Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 In a message dated 12/11/2001 9:58:55 AM Central Standard Time, jochs83@... writes: > it is like mourning a death, only > it isn't a person, it is a part of yourself. > > Juli > You are so right, Juli. I have been treated for depression for years, long before I was ever diagnosed. A big factor to that depression is the losses you're talking about. I have a good therapist now, and with his help I have learned to acknowledge and grieve for those losses, then move on. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 The most awful aspect of CMT is the life losses. Let me explain, in my childhood, teens and early adult years I rode horses competively, even dabbled on being a jockey. But for some " unknown " reason, I kept noticing that I was having greater and greater difficulty holding on to the horse, so I quit. I attended college, I graduated with low grades, mostly because I couldn't hold onto a pen and write notes, some of the teachers were sympathetic, but most were not. All I'm saying is that it is difficult to find things you like only to have to give them up at some point, it is like mourning a death, only it isn't a person, it is a part of yourself. Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 I agree Juli. I used to be a semi pro French Horn player, I also played all brass instruments various woodwind and strings also the guitar and piano. Now I can't hold the horn, my wrists won't turn enough even if it didn't hurt to play the guitar and although I still have a go on the piano it hurts like hell. And we should grieve for that which we've lost that was so important to us but most people just wouldn't understand that. Big hug Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer " I Thank God for my handicaps, for through them, I have found myself, my work, and my God. " - Helen Keller ----- Original Message ----- From: jochs83 Sent: Tuesday, December 11, 2001 3:57 PM Subject: [] Re: Symptoms The most awful aspect of CMT is the life losses. Let me explain, in my childhood, teens and early adult years I rode horses competively, even dabbled on being a jockey. But for some " unknown " reason, I kept noticing that I was having greater and greater difficulty holding on to the horse, so I quit. I attended college, I graduated with low grades, mostly because I couldn't hold onto a pen and write notes, some of the teachers were sympathetic, but most were not. All I'm saying is that it is difficult to find things you like only to have to give them up at some point, it is like mourning a death, only it isn't a person, it is a part of yourself. Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 I wholeheartedly agree on the losses. I was diagnosed at age 4 and started wearing AFOs at age 5. I had multiple surgeries growing up such as tendon transfers, bone grafts, ankle fushions, but was still able to run, jump, hike, play with other kids, swim, ride my bike, and do all sorts of things. As I got older and grew bigger it was almost like my muscles couldn't keep up with me and I got weaker and weaker. I think the worst thing I did for myself was to buy a moped at age 15. Prior to that summer I rode my bike everywhere. Once I got the moped I stopped getting the exercise biking gave me and I started to get weaker and weaker. Similar thing happened with my job. I worked for 2 years as a retail manager in Atlanta, GA and was on my feet for 8 hours a day. This was pure hell at first and I thought I'd never make it and never be able to handle it. Gradually I grew stronger and stronger until I had very little balance problems and was able to unpack stock and merchandise the store, etc... After my divorce I moved back to Michigan 2 years ago and got a job where I sit at a desk for 8 hours a day. I am MUCh weaker now even though I do stretching exercises at home. I wish I had never given up the strength that I had and I can tell it has a direct correlation to ceasing the physical exercise I was doing. What I really wish though, is to be able to run again...to be able to wear shorts in the summer or skirts without people staring at me...to be able to feel comfortable at the beach or at pool parties....to wear sandals.....to be able to easily climb stairs..... It's torture to miss these things and sometimes I get so down on myself and so depressed, but at least I can sit here and thank God that I was able to experience those things even for the short amount of time that I did. Stay strong! :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 , I am one of those people with CMT who finds that excercise makes me stronger. I have heard many people tell me that excercise will make my CMT worse but I find just the opposite to be true for me. Start a basic excercise program and build your self back up, you can do it. It will take time and effort but the end results are worth it. Good luck. Regards, BC ----- Original Message ----- From: <sdgiftos@...> < > Sent: Tuesday, December 11, 2001 5:01 PM Subject: Re: [] Re: Symptoms > > I wholeheartedly agree on the losses. I was diagnosed at age 4 and > started wearing AFOs at age 5. I had multiple surgeries growing up such > as tendon transfers, bone grafts, ankle fushions, but was still able to > run, jump, hike, play with other kids, swim, ride my bike, and do all > sorts of things. As I got older and grew bigger it was almost like my > muscles couldn't keep up with me and I got weaker and weaker. > I think the worst thing I did for myself was to buy a moped at age 15. > Prior to that summer I rode my bike everywhere. Once I got the moped I > stopped getting the exercise biking gave me and I started to get weaker > and weaker. > Similar thing happened with my job. I worked for 2 years as a retail > manager in Atlanta, GA and was on my feet for 8 hours a day. This was > pure hell at first and I thought I'd never make it and never be able to > handle it. Gradually I grew stronger and stronger until I had very > little balance problems and was able to unpack stock and merchandise the > store, etc... > After my divorce I moved back to Michigan 2 years ago and got a job > where I sit at a desk for 8 hours a day. I am MUCh weaker now even > though I do stretching exercises at home. I wish I had never given up > the strength that I had and I can tell it has a direct correlation to > ceasing the physical exercise I was doing. > What I really wish though, is to be able to run again...to be able to > wear shorts in the summer or skirts without people staring at me...to be > able to feel comfortable at the beach or at pool parties....to wear > sandals.....to be able to easily climb stairs..... > It's torture to miss these things and sometimes I get so down on myself > and so depressed, but at least I can sit here and thank God that I was > able to experience those things even for the short amount of time that I > did. > Stay strong! :-) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 I'm hoping someone out there can help me. In September, I started a job in a high school as a teacher's aid. In October I came down with a bad case of hives. I still have the hives. I also have unexplained fatigue, headaches, joint pain, problems concentrating, swollen hands and feet, multiple sinus infections, nose congestion, red burning itchy eyes. There is visible mold on the ceiling tiles of my classroom and visible water damage in the gym. Are any of these symptoms shared by anyone out there? I have another appointment with the allergist today. I've been on medication since October for the hives, but my symptoms are just getting worse. Quote Link to comment Share on other sites More sharing options...
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