Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 thougt I had posted this but it didn't come up. I was searching other web sites and found BA forum. Its a web site where women talk about there implants and getting implants. I had to respond to a couple. Some were having fatigue, hair loss and one had a ruptured silicone implant. the women responing to these were telling them to ask there Doctor (Ha Ha) or one said " maybe you should try saline, they are safe " I was not detailed, and didn't go into horror story's , but I did leave the Saline web site info for the couple I wrote to. If one women gets help it will be worth it. Hope they don't lock me out. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 healthboards.com. i go there about my dry eye thing. they have a chat group for every disease.DepoDeeva <DepoReporter@...> wrote: Awesome! I think that's so smart of you to think to go to autoimmune disease support sites and tip them off. I bet there's a ton of women in there who haven't got a clue!!! Let's see......... There's Lupus sites. There's Behcet's disease sites. There's Crohn's disease sites. Fibromyalga sites. Where else can we go to inform? ----- Original Message ----- From: cricket5641000 Sent: Sunday, July 13, 2003 5:13 PM Subject: to all Hi everyone. Ok this is what I've been doing this afternoon. I thought to myself, well I didn't have a great responce to the implant site. They didn't what to hear anything about us. So I posted on support groups for autoimmune diseases. Told them about us. asked if any in the group had breast implants and if they had ever made the connection between the two. We shall she want happens. But like I said in an earlier post most of us end up at a RA. While looking at the members names, looks like women outnumber men 9 to 1. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 , We have a poll I think that or I did that has a place to check off most of our symptoms. Have you guys checked it out? Please tell us the symtoms you have experienced after getting implants you may vote for one or more choices. This is one option that is in place now. You can definitely do what you have suggested and it allows for more symptoms to be covered, which may be very important to know. Go for it! You will need to have everyone list their symptoms, you can collect them, correlate the data and post the results, which may take some time, but I think any endeavor to understand what is going on with us is worthwhile. Patty ----- Original Message ----- From: DepoDeeva Sent: Sunday, July 13, 2003 12:38 PM Subject: Re: To All Now you've got me thinking......... My rheumy got very indignant with me when I stated that we women all have the same symptoms. She cut me off in conversation and said, "You all have the same symptoms?" I said, "Virtually, yes." In a very loud and intimidating voice she said, "I don't believe that! I have two lupus patients and each one has different symptoms." I said, "Well, we do differ somewhat in that some of us pass out whereas others don't and one or two other differences like my ears tingle but no one else's do, but the base of our symtpoms are the same. How many autoimmune patients do you have who proclaim they have 'brain fog?" She said, "What do you have?" I said, "We all call it 'brain fog." She immediately began to jot it down in my chart. Said she never heard of it before. In hinesight, I wish I had turned it back around on her and said, "Well, I guess silicone autoimmune disease is just like all other autoimmune diseases, it has varying symptoms." Oh, well, next time maybe?? Anyway, my point here is this got me thinking that maybe we should all post our symptoms individually. I'll print them up and compare them. I'm thinking that along with our "Stories," maybe it's equally important to have listed on the website each person's name and their specific list of symptoms, call it "Symptoms List or something like that, detailing each one of us and our own individual symptoms. Patty, what do you think? Then if anyone, even a doc who may get real curious, checks the site, they can click on each member's name and read their symptoms. What do you think? If that's too much of a project or whatever to do, maybe everyone can just list theirs on a post. I'll print up every one of them and compare. I also would like that so I can bring the lists to my doc next visit. Like here is my list: DENISE'S SYMPTOMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 There's scleroderma, multiple sclerosis, Hashimoto's, rheumatoid arthritis, sjogrens...Great idea! post away! ----- Original Message ----- From: DepoDeeva Sent: Sunday, July 13, 2003 5:38 PM Subject: Re: to all Awesome! I think that's so smart of you to think to go to autoimmune disease support sites and tip them off. I bet there's a ton of women in there who haven't got a clue!!! Let's see......... There's Lupus sites. There's Behcet's disease sites. There's Crohn's disease sites. Fibromyalga sites. Where else can we go to inform? Quote Link to comment Share on other sites More sharing options...
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