Re: Mold and MS/Demyelination

[Guest guest]

Does your sister drinks diet cola?

Dali

----- Original Message -----

From: le

Sent: Sunday, March 07, 2004 8:23 PM

Subject: [] Mold and MS/Demyelination

Hey everyone!My sister is 14 and she has been diagnosed with demyelination ofthe central nervous system, and can potentially get MS in thefuture. She has all the symptoms of MS, however the spinal tap shehad was okay. But, she was exposed to toxic mold (stachybotrys) for nine monthsstraight in our old house. We were told by a specialist that our mold was the worst case and most toxic in our area. And I am searching for a link betweentoxic mold (since it causes brain damage) and demyelination/MS. Iwas wondering if any of you were exposed to toxic mold before beingdiagnosed with either your MS or demyelination of the central nervoussystem. I am currently researching this topic and am finding usefulinformation. Any help would be great, so please share your similarsituations with me. Thank you soooo much and I wish you all the bestof luck!You can email me at dereks2yankee@...~DaniFAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner.

[Guest guest]

In a message dated 3/8/04 6:48:59 PM Eastern Standard Time, pj7@... writes:

Dani, I mentioned Lyme disease but actually there are a few infections which could make the situation much worse. Did she seem to have the flu or something like that at the same time? It might have looked like a case of mono that didn't go away. This could be a clue that she has an ongoing infection as well as the mold problem. I don't know, but just sharing ideas.

a Carnes

Umm...my sister doesn't drink any diet cola or anything. She has been heathly and athletic her whole life (she's 14)...and she suddenly had this onset of symptoms January, forcing the doctors to hospitalize her. They were puzzled at her condtion. That is why I am looking into a link between Mold and Demyelination/MS. She was fine until her encounter with Stachybotrys. We all were fine until then.

Before I connected, I had a bad case of mono that turned into CFS. I was working in the moldy basement when I came doen with this.

Janet

[Guest guest]

Dani, I am new here and don't know much so take this for what it is worth!!!!

It seems to me that some of us who react to mold also carry infections. In my case, I have Lyme disease along with the mold problems. I THINK somehow these things may work together in a bad way.

So I would suggest that you may want to go to a Lyme specialist to get tests run. You may need to treat that and also avoid the mold.

I may be able to help you find such a doctor if you want to pursue this. Email me off list telling me what state you are in and I will see if I can hunt up a doctor in your area.

a Carnes

pj7@...

Hey everyone!My sister is 14 and she has been diagnosed with demyelination ofthe central nervous system, and can potentially get MS in thefuture. She has all the symptoms of MS, however the spinal tap shehad was okay. But, she was exposed to toxic mold (stachybotrys) for nine monthsstraight in our old house. We were told by a specialist that our mold was the worst case and most toxic in our area. And I am searching for a link betweentoxic mold (since it causes brain damage) and demyelination/MS. Iwas wondering if any of you were exposed to toxic mold before beingdiagnosed with either your MS or demyelination of the central nervoussystem. I am currently researching this topic and am finding usefulinformation. Any help would be great, so please share your similarsituations with me. Thank you soooo much and I wish you all the bestof luck!You can email me at dereks2yankee@...~Dani

[Guest guest]

Dani, I mentioned Lyme disease but actually there are a few infections which could make the situation much worse. Did she seem to have the flu or something like that at the same time? It might have looked like a case of mono that didn't go away. This could be a clue that she has an ongoing infection as well as the mold problem. I don't know, but just sharing ideas.

a Carnes

Umm...my sister doesn't drink any diet cola or anything. She has been heathly and athletic her whole life (she's 14)...and she suddenly had this onset of symptoms January, forcing the doctors to hospitalize her. They were puzzled at her condtion. That is why I am looking into a link between Mold and Demyelination/MS. She was fine until her encounter with Stachybotrys. We all were fine until then.

[Guest guest]

Janet, this is interesting. My health went down in a bad building but also I got sick with something. Looking back after having some pretty esoteric tests I know I had mycoplasma and Lyme disease. Not sure how long. I have recovered fairly well with a few years of antibiotics based on what I tested positive for, but I still must avoid moldy places. If anyone is interested in pursuing this aspect - if it seems to fit your case, I do have lists of doctors who might know how and where to get tests run. Write me off list.

a Carnes

pj7@...

In a message dated 3/8/04 6:48:59 PM Eastern Standard Time, pj7@... writes:

Dani, I mentioned Lyme disease but actually there are a few infections which could make the situation much worse. Did she seem to have the flu or something like that at the same time? It might have looked like a case of mono that didn't go away. This could be a clue that she has an ongoing infection as well as the mold problem. I don't know, but just sharing ideas.a CarnesUmm...my sister doesn't drink any diet cola or anything. She has been heathly and athletic her whole life (she's 14)...and she suddenly had this onset of symptoms January, forcing the doctors to hospitalize her. They were puzzled at her condtion. That is why I am looking into a link between Mold and Demyelination/MS. She was fine until her encounter with Stachybotrys. We all were fine until then. Before I connected, I had a bad case of mono that turned into CFS. I was working in the moldy basement when I came doen with this.JanetFAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner.

[Guest guest]

Hi;

I was exposed to toxic mold (Confirmed by tests) for about 18 months

and 12 doctors before being diagnosed with demylinization/MS among a

myriad of other autoimmune problems... There is a good explaination

of how some molds can trigger an immunotoxic response, to include an

MS like syndrome, on the Immunosciences website.

http://www.immuno-sci-lab.com/2003_cat_molds.htm

My best to your sister....I can certainly appreciate what she's going

through.

--- In , " le " <dereks2yankee@y...>

wrote:

> Hey everyone!

>

> My sister is 14 and she has been diagnosed with demyelination of

> the central nervous system, and can potentially get MS in the

> future. She has all the symptoms of MS, however the spinal tap she

> had was okay. But, she was exposed to toxic mold (stachybotrys) for

> nine months

> straight in our old house. We were told by a specialist that our

mold

> was the worst case and most toxic in our area. And I am searching

> for a link between

> toxic mold (since it causes brain damage) and demyelination/MS. I

> was wondering if any of you were exposed to toxic mold before being

> diagnosed with either your MS or demyelination of the central

nervous

> system. I am currently researching this topic and am finding useful

> information. Any help would be great, so please share your similar

> situations with me. Thank you soooo much and I wish you all the best

> of luck!

>

> You can email me at dereks2yankee@y...

>

> ~Dani

[Guest guest]

Hi a,

The decision to have the tests should be an individual one. As far

as what can be done differently, I guess alot depends on if one

already has a Doctor treating them for an Immunotoxic or Neurotoxic

reaction to mold. If your Doctor buys into the fact that it is mold

making you sick, the tests would really do nothing but confirm it.

If like me you have trouble finding a Doctor to listen, presenting

these test findings showing the abnormal levels of antibodies to

specific toxic molds does get their attention a bit, but then, they

still might not know how to treat it. I was sick for 15 months

before I could find anyone to say anything other than , " You are just

depressed... " then....they treat the MS like syndrome, but not the

mold. There are other factors to consider. Expense, if you don't

have insurance to cover the tests, whether you may need them for any

legal action, etc. For me, I'd like to see as many people as

possible who have an MS like syndrome, and a known exposure to toxic

mold, get the tests and have them documented into some type of

database...so maybe one day in the future, enough Doctors and the CDC

will say there is a definite link, insurance companies, business and

rental and property owners will need to be accountable, and maybe,

just maybe, this tragic and horrible progressive disease can even be

prevented in some cases.

> Jewel, do you think it would be worth the money and effort for most

of us to have the Immunoscience test done? I am pretty sure I react

to moldy buildings, and I wonder if the test is going to be useful. I

mean, what steps would be taken different from now without the tests?

> a Carnes

>

>

>

> Hi;

>

> I was exposed to toxic mold (Confirmed by tests) for about 18

months

> and 12 doctors before being diagnosed with demylinization/MS

among a

> myriad of other autoimmune problems... There is a good

explaination

> of how some molds can trigger an immunotoxic response, to include

an

> MS like syndrome, on the Immunosciences website.

>

> http://www.immuno-sci-lab.com/2003_cat_molds.htm

>

>

> My best to your sister....I can certainly appreciate what she's

going

> through.