I had posted because I had not responded to several courses of cipro and....

[Guest guest]

Not responding to antibiotics; received this advice

from the list but allergic to most antibiotics. i was

told by one " mold expert " that he thought I had mold

immune toxicty. Wanted $5K worth of tests to verify

this, money that is of course not covered by

insurance. I am alraedy on medical leave and my

position has been eliminated so trying to be careful

with money till I know what's what. I agree that since

I still have symptoms of infection (bladder from what

I can tell) I should remain on antibtiocs but my

primary care doc didn't agree and then the problem

becmes my anaphylatic reaction to most medications. I

have been officially documented through

hospitalization wtih anaphylatic reaction to PCN,

sulfa, keflex, erythomycin. I can tolerate zithromax

but have nevr ever responded and have always had to

end up on cipro.

A month ago, I was put on a med in the cipro family

for 10 days and then 5 days on cipro itself. Waiting

for urology referral but waiting for specialist

referrals and the apppts a month later is the story of

my life so I wait.

a suggested zithromax, see above. You asked about

eye antiobtiocs. I have been on more eye antiobtiocs

than I can discuss. I am allergic it appears to the

preservatives or other components including the yellow

dyes (tartrazine), sodium edetate even. I was on cipro

eye drops. We knew I could tolerate cipro but not the

eye drops which resulted in the top half of my head

eyes, cheeks, face, remaining bright purple and

inflamed looking with horrendous conjunctivitis

symptoms.

Interestingly, after 15 months straight of eye

infection not resolving, the 10 days of levaquin

resulted in an eye problem that resolved completely.

.....well sort of. Except now I am told the infection

this time looks herpetic in nature, not herpes

specifically and indeed the hospital calls a few weeks

later (this week) to say the only culture positive was

for staph which the cornea opthamologist said would be

normal . (Med notes from docs refer to them as ulcer

lesions) In any case, I am now 6 weeks free of

sym[ptoms of infection in my eye but I now have what

is being called trigeminal neuralagia or a shingles

like PHN. Neuro shakes his head, not sure, maybe

Bechets, waiting for MRI Monday and appt he has with

me on Friday but meanwhile he won't take my calls and

won't see me despite increasingly worse neuro

symptoms. Being 3 days post my latest 5 days on cipro

made me wonder about the CNS symptoms (exactly what is

going on) I am having. A local ER gave me narcotic

pain meds over the weekend but I didn't fill them.

Pain meds are not something that provides me much

relief so I wait it out.

The writer said 2. DO NOT TAKE CIPRO OR ANY QUINOLONE

FOR ANYTHING. This family of

antibiotics is extremely dangerous. But now my docs

and I both struggle with okay what do I take that

doesn't cause anaphylatic reaction or the larynx

swelling or severe hives.

You said will cause central nervous system damage

sometimes within 3 days so my response since cipro has

been the only drug of choice for more than 10 years

(except this course of levaquin in the hospital),what

exactly do they give me.

You said There is no need to ever take this family of

antibiotics. But my response is see above. Zpacks

don't work and I haven't been precribed anyother RX

(see comments above). My family care doc I think

screams when I come in for yet another referral appt.

So now what????

Did the doctor give you an antibiotic in an eye

drop? Yes, but which one did I not have allergic

reactonis to. No opthamologist has come up with a new

one to try that doesn't turn purple streaks across my

eyes and forehead or worse symptoms. For example, they

dropped the eye drop last month in the hospital when I

was getting the levaquin and then oral cipro. The

cipro eye drops may have been the worst reaction but

then the plain saline at the market with sodium

edetate had bad reactins too. 4 years ago, I could

have used any product.

a said her son took an eye drop so I was wondering

which one. do you have any other ideas or specialists

I should see. The workup at the moment remains the MRI

of head ande waiting for the neuro and rheum appts

later in the month and a new referral to a urologist

but no appt or specialist approval received from, doc

as of yesterday's follow up call.

tentative diagnosis are bechet's, this post shingles

neuralagia, and other essentially guesses. Some of the

abnormal lab work was included in the last email and

included:

SED Rate High 25

CRP 10.2 told this means inflammatory

process

carbon dioxide 20 Low

RDW 15.8 High

ALt Liver enzyme 79 H

AST Liver Enzyme 45 H

Bun/Creatine Level 38.3 H

Mixed flora in urine

Temps ranging from 100-102 in doctor's office and at

home

Culture from eye while in hospital has finally come

back as positive with high quantities of staph. I

was

on cipro from 7 days and again for 5 days with no

resolution of symptoms. They did not put me back on

antibiotics.

Very poor followup care from primary care docs and

specialists and lots of pressure from my company due

to medical leave

Need help, ideas?