Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 " It began in Nevada, in a tiny community on Lake Tahoe knowns as " Incline Village. " It was here, starting back in 1985, that two observant physicians began to notice a strange pattern of symptoms in patients who complained of blurred vision, faltering short -term memory and debilitating exhaustion. " -Page 345 " Desperation Medicine " by Dr. Ritchie Shoemaker. One of my first questions to Dr Cheney and Dr during the Incline Village epidemic was " Why is mold killing me? " . I spent the next eleven years trying to get hundreds of doctors, CFS researchers and to help me and not one of them ever showed the slightest interest or willingness to pursue an answer to my question. Finally, after realizing I had been totally abandoned and could expect no assistance, I developed my own extreme mycotoxin avoidance strategy which resulted in a recovery so dramatic that no one believes it. I spent years telling my story of recovery and the " Mycotoxin Connection " to support groups, CFS specialists and researchers wordwide and virtually no one showed any interest. I was just turned down by a personage no less than Professor Simon Wessely who also failed to see anything significant in my story. I've even told my story on this board years ago with no response. Several years ago I told my concepts to a Dr refugee who gave me a copy of Desperation Medicine. I was amazed. After so many years of total inability to get a doctor to respond in a manner that conveys that he understood a single word I said, here is a doctor on the other side of the country in land who knows exactly what I am talking about. I contacted Dr Shoemaker and he instantly responded. We've been corresponding ever since and I've told him most of my story. I told him that he is virtually the only doctor to pass " The Intelligence Test " since I am so amazed that I could say the things I do and have a seemingly rational individual fail to recognize any relevant information in my experience. I make a reference to this incredible lack of interest in a message I sent to Dr. Shoemaker several months ago. - " Dr. Shoemaker. A Dr patient called me up last week and said that there was a highly motivated local doctor who wanted to learn about CFS. The patient thought it would be a good idea for me to contact him since this doctor was a " genius " . I said " We'll see. I'll give him the Intelligence Test " . Now I don't mean to sound arrogant, but I've been put in the very peculiar position of being an original Incline Village CFS epidemic survivor who was twice diagnosed as the " perfect case of CFS " who was so sick in 1998 that Dr told me that I was " at a point where most people commit suicide " and I proposed the mycotoxin avoidance strategy that allowed me to walk out of his ampligen program without treatment and return to mountain climbing. I'm not saying that I found the cause and cure for CFS but it's pretty darned amazing. At least it made a huge difference in my life when Dr told me that only ampligen could save me but I was unable to afford it. It seems to me that it was a noteworthy thing and if someone is looking for something that helps people with CFS, it might be a good thing to watch for if someone does something crazy like propose some bizarre strategy and then proves that it works. So if a doctor is looking for clues, this one ought to be semi- unoverlookable. But to my neverending and ceaseless amazement, I've told my story to hundreds of doctors, researchers and CFSers and the one and only person to pass the " Intelligence Test " is an eccentric doctor from land. It's kind of fun adding new names to the list of those who failed the intelligence test so I called up this local doctor and told him who I was and what I had done and gave him the opportunity to talk with me if he liked. He didn't like the idea. Another one bites the dust. I have a really tough time figuring how someone can be a " genius " and fail to respond to a story of recovery when he is supposedly doing nothing but looking for ways to help CFSers recover. I think it was Winston Churchill that said something like " Men occasionally stumble over the truth, but most of the time he will pick himself up and hurry off as if nothing had ever happened " . I had no idea until now how consistently men will hurry off from the truth and doctors seem to be hurrying as fast as anybody else. But the weirdness of this whole experience unveils a horrible truth that I never expected. It is that if someone developes any treatment that really works for CFS, doctors will treat it as an obstacle that they have to avoid tripping over and they wil hurry off as if nothing had happened. We always thought that if anybody came up with anything that helped with any illness, doctors would be tripping over themselves trying to get at it and word of its success would spread like wildfire. My experience of giving doctors the " Intelligence Test " shows that the universality of their " hurry off as if nothing had happpened " response means that the only way you could get them to look at the truth is if you ran after them and clubbed them over the head with it. At this point, it doesn't even matter if I'm a liar or not. The point is that someone can contact hundreds of doctors and show them a picture of a " Perfect case of CFS " on top of Mt Whitney and doctors will turn away. I don't know how doctors ever expect to find a cure for any illness with an attitude like that. - " He replied " Eccentric? I thought everyone else was weird since they didn't see things right... " Quote Link to comment Share on other sites More sharing options...
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