Fw: re:lipoma's, head bumps

[Guest guest]

----- Original Message -----

From: " Kathi " <pureheart@...>

Sent: Friday, December 27, 2002 4:19 PM

Subject: re:lipoma's, head bumps

> remove ID's please....

> my lipomas have been internal to date....calf muscle, groin x 3 (rupture

> side), and breast....(required separate surgical removals---) and my

> speicfic requests to have tissue forwarded to

> a specific lab investigating silicones were ignored and tissue samples

> " lost " .) Lab results were lipoma/myoma/dermis-oma? Never specific, and

> never looked at further. Supposedly,

> benign....no problem, except for the 4 additional surgeries and the

> remaining lump in my breast....

>

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> Reply to the lady who wrote about " lipomas " ~~ I too, had a large one

> removed from my shoulder. Please remember that any tissue that is

> removed

> is " stored on slides " and you can request to have them looked at again

> perhaps by another pathologist at a different hospital. Good luck.

> andra

>

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> I had that too! plus organ and brain involvement!

> I am happy the Lord gave me a second chance, Took the test last week,

> ANA is

> neg-!

>

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> I have had bumps on my scalp for many years and doctors just shrug their

>

> shoulders. They are very sore and last about 5 to 7 days, they seem to

> appear in bunches. I also have sores in my mouth, usually on the roof,

> that come and go about the same as the bumps on scalp. It seems that

> all

> of us have about the same things and no doctor will do a study and

> government keeps dragging their feet on doing a national study of all of

>

> us who are ill. I am sick of hearing " a disease like

> ______ or _____ " It is a disease in itself and needs to be recognized.

> I hope some of us live long enough to see a valid study.

> Margaret

> magal4@...

>

>

> The problem with the studies Margaret, is that very very few women have

> come forth for most of the proposed studies that have been offered the

> past few years. I have had people check into why there has been no

> follow up and this was the answer. This makes me wonder where they are

> getting the figures or the women for the study results that have been

> reported. When I asked for women who would be interested in the

> offered proposal if funding could be gotten, for an antiphospholipid

> study less than 1% responded. The same is true of the anonymous data

> base that I had an actuary and a few doctors/researchers interested in,

> there were never enough volunteers, now they will not discuss much about

> this with me because they feel the women maybe questioning this matter

> themselves and age and other factors maybe the causes after all.

> Kathi

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