Re: Saw My New Rheumy

[Guest guest]

This has to be short as I am getting ready for work. The blood tests

that I had that came back normal was the ANA it was high until after

removal then came down to negative, that is indicative of mixed

connective tissue disease, never was clear if i had lupus or not, and

never did get a diagnosis. As far as I know Feng or Kolb would both

be good to talk to her, and they both would probably be willing to.

good luck

In , " deej11902 " <denisetjohnson@c...>

wrote:

> I saw my new rheumatologist today. I told myself this was it. If

> she's like the others, I'm going to give up on doctors and fend for

> myself.

>

> She spent oodles of time with me and she asked me a ton of

> questions. She's a tough cookie, foward, direct, helpful, young

(44)

> I filled her in on me, not mentioning the breast implants until the

> end. When I did, she listened. She never waivered. She looked me

> right in the eye and listened intently. I told her just a bit of

this

> and a bit of that as to not scare her off. She said she didn't

think

> saline breast implants hurt women, never heard that they do or did,

> said that there's no lawsuits going right now on that. I

> said, " Well, we have to start somewhere, don't we? " (hee hee)

When

> she said she didn't think they made women ill, she said it in a

sort

> of quizical way, not an arrogant way. She told me that to be a

> doctor means you are " practicing " medicine and that a doctor needs

to

> stay open-minded....especially in her feild where there are truly

so

> many unknowns! So I found her to be very open and wanting to

> help. I mean, she actually said, " What else can I do for you

> today? " She even gave me prescriptions to help me sleep.

>

> By the way, what does Naprosyn do? Will it help me? She also gave

> me Flexeril. Will that help?

>

> I asked her about the T Cell sensitivity test and how Dr. Kolb

> recommended it. She wrote it down and said she would look into it.

> I told her about the women I've met recently (you gals). She

seemed

> curious. Then I asked her if I got her the phone number of a

doctor

> who believe these implants make women ill and cause disease, would

> you be willing to speak to her? She said yes. I could not believe

> my ears.

>

> Does anyone know if Dr. Feng would be willing to speak to her?

Would

> Dr. Kolb? I spoke to Dr. Kolb. She's great. But isn't Dr. Feng

> the one who does all the extensive research....etc? This new doc

of

> mine said she'll only speak to the MD if the MD actually works in

the

> feild of breast implants and knows what she/he is talking about.

>

> Also, I have got to get educated very quickly here. Can you guys

> help? When I try to explain things to this doctor, I don't alway

use

> proper medical terminology and I can tell it bugs her.

> She tried to explain ANA to me, lupus findings, blah, blah. We

> seemed to disconnect a few times. Frustrating.

> If I'm going to keep her on my side, keep her listening and

helping,

> I have to get smart here realy quick.

> Like when I tried explaining to her how women who are ill and get

> explanted they begin to feel better and their blood tests come back

> clear. What blood test? I need specific names. She asked me

about

> a biopsy. I'm clueless................

>

> I'm collecting all my med records this week and plan to drop them

> off at her office (hopefully by friday) so she can review them. I

> was thinking of slipping in a thing or two on breast implants and

> disease, something that will make her sit up and take notice.....

>

> Dee :-)