Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 Dear , I hope you got my previous not but if you did not try 's Pharmacy: 714-540-8911 for compounded DMSA. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 emma gets her band on monday (5/6) and the tv station will come to film the story next friday (5/10). hopefully emma will have adjusted a bit by then (am i setting myself up here??). Amy: Good for you being such a crusader about plagio!!!! That is great that the TV station will be doing a story on Emma & plagio! I'm sure you'll do just fine. Don't sweat it. I am also sure Emma will be a happy little camper after she gets her band & will adjust just fine. Your story on TV will probably help numerous families who are wondering about their baby's head shape. Great job! I also sent Abby's plagio story to our local TV & newspapers but noone replied to me . So I'm happy to her your station will be covering your story. Please let us know how Emma does Monday after she gets her band. Are you appealing your ins. company to cover the band? Debbie Abby's mom DOCgrad MI > hi everyone, > i haven't had time to post in a while, but i wanted to tell you all > what i've been working on. well, one of the things. i am now on a > campaign to educate people about plagio. i feel really strongly about > this. i get so mad every time i think about the fact that it's > possible i could have prevented emma's plagio had someone just warned > me and suggested repositioning. especially since she has tort. the > pediatrician and PT should have warned me! also, i think it's so > scary that so many pediatricians and specialists continue to tell > parents it will round out on its own, and her hair will cover it. had > i not found this board and done some research, we'd be listening to > our pediatrician and the neurosurgeon who said those exact things > about emma. every time i read a story about an older child whose dr. > said that and then it became too late to band, it just breaks my > heart. anyway, i decided to contact the local tv and newspaper to > tell them they should do a story to educate parents and let them know > about the increase in cases since the Back to Sleep campaign started. > well, the tv station called me and now they want to do a story on > emma and her band. i declined at first, because i'm really rather shy > and prefer to stay in the background, but they said they needed us in > order to do the story. i guess they have to have that human interest > angle. so, after agonizing over it for a little while, i decided to > do the story. i want to get the word out, and if this is what i have > to do, i'm willing to do it. emma gets her band on monday (5/6) and > the tv station will come to film the story next friday (5/10). > hopefully emma will have adjusted a bit by then (am i setting myself > up here??). anyway, i think you all should contact the tv stations > and newspapers in your area and suggest that they do a story! i keep > thinking that although my husband and i could really use the $3,000 > (well, probably $6,000) for a new roof or to replace the rotten wood > on our front porch, at least we are able to borrow the money so that > emma can get the band. i'm sure there are many, many families for > which this is not an option. so, help me spread the word. > watch out! i'm up on my soapbox now!.... > amy > mom to emma (born 9/24/01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Good for you, Amy. I tried to contact a local station in Dallas and I gave them tons of info, but I have heard nothing. You've inspried my - I may try some of the other networks. Gail getting the word out hi everyone,i haven't had time to post in a while, but i wanted to tell you all what i've been working on. well, one of the things. i am now on a campaign to educate people about plagio. i feel really strongly about this. i get so mad every time i think about the fact that it's possible i could have prevented emma's plagio had someone just warned me and suggested repositioning. especially since she has tort. the pediatrician and PT should have warned me! also, i think it's so scary that so many pediatricians and specialists continue to tell parents it will round out on its own, and her hair will cover it. had i not found this board and done some research, we'd be listening to our pediatrician and the neurosurgeon who said those exact things about emma. every time i read a story about an older child whose dr. said that and then it became too late to band, it just breaks my heart. anyway, i decided to contact the local tv and newspaper to tell them they should do a story to educate parents and let them know about the increase in cases since the Back to Sleep campaign started. well, the tv station called me and now they want to do a story on emma and her band. i declined at first, because i'm really rather shy and prefer to stay in the background, but they said they needed us in order to do the story. i guess they have to have that human interest angle. so, after agonizing over it for a little while, i decided to do the story. i want to get the word out, and if this is what i have to do, i'm willing to do it. emma gets her band on monday (5/6) and the tv station will come to film the story next friday (5/10). hopefully emma will have adjusted a bit by then (am i setting myself up here??). anyway, i think you all should contact the tv stations and newspapers in your area and suggest that they do a story! i keep thinking that although my husband and i could really use the $3,000 (well, probably $6,000) for a new roof or to replace the rotten wood on our front porch, at least we are able to borrow the money so that emma can get the band. i'm sure there are many, many families for which this is not an option. so, help me spread the word.watch out! i'm up on my soapbox now!....amymom to emma (born 9/24/01)For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Good Job Amy! I have spent many hours sending emails to all the local TV stations and newspapers. The Cleveland Plain Dealer is suppossed to do one this weekend. Jane ('s daughter) will have her picture in the paper. Theresa, Jessie's mom, contacted a TV station in Youngstown and they too will be doing a story this weekend. One of the TV stations sent me an email that they are interested in doing a story in a few weeks but I want them ALL to do reports. My next step is Letters to the Editor. I hope to help at least one person! I better, dh keeps complaining that I spend too much time on the computer! Just think what we can do if we all get the word out! Dane's mom > hi everyone, > i haven't had time to post in a while, but i wanted to tell you all > what i've been working on. well, one of the things. i am now on a > campaign to educate people about plagio. i feel really strongly about > this. i get so mad every time i think about the fact that it's > possible i could have prevented emma's plagio had someone just warned > me and suggested repositioning. especially since she has tort. the > pediatrician and PT should have warned me! also, i think it's so > scary that so many pediatricians and specialists continue to tell > parents it will round out on its own, and her hair will cover it. had > i not found this board and done some research, we'd be listening to > our pediatrician and the neurosurgeon who said those exact things > about emma. every time i read a story about an older child whose dr. > said that and then it became too late to band, it just breaks my > heart. anyway, i decided to contact the local tv and newspaper to > tell them they should do a story to educate parents and let them know > about the increase in cases since the Back to Sleep campaign started. > well, the tv station called me and now they want to do a story on > emma and her band. i declined at first, because i'm really rather shy > and prefer to stay in the background, but they said they needed us in > order to do the story. i guess they have to have that human interest > angle. so, after agonizing over it for a little while, i decided to > do the story. i want to get the word out, and if this is what i have > to do, i'm willing to do it. emma gets her band on monday (5/6) and > the tv station will come to film the story next friday (5/10). > hopefully emma will have adjusted a bit by then (am i setting myself > up here??). anyway, i think you all should contact the tv stations > and newspapers in your area and suggest that they do a story! i keep > thinking that although my husband and i could really use the $3,000 > (well, probably $6,000) for a new roof or to replace the rotten wood > on our front porch, at least we are able to borrow the money so that > emma can get the band. i'm sure there are many, many families for > which this is not an option. so, help me spread the word. > watch out! i'm up on my soapbox now!.... > amy > mom to emma (born 9/24/01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Gail , are you in Dallas, Tx? If so you can put me on your band wagon and I will help you w/something like this .... if you are just let me know my e-mail is trisham@... I will do what ever I can to bring awareness to this...Trisha in the Heart of Dallas, Tx Re: getting the word out Good for you, Amy. I tried to contact a local station in Dallas and I gave them tons of info, but I have heard nothing. You've inspried my - I may try some of the other networks. Gail getting the word out hi everyone, i haven't had time to post in a while, but i wanted to tell you all what i've been working on. well, one of the things. i am now on a campaign to educate people about plagio. i feel really strongly about this. i get so mad every time i think about the fact that it's possible i could have prevented emma's plagio had someone just warned me and suggested repositioning. especially since she has tort. the pediatrician and PT should have warned me! also, i think it's so scary that so many pediatricians and specialists continue to tell parents it will round out on its own, and her hair will cover it. had i not found this board and done some research, we'd be listening to our pediatrician and the neurosurgeon who said those exact things about emma. every time i read a story about an older child whose dr. said that and then it became too late to band, it just breaks my heart. anyway, i decided to contact the local tv and newspaper to tell them they should do a story to educate parents and let them know about the increase in cases since the Back to Sleep campaign started. well, the tv station called me and now they want to do a story on emma and her band. i declined at first, because i'm really rather shy and prefer to stay in the background, but they said they needed us in order to do the story. i guess they have to have that human interest angle. so, after agonizing over it for a little while, i decided to do the story. i want to get the word out, and if this is what i have to do, i'm willing to do it. emma gets her band on monday (5/6) and the tv station will come to film the story next friday (5/10). hopefully emma will have adjusted a bit by then (am i setting myself up here??). anyway, i think you all should contact the tv stations and newspapers in your area and suggest that they do a story! i keep thinking that although my husband and i could really use the $3,000 (well, probably $6,000) for a new roof or to replace the rotten wood on our front porch, at least we are able to borrow the money so that emma can get the band. i'm sure there are many, many families for which this is not an option. so, help me spread the word. watch out! i'm up on my soapbox now!.... amy mom to emma (born 9/24/01) For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Trisha, I live in , but to out-of-towners, we live in Dallas. I sent an email to NBC5 a few weeks ago, but I haven't heard anything. But after all the posts yesterday about other people getting the story on TV, I thought I would try again. I sent an email to FOX4, and I have plans to hit channel 8 and channel 11 as well. I have 3 children ages 2 1/2 and younger, so I get interrupted often, but I am committed to getting more emails sent today. It would be great if you and all the other metroplex plagio police could also send messages to each of the stations. If they get hit enough, maybe one of them will pick up the story. Maybe they can help us in our fight against CIGNA as well - you are fighting Cigna of North Texas, aren't you? Also, we are trying to coordinate a lunch date with a few other Dallas area moms (Ana and and anyone else who wants to come), and you should join us. Welcome aboard! Gail RE: getting the word out Gail , are you in Dallas, Tx? If so you can put me on your band wagon and I will help you w/something like this .... if you are just let me know my e-mail is trisham@... I will do what ever I can to bring awareness to this...Trisha in the Heart of Dallas, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 The plagio police are on patrol and coming to a neighborhood near you!!! Without great moms and dads here online, and in the real world to help the next person, I would have never gotten the advice and information that I did- and its all thanks to people like yourselves that continue to spread the word and inform people about it- a million thanks to you all and huge pats on the back!!!!!! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Amy, Good for you! There have actually been MANY reports about plagio in my hometown area on the TV. We have two specialists and an ortho that work very closely together at our local University Hospital and they are strong believers in banding therapy. They have done some good research and have generally helped to spread the word in our area. I think the fact that you are willing to go in front of the camera even though it makes you uncomfortable is a brave thing. If you can reach just a few peds or PTs in your area then it will have been worth the stress!! Good luck and please let us know how it goes! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Gail, I am down by the Galleria off the Tollway & LBJ area...I would love to get the word out here...I was thinking Hammerly on Fox 4 the medical news guy or Sara Sidner for On Your Side...I am still not real up on everything but I am trying to learn as fast as I can and as much as I can but its hard working fulltime & raising a family .... I would love to meet some more moms w/kids that have Plagio...what drs did you see ?? did you go to CT on Hillcrest & LBJ? Well gotta run the boys are calling & Drake has had a fever of 101 - 104.8 all day & I have been the Ped & on the phone w/them all day the strep test was negative but we are waiting to see if it grows over night...ugh....will talk soon..Trisha Re: getting the word out Trisha, I live in , but to out-of-towners, we live in Dallas. I sent an email to NBC5 a few weeks ago, but I haven't heard anything. But after all the posts yesterday about other people getting the story on TV, I thought I would try again. I sent an email to FOX4, and I have plans to hit channel 8 and channel 11 as well. I have 3 children ages 2 1/2 and younger, so I get interrupted often, but I am committed to getting more emails sent today. It would be great if you and all the other metroplex plagio police could also send messages to each of the stations. If they get hit enough, maybe one of them will pick up the story. Maybe they can help us in our fight against CIGNA as well - you are fighting Cigna of North Texas, aren't you? Also, we are trying to coordinate a lunch date with a few other Dallas area moms (Ana and and anyone else who wants to come), and you should join us. Welcome aboard! Gail RE: getting the word out Gail , are you in Dallas, Tx? If so you can put me on your band wagon and I will help you w/something like this .... if you are just let me know my e-mail is trisham@... I will do what ever I can to bring awareness to this...Trisha in the Heart of Dallas, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 , I'm glad to see you are so gung-ho to do this! I have given this some thought in the past as well, and it is really hard to come up with a way to get attention to this, when efforts through the media sometimes fail or fall through, or downplay what is really going on with us. I have been thankful for some of those reports that have been sympathetic to our cause--the MTV piece comes to mind that they play on cable channels awhile back.....Kristi Wilmore's story was told, and Kristi was on Ilena's group at the time. It was awesome to see her real life story on national TV! They've replayed that a couple of times, because their response to the piece was so outstanding. Anyway, back to what WE can do....here are only a couple ideas that I have come up with...and these aren't big, but they are helpful in getting other women to be aware of what may be making them sick....and they are something we ALL can do in our communities. 1. Print up business cards....there are places on the net where you can get business cards for FREE, just have to pay a modest shipping and handling charge. Print either your name and phone or email address if you want to be contacted, or print the website of this group, but the goal should be to draw women into exploring the idea that their implants may be the cause of their mysterious symptoms. Hand them out to people who you think may need them, or leave them places where you think implanted women will find them, heck, leave them everywhere so anyone can find them! This is an easy and cheap way to "get the word out". Here's a few links for free cards: http://www.vistaprint.com/vp/ns/bcfree.asp http://www.cardconnection.com/?source=overture 2. Print up fliers that you can post at various places around town, eye catching for implanted women and which compels them to seek out help or more info, again with your contact information if you feel you want to do this for yourself locally, or with the contact info for our website and many others on the net. 3. Contact your local papers and news stations and see if they will be interested in doing a story on you. These ideas are not for BIG time national exposure, but which help raise awareness one at a time. You never know who might suddenly have a light bulb go off in their head about their implants. So many people just don't get it, but through these exposures, every little bit helps. If we all would do this in our various communities around the country, collectively, this would have a bigger impact. We may need to come up with a slogan, catchy phrase or lead question to put on the business cards and fliers that we can all agree on for the group if we are going to use our website address. If you guys are willing to do this, let's discuss it some more! Patty ----- Original Message ----- From: Sent: Saturday, June 21, 2003 11:09 PM Subject: Re: Re: Fw: The lowdown on breast implants ~ Good article from So. Africa Where there is a will, there is a way. I'm a single mother. I am ill. Money is tight. But if you told me tomorrow that we're all to meet on the moon to rally, I'd be there -- one way or another I'd be there. Oh, well, guess that's just me. I'm always the minority. PS....It would have a tone of effect! hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 I kinda checked around on the net and didn't find any transcripts for the show, just some references to it. I have a copy of it on video myself, and Kristi wrote to our group at one point...I'll see if I can dig up her message. Anyway, it was a good piece, made alot of women think twice. Patty ----- Original Message ----- From: naturalbeauty38 Sent: Monday, June 23, 2003 8:22 AM Subject: Re: getting the word out I have MTV and saw this program several times. It aired on MTV's series "true Life" they have a bunch of shows on the series "true life" that have dealt with plastic surgery and negative as well as postive outcomes that I felt they did a really good job on. One of them that was also excellent was about liposuction and had a girl on there who went in for simple lipo on her thighs and ended up deformed and having to undergo years of reconstrucive work and that cost her tons of money. Anyhow I will look into seeing if you can get video of this show or if and when it will air again to see if I can get you a copy or record it for you myself. It was an awesome show, as it did show both the good and the bad!I will keep you posted but if you have a chance before me you may want to go to www.mtv.com and look up the series called "true life" to see if it is on there somewhere. The episode we are talking about was called True life I am getting breast implants.hugsC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 , I think for the slogan, phase or prompting question, the word "implant" or words 'breast implants" needs to be there. what do you guys think? I don't know about you, but when I see the word "implants" my attention is caught...does that happen to anybody else? That is like a big magnet to me.....even though I don't even have them anymore. I also think some kind of word like "tired", or "sick" or "fatigue" needs to be in there, to link them. This is where you guys need to give your input. We need to know what catches your attention. Certainly we don't want to scare anyone off with highly charged negative words, and I want to be careful of that, but I do think "implants" catches the needed attention, and from there we need to figure out what connecting words we will use to help women seek more answers. Here is a sample idea of mine: Do you have breast implants? Do you feel run down, depressed, foggy headed, tired, achey? Come explore with us...we are women like you who have had implants and have found answers to our questions about our health! We may be able to help.... www./group/ / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Gretchen....that is so true! I love this group and feel very blessed to be part of it! Kay Quote Link to comment Share on other sites More sharing options...
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