Re: Fw:A bizzarre theory

June 7, 2002

I have a theory to propose to you all. You will probably think I fell off of

my rocker but hey when you don't get much sleep...

However, please bear with me, getting a point accross is not one of my strong

points. I was reading the website on s Hopkins ketogenic diet

yesterday and the statement " Nobody knows why this diet actually works for

some children " played over and over again in my mind.

I think I mentioned to the group that was diagnosed with a ameoba

parasite a couple of years back (Dientamoeba fragilis). It is a protozoa,

suppossible a harmless critter who lingers in the intestinal tract. The

doctor that found it was very nonchalant about it and asked did I want to

treat. Of course I said yes, who in the heck wants to live in harmony with a

parasite?

Because I found it interesting I choose this little critter to do a research

paper on. What I found surprised me. First of all doctors are under the

impression that this parasite is harmless, which I found otherwise. Different

people are affected by it differently. There is a lady who suffered with this

organism for seven long years, numerous symptoms, she actually lost her job,

had to seek alternative medicine because the doctors all said she suffered

psychological factors, that nothing was wrong with her.

Fact was, that this parasite had very little research done on it. It is even

classified wrong under flagellates and it does not even have a flagella. (I

know this statement probably means nothing to you- I am just making a point

that there is lack of research on this organism).

However, I am getting to the point. This parasite lives in the large

intestines where it feasts upon the normal flora (bacteria in our intestinal

tract that are responsible for production of vitamins). Of course we all know

that bacteria love carbohydrates, simple or complex.

With the ketogenic diet, from my understanding, eliminates or minimizes

carbohydrate intake, therefore, decreasing bacteria that ferment sugars,

therefore, the parasite does not get its meal which leads to decreasing, or

after 2-3 years on this diet, irradicating the parasite.

I know you probably say with so many brilliant doctors out there, if this

were true they would have found it already. I don't think so. When doctors

check for parasites they usually check for ascaras, pinworms or some other

obvious large parasite. Even if they did think to check for an amoeba, they

are conditioned in medical school that this organism is harmless.

From the research I done,

I learned that it takes a " trained " eye to detect this organism. Not only can

it be mistaken for something else once it is detected but the preservation

process of the stool culture and the staining process have to be done a

certain way or you never see the organism. It is anarobic so it does not

tolerate air exposure- dyes in twenty minutes when exposed to the air. Anyone

ever had their stool tested within 20 minutes of defecation???

Long story short what if this organism is at the root of some of our

problems. Many of us believe, including me, that there is a connection

between the seizures and the gut. What if this organism does travel the vagus

nerve, or is somehow responsible for the seizures by depriving nutrients

(vitamins that those bacteria give us, which by the way are some B vitamins).

As I said, this is a theory. Last year I came up with so many theory, I could

have written a book. Needless to say, they were all wrong. But then again

Edison tried over a 100 times and failed over a 100 times before he

actually came up with the right way. So maybe there is hope for me.

If anyone wants to check into this. Seek an alternative health doctor and use

Great Smockies Lab in Ashville, NC they have plenty of experience in

detecting this organism. There is a three day stool culture that has to be

done. I think the first day is purge and then the two additional days are

normal. The organism is called Dientamoeba fragilis.

Tracey

June 7, 2002

Tracey

WOW..... what a wonderful 'thinking outside of the box'! Don't stop now.

And, please do not apologize for your creativity.

mjh

In a message dated 6/7/02 8:58:01 AM Eastern Daylight Time,

Traceygrubbs@... writes:

> I have a theory to propose to you all. You will probably think I fell off of

> my rocker but hey when you don't get much sleep...

> However, please bear with me, getting a point accross is not one of my

> strong

> points. I was reading the website on s Hopkins ketogenic diet

> yesterday and the statement " Nobody knows why this diet actually works for

> some children " played over and over again in my mind.

> I think I mentioned to the group that was diagnosed with a ameoba

> parasite a couple of years back (Dientamoeba fragilis). It is a protozoa,

> suppossible a harmless critter who lingers in the intestinal tract. The

> doctor that found it was very nonchalant about it and asked did I want to

> treat. Of course I said yes, who in the heck wants to live in harmony with

> a

> parasite?

> Because I found it interesting I choose this little critter to do a

> research

> paper on. What I found surprised me. First of all doctors are under the

> impression that this parasite is harmless, which I found otherwise.

> Different

> people are affected by it differently. There is a lady who suffered with

> this

> organism for seven long years, numerous symptoms, she actually lost her

> job,

> had to seek alternative medicine because the doctors all said she suffered

> psychological factors, that nothing was wrong with her.

> Fact was, that this parasite had very little research done on it. It is

> even

> classified wrong under flagellates and it does not even have a flagella. (I

> know this statement probably means nothing to you- I am just making a point

> that there is lack of research on this organism).

> However, I am getting to the point. This parasite lives in the large

> intestines where it feasts upon the normal flora (bacteria in our

> intestinal

> tract that are responsible for production of vitamins). Of course we all

> know

> that bacteria love carbohydrates, simple or complex.

> With the ketogenic diet, from my understanding, eliminates or minimizes

> carbohydrate intake, therefore, decreasing bacteria that ferment sugars,

> therefore, the parasite does not get its meal which leads to decreasing, or

> after 2-3 years on this diet, irradicating the parasite.

> I know you probably say with so many brilliant doctors out there, if this

> were true they would have found it already. I don't think so. When doctors

> check for parasites they usually check for ascaras, pinworms or some other

> obvious large parasite. Even if they did think to check for an amoeba, they

> are conditioned in medical school that this organism is harmless.

> From the research I done,

> I learned that it takes a " trained " eye to detect this organism. Not only

> can

> it be mistaken for something else once it is detected but the preservation

> process of the stool culture and the staining process have to be done a

> certain way or you never see the organism. It is anarobic so it does not

> tolerate air exposure- dyes in twenty minutes when exposed to the air.

> Anyone

> ever had their stool tested within 20 minutes of defecation???

>

> Long story short what if this organism is at the root of some of our

> problems. Many of us believe, including me, that there is a connection

> between the seizures and the gut. What if this organism does travel the

> vagus

> nerve, or is somehow responsible for the seizures by depriving nutrients

> (vitamins that those bacteria give us, which by the way are some B

> vitamins).

> As I said, this is a theory. Last year I came up with so many theory, I

> could

> have written a book. Needless to say, they were all wrong. But then again

> Edison tried over a 100 times and failed over a 100 times before he

> actually came up with the right way. So maybe there is hope for me.

> If anyone wants to check into this. Seek an alternative health doctor and

> use

> Great Smockies Lab in Ashville, NC they have plenty of experience in

> detecting this organism. There is a three day stool culture that has to be

> done. I think the first day is purge and then the two additional days are

> normal. The organism is called Dientamoeba fragilis.

> Tracey

>

June 7, 2002

Tracey -- I don't think you're crazy at all. It may

not be the connection to the ketogenic diet. .

..because I doubt this is the case with all kids who

have seizures who are on the diet and have success

with it. . .but I actually think it is reasonably well

documented that parasites can cause seizures. And, no

-- " all those brilliant docs " certainly don't buy into

this. . . I'm not even sure some of the alternative

ones do, because I've asked and I'm still not sure the

answer is correct. Rigth around the time started

having seizures, I noticed a mark, kind of like a bug

bite on her leg. It wouldn't go away and it always

bothered me. . .I've asked everyone. . . .and always

been brushed off. We have had a stool analysis, but I

don't know if it was for parasites. Anyway, I'm

rambling, too. . .but I do not think your theory is

bizarre. I'm sure you've already heard about the

Hulda protocol, but there are several people who

have ceased seizures by " zapping " parasites.--D

__________________________________________________

June 7, 2002

Dear All, When my daughter first had seizures I met a couple whose daughter

had parasites which had caused seizures because they got into her brain.

I've said it before don't let your children play in sand boxes that are not

kept covered when not in use. It's gross but cat's use the sand box and

their parasites are passed into it. Children should not play in dirt that

dogs have used as a toilet. Children should not play with dogs who never get

a bath, the parasites are in the dog hair, and feces. The couple had made a

trip to Mexico and that is where their daughter picked up the parasites. The

doctor who finally found parasites Mexican so he was familiar with the

problem, lack of good plumbing etc. Gail Pike

June 7, 2002

I meant to say was Mexican. Gail Pike

June 7, 2002

DeEtte,

I tried Dr. 's protocol and it was not one bit affective in 's

case. But then again the organism that I am refering to supposibly cannot be

killed with herbs. I have not heard anything about the zapper but we tried it

with no decrease in seizure activity at all.

I am kind of skeptical about mentioning this to the new neuro because I am

sure she will want to give me a referal to the psych unit. Oh well,

Tracey

June 7, 2002

Gail,

Many people think that parasites are a problem dealt with only in other

countries but that is far from the truth. Many people right here in the US

have them but doctors who believe that it does not happen here do not check

for them.

The parasite I wrote about earlier, had been complaining of stomach

pains for months. Every visit to the doctor I received a stupid DX. EX: Once

he said it was from allergies that she was swallowing the secretions from her

allergies and that is what irritated her stomach.

The first couple of visits I politelly asked him to check her for parasites.

Needless to say, I finally had to get real ugly to get the test done and sure

enough she had parasites.

Tracey

June 7, 2002

Tracey,

Any other symtoms that gave you a clue? has a bloated tummy, has had

since a toddler, could this be related?

Hill in NZ

Re: [ ] Fw:A bizzarre theory

Gail,

Many people think that parasites are a problem dealt with only in other

countries but that is far from the truth. Many people right here in the US

have them but doctors who believe that it does not happen here do not check

for them.

The parasite I wrote about earlier, had been complaining of stomach

pains for months. Every visit to the doctor I received a stupid DX. EX: Once

he said it was from allergies that she was swallowing the secretions from her

allergies and that is what irritated her stomach.

The first couple of visits I politelly asked him to check her for parasites.

Needless to say, I finally had to get real ugly to get the test done and sure

enough she had parasites.

Tracey

June 7, 2002

Tracey,

There is nothing absurd about your theory at all. Whlie the little

critter itself may be harmless, the effects it has on the person's

gut is not. She may have developed malabsorption problems which will

lead to impairments of normal metabolic processes and vitamin

deficiencies all of which can lead to seizures. Further she is only a

child. What was the ability of her digestive tract to recover fully

from the infection and imbalances caused by any medications she took?

I did look up the infection and this link to the CDC turned up 6

articles. They have a section where you can contact them. Maybe they

can give you some information on whether the seizures might be

related. Are you much familiar with the kindling theory of epilepsy?

That may shed some light on how the infection may have set in motion

a chain of events which may have resulted in her developing seizures.

Can you send a copy of your paper? It would surely be informative

to read. The CDC basically said not much known--but there is more

research lokking into it recently.

Zoe

Dientamoeba fragilis

Emerging Infectious Diseases Advanced Search

http://www.cdc.gov/ncidod/eid/search.htm

http://www.medinet.net.mx/seguro/Libros//PARTXVI/ID006.htm -

seizures can be a symptom of the infection (it looks like they are

most often triggered by electrolyte imbalances from the diarrhea).

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi--PubMed had 120

abstracts on this parasite

June 8, 2002

-- A bloated tummy is usually an indicator of

poor absorption and leaky gut. The two most common

things you do for that are digestive enzymes and

acidopholus. has the bloated tummy, too --

although it went down amazingly after we " cleared "

dairy with NAET. She has a pretty flat tummy, now --

but when it starts getting bloated, then we start

seeing diarrhea, that's usually a clue that a seizure

cluster is on its way. Another reason why I believe

so firmly in this gut/brain connection. Now -- this

certainly could all be due to a parasite -- but not

necessarily (i.e. -- just because you have a bloated

tummy does not mean you have parasites).--D

--- richard & susan hill <rich.sue.hill@...>

wrote:

> Tracey,

> Any other symtoms that gave you a clue? has a

> bloated tummy, has had since a toddler, could this

> be related?

__________________________________________________

June 8, 2002

Tracey -- I've heard mixed things on Dr. 's

prootocol -- just wanted to give it a mention, though.

Are you working with any alternative health providers

(naturopath, homeopath, etc.)? They will be much more

accepting of your theory and will not admit you to a

psych ward!!! :-)

__________________________________________________

June 8, 2002

Tracey, how would treating with 3% hydrogen peroxide (in water) affect

this parasite, since it is vulnerable to air (ie. oxygen)?

Lorinda

On Friday, June 7, 2002, at 02:56 , Traceygrubbs@... wrote:

> I have a theory to propose to you all. You will probably think I fell

> off of

> my rocker but hey when you don't get much sleep...

> However, please bear with me, getting a point accross is not one of my

> strong

> points. I was reading the website on s Hopkins ketogenic diet

> yesterday and the statement " Nobody knows why this diet actually works

> for

> some children " played over and over again in my mind.

> I think I mentioned to the group that was diagnosed with a ameoba

> parasite a couple of years back (Dientamoeba fragilis). It is a

> protozoa,

> suppossible a harmless critter who lingers in the intestinal tract. The

> doctor that found it was very nonchalant about it and asked did I want

> to

> treat. Of course I said yes, who in the heck wants to live in harmony

> with a

> parasite?

> Because I found it interesting I choose this little critter to do a

> research

> paper on. What I found surprised me. First of all doctors are under the

> impression that this parasite is harmless, which I found otherwise.

> Different

> people are affected by it differently. There is a lady who suffered

> with this

> organism for seven long years, numerous symptoms, she actually lost her

> job,

> had to seek alternative medicine because the doctors all said she

> suffered

> psychological factors, that nothing was wrong with her.

> Fact was, that this parasite had very little research done on it. It is

> even

> classified wrong under flagellates and it does not even have a

> flagella. (I

> know this statement probably means nothing to you- I am just making a

> point

> that there is lack of research on this organism).

> However, I am getting to the point. This parasite lives in the large

> intestines where it feasts upon the normal flora (bacteria in our

> intestinal

> tract that are responsible for production of vitamins). Of course we

> all know

> that bacteria love carbohydrates, simple or complex.

> With the ketogenic diet, from my understanding, eliminates or minimizes

> carbohydrate intake, therefore, decreasing bacteria that ferment sugars,

> therefore, the parasite does not get its meal which leads to

> decreasing, or

> after 2-3 years on this diet, irradicating the parasite.

> I know you probably say with so many brilliant doctors out there, if

> this

> were true they would have found it already. I don't think so. When

> doctors

> check for parasites they usually check for ascaras, pinworms or some

> other

> obvious large parasite. Even if they did think to check for an amoeba,

> they

> are conditioned in medical school that this organism is harmless.

> From the research I done,

> I learned that it takes a " trained " eye to detect this organism. Not

> only can

> it be mistaken for something else once it is detected but the

> preservation

> process of the stool culture and the staining process have to be done a

> certain way or you never see the organism. It is anarobic so it does not

> tolerate air exposure- dyes in twenty minutes when exposed to the air.

> Anyone

> ever had their stool tested within 20 minutes of defecation???

>

> Long story short what if this organism is at the root of some of our

> problems. Many of us believe, including me, that there is a connection

> between the seizures and the gut. What if this organism does travel the

> vagus

> nerve, or is somehow responsible for the seizures by depriving nutrients

> (vitamins that those bacteria give us, which by the way are some B

> vitamins).

> As I said, this is a theory. Last year I came up with so many theory, I

> could

> have written a book. Needless to say, they were all wrong. But then

> again

> Edison tried over a 100 times and failed over a 100 times before

> he

> actually came up with the right way. So maybe there is hope for me.

> If anyone wants to check into this. Seek an alternative health doctor

> and use

> Great Smockies Lab in Ashville, NC they have plenty of experience in

> detecting this organism. There is a three day stool culture that has to

> be

> done. I think the first day is purge and then the two additional days

> are

> normal. The organism is called Dientamoeba fragilis.

> Tracey

>

June 8, 2002

--- Traceygrubbs@... wrote:

> DeEtte,

> I tried Dr. 's protocol and it was not one bit

> affective in 's

> case. But then again the organism that I am refering

> to

supposibly <--> SUPPOSEDLY

(I WAS A PROOFREADER IN COLLEGE...SORRY ;-) )

cannot be

> killed with herbs. I have not heard anything about

> the zapper but we tried it

> with no decrease in seizure activity at all.

> I am kind of skeptical about mentioning this to the

> new neuro because I am

> sure she will want to give me a referal to the psych

> unit. Oh well,

> Tracey

>

__________________________________________________

June 8, 2002

,

Most definitely, a bloated tummy was very much part of it. As a matter of

fact it was always present.

If you like type in Dientamoeba fragilis on the main menu and you will find a

website that is created by the woman I had mentioned. Her name is Jackie, she

has a lot of info on the organism itself and plenty of case histories that

will tell you that this organism is not as harmless as most doctors claim it

to be.

I will look for her web addresse and post it.

Tracey

June 8, 2002

Zoe,

It will take me some time to do this, I am not sure if I actually saved the

paper on my computer but I will look. If not I do not mind taking the time

typing it back up.

Tracey

June 8, 2002

Lorinda,

I have no clue on the peroxide.

June 8, 2002

Here are some links, be sure to read the one written by a mother who is a

Biochemist , her son had TS that was linked to Df.

http://bara.idx.com.au/dfragilis/case_histories1.htm

June 9, 2002

Tracey, here is a link which may be of interest to you:

http://www.wellnow.com/~outpouring/o3therapy.htm

You are absolutely right, most viruses, parasites, bacteria, etc. are

anaerobic and die in the presence of oxygen!

(My sister has been suffering from rheumatoid arthritis for 17 years.

Finally they found out that it is a pseudomona in the fluid around the

joints. Homeopathy has helped unbelievably -- for the first time in all

these years she is off painkillers and without pain.

She told me about this " home recipe " for oxygen therapy: 20 ml of 20%

medical hydrogen peroxide + 70ml pure water = 3% mixture. Of this

mixture, add 5-10 DROPS to a full glass of water 3 to 4 times per day to

help kill off viruses, bacteria, etc.)

Apparently there are ready-mixed oxygen therapy drops available in the

US under the name Hydroxygen.

Lorinda

On Sunday, June 9, 2002, at 06:18 , Traceygrubbs@... wrote:

> Lorinda,

> I have no clue on the peroxide.

>

June 9, 2002

In a message dated 6/9/02 5:08:11 AM Eastern Daylight Time,

lorindatheron@... writes:

<< http://www.wellnow.com/~outpouring/o3therapy.htm >>

Lorinda,

I am scared to try this because it may interact with the AED's is on.

I read the other day that even a simple vit B has caused problems when taken

with AED's.

Let's face it, little is known how AED's work and interaction with other meds

can be risky.

But thanks for this info. I may try it once we are off the AED's

Tracey

June 9, 2002

Tracey

My son, Charlie, is on Lamictal and Depakote plus 300 mb b complex and etc,

daily. He continues to improve his functional level and no seizures since

increasing the b complex.......

That's our experience. I know you are scared..... I still am after 30

years of dealing with this...

mjh

In a message dated 6/9/02 9:45:33 PM Eastern Daylight Time,

Traceygrubbs@... writes:

> I read the other day that even a simple vit B has caused problems when taken

> with AED's.

> Let's face it, little is known how AED's work and interaction with other

> meds

> can be risky.

> But thanks for this info. I may try it once we are off the AED's

> Tracey

>

June 9, 2002

DeEtte,

It's the vagus nerve that is responsible for the muscle movements in

the gut reactions. Could be it is irritated? There was a very large

study done in the 1980s by the NIMH on panic disorder and irritable

bowel syndrome. The study found most with panic disorder have or

develop IBS and vice versa. The study suggested there was a problem

with nerve signalling, that the distress of indigestion, signalled

into an exaggerated fight-or-flight response. A problem with

the " crossed wires, " they thought. This may also be the kind of

syndrome triggering seizures from an impaired gut reaction.

Zoe

June 9, 2002

Tracey,

Thanks, I'd sure like to read it!

Zoe

> Zoe,

> It will take me some time to do this, I am not sure if I actually

saved the

> paper on my computer but I will look. If not I do not mind taking

the time

> typing it back up.

> Tracey

June 10, 2002

Dear Tracey,

It sure is too bad that doctors can be so difficult to work with! After all of

the research, hard work and love invested in your child, they could at least

listen and respect your thoughts and intuition!

What did your doctor say after the parasites were discovered? You mentioned

somewhere that he asked if you wanted to medicate for them. Did he follow up

with another test to be sure the parasites were gone? Was he more sensitive to

your inclinations and requests after you proved him wrong?

I mentioned some things to my doctor along the lines of parasites, stealth

viruses, and other less known modalities, and he basically wrote them all off.

I just had another MRI and the same blood tests we've done dozens of times, with

basically the same results. The MRI shows scarring on the brain. The blood

tests show everything within normal boundaries. The EEG definitely shows

complex partial seizures that progress. But I'm amazed at the lack of curiosity

and initiative within the medical profession. They don't want to know " Why? "

O.K. I'll stop now before I get on my soapbox and bore everyone to tears! Your

experience just touched me, and I'd like to hear more when you have time. It's

bad enough struggling through this with my own body. But to watch my child

suffer would bring out the " mother bear " in me!

Best wishes,

Carrol

Traceygrubbs@... wrote: Gail,

Many people think that parasites are a problem dealt with only in other

countries but that is far from the truth. Many people right here in the US

have them but doctors who believe that it does not happen here do not check

for them.

The parasite I wrote about earlier, had been complaining of stomach

pains for months. Every visit to the doctor I received a stupid DX. EX: Once

he said it was from allergies that she was swallowing the secretions from her

allergies and that is what irritated her stomach.

The first couple of visits I politelly asked him to check her for parasites.

Needless to say, I finally had to get real ugly to get the test done and sure

enough she had parasites.

Tracey

June 10, 2002

Dear Zoe,

Can you give me some information on where I could find the results of that study

done by NIMH? I'd like to take it to my doctor to see if he'll pursue some of

the information related to the stomach and neurological responses.

Thank you!

Carrol

zoe88025 <Zll51@...> wrote: DeEtte,