Re: Re: Mold and MS/Demyelination

[Guest guest]

Jewel, do you think it would be worth the money and effort for most of us to have the Immunoscience test done? I am pretty sure I react to moldy buildings, and I wonder if the test is going to be useful. I mean, what steps would be taken different from now without the tests?

a Carnes

Hi;I was exposed to toxic mold (Confirmed by tests) for about 18 months and 12 doctors before being diagnosed with demylinization/MS among a myriad of other autoimmune problems... There is a good explaination of how some molds can trigger an immunotoxic response, to include an MS like syndrome, on the Immunosciences website. http://www.immuno-sci-lab.com/2003_cat_molds.htmMy best to your sister....I can certainly appreciate what she's going through.

[Guest guest]

Thanks, ajewel, sounds like good advice to me. I just saw Dr. Shoemaker and started on Actos and Questran this week. He certainly doesn't question that I react to mold. So I am going with the tests he did already and hoping for the best. I know there are others on this list who have seen him. I will try to post as to how I am doing. I guess some respond to his protocol and some do not. We shall see.

a Carnes

Hi a,The decision to have the tests should be an individual one. As far as what can be done differently, I guess alot depends on if one already has a Doctor treating them for an Immunotoxic or Neurotoxic reaction to mold. If your Doctor buys into the fact that it is mold making you sick, the tests would really do nothing but confirm it.If like me you have trouble finding a Doctor to listen, presenting these test findings showing the abnormal levels of antibodies to specific toxic molds does get their attention a bit, but then, they still might not know how to treat it. I was sick for 15 months before I could find anyone to say anything other than , "You are just depressed..." then....they treat the MS like syndrome, but not the mold. There are other factors to consider. Expense, if you don't have insurance to cover the tests, whether you may need them for any legal action, etc. For me, I'd like to see as many people as possible who have an MS like syndrome, and a known exposure to toxic mold, get the tests and have them documented into some type of database...so maybe one day in the future, enough Doctors and the CDC will say there is a definite link, insurance companies, business and rental and property owners will need to be accountable, and maybe, just maybe, this tragic and horrible progressive disease can even be prevented in some cases.> Jewel, do you think it would be worth the money and effort for most of us to have the Immunoscience test done? I am pretty sure I react to moldy buildings, and I wonder if the test is going to be useful. I mean, what steps would be taken different from now without the tests? > a Carnes> > > > Hi;> > I was exposed to toxic mold (Confirmed by tests) for about 18 months > and 12 doctors before being diagnosed with demylinization/MS among a > myriad of other autoimmune problems... There is a good explaination > of how some molds can trigger an immunotoxic response, to include an > MS like syndrome, on the Immunosciences website. > > http://www.immuno-sci-lab.com/2003_cat_molds.htm> > > My best to your sister....I can certainly appreciate what she's going > through.