

fall when my Medicare

kicks in.

I am very worried that medicine has not really helped and

scared that i am

putting all these toxics in my body that may be of no

help. Are any of you on

Remicade? And if so, did you find any relief? Do any of

you get it every four

weeks as i? I would love to hear from those of you who get

the Remicade

treatments.

Also, what pain meds are all of you on? I am on Ultram and

was on

Darvocet......Darvocet didnt work at all and Ultram

certainly isnt helping

either. Are there any other meds out there for pain that a

doctor would be

willing to prescribe for me that would work for pain?

And lastly, i will be starting the Toradol injections next

Tuesday when i see

my doctor. He has already prescribed them for me and i

will bring them in for

his nurse to teach me how to inject myself Tuesday. I am

not even really sure

what this Toradol is used for-pain or anti-inflammatory?

Do any of you use

this medication in this form? Any input would be

appreciated.

Thanks for the opportunity to post here. Hope to hear from

some of you soon.

Wishing all of you the best of health and life...

[Guest guest]

In a message dated 6/3/01 3:16:22 AM Eastern Daylight Time,

writes:

<<

Message: 6

Date: Sat, 02 Jun 2001 16:35:00 -0000

From: jschm47974@...

Subject: Insomnia

Hey All,

I am completing my 6th week antibiotic free, and am making it so

far. I have symptoms, but mot any more than when I was on Rocephin.

I >>

Jim: Are you on oral antibiotics now? If not, I don't understand why your

doctor would stop you " cold turkey " if you are STILL having symptoms? My

doctor's theory is to keep me on the meds until I am " symptom-free " for two

months. Not to say that I didn't relapse several times but she finally found

a combination ( Biaxin/plaquinel) that has worked

for me and now I haven't had a symptom for almost 3 1/2 years. I had been on

and off meds since 1993. You might want to discuss this with your doctor.

Good luck. Mona

[Guest guest]

What you have to remember is that we all have this problem from different

routes and what will work for one will not work for others.

I have had Candida for 11 years and have learned to live with it as nothing

helped. Due to major stress it ahs now gone out of control and affected my

thyroid, adrenals etc causing extreme pain, weight gain and an ME diagnosis.

Since starting on threelac and hydro+ (halfway through week 4) I have

improved greatly, more so when I have stuck to the diet as I have done

repeatedly over the years. I can tell I am getting better because my tongue

is turning pink again my breath is sweet and I no longer look pregnant. I

went through a major healing crisis last week and I'm sure this is the stage

when most people give up and say it doesn't work however I continued and

feel so fab that when I went to visit my friends who hadn't seen me for

weeks they couldn't believe I could possibly be ill as I looked toned and

healthy. I cheated occasionally during the visit with no ill effects and

have just ordered my next 2 months supply. As it is difficult and costs more

to import it to the uk that shows how happy I am with it.

I went to see a kinesiologist the other day who said that the candida is the

reason for my thyroid problem and wouldn't subscribe any supplements as it

was healing as I was. I also don't need flax seed oil or GSE or HCL's and

have no metal poisoning. Also the numerous allergies I felt I had only

actually include wheat and cows milk. So my aches and pains boiled down to

this one thing which threelac is curing so I don't particularly care if it

is an MLM scam all I know is that it works

Dawn

PS please can people snip below posts as well as above those of us on digest

get them repeated time and again :-)

threelac is an expensive form of lactobacillus sporogenes the only

ingredient that works well agains candida. Threelac is just a more

expensive form of it. I tried threelac and did not get much help

myself. Its probably due to a low amount of lactobacillus sporogenes.

[Guest guest]

Hey, Dawn I was glad to hear that ThreeLac is working so well for you. I have

many of your same problems (allergies thyroid weight gain etc.) and went through

the same thing w/ThreeLac--at first some bloating, looking pregnant ha and

then finally getting over all that and getting better.

I am the same as you, I am just glad we have the product available!

brenda

[Guest guest]

Dawn-

I am glad you are experiencing positive results w/threelac. I should be

receiving some samples soon. I hope it works as well for me. If so, I will

purchase a whole can. I may also experience oxygen elements as well.

-Patty

>From: " Dawn Wood " <dawn@...>

>Reply-candidiasis

><candidiasis >

>Subject: Re: Digest Number 1831

>Date: Fri, 1 Aug 2003 12:31:50 +0100

>

>What you have to remember is that we all have this problem from different

>routes and what will work for one will not work for others.

>I have had Candida for 11 years and have learned to live with it as nothing

>helped. Due to major stress it ahs now gone out of control and affected my

>thyroid, adrenals etc causing extreme pain, weight gain and an ME

>diagnosis.

>Since starting on threelac and hydro+ (halfway through week 4) I have

>improved greatly, more so when I have stuck to the diet as I have done

>repeatedly over the years. I can tell I am getting better because my tongue

>is turning pink again my breath is sweet and I no longer look pregnant. I

>went through a major healing crisis last week and I'm sure this is the

>stage

>when most people give up and say it doesn't work however I continued and

>feel so fab that when I went to visit my friends who hadn't seen me for

>weeks they couldn't believe I could possibly be ill as I looked toned and

>healthy. I cheated occasionally during the visit with no ill effects and

>have just ordered my next 2 months supply. As it is difficult and costs

>more

>to import it to the uk that shows how happy I am with it.

>I went to see a kinesiologist the other day who said that the candida is

>the

>reason for my thyroid problem and wouldn't subscribe any supplements as it

>was healing as I was. I also don't need flax seed oil or GSE or HCL's and

>have no metal poisoning. Also the numerous allergies I felt I had only

>actually include wheat and cows milk. So my aches and pains boiled down to

>this one thing which threelac is curing so I don't particularly care if it

>is an MLM scam all I know is that it works

>

>Dawn

>

>PS please can people snip below posts as well as above those of us on

>digest

>get them repeated time and again :-)

>

>threelac is an expensive form of lactobacillus sporogenes the only

> ingredient that works well agains candida. Threelac is just a more

> expensive form of it. I tried threelac and did not get much help

> myself. Its probably due to a low amount of lactobacillus sporogenes.

>

>

>

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[Guest guest]

- I would conclude that most of the leaders in this field agree

with you, from havnig read their comments in the trade newsletter

Indoor Environment Connections. They don't have the money or backing

to open a two-year course on remediation, or to require a university

degree for certification, because the problem is so immense. I think

the leaders are giving their " pupils " all they think they are willing

to understand and put into practice. A few trade organizations are

more demanding. I ought to make a list of them, so that people who

are new to this issue will know the right questions to ask; or so

their examiners will know why the tests are being made harder as time

goes on.

It's like when the west was frontier territory. When I was young, I

wanted to be on the frontier, and go to Texas or Alaska, but now that

I'm in Texas, I can see that it is important to have laws and

standards that are enforced.

The most hopeful sign of improvement on this topic is the work done

by the IICRC (Institute of Inspection, Cleaning, and Restoration) and

the IICRC (Indoor Environmental Standards Organization). The IICRC

has just published a standard (S520) that will bear the logos of the

Indoor Air Quality Association and the Indoor Environmental

Institute, and sell at a discount so the various organizations can

distribute them to their members.

This is just a beginning. The field is so complex, and so few people

understand all of it, that really big social and technical changes

will have to be made. We won't be around to see a complete or

satisfactory solution to this problem, but maybe we can make a

significant difference in the outcome. I think your comments on

events and official attitudes are very effective, because you get to

the heart of matters, and don't accept any of the assumptions of the

rear guard.

I still haven't put you on the mailing list for the Mold Reporter.

I'll do that now.

Ellen McCrady

>There is 1 message in this issue.

>

>Topics in this digest:

>

> 1. IAQ Certification

> From: " erik_johnson_96140 " <erikj6@...>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 1

> Date: Fri, 19 Dec 2003 21:34:50 -0000

> From: " erik_johnson_96140 " <erikj6@...>

>Subject: IAQ Certification

>

>Impressed by IAQ " experts " who have letters next to their names that

>denote their training and expertise?

>I met an owner of a remediation company who issues such certifications.

>He got into doing more certification and less remediation because he

>now gets blinding headaches when he's exposed and his wife has been

>diagnosed with CFS.

>If he can't keep himself out of trouble, how does he get to certify

>other people as mold experts with the qualifications and knowledge to

>get other people out of this mess?

>I suspect that many of these certifications are BS.

>-

>

>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>

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>

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>

>------------------------------------------------------------------------

>

[Guest guest]

hello again everyone.

To throw a monkey wrench in the statistics, I have

gained about 7 lbs since starting LDN.

Also some words of encouragement for all of you with

sensory type symptoms. They almost always go away, so

don't worry.

It's good you have started LDN, diet and supplements.

Keep that up and keep your MS at bay.

For those of you that have been battling this disease

for 15 to 25 years, you know what I mean. I don't even

get any type of sensory symptoms anymore. Just

battling fatigue, continued weakness in the legs,

balance, bladder & bowel problems.Just want LDN to

stop progression. Sticking with 3 mg so far. not much

symptom improvements at all after 2 months, but will

continue.

ps I know I have some extra yeast, so I am trying to

get rid of it too, so maybe the LDN will work better.

--- low dose naltrexone wrote:

> There are 25 messages in this issue.

>

> Topics in this digest:

>

> 1. RE: Hairloss and LDN

> From: " Bruce Guilmette PhD "

> <bruce@...>

> 2. Re: autism ldn group?

> From: " Johanne F " <johannef@...>

> 3. Re: need help!

> From: " Aletha Wittmann "

> <Aletha@...>

> 4. Re: Hairloss and LDN

> From: " " <pomsaregreat@...>

> 5. Re: Re: Hairloss and LDN

> From: chris bowes

> <sens4life2002@...>

> 6. For Larry

> From: " bentleyfam26 "

> <mclarke@...>

> 7. Re: Re: Raynaud's Disease

> From: <shv0613@...>

> 8. RE: Re: Raynaud's Disease

> From: " RaeAndDoug Bower "

> <radbower@...>

> 9. Re: need help!

> From: " Bren " <b63powell@...>

> 10. Re: need help!

> From: Géraldine <gg_theo@...>

> 11. Re: Re: need help!

> From: " Aletha Wittmann "

> <Aletha@...>

> 12. Re: autism ldn group?

> From: " R. Owen "

> <elisabeth724@...>

> 13. Price of LDN

> From: " blueswede06 "

> <blueswede06@...>

> 14.

> From: " Kortney " <kbooth@...>

> 15. Re: Price of LDN

> From: " Aletha Wittmann "

> <Aletha@...>

> 16. Re: Price of LDN

> From: " Bell "

> <jmbell88@...>

> 17. Re: Price of LDN

> From: " Aletha Wittmann "

> <Aletha@...>

> 18. Re: Re: Raynaud's Disease

> From: " Aletha Wittmann "

> <Aletha@...>

> 19. Re: Hairloss and LDN

> From: " " <pomsaregreat@...>

> 20. For Geraldine & others whose LDN is not

> working

> From: " Bren " <b63powell@...>

> 21. Geraldine & those whose LDN seems to have

> stopped working

> From: " Bren " <b63powell@...>

> 22. New to the group & my 2 cents on weight

> loss

> From: " Amy H " <amylhunt+@...>

> 23. Re: New to the group & my 2 cents on weight

> loss

> From: " Aletha Wittmann "

> <Aletha@...>

> 24. Re: For Geraldine & others whose LDN is not

> working

> From: Géraldine <gg_theo@...>

> 25. Re: autism ldn group?

> From: arlizotte@...

>

>

>

________________________________________________________________________

>

________________________________________________________________________

>

> Message: 1

> Date: Sun, 29 Jan 2006 09:11:38 -0500

> From: " Bruce Guilmette PhD "

> <bruce@...>

> Subject: RE: Hairloss and LDN

>

> Tell you what, don't worry about it. Worry will do

> more for hair loss than

> anything. When I was diagnosed with terminal cancer

> 15 months ago, I looked

> more like a billiard cue than a head. I started

> juicing green vegetables

> with a lot of romaine lettuce and spinach and

> started LDN. I have more hair

> on top of my head now than at any time in the last

> 30 years and more appears

> to be growing.

>

>

>

> Good luck. If nothing grows back you are still safe

> with the old saying,

> " God only created so many perfect heads, the rest he

> covered with hair. "

>

>

>

> Regards,

>

>

>

> Bruce Guilmette, PhD

>

> Survive Cancer Foundation, Inc.

>

> <http://survivecancer.net> Http://survivecancer.net

>

>

> Therefore do not worry about tomorrow, for tomorrow

> will worry about itself.

> Each day has enough trouble of its own. Matt 6:34

> (NIV)

>

>

>

>

> kaush_amin_1977 wrote:

>

> >Hi,

> >

> > I suffer from Male Pattern Baldness and am

> concerned of my hair loss

> >while taking LDN. I was wondering if someone who

> was suffering from MPB

> >experienced an increase in hair loss once they

> started taking LDN.

> >

> >either way I would really appreciate if you could

> share your experience

> >with me on how your hair has responded to LDN.

> >

> >Thanks

> >

> >Kaush

> >

>

>

>

> _____

>

>

>

> [This message contained attachments]

>

>

>

>

________________________________________________________________________

>

________________________________________________________________________

>

> Message: 2

> Date: Sun, 29 Jan 2006 14:30:32 -0000

> From: " Johanne F " <johannef@...>

> Subject: Re: autism ldn group?

>

>

> >

> > Can someone tell me the site to direct her to for

> more info or to

> join the

> > group?

> > Thanks

> > arlene

>

>

> This is from the LDN site :

> http://www.low dose naltrexone.org/ldn_latest_news.htm

>

> As of November 2005:

>

> Evidence Emerges for LDN Use in Autism. We have

> recently become aware

> of information that Jaquelyn McCandless, MD,

> reported last July the

> results of an informal clinical study on 15 of her

> patients with

> autism, using low dose naltrexone (transdermally as

> a cream).

> According to McCandless, " 8 of the 15 children had

> positive responses,

> with five of these 8 having results considered quite

> phenomenal

> according to their parents. The primary positive

> responses have been

> in the area of mood, cognition, language, and

> socialization. All

> participants who completed my study have indicated

> they wish to

> continue, and hundreds of other ASD kids have

> started this non-toxic,

> non-invasive, inexpensive intervention by now. " For

> more information,

> see McCandless' original essay. Further information

> on LDN and autism

> can be found at the Autism-LDN Group and at

> Autism

=== message truncated ===