drugs exacerating seizures -- aja

[Guest guest]

I have learned a ton on the ketogenic list. . . I've

been amazed by the number of parents who have shared

their experiences which mirrored mine. In many cases,

they were experiences just like mine that had been

blown off by my neuro.

Tegretol keeps coming up as one that kids easily go

toxic on and that that toxicity can actually cause

seizures. I can tell you that my daughter went toxic

on Tegretol -- we were with another neurologist at the

time. He kept pushing the Tegretol up and she kept

getting worse. She went into status and landed in the

pediatric ICU under the care of another neurologist.

He told me that she was " flying " on Tegretol and that

that was likely what had happened to send her into

status (and, yes -- her blood levels had been

monitored all along). He pulled her off it cold

turkey and " loaded " Depakote. . .then we dealt with

withdrawl from the Tegretol with the added shock of

the hit of Depakote, not to mention working out all

the emergency meds she'd been given. I've heard this

same exact story twice on the keto list. I have read,

either here or on the keto list, not sure which, about

the additions being added to the Tegretol information

that discuss potential liver damage. . .which it looks

like has also happened to my daughter.

As for Lamictal, the other similarity I hear over and

over again is when kids start having night seizures

and night terrors while on Lamictal. This happened to

my daughter, too. She never had either until she was

on Lamictal. It looks like, from our experience and

others on this list, it takes a long time for this to

abate.

I believe I have heard medical references to both --

although I don't have any cites. What I'm mainly

talking about is " Mom experience " which tends to weigh

more heavily than what neuros read from the drug

companies.

One final similarity has been Topomax and the number

of times I've read about it completely " zeroing " out

kids. That, I've read on Medscape, although it was

completely denied by our neuro.

Hope this helps. . .--D

--- Aja Beasley <aja_ab@...> wrote:

> Hello... What do you mean, Tegretol exacerbates

> seizures? Oh great. Does

> anybody know if Tegretol & /or Lamictal causes PVCs?

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