Re: Jack Suffered a Convulsion Yesterday...Epsom Salts by Mouth?

[Guest guest]

So sorry Cornelia. These things are so frustrating. I would be careful of

grape becuase of its phenolic components. Autistic kids have problems with

this as you know. The other side of the gammitt, is I am getting this

running theory that so much cake eating and gluten free recipes, and carbo

eating for our kids is not really a good idea, rather eating and chewing and

chompin on meat. The Paleo diet is of interest, since it has lots of

TAURINE and B vitamins in it. It may seem contrary to health, but I am of

the opinoin, our kids malabsorp just about everything they eat, and their

brains are starving to death for nutrition! Along with that, the fact that

the dopamine system and catecholimine system is another brain protein with

antibodies against it, screams wildly of DOWN REGULATION therapies. This

may mean ANTI-TNF therapy, and or some kind of steroidal therapy? Am

looking into that at present, since now we even know has antibdoies

against most of the neurotransmitters and hormones in his brain. You can

thank mr vaccintor for that one. Also, some conference notes that may

interest you on this subject are:

http://www.iom.edu/iom/iomhome.nsf/wfiles/

and

GFCFkids/message/78647

Kathy

[ ] Jack Suffered a Convulsion Yesterday...Epsom Salts

by Mouth?

> Hi,

> Yesterday morning our twenty-nine year old son Jack fell out of our big

> bed onto the floor and hit his head. He suffered an apparent convulsion

> - my husband heard the thud and rushed in. He called for me and I

> rushed in to find him cradling Jack, who was trembling all over and not

> really responsive with eyes wide open. Gradually he came 'round;

> paramedics rushed him to the hospital where the attendant GP recommended

> he increase his neurontin from 300 mg three times to 600 mg three / the

> day.

> HERE IS MY QUESTION:

> for his birthday on Saturday I made Jack a huge gluten free cake

> flavored by one and one-fourth cups sugar and used grape jam as a

> filler! Thankfully there was no corn syrup here for icing.

> I read a book once about the ketogenic diet. Have any of you

> experienced large sugar intake as a a cause of epilepsy?

> Our son was an adult before he ever had a true convulsion. His

> stereotopical motor movements were deemed to be psychomotor seizures but

> they never did respond to anticonvulsant drugs.

> Jack has a movement disorder and the doctor is giving him sinemet

> (levodopa) which does indeed help him to move; his dopaminergic

> condition is also tied to weather - I see this is a much researched

> topic by consulting the internet.

> We are fearful of the anti-psychotic and anti-epileptic drugs.

> This morning I gave Jack two hundred mg B6, calcium and magnesium and

> one-fourth tsp. of epsom salts as per Adelle .

> I will welcome any input on this.

> Thanks.

> Cornelia

>

>

>

[Guest guest]

>>... " Have any of you experienced large sugar intake as a a cause of

>>epilepsy? "

YES!!!! I can't eat anything that has simple carbs (i.e., sugar or white

flour, etc.) or I'll have a simple (partial) seizure! I have to weigh in the

protien & fat before I have the carbs as well. & , yes, I'm also linked to

weather: barometric pressure, I've found, is a big part of my seizures.

>From: " john moisuk jr. " <moisuk1@...>

>Reply-

>Epilepsycured

>Subject: [ ] Jack Suffered a Convulsion Yesterday...Epsom Salts

>by Mouth?

>Date: Mon, 04 Mar 2002 08:45:54 +0000

>

>Hi,

>Yesterday morning our twenty-nine year old son Jack fell out of our big

>bed onto the floor and hit his head. He suffered an apparent convulsion

>- my husband heard the thud and rushed in. He called for me and I

>rushed in to find him cradling Jack, who was trembling all over and not

>really responsive with eyes wide open. Gradually he came 'round;

>paramedics rushed him to the hospital where the attendant GP recommended

>he increase his neurontin from 300 mg three times to 600 mg three / the

>day.

>HERE IS MY QUESTION:

>for his birthday on Saturday I made Jack a huge gluten free cake

>flavored by one and one-fourth cups sugar and used grape jam as a

>filler! Thankfully there was no corn syrup here for icing.

>I read a book once about the ketogenic diet. Have any of you

>experienced large sugar intake as a a cause of epilepsy?

>Our son was an adult before he ever had a true convulsion. His

>stereotopical motor movements were deemed to be psychomotor seizures but

>they never did respond to anticonvulsant drugs.

>Jack has a movement disorder and the doctor is giving him sinemet

>(levodopa) which does indeed help him to move; his dopaminergic

>condition is also tied to weather - I see this is a much researched

>topic by consulting the internet.

>We are fearful of the anti-psychotic and anti-epileptic drugs.

>This morning I gave Jack two hundred mg B6, calcium and magnesium and

>one-fourth tsp. of epsom salts as per Adelle .

>I will welcome any input on this.

>Thanks.

>Cornelia

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