Re: five-year-old with absence seizures

[Guest guest]

Kari

It might be an idea to have your daughter's Carnitine levels

tested. Carnitine is an amino acid that I believe is obtained mainly from

meat. A deficiency can be a cause of seizures. Carnitine levels can be

obtained from a blood test ... make sure you ask for free carnitine and

total carnitine levels.

Jill

At 01:13 PM 10/11/02, you wrote:

>Hi

>My daughter was born at home, has

>never been vaccinated, is a vegetarian - the only dairy product she

>eats is the occasional egg.

[Guest guest]

Kari,

I don't know if this info can help you or not. Obviously you can filter out

causes from vaccine, and some other harmfull exposures because you child has

not been exposed to them.

However, you said you are remodeling the upstairs. I too, bought an older

house and remodeled the attic into living quarters, however, we are unable to

use the space now. Initially after finishing it we moved all of our bedrooms

up there and that is were the seizures started about 1.5 yrs ago. I noticed

that all of us, except for my husband, woke up in the morningtime congested.

So I ended up putting the bedrooms back downstairs. My daughter's seizures

seemed to improve. I put it to the test once more by moving but had the same

result.

My guess is that since this is an older house, but from what I have heard

even newer ones are affected, that there is some kind of mold activity within

the walls or somewhere that is not visible to us, causing an allergic

reaction.

Also, since I am an animal lover I have always had several animals in and out

of the house. Well, just recently I was able to break myself from doing this.

They all stay outside now, and again we have decreased seizures.

My ex-husband, who gets two times a week, and I, both have noticed

that when is congested (her nasal passage sounds stuffy), she has

increased seizures. My guess is that allergies lower the seizure threshold.

I hope this info helps.

Tracey

[Guest guest]

Did she receive any of the booster vaccines just before kindergarten?

n a message dated 10/11/2002 1:00:58 PM Eastern Standard Time,

kblanco@... writes:

> Over the

> > summer she was bitten by 5 ticks. We have had a lyme test performed,

> > no results yet. Also the onstart of her seizures coincided with her

> > beginning kindergarten. If anyone can help me with referrals of

> > books, homeopaths or naturopaths - we live in Northern California, I

> > would truly apppreciate it. Kari

>

[Guest guest]

Kari, I don't have much information to give you except that I have

now heard of three cases besides my son's that have related to

remodeling old houses and seizures. Two other cases have found the

cause to be the type of insulation used. I am still investigating

the type used, so I cannot give you that info. My son is three and

started having seizures this past summer. We have lived in our

newly remodeled old farm house that is 150 years old. His EEG

showed activity from the frontal to back area, but MRI came back

normal. He is currently on Phenobarb which is preventing any

seizures. Keep me posted as our situations seem to be similar.

Jaret was also bitten by a tick this summer as well. Lyme's test

came back okay. He also does not sweat much, and my husband and I

feel that a sudden rise in body temperature triggered his seizures.

He was not sick at the time of any of his seizures.

Carmen

Mom to Jaret

Greenwich, OH

> Hi

> I'm new - searching for information and answers. My 5-year-old

> daughter started having absence seizures at the beginning of

> September. She has seen a pediatric neurologist who recommended

> putting her on zarontin. Some focal slowing was noted in her EEG

and

> he wants her to have an MRI - scheduled for later this month. We

> started her on the zarontin a week ago - with reservations. She's

> never had an antibiotic or any medication in her life. However

she

> had a seizure and walked into the road and had another one and

nearly

> fell down the stairs, so we are fearful for her safety. Within

four

> days of starting the zarontin - she started vomiting after taking

it

> so we stopped. The neurologist has recommended depacote which

> frankly scares the hell out of me. My daughter was born at home,

has

> never been vaccinated, is a vegetarian - the only dairy product

she

> eats is the occasional egg. We use no toxic cleansers in our

home,

> but we do have a dog and two cats. We moved into this home in

June

> and have been remodeling the upstairs - we live downstairs. Over

the

> summer she was bitten by 5 ticks. We have had a lyme test

performed,

> no results yet. Also the onstart of her seizures coincided with

her

> beginning kindergarten. If anyone can help me with referrals of

> books, homeopaths or naturopaths - we live in Northern California,

I

> would truly apppreciate it. Kari

[Guest guest]

Kari,

Where in Northern California do you live? Are you within driving

distance of Santa ? Have you checked out any of the resources among

our website links - ? If

not, I encourage you to do so. You can even ask questions of physicians

online and get a personal answer. Doing just that has proved very

beneficial for me. And, that is why I encourage others here to seek

" second opinions " using this resource.

Lamar

malmarocking wrote:

> Hi

> I'm new - searching for information and answers. My 5-year-old

> daughter started having absence seizures at the beginning of

> September. She has seen a pediatric neurologist who recommended

> putting her on zarontin. Some focal slowing was noted in her EEG and

> he wants her to have an MRI - scheduled for later this month. We

> started her on the zarontin a week ago - with reservations. She's

> never had an antibiotic or any medication in her life. However she

> had a seizure and walked into the road and had another one and nearly

> fell down the stairs, so we are fearful for her safety. Within four

> days of starting the zarontin - she started vomiting after taking it

> so we stopped. The neurologist has recommended depacote which

> frankly scares the hell out of me. My daughter was born at home, has

> never been vaccinated, is a vegetarian - the only dairy product she

> eats is the occasional egg. We use no toxic cleansers in our home,

> but we do have a dog and two cats. We moved into this home in June

> and have been remodeling the upstairs - we live downstairs. Over the

> summer she was bitten by 5 ticks. We have had a lyme test performed,

> no results yet. Also the onstart of her seizures coincided with her

> beginning kindergarten. If anyone can help me with referrals of

> books, homeopaths or naturopaths - we live in Northern California, I

> would truly apppreciate it. Kari

>

>

>

[Guest guest]

Have you checked for mold in your house?

Kathy

[ ] five-year-old with absence seizures

> Hi

> I'm new - searching for information and answers. My 5-year-old

> daughter started having absence seizures at the beginning of

> September. She has seen a pediatric neurologist who recommended

> putting her on zarontin. Some focal slowing was noted in her EEG and

> he wants her to have an MRI - scheduled for later this month. We

> started her on the zarontin a week ago - with reservations. She's

> never had an antibiotic or any medication in her life. However she

> had a seizure and walked into the road and had another one and nearly

> fell down the stairs, so we are fearful for her safety. Within four

> days of starting the zarontin - she started vomiting after taking it

> so we stopped. The neurologist has recommended depacote which

> frankly scares the hell out of me. My daughter was born at home, has

> never been vaccinated, is a vegetarian - the only dairy product she

> eats is the occasional egg. We use no toxic cleansers in our home,

> but we do have a dog and two cats. We moved into this home in June

> and have been remodeling the upstairs - we live downstairs. Over the

> summer she was bitten by 5 ticks. We have had a lyme test performed,

> no results yet. Also the onstart of her seizures coincided with her

> beginning kindergarten. If anyone can help me with referrals of

> books, homeopaths or naturopaths - we live in Northern California, I

> would truly apppreciate it. Kari

>

>

>

>

[Guest guest]

Yes, mold, chemical sensitivities, allergies, and see metabolic

disorders links in message above.

> Have you checked for mold in your house?

> Kathy

> [ ] five-year-old with absence seizures

>

>

> > Hi

> > I'm new - searching for information and answers. My 5-year-old

> > daughter started having absence seizures at the beginning of

> > September. She has seen a pediatric neurologist who recommended

> > putting her on zarontin. Some focal slowing was noted in her EEG

and

> > he wants her to have an MRI - scheduled for later this month. We

> > started her on the zarontin a week ago - with reservations. She's

> > never had an antibiotic or any medication in her life. However

she

> > had a seizure and walked into the road and had another one and

nearly

> > fell down the stairs, so we are fearful for her safety. Within

four

> > days of starting the zarontin - she started vomiting after taking

it

> > so we stopped. The neurologist has recommended depacote which

> > frankly scares the hell out of me. My daughter was born at home,

has

> > never been vaccinated, is a vegetarian - the only dairy product

she

> > eats is the occasional egg. We use no toxic cleansers in our

home,

> > but we do have a dog and two cats. We moved into this home in

June

> > and have been remodeling the upstairs - we live downstairs. Over

the

> > summer she was bitten by 5 ticks. We have had a lyme test

performed,

> > no results yet. Also the onstart of her seizures coincided with

her

> > beginning kindergarten. If anyone can help me with referrals of

> > books, homeopaths or naturopaths - we live in Northern

California, I

> > would truly apppreciate it. Kari

> >

> >

> >

> >

[Guest guest]

Hi Lamar,

Thanks for your interest. We live in Nevada City, but

lived for a year in Sebastopol so know Santa

pretty well. If you can recommend somebody to see

there it is only a couple of hours drive from where we

are living now.

Regards,

Kari

--- Lamar <lamar@...> wrote:

> Kari,

>

> Where in Northern California do you live? Are you

> within driving

> distance of Santa ? Have you checked out any of

> the resources among

> our website links -

> ? If

> not, I encourage you to do so. You can even ask

> questions of physicians

> online and get a personal answer. Doing just that

> has proved very

> beneficial for me. And, that is why I encourage

> others here to seek

> " second opinions " using this resource.

>

> Lamar

>

>

> malmarocking wrote:

>

> > Hi

> > I'm new - searching for information and answers.

> My 5-year-old

> > daughter started having absence seizures at the

> beginning of

> > September. She has seen a pediatric neurologist

> who recommended

> > putting her on zarontin. Some focal slowing was

> noted in her EEG and

> > he wants her to have an MRI - scheduled for later

> this month. We

> > started her on the zarontin a week ago - with

> reservations. She's

> > never had an antibiotic or any medication in her

> life. However she

> > had a seizure and walked into the road and had

> another one and nearly

> > fell down the stairs, so we are fearful for her

> safety. Within four

> > days of starting the zarontin - she started

> vomiting after taking it

> > so we stopped. The neurologist has recommended

> depacote which

> > frankly scares the hell out of me. My daughter

> was born at home, has

> > never been vaccinated, is a vegetarian - the only

> dairy product she

> > eats is the occasional egg. We use no toxic

> cleansers in our home,

> > but we do have a dog and two cats. We moved into

> this home in June

> > and have been remodeling the upstairs - we live

> downstairs. Over the

> > summer she was bitten by 5 ticks. We have had a

> lyme test performed,

> > no results yet. Also the onstart of her seizures

> coincided with her

> > beginning kindergarten. If anyone can help me

> with referrals of

> > books, homeopaths or naturopaths - we live in

> Northern California, I

> > would truly apppreciate it. Kari

> >

> >

> >

[Guest guest]

Kari,

I highly recommend you contact s-Reiter . This epilepsy-specific

clinic is located in Santa . Please understand, the clinic does not

normally treat children as young as 5-years-old. However, the clinic

has a global reputation when it comes to treating epilepsy. So, they

know who the best doctors are when it comes to treating epilepsy. If I

were you, I would contact them via e-mail and see if you could get a

referral from them.

Good luck.

Lamar

Kari -McGregor wrote:

> Hi Lamar,

>

> Thanks for your interest. We live in Nevada City, but

> lived for a year in Sebastopol so know Santa

> pretty well. If you can recommend somebody to see

> there it is only a couple of hours drive from where we

> are living now.

>

> Regards,

> Kari

[Guest guest]

Kari, could be the dpt or mmr, my son got seizures from the vax

see www.thedoctorwithin.com

At 02:23 PM 10/11/02 -0400, you wrote:

>Did she receive any of the booster vaccines just before kindergarten?

>

>

>n a message dated 10/11/2002 1:00:58 PM Eastern Standard Time,

>kblanco@... writes:

>

>

>> Over the

>> > summer she was bitten by 5 ticks. We have had a lyme test performed,

>> > no results yet. Also the onstart of her seizures coincided with her

>> > beginning kindergarten. If anyone can help me with referrals of

>> > books, homeopaths or naturopaths - we live in Northern California, I

>> > would truly apppreciate it. Kari

>>

>

>

>

>

[Guest guest]

>> is a vegetarian - the only dairy product she

>eats is the occasional egg.

see www.beyondveg.com

high carb diets can cause all kinds of problems

I reduced my son's carbs dramatically, we do mostly meat/fat/fish/eggs,

absence seizures are gone

[Guest guest]

Dear Kari,

Two books that might be helpful to you are " Treating Epilepsy Naturally, " by

A. , and " epilepsy: a new approach, " by Adrienne and

Reiter, M.D.

Someone has already suggested the remodeling project as a possible source of

seizure provocation. You also mentioned that your daughter just started

Kindergarten. The fumes from dry erase markers and magic markers can be

problematic for some children. In addition, fluorescent lights can instigate

seizures. The classroom teacher should be able to make adjustments that will

compensate for these things if they are an issue for your daughter. It makes

sense to address them until you are certain.

Another thought that may or may not have merit relates to the vegetarian diet.

There is research that suggests that the gluten found in wheat, rye, barley and

oats (though there is some disagreement about oats), can cause a build-up in the

brain and can be directly linked to some cases of epilepsy. You may want to do

some research on Celiac Disease or Celiac Sprue (these are the same as gluten

intolerance) to see if there is anything there that fits or makes sense to you.

Personally speaking, gluten is a major trigger for my seizures.

Pat lists some resources in her book that may help you find other

healthcare providers to work alongside your M.D. I think that naturopathic

doctors can be very helpful, and there seem to be some good resources north of

you in Oregon and Washington.

I hope this helps! Please keep us posted on how you are doing!

Best wishes,

Carrol

malmarocking <malmarocking@...> wrote:Hi

I'm new - searching for information and answers. My 5-year-old

daughter started having absence seizures at the beginning of

September. She has seen a pediatric neurologist who recommended

putting her on zarontin. Some focal slowing was noted in her EEG and

he wants her to have an MRI - scheduled for later this month. We

started her on the zarontin a week ago - with reservations. She's

never had an antibiotic or any medication in her life. However she

had a seizure and walked into the road and had another one and nearly

fell down the stairs, so we are fearful for her safety. Within four

days of starting the zarontin - she started vomiting after taking it

so we stopped. The neurologist has recommended depacote which

frankly scares the hell out of me. My daughter was born at home, has

never been vaccinated, is a vegetarian - the only dairy product she

eats is the occasional egg. We use no toxic cleansers in our home,

but we do have a dog and two cats. We moved into this home in June

and have been remodeling the upstairs - we live downstairs. Over the

summer she was bitten by 5 ticks. We have had a lyme test performed,

no results yet. Also the onstart of her seizures coincided with her

beginning kindergarten. If anyone can help me with referrals of

books, homeopaths or naturopaths - we live in Northern California, I

would truly apppreciate it. Kari

[Guest guest]

Hi Carrol,

Thank you so much for taking the time to respond to my

query. Everybody who has written has been so helpful.

This is such a challenge right now.

My daughter attends a public Waldorf School where they

use only organic food in the classroom, only natural

light and candles and, yes, her teacher is being

wonderful. They only use beeswax and natural crayons

and paints, no markers. I am doing my best to rule

out every possible " cause " for these seizures. Thus

far I have been referred to a cranial osteopath, a

kineseologist, and several homeopaths. The only drug

that we feel vaguely comfortable giving her is

Zarontin. She has an MRI scheduled for this week. My

husband and I are very nervous about it. They want to

sedate her for it. She is a very strong child and

could, I think, withstand the MRI without sedation. I

would appreciate any feedback from parents with young

children who have had MRI's. We have been told that

the test will last about 45 minutes and that her whole

body will be in the machine, not just her head. They

have said that they do not play music to try and drown

out the noise and they do not talk to them whilst the

test is being conducted. My daughter asked why wasn't

there a window so that she could see us during the

test. I am almost to the point where I don't want to

subject her to the test at all. My husband thinks we

should in order to rule out everything. I am

questioning everything I can think of - including her

diet. Thank you for your advice.

Kari

--- Carrol Showalter <ColoradoCarrol@...> wrote:

>

> Dear Kari,

> Two books that might be helpful to you are " Treating

> Epilepsy Naturally, " by A. , and

> " epilepsy: a new approach, " by Adrienne and

> Reiter, M.D.

>

> Someone has already suggested the remodeling project

> as a possible source of seizure provocation. You

> also mentioned that your daughter just started

> Kindergarten. The fumes from dry erase markers and

> magic markers can be problematic for some children.

> In addition, fluorescent lights can instigate

> seizures. The classroom teacher should be able to

> make adjustments that will compensate for these

> things if they are an issue for your daughter. It

> makes sense to address them until you are certain.

>

> Another thought that may or may not have merit

> relates to the vegetarian diet. There is research

> that suggests that the gluten found in wheat, rye,

> barley and oats (though there is some disagreement

> about oats), can cause a build-up in the brain and

> can be directly linked to some cases of epilepsy.

> You may want to do some research on Celiac Disease

> or Celiac Sprue (these are the same as gluten

> intolerance) to see if there is anything there that

> fits or makes sense to you. Personally speaking,

> gluten is a major trigger for my seizures.

>

> Pat lists some resources in her book that may

> help you find other healthcare providers to work

> alongside your M.D. I think that naturopathic

> doctors can be very helpful, and there seem to be

> some good resources north of you in Oregon and

> Washington.

>

> I hope this helps! Please keep us posted on how you

> are doing!

>

> Best wishes,

> Carrol

>

>

> malmarocking <malmarocking@...> wrote:Hi

> I'm new - searching for information and answers. My

> 5-year-old

> daughter started having absence seizures at the

> beginning of

> September. She has seen a pediatric neurologist who

> recommended

> putting her on zarontin. Some focal slowing was

> noted in her EEG and

> he wants her to have an MRI - scheduled for later

> this month. We

> started her on the zarontin a week ago - with

> reservations. She's

> never had an antibiotic or any medication in her

> life. However she

> had a seizure and walked into the road and had

> another one and nearly

> fell down the stairs, so we are fearful for her

> safety. Within four

> days of starting the zarontin - she started vomiting

> after taking it

> so we stopped. The neurologist has recommended

> depacote which

> frankly scares the hell out of me. My daughter was

> born at home, has

> never been vaccinated, is a vegetarian - the only

> dairy product she

> eats is the occasional egg. We use no toxic

> cleansers in our home,

> but we do have a dog and two cats. We moved into

> this home in June

> and have been remodeling the upstairs - we live

> downstairs. Over the

> summer she was bitten by 5 ticks. We have had a

> lyme test performed,

> no results yet. Also the onstart of her seizures

> coincided with her

> beginning kindergarten. If anyone can help me with

> referrals of

> books, homeopaths or naturopaths - we live in

> Northern California, I

> would truly apppreciate it. Kari

>

>

>

[Guest guest]

Kari,

My daughter had an MRI when she was five, unsedated. Actually, they wanted to

sedate her but could not find a vein for the IV. It worked out fine. Most of

her body went into the machine, but I was able to stand near her and keep a hand

placed on her lower leg so she knew I was there. I told her to try to take a

nap and she actually fell asleep within ten minutes. It was almost as if the

sound, along with the fixed position (they are strapped in), and blankets,

lulled her asleep. However, it was extremely noisy outside the chamber. So, it

can be done without sedation.

Sandy, 's mom

Re: [ ] five-year-old with absence seizures

Hi Carrol,

Thank you so much for taking the time to respond to my

query. Everybody who has written has been so helpful.

This is such a challenge right now.

My daughter attends a public Waldorf School where they

use only organic food in the classroom, only natural

light and candles and, yes, her teacher is being

wonderful. They only use beeswax and natural crayons

and paints, no markers. I am doing my best to rule

out every possible " cause " for these seizures. Thus

far I have been referred to a cranial osteopath, a

kineseologist, and several homeopaths. The only drug

that we feel vaguely comfortable giving her is

Zarontin. She has an MRI scheduled for this week. My

husband and I are very nervous about it. They want to

sedate her for it. She is a very strong child and

could, I think, withstand the MRI without sedation. I

would appreciate any feedback from parents with young

children who have had MRI's. We have been told that

the test will last about 45 minutes and that her whole

body will be in the machine, not just her head. They

have said that they do not play music to try and drown

out the noise and they do not talk to them whilst the

test is being conducted. My daughter asked why wasn't

there a window so that she could see us during the

test. I am almost to the point where I don't want to

subject her to the test at all. My husband thinks we

should in order to rule out everything. I am

questioning everything I can think of - including her

diet. Thank you for your advice.

Kari

--- Carrol Showalter <ColoradoCarrol@...> wrote:

>

> Dear Kari,

> Two books that might be helpful to you are " Treating

> Epilepsy Naturally, " by A. , and

> " epilepsy: a new approach, " by Adrienne and

> Reiter, M.D.

>

> Someone has already suggested the remodeling project

> as a possible source of seizure provocation. You

> also mentioned that your daughter just started

> Kindergarten. The fumes from dry erase markers and

> magic markers can be problematic for some children.

> In addition, fluorescent lights can instigate

> seizures. The classroom teacher should be able to

> make adjustments that will compensate for these

> things if they are an issue for your daughter. It

> makes sense to address them until you are certain.

>

> Another thought that may or may not have merit

> relates to the vegetarian diet. There is research

> that suggests that the gluten found in wheat, rye,

> barley and oats (though there is some disagreement

> about oats), can cause a build-up in the brain and

> can be directly linked to some cases of epilepsy.

> You may want to do some research on Celiac Disease

> or Celiac Sprue (these are the same as gluten

> intolerance) to see if there is anything there that

> fits or makes sense to you. Personally speaking,

> gluten is a major trigger for my seizures.

>

> Pat lists some resources in her book that may

> help you find other healthcare providers to work

> alongside your M.D. I think that naturopathic

> doctors can be very helpful, and there seem to be

> some good resources north of you in Oregon and

> Washington.

>

> I hope this helps! Please keep us posted on how you

> are doing!

>

> Best wishes,

> Carrol

>

>

> malmarocking <malmarocking@...> wrote:Hi

> I'm new - searching for information and answers. My

> 5-year-old

> daughter started having absence seizures at the

> beginning of

> September. She has seen a pediatric neurologist who

> recommended

> putting her on zarontin. Some focal slowing was

> noted in her EEG and

> he wants her to have an MRI - scheduled for later

> this month. We

> started her on the zarontin a week ago - with

> reservations. She's

> never had an antibiotic or any medication in her

> life. However she

> had a seizure and walked into the road and had

> another one and nearly

> fell down the stairs, so we are fearful for her

> safety. Within four

> days of starting the zarontin - she started vomiting

> after taking it

> so we stopped. The neurologist has recommended

> depacote which

> frankly scares the hell out of me. My daughter was

> born at home, has

> never been vaccinated, is a vegetarian - the only

> dairy product she

> eats is the occasional egg. We use no toxic

> cleansers in our home,

> but we do have a dog and two cats. We moved into

> this home in June

> and have been remodeling the upstairs - we live

> downstairs. Over the

> summer she was bitten by 5 ticks. We have had a

> lyme test performed,

> no results yet. Also the onstart of her seizures

> coincided with her

> beginning kindergarten. If anyone can help me with

> referrals of

> books, homeopaths or naturopaths - we live in

> Northern California, I

> would truly apppreciate it. Kari

>

>

>

[Guest guest]

Thanks . All of your details truly help. I

will ring and find out if I can be in the room with

her during the procedure, also see if they strap them

in.

Regards,

Kari

--- Crisman <scrisman@...> wrote:

> Kari,

>

> My daughter had an MRI when she was five, unsedated.

> Actually, they wanted to sedate her but could not

> find a vein for the IV. It worked out fine. Most

> of her body went into the machine, but I was able to

> stand near her and keep a hand placed on her lower

> leg so she knew I was there. I told her to try to

> take a nap and she actually fell asleep within ten

> minutes. It was almost as if the sound, along

> with the fixed position (they are strapped in), and

> blankets, lulled her asleep. However, it was

> extremely noisy outside the chamber. So, it can be

> done without sedation.

>

> Sandy, 's mom

> Re: [ ] five-year-old with

> absence seizures

>

>

> Hi Carrol,

> Thank you so much for taking the time to respond

> to my

> query. Everybody who has written has been so

> helpful.

> This is such a challenge right now.

>

> My daughter attends a public Waldorf School where

> they

> use only organic food in the classroom, only

> natural

> light and candles and, yes, her teacher is being

> wonderful. They only use beeswax and natural

> crayons

> and paints, no markers. I am doing my best to

> rule

> out every possible " cause " for these seizures.

> Thus

> far I have been referred to a cranial osteopath, a

> kineseologist, and several homeopaths. The only

> drug

> that we feel vaguely comfortable giving her is

> Zarontin. She has an MRI scheduled for this week.

> My

> husband and I are very nervous about it. They

> want to

> sedate her for it. She is a very strong child and

> could, I think, withstand the MRI without

> sedation. I

> would appreciate any feedback from parents with

> young

> children who have had MRI's. We have been told

> that

> the test will last about 45 minutes and that her

> whole

> body will be in the machine, not just her head.

> They

> have said that they do not play music to try and

> drown

> out the noise and they do not talk to them whilst

> the

> test is being conducted. My daughter asked why

> wasn't

> there a window so that she could see us during the

> test. I am almost to the point where I don't want

> to

> subject her to the test at all. My husband

> thinks we

> should in order to rule out everything. I am

> questioning everything I can think of - including

> her

> diet. Thank you for your advice.

>

> Kari

>

> --- Carrol Showalter <ColoradoCarrol@...>

> wrote:

> >

> > Dear Kari,

> > Two books that might be helpful to you are

> " Treating

> > Epilepsy Naturally, " by A. , and

> > " epilepsy: a new approach, " by Adrienne

> and

> > Reiter, M.D.

> >

> > Someone has already suggested the remodeling

> project

> > as a possible source of seizure provocation.

> You

> > also mentioned that your daughter just started

> > Kindergarten. The fumes from dry erase markers

> and

> > magic markers can be problematic for some

> children.

> > In addition, fluorescent lights can instigate

> > seizures. The classroom teacher should be able

> to

> > make adjustments that will compensate for these

> > things if they are an issue for your daughter.

> It

> > makes sense to address them until you are

> certain.

> >

> > Another thought that may or may not have merit

> > relates to the vegetarian diet. There is

> research

> > that suggests that the gluten found in wheat,

> rye,

> > barley and oats (though there is some

> disagreement

> > about oats), can cause a build-up in the brain

> and

> > can be directly linked to some cases of

> epilepsy.

> > You may want to do some research on Celiac

> Disease

> > or Celiac Sprue (these are the same as gluten

> > intolerance) to see if there is anything there

> that

> > fits or makes sense to you. Personally

> speaking,

> > gluten is a major trigger for my seizures.

> >

> > Pat lists some resources in her book that

> may

> > help you find other healthcare providers to work

> > alongside your M.D. I think that naturopathic

> > doctors can be very helpful, and there seem to

> be

> > some good resources north of you in Oregon and

> > Washington.

> >

> > I hope this helps! Please keep us posted on how

> you

> > are doing!

> >

> > Best wishes,

> > Carrol

> >

> >

> > malmarocking <malmarocking@...> wrote:Hi

> > I'm new - searching for information and answers.

> My

> > 5-year-old

> > daughter started having absence seizures at the

> > beginning of

> > September. She has seen a pediatric neurologist

> who

> > recommended

> > putting her on zarontin. Some focal slowing was

> > noted in her EEG and

> > he wants her to have an MRI - scheduled for

> later

> > this month. We

> > started her on the zarontin a week ago - with

> > reservations. She's

> > never had an antibiotic or any medication in her

> > life. However she

> > had a seizure and walked into the road and had

> > another one and nearly

> > fell down the stairs, so we are fearful for her

> > safety. Within four

> > days of starting the zarontin - she started

> vomiting

> > after taking it

> > so we stopped. The neurologist has recommended

> > depacote which

> > frankly scares the hell out of me. My daughter

> was

> > born at home, has

> > never been vaccinated, is a vegetarian - the

> only

> > dairy product she

> > eats is the occasional egg. We use no toxic

> > cleansers in our home,

> > but we do have a dog and two cats. We moved

> into

> > this home in June

> > and have been remodeling the upstairs - we live

> > downstairs. Over the

> > summer she was bitten by 5 ticks. We have had a

> > lyme test performed,

> > no results yet. Also the onstart of her

> seizures

> > coincided with her

> > beginning kindergarten. If anyone can help me

> with

> > referrals of

> > books, homeopaths or naturopaths - we live in

> > Northern California, I

> > would truly apppreciate it. Kari

> >

> >

> >

[Guest guest]

> Hi

> I'm new - searching for information and answers. My 5-year-old

> daughter started having absence seizures at the beginning of

> September. She has seen a pediatric neurologist who recommended

> putting her on zarontin. Some focal slowing was noted in her EEG

and

> he wants her to have an MRI - scheduled for later this month. We

> started her on the zarontin a week ago - with reservations. She's

> never had an antibiotic or any medication in her life. However she

> had a seizure and walked into the road and had another one and

nearly

> fell down the stairs, so we are fearful for her safety. Within

four

> days of starting the zarontin - she started vomiting after taking

it

> so we stopped. The neurologist has recommended depacote which

> frankly scares the hell out of me. My daughter was born at home,

has

> never been vaccinated, is a vegetarian - the only dairy product she

> eats is the occasional egg. We use no toxic cleansers in our home,

> but we do have a dog and two cats. We moved into this home in June

> and have been remodeling the upstairs - we live downstairs. Over

the

> summer she was bitten by 5 ticks. We have had a lyme test

performed,

> no results yet. Also the onstart of her seizures coincided with

her

> beginning kindergarten. If anyone can help me with referrals of

> books, homeopaths or naturopaths - we live in Northern California,

I

> would truly apppreciate it. Kari

Dear Kari,

Look into two aminos-carnisine & carnotine. We are also

vegetarians. My son has had grand mal & absence seizures. I have

had him on both aminos for eight days and his daily absence seizures

have decreased dramatically. Elliot has been on depakote for over a

year and it still does not fully control his seizures.

Anne

[Guest guest]

Check out www.chronicneurotoxins.com for treatment of lyme disease.

Get your dogs and cats on a anti parasite program and your daughter on a

parasite program too. Mom and dad too.

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