Newbie with questions

[Guest guest]

Hello, I am new here and at a loss. My son is 3 months old and I am

concerned about ridges along the coronal sutures. There is a definite ridge on both

sutures, but the fontanel is still open as it should be. There is a wee bit of bulging above his

ears, but no asymmetry (that I can see) of the ears or face. His head is round, but is quite lumpy,

with some flattened areas. I can’t

find any photos on the web that resemble what I am describing. I took him to the pediatrician yesterday

and voiced these concerns. His head

growth is normal, and in the 50th percentile. She said the sutures are not fused

because the fontanel is open. She

called it “Pronounced Sutures”. Can anyone tell me what that means

exactly? Secondly, if I photograph

different views of his head, is anyone willing to have a look and tell me if

this is positional plagio and if you think I need to

take him to a neuro?

Thank you so much

Kathy

[Guest guest]

Kathy:

Hi & welcome to the group.

I am not very familiar or educated with craniosynostosis outside of a

few parents in this group who have found their children to have

cranio.

Has your son had xrays or a CT scan to rule out cranio? Or is your

Dr. just telling you this by the " look " of his head? I Highly

recommend requesting a CT scan (the best way to get a good diagnosis

on cranio, better than xrays)from your pediatrician. You sound very

concerned about this. If his head has " ridges " and is " flattened in

some areas " as you described, I'd be very concerned as well. To be

on the safe side, I would definitely suggest a CT scan, if you have

not yet had one.

Do you have any photos of his head right now? If you do & you have a

scanner, feel free to add it to our " Photos " section, then to " our

plagio kids " . It only takes a minute to do & is very simple. Or you

could attach a picture to your email to this address. I am

interested in seeing his photos, I love seeing new cute babies .

I'm including a couple links to 2 different & very helpful websites.

CAPPS kids is wonderful to cranio parents. Maybe this sight could be

of some assistance to you. The other is the plagiocephaly page. If

you haven't already visited these sights, check them out. There's

also a parent support group for craniosynostosis as well.

Maybe someone in there could be of a great help with your concerns.

I hope you will get the answers you are looking for. Good luck.

Debbie Abby's mom 3/1/00 DOCgrad 6/22/01

Michigan

here are the links

http://cappskids.org/

http://www.plagiocephaly.org/support/default.htm

> Hello, I am new here and at a loss. My son is 3 months old and I

am

> concerned about ridges along the coronal sutures. There is a

definite

> ridge on both sutures, but the fontanel is still open as it should

be.

> There is a wee bit of bulging above his ears, but no asymmetry

(that I

> can see) of the ears or face. His head is round, but is quite

lumpy,

> with some flattened areas. I can't find any photos on the web that

> resemble what I am describing. I took him to the pediatrician

yesterday

> and voiced these concerns. His head growth is normal, and in the

50th

> percentile. She said the sutures are not fused because the

fontanel is

> open. She called it " Pronounced Sutures " . Can anyone tell me what

that

> means exactly? Secondly, if I photograph different views of his

head,

> is anyone willing to have a look and tell me if this is positional

> plagio and if you think I need to take him to a neuro?

>

> Thank you so much

>

> Kathy

[Guest guest]

Debby,

Thanks so much for your input. The doctor did not order a CT scan. Her exact words were, “His coronal

sutures are pronounced, but not fused, because the fontanel is still open. We will watch it to make sure it doesn’t

close too early.” So, I

really don’t know much more than I did before I saw her. When was born, his ears were

literally folded over on the tops because he was so cramped and had been

engaged in the pelvis for several weeks.

He weighed 9 lbs 12 oz and was born via c-section, so there was no

molding from labor or birth. I will

get some photos when he wakes up again, either tonight or in the morning.

Kathy

-----Original Message-----

From: dj2kirby@... [mailto:dj2kirby@...]

Sent: Saturday, September 15, 2001

6:27 PM

Plagiocephaly

Subject: Re: Newbie with

questions

Kathy:

Hi & welcome to the group.

I am not very familiar or educated with

craniosynostosis outside of a

few parents in this group who have found their

children to have

cranio.

Has your son had xrays or a CT scan to rule out

cranio? Or is your

Dr. just telling you this by the " look "

of his head? I Highly

recommend requesting a CT scan (the best way to

get a good diagnosis

on cranio, better than xrays)from your

pediatrician. You sound very

concerned about this. If his head has

" ridges " and is " flattened in

some areas " as you described, I'd be very

concerned as well. To be

on the safe side, I would definitely suggest a CT

scan, if you have

not yet had one.

Do you have any photos of his head right

now? If you do & you have a

scanner, feel free to add it to our

" Photos " section, then to " our

plagio kids " . It only takes a minute to

do & is very simple. Or you

could attach a picture to your email to this

address. I am

interested in seeing his photos, I love seeing new

cute babies .

I'm including a couple links to 2 different &

very helpful websites.

CAPPS kids is wonderful to cranio parents.

Maybe this sight could be

of some assistance to you. The other is the

plagiocephaly page. If

you haven't already visited these sights, check

them out. There's

also a parent support group for

craniosynostosis as well.

Maybe someone in there could be of a great help

with your concerns.

I hope you will get the answers you are looking

for. Good luck.

Debbie Abby's mom 3/1/00 DOCgrad 6/22/01

Michigan

here are the links

http://cappskids.org/

http://www.plagiocephaly.org/support/default.htm

> Hello, I am new here and at a

loss. My son is 3 months old and I

am

> concerned about ridges along the coronal

sutures. There is a

definite

> ridge on both sutures, but the fontanel is

still open as it should

be.

> There is a wee bit of bulging above his ears,

but no asymmetry

(that I

> can see) of the ears or face. His head

is round, but is quite

lumpy,

> with some flattened areas. I can't find

any photos on the web that

> resemble what I am describing. I took

him to the pediatrician

yesterday

> and voiced these concerns. His head

growth is normal, and in the

50th

> percentile. She said the sutures are

not fused because the

fontanel is

> open. She called it " Pronounced

Sutures " . Can anyone tell me what

that

> means exactly? Secondly, if I

photograph different views of his

head,

> is anyone willing to have a look and tell me

if this is positional

> plagio and if you think I need to take him to

a neuro?

>

> Thank you so much

>

> Kathy

For more plagio info, go to

www.plagiocephaly.org/support

[Guest guest]

Hi Kathy,

Welcome to this group : ) My son also has ridges along the coronal

sutures (we noticed it when he was 2 weeks old, and they are better but

still there), and we were really worried about craniosynostosis because

of it. It turns it wasn't, but he did have plagio. You can

read our story and see some pictures of him on his website at http://www.geocities.com/alittleone2000/plagiopage.htm.

On some of the pictures you can see the ridges.

Go ahead and post some pictures of your son, we'll definitively take

a look.

Annick

Mom to

Mtl, Can.

"K. Milne, Atlanta GA" wrote:

Hello,I

am new here and at a loss.My son

is 3 months old and I am concerned about ridges along the coronal sutures.There

is a definite ridge on both sutures, but the fontanel is still open as

it should be.There is a wee bit

of bulging above his ears, but no asymmetry (that I can see) of the ears

or face.His head is round, but is

quite lumpy, with some flattened areas.I

can’t find any photos on the web that resemble what I am describing.I

took him to the pediatrician yesterday and voiced these concerns.His

head growth is normal, and in the 50th percentile.She

said the sutures are not fused because the fontanel is open.She

called it “Pronounced Sutures”.Can

anyone tell me what that means exactly?Secondly,

if I photograph different views of his head, is anyone willing to have

a look and tell me if this is positional plagio

and if you think I need to take him to a neuro?

Thank

you so much

Kathy

For more plagio info

[Guest guest]

Thank you so much Annick! Your son’s head looks very similar from

what I can tell. He is adorable too,

btw. I will get some photos posted

tomorrow.

Kathy

-----Original Message-----

From: Annick Vauthier

[mailto:annick.vauthier@...]

Sent: Saturday, September 15, 2001

10:47 PM

Plagiocephaly

Subject: Re: Newbie with

questions

Hi Kathy,

Welcome to this group : ) My son also has ridges

along the coronal sutures (we noticed it when he was 2 weeks old, and they are

better but still there), and we were really worried about craniosynostosis

because of it. It turns it wasn't, but he did have plagio. You can

read our story and see some pictures of him on his website at http://www.geocities.com/alittleone2000/plagiopage.htm.

On some of the pictures you can see the ridges.

Go ahead and post some pictures of your son, we'll definitively take a look.

Annick

Mom to

Mtl, Can.

" K. Milne, Atlanta GA " wrote:

Hello,I am new here and

at a loss.My son is 3 months old and I am concerned about ridges along the

coronal sutures.There is a definite ridge on both sutures, but the fontanel is

still open as it should be.There is a wee bit of bulging above his ears, but no

asymmetry (that I can see) of the ears or face.His head is round, but is quite

lumpy, with some flattened areas.I can’t find any photos on the web that

resemble what I am describing.I took him to the pediatrician yesterday and

voiced these concerns.His head growth is normal, and in the 50th

percentile.She said the sutures are not fused because the fontanel is open.She

called it “Pronounced Sutures”.Can anyone tell me what that means

exactly?Secondly, if I photograph different views of his head, is anyone

willing to have a look and tell me if this is positional plagio and if you

think I need to take him to a neuro?

Thank you so

much

Kathy

For

more plagio info

[Guest guest]

Kathy,

I see you have already received some good responses to your post, but I

wanted to add my welcome and I'm glad you are here!

If you have concerns about your babies headshape then a consultation with a

specialist would be a very good idea. This will ease your mind and give you

some idea of what you are dealing with. You are catching this so early that

you have lots of time and options if you are dealing with plagio. Ask your

ped for a referral and give yourself some peace of mind!

Best wishes and I hope you will stick with us and keep us posted.

Marci (Mom to )

Oklahoma

[Guest guest]

Kathy:

Your doctor cannot tell if the sutures are fused just by look or feel. I personally would push for a CT scan to be sure. Many babies with "classic" signs of plagio are routinely scanned, just to be sure all sutures are open. Don't be too worried at this point, but push for that scan. Better to be safe than sorry.

Please keep us updated!

p.s. I knew a Kathy Milne in high school! Any chance you grew up in Calgary? Hehe!

Kendra in Canadawww.plagiocephaly.org/support/Plagiocephaly/joinhttp://geocities.com/kendraandhanna/

----- Original Message -----

From: K. Milne, Atlanta GA

Plagiocephaly

Sent: Saturday, September 15, 2001 3:03 PM

Subject: RE: Newbie with questions

Hello, I am new here and at a loss. My son is 3 months old and I am concerned about ridges along the coronal sutures. There is a definite ridge on both sutures, but the fontanel is still open as it should be. There is a wee bit of bulging above his ears, but no asymmetry (that I can see) of the ears or face. His head is round, but is quite lumpy, with some flattened areas. I can’t find any photos on the web that resemble what I am describing. I took him to the pediatrician yesterday and voiced these concerns. His head growth is normal, and in the 50th percentile. She said the sutures are not fused because the fontanel is open. She called it “Pronounced Sutures”. Can anyone tell me what that means exactly? Secondly, if I photograph different views of his head, is anyone willing to have a look and tell me if this is positional plagio and if you think I need to take him to a neuro?

Thank you so much

Kathy

For more plagio info

[Guest guest]

Hi Kathy and everyone,

I am new here as well. My son is 4.5 months

old. He has been diagnosed by our ped with mild

positional plagiocephaly. We are not sure how he came

up with a mild diagnosis as he didn't take any

measurements. He also has ridges along the coronal

suture and bossing above his left ear which is also

the flat side. Our family doctor said the ridges above

the coronal suture is fairly common. We are going to

check with our ped on this as well. His ears are

fairly symmetrical as is his face ( I can see some

assymetry, but I seem to be the only one who can). In

fact after looking at the pictures of your son, his

head looks very similar to what ' head looks

like. Unfortunately I don't have any pictures on the

web of him.

We pushed to have a CT scan done even though the ped

didn't think it was necessary, arrrgghhh. We cannot

get in until the end of November. In the meantime, we

have been repositioning (and seeing some improvement).

We have also ordered a soft (passive) helmet from

Wake Forest University Hospital. We live in Ontario,

Canada and we gave them ' measurements and

they are sending one to us. All it does is keep him

off the flat spot and allows that area to grow in, it

does not put any pressure on his head. During the day

we keep him off his back, but at night obviously we

have no control so we are hoping the helmet will help

speed up the process. We know there is a molding

helmet program at Sick Kids in Toronto and if we feel

in the next couple of months we are not getting the

results we want we are going to consider using the

molding helmet. As I said we are seeing some success

with repositioning and are optimistic that we caught

it early enough and with the use of a soft helmet it

will round out. We are also going to ask for a

referral to see a plastic surgeon who is very

experienced in treating kids with plagio at the

Children's hospital here in London.

London, Ontario, Canada

--- " K. Milne, Atlanta GA " <kmilne@...>

wrote:

> Hello, I am new here and at a loss. My son is 3

> months old and I am

> concerned about ridges along the coronal sutures.

> There is a definite

> ridge on both sutures, but the fontanel is still

> open as it should be.

> There is a wee bit of bulging above his ears, but no

> asymmetry (that I

> can see) of the ears or face. His head is round,

> but is quite lumpy,

> with some flattened areas. I can't find any photos

> on the web that

> resemble what I am describing. I took him to the

> pediatrician yesterday

> and voiced these concerns. His head growth is

> normal, and in the 50th

> percentile. She said the sutures are not fused

> because the fontanel is

> open. She called it " Pronounced Sutures " . Can

> anyone tell me what that

> means exactly? Secondly, if I photograph different

> views of his head,

> is anyone willing to have a look and tell me if this

> is positional

> plagio and if you think I need to take him to a

> neuro?

>

> Thank you so much

>

> Kathy

>

>

__________________________________________________

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[Guest guest]

:

Welcome to our group!! It sounds like you are doing a great job with

repositioning. I hope you continue to see some improvement with it.

Please keep us posted on the soft helmet you have ordered. There is

another parent in here who is also currently using it. I'm

interested in hearing how well it works & if it helps! It sure would

be great if it helps.

You are doing the right thing by demanding a CT scan. Any time you

as a parent are concerned with something, you need to get reassurance

that it is in fact ok, despite what the Dr. is telling you. Any time

ridges are mentioned, we fear craniosynostosis. This should

definitely be checked out.

Please keep us posted on 's progress. Good luck with all

your efforts. Again, welcome to the group

Debbie Abby's mom 3/1/00 DOCgrad 6/22/01

Michigan

> > Hello, I am new here and at a loss. My son is 3

> > months old and I am

> > concerned about ridges along the coronal sutures.

> > There is a definite

> > ridge on both sutures, but the fontanel is still

> > open as it should be.

> > There is a wee bit of bulging above his ears, but no

> > asymmetry (that I

> > can see) of the ears or face. His head is round,

> > but is quite lumpy,

> > with some flattened areas. I can't find any photos

> > on the web that

> > resemble what I am describing. I took him to the

> > pediatrician yesterday

> > and voiced these concerns. His head growth is

> > normal, and in the 50th

> > percentile. She said the sutures are not fused

> > because the fontanel is

> > open. She called it " Pronounced Sutures " . Can

> > anyone tell me what that

> > means exactly? Secondly, if I photograph different

> > views of his head,

> > is anyone willing to have a look and tell me if this

> > is positional

> > plagio and if you think I need to take him to a

> > neuro?

> >

> > Thank you so much

> >

> > Kathy

> >

> >

>

>

> __________________________________________________

> Terrorist Attacks on U.S. - How can you help?

> Donate cash, emergency relief information

> http://dailynews./fc/US/Emergency_Information/

[Guest guest]

Hi There, So glad to find this group!

I have two children aged 8 and 12 who have both attended the same

school system. The oldest- girl- first attended kindergarten in an

old, known to have poor air quality school. She developed a tic with

vocalizations. First and second grade (multi-age class) were in a

different school and her third grade class was the room next door to

her multi-aged one. Four years later this wing of the school was

torn apart for air quality improvements. During this time my

daughters tics became more pronounced and she was very anxious and

couldn't focus. A neurologist put her on 20 mgms of Ritlin which

helped her focus and weirdly made her tic stop while on it. Fourth

and fifth grade, she became insecure, and depressed, still having

her tic controlled by Ritalin.

My son is 8. His kindergarten was a brand new addition built on the

grammer school, and his tic started. First and second grade were in

the same multiage room as his sister was in, where his tic continued

and gradual inability to focus started, but not enough to prevent

him from learning. Grade three, he's having a meltdown. Can't get

any thoughts out. Totally stopped answering the teachers questions,

the tic is constant. As it happens the teacher suffered ill effects

from a classroom in the school (right next to the new addition, so

lots of digging and stiring up occured during construction)She's in

a renovated for air quality class room, but the ventillation is not

always turned on in the cold weather. Other children have begun

wetting the bed, inability to focus.... long lasting problems.

The principle claims that the ventilation is on daily but i believe

he's lying. I know it was off for a while during very cold weather,

then when turned on again, won't all of the mold ect...have grown in

the filters and now is being spread in the air?

I don't know how to go about testing the air quality, or making sure

that it's done and the results truthful. Will a store bought mold

test do it? How can I go about finding these things out and what

should I look for? I called the EPA but they need to be " invited in "

to check the school. I live in Waterville Maine. HELP!!!