Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Dear Kim hello friend! I was just thinking about you yesterday and hoping that no news was good news. I have really missed talking to you Kim, and am hoping that a remission is coming soon. I too have been experiencing the same thing friend. My throat is always sore, as well as glands and joints. My sweats are horrible and seem to get worse. I don't really know everything about remission Kim, but I am sure that someone here does. I was really hoping that you were going to be able to make it to the conference in Vegas. It would of been so great to finally meet in person, but even if this doesn t work out, we must both make it a definite thing in our future, since we are not that far away from each other. I am hanging in there and have been experiencing what seems to be small " flares " ...I really haven't dealt with this before, but have found myself out of work for days at a time. I may be starting Enbrel soon. The MTX doesn't seem to be helping, but we are going to give it a little more time. Kim...it's just great to see you on the site tonight. We miss you too friend. Good and positive thoughts coming your way. Hugs. Love, Sue #2 -- Hi Everyone! Hi all! I have missed you guys and just wanted to check in with everyone. I am doing well...for the most part. My glands are swollen, joints swell on occasion, and my throat sore. I'm hoping it's just the flu and it will go away soon. I get very nervous when my glands swell as that was the first symptom at on-set. Does anyone know what factors come into play when someone has been in remission and they become ill again. Are there any factors that seem to be common among those that face future disease activity after a remission? I believe, from what I've read, there are people that go into remission and never deal with Still's again. Are there any statistics? My glands are swollen and I'm sweating again at night...I feel like this disease is just hanging there waiting to pounce at any moment. I know I can't live my life in fear but it's really hard. I think about my fellow Stilligans daily and keep you in my prayers. Love and BIG HUGS to you all, Kim Charlottesville, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2002 Report Share Posted October 27, 2002 Dearest Kim, I was so happy to see you up on the site again. I have thought about you so often, and you have never been forgotten. Thank you so much for just caring about me friend. You are something special. I have been upping my folic acid when these sores arrive, so yes...this definitely helps. I didn't know that you were dealing with the sores also, as well as hair loss. The hair loss has been very hard for me, since it is so long and I have a lot of it. I literally " freak " when I get out of the shower and found myself crying like a baby on the floor. It's been so hard to deal with, but I know I have a lot of support here, which means the world to me. As always, thank you Kim. I love you friend. Please tell me that you are still well. (?) Love, Sue #2 -- Sue #2 > > Dear Sue, > > I may have missed an email saying you were going to be away or something. I > just wanted to make sure you were ok. I think you have been off- line for a > few days and wanted to make sure you hadn't gotten very wiped out from the > conference. Just wanted you to know I was thinking of you and hope you are > well. > > Love, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 Mederma--that is what my PS recommended to me for scar healing. As for men, all I know is that my implant experience has not affected how my husband feels about me. We still have awesome sex. If you find a man who loves you for YOU, small scars on your breasts are not going to make a difference in the least. Look at it this way....That is how you are going to know he loves you! Patty ----- Original Message ----- From: kim przybylski Sent: Tuesday, June 24, 2003 7:03 AM Subject: Re: Dear Kim Thanks that was nice. I just wish I was married soonly one man would have to see them and I would feelcomfortable with it all. I am a very weak willedperson and VERY self conscious, thats why I have themto begin with and I feel like Ill break down withthose scars and willNEVER be able to get undressedagain. How can I lighten the scar to its bestpotential. Quote Link to comment Share on other sites More sharing options...
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