Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Lyndon Medscape Neurology on 03/04/2001 has an interesting report on neuroimaging and the use of Proton MRS to study the composition of living tissue. Aaddress is http://neurology.medscape.com You will be asked to sign-in with code name and a password. No charge to view and print their material Hypostatic blood pressue may give a clue,also Good luck If you like the site, download their tool bar for easy access. DrBob 541.276.2550 Syncope Docs: My 83-year-old father suffered two spells of syncope this past week, one at my nephew's double-header basketball game and one during a lengthy church service this past weekend. The rooms were crowded and rather warm in both instances. The first episode occurred while sitting, the second while standing. He was transported to Salem Hospital immediately following he first incident and all tests were negative, including EKG, blood work, etc. Although not fully diabetic, he was placed on Amyrl about a year ago to stimulate insulin production. The EMTs said his blood sugar was 195 when they checked it on Sunday, but weren't too concerned since he had eaten about 45 minutes earlier. My father has also had glaucoma for about 30 years and uses pilocarpine HCL and Cosopt (Timoptic) eye drops daily. He also takes 1 tab of Zestril for mildly elevated BP. His twin brother, who also has glaucoma but no glucose or BP problems, began experiencing syncope about a year ago and subsequently was given a pacemaker due to episodic cardiac arrests. However, he still experiences syncope about once a week despite the pacer. By the way, they also had an older brother who required a pacemaker at age 90 and lived 5 more years; and they have a younger brother who fell (syncope?) while taking his daily walk a few years ago, striking his head on the pavement and subsequently requiring a permanent shunt to relieve increased intracranial pressure due to recurring fluid build-up. Anyway, a couple of doctors at church this past weekend suggested that my father wear a Holter monitor for a week to see if any cardiogenic factors show up. No one at the hospital suggested that last week, since all of the real-time cardiac tests were negative. However, my father has an appointment with his GP today to, hopefully, get a monitor. But since both episodes occurred in warm rooms with tons of people (low O2 / high CO2), and he as wearing a tight-collared shirt and tie at the time of the most recent event, I'm wondering if he may simply be suffering from a carotid sinus dysfunction. An article by and Green titled "Evaluating and Managing Syncope" on Medscape leads me to believe that it's more of a carotid sinus hypersensitivity perhaps combined with some orthostatic factors rather than a cardiogenic syncope. They also suggested performing a "carotid sinus massage" test and a tilt-table test. Do any of you know how to perform these? I tried the carotid sinus massage, one side at a time as suggested by the authors, but could not reproduce the syncope. However, I'm not sure I was performing the test correctly and massaging the right areas. Furthermore, I'm not sure what their definition of "massaging" meant (heavy, light, fast, slow), since no description was given and my attempt to find more specific postings on this subject were unsuccessful. If any of you have had experience with these tests and can give me more specific instructions, I would appreciate it. Sincerely, Lyndon McGill, DC Salem, Oregon (503) 362-5555 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 , Look up Trudie Loban (not sure if last name spelled right) but she has formed Stars. She was very helpful in getting info to me. I am not sure about this, but I don't think the Keto diet would work with syncope???? Someone else may want to comment on this. But If this statement is true, then you can probably rull out syncope. I am also looking into the keto diet hoping to sart it soon, as time permits. So guys, please send me some recipies on different items to fix, so will not be stuck eating the same meal 4 times a day times 2yrs. I am also thinking about trying keto minus milk and gluten. has not had a milk product since January, much improvement until she cheated and ate a slice of cheese cake which increased seizures for a couple of nights. But please if anyone can giude me on recipies milk and gluten free please do so. Thanks, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Zoe, you are asking me things that I don't know the answers to. I am so overwhelmed at this moment that I don't know which end is up. As far as I know once she is on the diet she cannot have bread but flaxseed oil I do not know about. Why do you ask? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Hi , Syncope is the disorder most frequently misdiagnosed as epilepsy, and those spells can set off clinical seizure activity. Also, was been evaluated for apnea, another common cause of nocturnal spells? I'll post some information shortly. It's so nice to hear he is doing better on the diet. The past month my focus has been on vitamin A research. A common cause of vitamin A deficiency is malabsorption as in gluten intolerance and other causes of diarrhea. Zoe > Hi All, > Been a while since I posted, continues to do well doing on the keto diet, clinically seizure free during the day - but struggling to eliminate the night seizure activity still. > /Zoe/Carol etc, and anyone else that was helping me with gut absorption, gluten issues - still plodding on, hoping to get some further (hopefully productive) testing done soon. Will let you know anything interesting that comes up. > I have a favour to ask, I know it has come up not so long ago, but could anyone throw some light on the syncope vs epilepsy subject? > Would appreciate any info being sent to wade through, > > Thanks, > Hill in NZ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Hi Tracey, Can have flax or flax oil on the diet? Can she eat things like pancakes on the diet, what kind of bread? Zoe > , > Look up Trudie Loban (not sure if last name spelled right) but she has formed > Stars. She was very helpful in getting info to me. > I am not sure about this, but I don't think the Keto diet would work with > syncope???? Someone else may want to comment on this. But If this statement > is true, then you can probably rull out syncope. > I am also looking into the keto diet hoping to sart it soon, as time permits. > So guys, please send me some recipies on different items to fix, so > will not be stuck eating the same meal 4 times a day times 2yrs. > I am also thinking about trying keto minus milk and gluten. has not > had a milk product since January, much improvement until she cheated and ate > a slice of cheese cake which increased seizures for a couple of nights. But > please if anyone can giude me on recipies milk and gluten free please do so. > Thanks, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 If she could have bread I was going to send you some recipes for gluten free bread. You sound overwhelmed. Did you find any support groups on the web for gluten free ketogenic diet help? I have heard of others doing this. Zoe > Zoe, > you are asking me things that I don't know the answers to. I am so > overwhelmed at this moment that I don't know which end is up. > As far as I know once she is on the diet she cannot have bread but flaxseed > oil I do not know about. > Why do you ask? > Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 Zoe, Yes I am overwhelmed, school, , house, you know all the things our gender must deal with. I mentioned to someone yesterday, I need a brain like Einstein's and the tenticles of an octopus. Yes I did sign on with the group Carol suggested. Maybe by the time I start the diet I can be well informed and be prepared to do it. I was talking to Lorinda yesterday and she made a good point. You know I mentioned that 's seizures come and go (or rather increase and decrease) depending upon the animals in the house. She mentioned that if it actually were parasites the decreasing of the seizures would take longer because just because you get rid of the animal the parasites still remain, so maybe it's allergy related. Oh well, Talk to you later, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 Oh, bread recipes would be nice until I start the diet. Thanks Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2002 Report Share Posted September 15, 2002 Oh, Well... We all feel that way at times, the seizure trigger could be so many things, and not the same one every time... Zoe > Zoe, Yes I am overwhelmed, school, , house, you know all the things our > gender must deal with. I mentioned to someone yesterday, I need a brain like > Einstein's and the tenticles of an octopus. > Yes I did sign on with the group Carol suggested. Maybe by the time I start > the diet I can be well informed and be prepared to do it. > I was talking to Lorinda yesterday and she made a good point. You know I > mentioned that 's seizures come and go (or rather increase and > decrease) depending upon the animals in the house. She mentioned that if it > actually were parasites the decreasing of the seizures would take longer > because just because you get rid of the animal the parasites still remain, so > maybe it's allergy related. > Oh well, Talk to you later, > Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Carrol, Thanks for the recipe and the words of encouragement. Trust me I have gained a lot of knowledge thanks to you guys/girls. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Dear , As an adult, I am not on the ketogenic diet. I am, however, gluten intolerant, so I cook with alternative flours, using ground up nuts most often as a base. A book that has been helpful to me is called, " The Gluten Free Gourmet, " by Bette Hagman. She has several other books, as well, and I have even found her flour mixtures for sale in our local healthfood store. I grind up nuts and or seeds in my blender and use them to replace flours in other recipes. The pulse feature keeps me from over-blending and coming up with almond butter, tahini, or something like them, instead of flour. Nut and seed flours do not respond to leaven like wheat flours, so you'll have to experiment a little with recipes. For the muffin recipe in Bette Hagman's book, I use 3/4 cup almond flour and 3/4 cup gluten-free flour blend. My family likes the muffins better than regular muffins. Another resource that has been a real asset to me is a magazine called, " Sully's Living Without. " It is full of recipes and articles for people with food or chemical sensitivities. The last two issues had wonderful articles about children, written by people who are living the battle, as opposed to theorizing about it. I hope this helps. You are certainly doing a lot for your child -- she is blessed to have a mom like you! Best wishes, Carrol Traceygrubbs@... wrote:, Look up Trudie Loban (not sure if last name spelled right) but she has formed Stars. She was very helpful in getting info to me. I am not sure about this, but I don't think the Keto diet would work with syncope???? Someone else may want to comment on this. But If this statement is true, then you can probably rull out syncope. I am also looking into the keto diet hoping to sart it soon, as time permits. So guys, please send me some recipies on different items to fix, so will not be stuck eating the same meal 4 times a day times 2yrs. I am also thinking about trying keto minus milk and gluten. has not had a milk product since January, much improvement until she cheated and ate a slice of cheese cake which increased seizures for a couple of nights. But please if anyone can giude me on recipies milk and gluten free please do so. Thanks, Tracey Quote Link to comment Share on other sites More sharing options...
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