Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Hi everyone: I just wanted to say that when I was diagnosed with Graves approx. 4 - 5 years ago, my doctor in no way tried to rush me into radiation. I had no knowledge whatsoever about thyroid disease and I would have probably just followed along if he had. But he said to me that I was still young and if I might want to have more children he wouldnt reccomend RAI unless all else failed. He said it would be worth my while to try the ATD's for a year or two and see if I go into remission because alot of people do go into remission. I am so shocked that so many people have such a negative experience with their doctors and that doctors are so uninformed about the choices and possibilities with this disease. Why the rush into RAI????? I have been in remission for about a year now, on NO medication whatsoever. And the truth of the matter is, that I was very very sick when I was diagnosed with graves and would have probably done anything that my doctor told me to do at that point. I have great compassion for all people who suffer through this, but I do believe that there is a light at the end of the tunnel. Thanks to all of the people on here who continue to read the boards and do research long after they themselves are actually feeling ill. The information is really invaluable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Dawn, it definitely sounds like they are trying to wear you down and push you into RAI. Ultimately it's your decision but make sure it's your decision and not theirs. Haviing RAI is not going to fix you overnight - apparently it takes a while. If you choose surgery make sure you have someone who is experienced with thyroidectomies otherwise they can damage your vocal cords. They will try to scare you away from surgery because of the risks. I'm still on ATDs but would choose surgery if necessary. I'm too afraid of the RAI. Do they have you on medication to slow down your heart? Wish you the best, Mona considering surgery This is DAWN ROSE: Sorry it is long again, but I'd appreciate any advice about surgery. Saw another endo today . We spoke for about an hour. he was basically trying to persuade me to have RAI, but accepted that it didn't look like I was going to do it and is now talking about surgery. However, he has insisted that I still go to the RAI appointment and talk to the doctor in charge of it, that way, he says, I will get the facts about it straight. I think they just hope you will cave when presented with a pill that will " cure " you. I am afraid taht I will too, I feel terrible. I don't want RAI but am considering surgery, espicially if it is only going to be partial. I can't live like I am doing for very much longer. My blood and tests are as follows: They have been hyper since july and like this since September: TSH undetectable FT4 above 50 (which in this country means unmeasurably high) FT4 4.2 when the top of the range is 2.0 My uptake scan was apparently totally black, showing a very high rate of iodine uptake all over it.... indicative of GD. (It feels like I am boasting!) I am feeling appropriately ill and miserable and am considering surgery. I know that it is not the most wholistic way to go and could send me hypo and there are other risks, BUT it feels like I am doing damage to my heart at the moment by not doing anything more radical than minerals. I am afraid of damaging my organs and my bones by remaining thyrotoxic too long. I have tried all the available anti thyroid drugs, but am at risk of bone marrow reactions. I did try the copper and am writing another email to about my reaction after it... it made me feel very nauseous and dizzy. The endocrinologist has also arranged for a test for 's disease as I DO look like I have a tan and I haven't been in the sun for about 10 months - it is so rare, it is very unlikely though. LOW WHITE BLOOD CELLS. He said that low white blood cell counts can be a symptom of GD and that this could explain why I had low neutorphil count BEFORE ATDs. I seem to remember reading the same thing in medical text books. It would, he said, be a brave man who proscribed ATDs to me while I had a low neutrophil count, and I agree with him - i DON't think I should take them, but that means there is a strain on my organs and bones while I wait for remission. Surgery (partial) seems to be a serious option... anyone share their surgery experiences with me? - there must be good and bad stories out there? DAWN _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 > However, he has insisted that I still go to the RAI appointment and talk to > the doctor in charge of it, that way, he says, I will get the facts about it > straight. > > I think they just hope you will cave when presented with a pill that will > " cure " you. I am afraid taht I will too, I feel terrible. I don't want RAI There's a LOT of information on the downsides of RAI on this list, others, and various sites around the 'net. If you do go to this appointment, go prepared - printouts, notes, etc.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Dawn, I sent an e-mail earlier this evening indicating I understood one's thyroid can continue its current functioning with only a SMALL portion of the thyroid remaining intact. Experience has taught me that I'm still HyperT with only one half of the gland, after the removal of the nodule. Surgery is only better than RAI because you don't ingest radioactive material which will probably " haunt " you for quite some time after the procedure. Removal of the gland subjects you to being a patient for life. I sympathize with you, but still think you need to get to a hematologist to rule out other reasons for your symptoms and then to a rheumatologist, if necessary. They specialize in auto-immune problems and I really think that's what you need to investigate. Life should be LIVED, not endured. I've forgotten, are you on beta-blockers? If not, you should be. Thankfully, I don't have heart involvement even though I sometimes experience palpitations when particularly stressed. PLEASE CONSIDER OPTIONS, OTHER THAN SURGERY even though I know you're really tired of feeling sick! ===== Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 , what a wonderfully inspiring message. Thanks so much for taking the time to share your story with us. ===== Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Dear Dawn, Have you started taking the copper yet? Has it made you feel any better? AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Dear Bonner, Thanks for the info. From what you've said, you didn't have any choice as far as the surgery went. YOu don't regret it do you? There wasn't any other option for you was there? You did say that having surgery makes you a patient for life... is that really true? One of the reasons I want to have surgery over RAI is because the rate of hypothyroidism resulting from surgery is so much less. Am I misunderstanding something? How are you a paitient for life with surgery? It is entirely up to the doctors whether I can see a hematologist and rheumatologist. That's how it works over here. I might chase it up privately, but even then, it is difficult to get copies of your notes for the private doctors you are seeing. I WILL try though. Although, I think I will be back in Oz before I could see one. If I have the surgery in the UK I will not be able to fly after the anasthetic for some time. I think I would rather recover there than here. However, I am comforted about my blood changes by the fact that a low white blood count can be a symptom of GRave's disease. It MUST just be a rare one otherwise more of us would be reacting to ATds. I am going through old blood results and seeing if there is any more evidence of graves in any of the other results - (looking up each one in the index of Weber and Ingbars The Thyroid!... pretty rough eh!) I just don't know what to do. I know I don't want RAI and I finally worked out why... for me, it's because you have to spend so much time guessing whtat is going on in your body after you have taken it. You eat it and then it just continues to have it's half life and it's half life again, untill it's having imperceptible effects on your thyroid function forever more. The imperceptible effects of , lets call it, pre-subclinical hyperT (!)ruined my life for over a year before I was diagnosed and THAT is my great fear, that I will still be ill, but be testing normal and left to put up with it or put on " head " pills for something that is not a head problem. I CAN'T put something in my body that is going to continue this for me. I think that is why I will choose surgery if I have to - it IS more risky, the morbidity associated with RAI is less than either surgery or continued thyrotoxicosis - but at least wiht Surgery it is all over and you become stable quicker... or am I wrong about that. I guess if they dont' take enough of your gland away, you still have to cope with HyperT until remission comes. Just thinking out loud. Cheers Bonner DAWN _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Dawn, My cousin Gerry had thyroid surgery more than 40 years ago for her Graves' disease and fared very well, especially considering how crude the surgical technique was. I never even knew she had GD until a few years ago. She has no scar, is in great shape, and takes a low dose of synthroid. She's in her 70's and looks about 55. She said she did have a thin scar which faded over the years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Dawn, They will try to scare you with the risks, but remember they are also going to scare you because surgery is by far the most expensive technique. Surgery today, has very little risk, <1% for complications. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Yeah... that is what I have been thinking and I came so close to saying so to my very good endo yesterday and didn't in case it offended him - ridiculous! it would've been a very interesting topic. It felt like a the doctor had all the same information as me regarding RAI, he agreed with most of the statistics I mentioned and his information agreed with mine. He just came to a different conclusion. Maybe it is because he is a man. At least some of the reason I don't want radiation in my body is because of the genetic abnormality thing; I have re-read the info about that since yesterday and it does seem that the risks are small in that respect, but I always knew that, it doesn't make any difference to my head - I don't want it. Cheers DAWN >From: daisyelaine@... >Reply-hyperthyroidismegroups >hyperthyroidismegroups >Subject: Re: considering surgery >Date: Wed, 1 Nov 2000 10:55:31 EST > >Dawn, >They will try to scare you with the risks, but remember they are also going >to scare you because surgery is by far the most expensive technique. >Surgery >today, has very little risk, <1% for complications. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Good morning....last night a neighbor came over and we chatted while handing out candy to the trick-or-treaters. He was rendered hypo several years ago. He had RAI. They never bothered to try any of the ATDs. Now he is always tired, hasn't slept well since RAI and when he gets sick, he stays sicker longer. He also told me since the RAI his saliva has changed and he can't lick an envelope or stamp because they won't stay stuck! Weird huh? I have also noticed he seems " down " lately. I think his thyroid levels are off so he's going in for blood work. He hates the way he feels! He's 39 years old and likes all kinds of outdoor activities with his kids and wishes he felt better. He also told me it took OVER A YEAR before the thyroid was destroyed and in the meantime had to take meds. Just thought I'd share this. Mona Re: considering surgery Dear Bonner, Thanks for the info. From what you've said, you didn't have any choice as far as the surgery went. YOu don't regret it do you? There wasn't any other option for you was there? You did say that having surgery makes you a patient for life... is that really true? One of the reasons I want to have surgery over RAI is because the rate of hypothyroidism resulting from surgery is so much less. Am I misunderstanding something? How are you a paitient for life with surgery? It is entirely up to the doctors whether I can see a hematologist and rheumatologist. That's how it works over here. I might chase it up privately, but even then, it is difficult to get copies of your notes for the private doctors you are seeing. I WILL try though. Although, I think I will be back in Oz before I could see one. If I have the surgery in the UK I will not be able to fly after the anasthetic for some time. I think I would rather recover there than here. However, I am comforted about my blood changes by the fact that a low white blood count can be a symptom of GRave's disease. It MUST just be a rare one otherwise more of us would be reacting to ATds. I am going through old blood results and seeing if there is any more evidence of graves in any of the other results - (looking up each one in the index of Weber and Ingbars The Thyroid!... pretty rough eh!) I just don't know what to do. I know I don't want RAI and I finally worked out why... for me, it's because you have to spend so much time guessing whtat is going on in your body after you have taken it. You eat it and then it just continues to have it's half life and it's half life again, untill it's having imperceptible effects on your thyroid function forever more. The imperceptible effects of , lets call it, pre-subclinical hyperT (!)ruined my life for over a year before I was diagnosed and THAT is my great fear, that I will still be ill, but be testing normal and left to put up with it or put on " head " pills for something that is not a head problem. I CAN'T put something in my body that is going to continue this for me. I think that is why I will choose surgery if I have to - it IS more risky, the morbidity associated with RAI is less than either surgery or continued thyrotoxicosis - but at least wiht Surgery it is all over and you become stable quicker... or am I wrong about that. I guess if they dont' take enough of your gland away, you still have to cope with HyperT until remission comes. Just thinking out loud. Cheers Bonner DAWN _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 DOes anyone watch the TV showed " JAG " ?? Have you noticed the scar on the tall female officer across her throat? I often wonder if she had her thyroid removed. Mona Re: considering surgery Dawn, My cousin Gerry had thyroid surgery more than 40 years ago for her Graves' disease and fared very well, especially considering how crude the surgical technique was. I never even knew she had GD until a few years ago. She has no scar, is in great shape, and takes a low dose of synthroid. She's in her 70's and looks about 55. She said she did have a thin scar which faded over the years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Hey Mona, why don't you show your neighbor my new revised Sjogren's article. it's on themestream and linked to my web site. In it I mention that sympoms much like SS can occur from RAI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 If you have your thyroid removed your stuck on pills forever and meetings with the doctor once or twice a year, if you have only a portion removed your still stuck on pills and meetings with the doctor for the remaider of your life. > Re: considering surgery > > Dear Bonner, > > Thanks for the info. From what you've said, you didn't have any choice as > > far as the surgery went. YOu don't regret it do you? There wasn't any > other option for you was there? > > You did say that having surgery makes you a patient for life... is that > really true? One of the reasons I want to have surgery over RAI is > because > the rate of hypothyroidism resulting from surgery is so much less. Am I > misunderstanding something? How are you a paitient for life with surgery? > > It is entirely up to the doctors whether I can see a hematologist and > rheumatologist. That's how it works over here. I might chase it up > privately, but even then, it is difficult to get copies of your notes for > the private doctors you are seeing. I WILL try though. Although, I think > I > will be back in Oz before I could see one. If I have the surgery in the > UK > I will not be able to fly after the anasthetic for some time. I think I > would rather recover there than here. > > However, I am comforted about my blood changes by the fact that a low > white > blood count can be a symptom of GRave's disease. It MUST just be a rare > one > otherwise more of us would be reacting to ATds. I am going through old > blood results and seeing if there is any more evidence of graves in any of > > the other results - (looking up each one in the index of Weber and Ingbars > > The Thyroid!... pretty rough eh!) > > I just don't know what to do. I know I don't want RAI and I finally worked > > out why... for me, it's because you have to spend so much time guessing > whtat is going on in your body after you have taken it. You eat it and > then > it just continues to have it's half life and it's half life again, untill > it's having imperceptible effects on your thyroid function forever more. > > The imperceptible effects of , lets call it, pre-subclinical hyperT > (!)ruined my life for over a year before I was diagnosed and THAT is my > great fear, that I will still be ill, but be testing normal and left to > put > up with it or put on " head " pills for something that is not a head > problem. > I CAN'T put something in my body that is going to continue this for me. > > I think that is why I will choose surgery if I have to - it IS more risky, > > the morbidity associated with RAI is less than either surgery or continued > > thyrotoxicosis - but at least wiht Surgery it is all over and you become > stable quicker... or am I wrong about that. I guess if they dont' take > enough of your gland away, you still have to cope with HyperT until > remission comes. > > Just thinking out loud. Cheers Bonner > DAWN > > > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 ok, I'll download and give him a copy. Thx, Mona Re: considering surgery Hey Mona, why don't you show your neighbor my new revised Sjogren's article. it's on themestream and linked to my web site. In it I mention that sympoms much like SS can occur from RAI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Elaine....got a blood test question for you. Total T3 is 123 (60-181 range) Free T4 is 0.88 (.90-1.80 range) TSH 2.04 (.3-5.00 range) Since August T3 is up from 91, T4 is down from .92 and TSH up from 1.83......should I be worried about the T4? Is this the reason why my eyes are bothering me a bit? Everything else is normal so why isn't T4? Other than my eyes bothering me a bit I haven't noticed anything else except maybe I'm a little hungrier. What do you think, should I be concerned? Thanks, Mona By the way, my eyes bothered me in the past when my levels were out of whack! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Dawn, I didn't have a choice about surgery because the results of the needle aspirations were " suspicious, " meaning there was a real chance that I had thyroid cancer. Thankfully, I didn't and only one-half of my thyroid gland was removed with the nodule. As I said, the body can function normally with only a portion of the thyroid gland. I intend to get mine under control and get off PTU, thereby NOT being a patient for life. If you have your thyroid removed, you'll become hypoT immediately and dependent on synthetic thyroid hormone to stimulate your metabolism, the same as if you choose RAI. This will be a life-long balancing act. The only benefit I can see is that you don't expose yourself to the radiation and the unknown effects which may show up years from now. I understand the bureaucracy of health benefits is different in the UK, but surely they can't deny you the opportunity for an accurate diagnosis. Can you demand that your primary physician perform additional blood tests and then refer you to the proper specialist? Lupus and other auto-immune diseases can be difficult to diagnose, particularly by a physician not specifically trained in that area, but this IS important to your health and well-being and if I were you, I'd pursue whatever avenues necessary to determine and treat your disease. I think you'd be happier back home in Australia. What plans have you made to return? Is socialized medicine better there? What is the flight route from the UK to Australia? I tried to look it up on the Internet, but got so confused I gave it up. Your low white blood cell count NEEDS to be addressed. You're subject to battling lots of infections and each time you have to use antibiotics, rather than depend on your natural antibodies, you're further diminishing you ability to fight off infection. Dawn, I know you probably don't have much energy to " do battle " with the medical community, but if I were you, I'd summon all of my strength to get a REAL diagnosis. What if you have your thyroid removed and HyperT doesn't turn out to be the culprit? Your condition will worsen and you'll have even less strength for the journey towards good health. The effects of RAI aren't completely understood, but don't misunderstand that it has " imperceptible effects on your thyroid forever more. " With RAI, it's as if you don't have a thyroid; the same as with surgery, but you have to deal with the effects of radiation on your ENTIRE body, in addition to trying to establish the correct thyroid hormone level to feel good. Maybe I've missed something. Do you have a thyroid nodule? If that's the case, what are the results of the biopsies? I had a benign one for several years and it didn't affect my hormonal levels at all, nor did I experience discomfort from having an enlarged gland. A partial thyroidectomy ISN'T a bad thing; it's the TOTAL removal of the gland which should send you shrieking from the doctor's office, UNLESS you have thyroid cancer and have NO choice. I hope this is helpful to you in assessing your options. ===== Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 n, your message isn't quite right. People CAN function with only a small portion of their thyroid gland. We CAN gain remission, via medication and aggressive self-help in vitamin/mineral supplements, healthy diet, stress reduction. With remission, NO PILLS ARE NECESSARY. There are lots of success stories " out there " in the threads of ithyroid.com, 's website. ===== Bonner RE: considering surgery > If you have your thyroid removed your stuck on pills forever and meetings > with the doctor once or twice a year, if you have only a portion removed > your still stuck on pills and meetings with the doctor for the remaider of > your life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Thanks, I've never heard that before, I've heard that people that have a portion of there thyroid gland removed, will have to subject themselves to another operation as that half will eventually fail also. Now I'm sorry I didn't get to keep half of mine, so hate that I'm stuck on a synthetic drug for the rest of my life, didn't have any of this information to rely on then. Thanks again! > Re: considering surgery > > n, your message isn't quite right. People CAN function with only a > small portion of their thyroid gland. We CAN gain remission, via > medication > and aggressive self-help in vitamin/mineral supplements, healthy diet, > stress reduction. With remission, NO PILLS ARE NECESSARY. There are lots > of success stories " out there " in the threads of ithyroid.com, 's > website. > > ===== > Bonner > > RE: considering surgery > > > > If you have your thyroid removed your stuck on pills forever and > meetings > > with the doctor once or twice a year, if you have only a portion removed > > your still stuck on pills and meetings with the doctor for the remaider > of > > your life. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Dear Bonner, You are all so helpful. This board has helped me out such alot. No, I haven't got a nodule according to the scan. Of all the availabel options, partial thyroidectomy is my best one, but I will wait some time for remission. However, I have been told that at my local hospital (where I am allowed to go on the NHS,) the surgeon only does total thyrodectomy because the policy is to prevent relapse of hyperT. The RAI Doctor was TERRIFIC; she told me everything and ended up agreeing with me about having treatment in Oz and about surgery being likely to be my best option. However, because my gland is very small, she says a surgeon will not want to operate. We'll see. (despite it being small, it HURTS!) I'd like to have a partial thyrodectamy, my Aunt had this because of a nodule and has never had a problem with it. (I think she was never even Hyper though!) Does anyone know if this is a possibility with GD and increased homogenous uptake, it doesn't make alot of sense as a possibility to me. I've written it in some other emails, but the results of my uptake scan showed 4x the normal uptake and my blood results are off the scale apart from my FT3 which is more than twice the top of the normal range. Yes, these emails are helping me to assess my choices. I think I will be back in Oz on 16th November. Just waiting for the results of some more tests. Thanks again. DAWN > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 It's amazing the attitudes the doctors have. It's easier to do a total thyroidectomy than a partial. I also spoke to a surgeon over a year ago and she also does TOTAL to prevent hyperT. Thank goodness the ATDs work for me and I'm heading toward remission. Best of luck to you and don't allow the surgeons or doctors push you into anything you're not happy with. Search around. There are other surgeons that will work with you. Mona Re: considering surgery Dear Bonner, You are all so helpful. This board has helped me out such alot. No, I haven't got a nodule according to the scan. Of all the availabel options, partial thyroidectomy is my best one, but I will wait some time for remission. However, I have been told that at my local hospital (where I am allowed to go on the NHS,) the surgeon only does total thyrodectomy because the policy is to prevent relapse of hyperT. The RAI Doctor was TERRIFIC; she told me everything and ended up agreeing with me about having treatment in Oz and about surgery being likely to be my best option. However, because my gland is very small, she says a surgeon will not want to operate. We'll see. (despite it being small, it HURTS!) I'd like to have a partial thyrodectamy, my Aunt had this because of a nodule and has never had a problem with it. (I think she was never even Hyper though!) Does anyone know if this is a possibility with GD and increased homogenous uptake, it doesn't make alot of sense as a possibility to me. I've written it in some other emails, but the results of my uptake scan showed 4x the normal uptake and my blood results are off the scale apart from my FT3 which is more than twice the top of the normal range. Yes, these emails are helping me to assess my choices. I think I will be back in Oz on 16th November. Just waiting for the results of some more tests. Thanks again. DAWN > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 a, thanks for joining us and asking some very important questions on behalf of your friend. So many women think that implants are going to make them happier, and that may be true for a period of time, but it is NOT true that saline implants are safer than silicone gel, as they both are made with a silicone elastomer envelope and that is what we are more than likely reacting to, especially if the implants are textured. I wouldn't go so far as to say that everyone who gets implants experiences side effects, in terms of the catastophic diseases that we have experienced, but I will say that everyone who gets implants will have to DEAL with them at some point in the future, whether it be from rupture, leaking, illness, contamination, hardness, shifting.....then YES, I would say that everyone will experience some kind of side effect. You can't put a foreign object in your body and not have some type of reaction to it. I can guarantee that if you friend gets implants and gets sick, she will regret her decision with all her heart. These illnesses we suffer from are not simple, they are not understood, they are a curse that has brought only pain and suffering to our lives, while at the same time destroying the lives of those around us, as others bear the burden of having to deal with our inability to function, to work, to live life normally or with happiness. Many of us will tell you that we were suicidal, depressed, cried every day till we had no more tears.....all over this mysterious illness that doctors can't seem to identify or know how to treat, and that no one has fully understood. The weird thing is that we all look fine, we don't look sick, but we feel like we have been poisoned. Those dark days are painful for me to remember. And then if she does get sick, she has to deal with not only all that, she has to have thousands of dollars available for the proper removal of the implants. The implants AND the scar tissue have to be removed, (a total capsulectomy), and she will have to work hard to detox her body and be patient as it may take years for full healing to take place, if it takes place. Some women are still struggling with their illnesses years later. For others, like me, it has taken 5 years to feel completely human again, and even then, I still have been diagnosed with Hashimoto's thyroid disease, a disease I will have to treat for the rest of my life. But I thank God that I have my life back! It was definitely the very worst, absolutely the most stupidest decision I ever made in my life, all because I trusted plastic surgeons when they said they would make me feel better about how I looked. That was a total lie because in the end, I was left with a disease, loss of sensation in my nipples, and scarred breasts. A total scam. Patty ----- Original Message ----- From: ericac802000 Sent: Wednesday, June 04, 2003 10:21 PM Subject: considering surgery Hi,I came across this website while doing some research. A friend of mine wants to get breast implants and I don't know if she should. She told me that Saline implants are much safer--is that true? She has been considering surgery for two years and seems pretty convinced that getting implants will make her happy and make her feel better about her appearance. I am just wondering if anyone has any advice for what I can say to her--I am also wondering if everyone who gets implants experiences side-effects.What should I say to my friend? Anyone have any advice?Thanks a lot,a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 a if you have been reading up on this site then you can see how many of us have had issues related to these supposedly safe implants. I would encourage your friend to really check out both sides before making any final decisions regarding getting implants. She may be fine with them for awhile, but problems are bound to creep up sooner or later and you have to ask if it is worth the chance to have bigger breasts now, and all that is at stake. your a good friend for being so concerned and we always want women to get all the information out there, rather than the positive ones, because not all of us have good expereinces with implants. good luck In , " ericac802000 " <ericacresswell@h...> wrote: > Hi, > > I came across this website while doing some research. A friend > of mine wants to get breast implants and I don't know if she > should. She told me that Saline implants are much safer--is that > true? She has been considering surgery for two years and > seems pretty convinced that getting implants will make her > happy and make her feel better about her appearance. I am just > wondering if anyone has any advice for what I can say to her--I > am also wondering if everyone who gets implants experiences > side-effects. > > What should I say to my friend? Anyone have any advice? > > Thanks a lot, > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 Honee, Please keep us posted on your situation...we are here to support you through this. That is a tough one.....but you gotta do what is good for you. In the end, you have found out the true colors of this person you married. Sometimes it is hard to find this out... We're here for ya girl. Patty ----- Original Message ----- From: Honee Aylmer Sent: Thursday, June 05, 2003 11:43 AM Subject: Re: considering surgery Even if your friend does not have major health issues with the implants, it may affect her relationships. I am scheduled for explant on July 9th. I have been lucky and fortunate not to have had "major" problems. My main issues with them are that they are uncomfortable, my muscles cramp, when I lift something heavy they shift. Also, within the last year, I have had 3 sinus infections and pneumonia twice. The only other time I had any respiratory problems was 12 years ago, I had bronchitis. The implants have also ruined my marriage. My husband LOVES them. He is very upset that I am removing them. He hasn't talked to me about 3 days. I wanted these things out within a week of getting them, and he has talked me into keeping them "a little longer" in hopes that I will "get used to them". I am extremely depressed and angry. So, warn your friend that there are definitely health AND emotional risks with these thin gs. Quote Link to comment Share on other sites More sharing options...
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