Re: Question about tests/disease

[Guest guest]

DeeJ,

Daryl has also never tested positive for anything. If you asked my rheumy, he would have told you that I didn't test positive for anything either--he told me I was "all better and didn't need to see him anymore."

I don't know why some of you women never have abnormal blood work, but it is obvious they just haven't figured out what the heck is going on with us. With the attitude most of them have, I doubt if we will ever get any answers. They don't CARE to know. The easiest thing for them to do with us is tell us we have fibromyalgia or undifferentiated connective tissue disease, or it is all in our heads. Just a waste of time, really.

I keep thinking maybe it is something with hormones, or toxic metals, or enzymes, or something that they just don't test for, maybe even a combination of things, because, obviously, something is very wrong. They just haven't pinpointed it yet. But they don't play fair--rather than try to help us, they try to blame us for being difficult and turn their backs on us.

It is so frustrating to be treated this way, isn't it? That's why I pretty much gave up and took care of myself.

Patty

----- Original Message -----

From: DepoDeeva

Sent: Wednesday, July 09, 2003 4:13 PM

Subject: Question about tests/disease

Hey, everyone:

I just got back from my new rheumy. She's tough. Direct. VERY strong personality.

In a nutshell, she gave me the blowoff. I'm not very happy about this.

She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me.

I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer.

I filled her in on us and how we all have the same symptoms. She wouldn't really comment.

She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb.

She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her.

This really stinks!

She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.)

Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test??

I just don't understand this.

For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that?

DeeJ

[Guest guest]

Thank you, Patty. That makes me feel better.

:-)

Deej ()

----- Original Message -----

From: *~Patty~*

Sent: Wednesday, July 09, 2003 4:52 PM

Subject: Re: Question about tests/disease

DeeJ,

Daryl has also never tested positive for anything. If you asked my rheumy, he would have told you that I didn't test positive for anything either--he told me I was "all better and didn't need to see him anymore."

I don't know why some of you women never have abnormal blood work, but it is obvious they just haven't figured out what the heck is going on with us. With the attitude most of them have, I doubt if we will ever get any answers. They don't CARE to know. The easiest thing for them to do with us is tell us we have fibromyalgia or undifferentiated connective tissue disease, or it is all in our heads. Just a waste of time, really.

I keep thinking maybe it is something with hormones, or toxic metals, or enzymes, or something that they just don't test for, maybe even a combination of things, because, obviously, something is very wrong. They just haven't pinpointed it yet. But they don't play fair--rather than try to help us, they try to blame us for being difficult and turn their backs on us.

It is so frustrating to be treated this way, isn't it? That's why I pretty much gave up and took care of myself.

Patty

----- Original Message -----

From: DepoDeeva

Sent: Wednesday, July 09, 2003 4:13 PM

Subject: Question about tests/disease

Hey, everyone:

I just got back from my new rheumy. She's tough. Direct. VERY strong personality.

In a nutshell, she gave me the blowoff. I'm not very happy about this.

She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me.

I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer.

I filled her in on us and how we all have the same symptoms. She wouldn't really comment.

She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb.

She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her.

This really stinks!

She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.)

Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test??

I just don't understand this.

For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that?

DeeJ

[Guest guest]

DeeJ, I am so sorry you were treated so rudely by your "Rheumy." She sounds like she has an attitude and knows little about Fibromyalgia (FMS). I certainly would find another Dr. and don't let any dust collect under your feet. I have all of the trigger points for FMS and have seen 3 different 'Rheumy" specialists who all agreed that my condition was severe. There is a wonder book that I suggest you order that will help you greatly with your concerns. It is written by 2 ladies who have FMS themselves and educate in this area. Title - Fibromyalgia & Chronic Myofascial Pain, A Survival Manual, 2nd edition. ISBN 1-57224-238-8. It can be order by calling 1-800-748-6273 or log on to the publisher's online bookstore - www.newharbinger.com . It even tells you what to have prepared to discuss with your new Dr. Hope this helps you and any others who would like an excellent resource. The book is $19.95. Blessings, dee

----- Original Message -----

From: DepoDeeva

Sent: Wednesday, July 09, 2003 7:13 PM

Subject: Question about tests/disease

Hey, everyone:

I just got back from my new rheumy. She's tough. Direct. VERY strong personality.

In a nutshell, she gave me the blowoff. I'm not very happy about this.

She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me.

I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer.

I filled her in on us and how we all have the same symptoms. She wouldn't really comment.

She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb.

She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her.

This really stinks!

She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.)

Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test??

I just don't understand this.

For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that?

DeeJ

[Guest guest]

Dee, I also had some neurological symptoms like fast muscle twitiching(fasculations)all over my body, mostly in legs, arms, (much like ALS) and also numbness and tingling in my hands and feet, and off balance feeling (much like MS) and was tested 3 times in different tests (one where they use electrical shocks to see how your muscles react- very bad) all came up negative. I had this all done after I had a bells palsy attack. This was then at the point that my nueorologist , (1st doctor that told me this) said to get the implants out as she never saw this many different, and dangerous symptoms in a patient my age, before with no outcome on tests. She was the one that gave a medical letter requesting to my ins that they cover my explant. I love her. She was so sweet., and so open. We still are in contact, as she is so intrigued with all this.

Anyway, I also had these weird strange things going on, that all resembled so many diseases I thought I was dying, as I had already tested Positive for Hashimtos and RA.

Funny, they all disapeared after explant. HMMMM nna

>From: "*~Patty~*"

>Reply- >

>Subject: Re: Question about tests/disease >Date: Wed, 9 Jul 2003 16:52:55 -0700 > >DeeJ, >Daryl has also never tested positive for anything. If you asked my rheumy, he would have told you that I didn't test positive for anything either--he told me I was "all better and didn't need to see him anymore." > >I don't know why some of you women never have abnormal blood work, but it is obvious they just haven't figured out what the heck is going on with us. With the attitude most of them have, I doubt if we will ever get any answers. They don't CARE to know. The easiest thing for them to do with us is tell us we have fibromyalgia or undifferentiated connective tissue disease, or it is all in our heads. Just a waste of time, really. > >I keep thinking maybe it is something with hormones, or toxic metals, or enzymes, or something that they just don't test for, maybe even a combination of things, because, obviously, something is very wrong. They just haven't pinpointed it yet. But they don't play fair--rather than try to help us, they try to blame us for being difficult and turn their backs on us. > >It is so frustrating to be treated this way, isn't it? That's why I pretty much gave up and took care of myself. >Patty > ----- Original Message ----- > From: DepoDeeva > > Sent: Wednesday, July 09, 2003 4:13 PM > Subject: Question about tests/disease > > > Hey, everyone: > > I just got back from my new rheumy. She's tough. Direct. VERY strong personality. > > In a nutshell, she gave me the blowoff. I'm not very happy about this. > She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me. > I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer. > > I filled her in on us and how we all have the same symptoms. She wouldn't really comment. > She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb. > She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her. > > This really stinks! > She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.) > > Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test?? > I just don't understand this. > For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that? > > DeeJ > Add photos to your e-mail with MSN 8. Get 2 months FREE*.

[Guest guest]

nna, Thanks for your reply. How long did it take for your symptoms to "all disappear" after explant? I think I am still so sick because my explant was only 7 months ago, at least I am hoping that is the reason for still so many problems. Some of my friends think it may be the fact that the silicone was ruptured wide open in both implants for several years and I had the silicone in for 19 years. Maybe I am being too impatient. dee

----- Original Message -----

From: JOSEPH PALANCA

Sent: Thursday, July 10, 2003 10:45 AM

Subject: Re: Question about tests/disease

Dee, I also had some neurological symptoms like fast muscle twitiching(fasculations)all over my body, mostly in legs, arms, (much like ALS) and also numbness and tingling in my hands and feet, and off balance feeling (much like MS) and was tested 3 times in different tests (one where they use electrical shocks to see how your muscles react- very bad) all came up negative. I had this all done after I had a bells palsy attack. This was then at the point that my nueorologist , (1st doctor that told me this) said to get the implants out as she never saw this many different, and dangerous symptoms in a patient my age, before with no outcome on tests. She was the one that gave a medical letter requesting to my ins that they cover my explant. I love her. She was so sweet., and so open. We still are in contact, as she is so intrigued with all this.

Anyway, I also had these weird strange things going on, that all resembled so many diseases I thought I was dying, as I had already tested Positive for Hashimtos and RA.

Funny, they all disapeared after explant. HMMMM nna

>From: "*~Patty~*"

>Reply- >

>Subject: Re: Question about tests/disease >Date: Wed, 9 Jul 2003 16:52:55 -0700 > >DeeJ, >Daryl has also never tested positive for anything. If you asked my rheumy, he would have told you that I didn't test positive for anything either--he told me I was "all better and didn't need to see him anymore." > >I don't know why some of you women never have abnormal blood work, but it is obvious they just haven't figured out what the heck is going on with us. With the attitude most of them have, I doubt if we will ever get any answers. They don't CARE to know. The easiest thing for them to do with us is tell us we have fibromyalgia or undifferentiated connective tissue disease, or it is all in our heads. Just a waste of time, really. > >I keep thinking maybe it is something with hormones, or toxic metals, or enzymes, or something that they just don't test for, maybe even a combination of things, because, obviously, something is very wrong. They just haven't pinpointed it yet. But they don't play fair--rather than try to help us, they try to blame us for being difficult and turn their backs on us. > >It is so frustrating to be treated this way, isn't it? That's why I pretty much gave up and took care of myself. >Patty > ----- Original Message ----- > From: DepoDeeva > > Sent: Wednesday, July 09, 2003 4:13 PM > Subject: Question about tests/disease > > > Hey, everyone: > > I just got back from my new rheumy. She's tough. Direct. VERY strong personality. > > In a nutshell, she gave me the blowoff. I'm not very happy about this. > She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me. > I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer. > > I filled her in on us and how we all have the same symptoms. She wouldn't really comment. > She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb. > She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her. > > This really stinks! > She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.) > > Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test?? > I just don't understand this. > For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that? > > DeeJ >

Add photos to your e-mail with MSN 8. Get 2 months FREE*.

[Guest guest]

Dee. Honestly, I didnt get to where I am until about in the 8th month or so.It was so despairing, however I had to get realy active doing some cleaning up Diet and supplements alone with explant were cutting it! All of them arent gone, I still have a little (small amount) joint stiffness, but the nuero ones are gone, as well as headaches, and neck aches, and depression, and foggy thinking.

I would make sure your diet is no sugar/no refined carbs for a while, take alot of garlic, and supplements recommended on www.plastikos.com or at least take the "Fatigued to Fantastic" energy shake, as this has alot of the recommended supplemnts that Dr Kolb says to take for silicone poisoning. That is what I do, and the combo of the vitmamins, minerals & amino acids in there are wonderful for detox! Hard to find,an expensive anywhere else. You can get this shake @www.iherb.com, with the seperate vitamin Bcomplex, cheapest prices around. I swear by the stuff. Taking these supplemtns and eating very healthy for at least a year or so, will support your immnue system, making it more stonger to clean up! Also I would do some lemon fasting , for at least 3 days...every month to get that silicone out of there. I know it sounds crazy, but you need to fast to get it out. I t did wonders for me, even though I thought I could never do it or it wouldnt work!Also take inositol. It is the biggest, and baddest supp out there for silicone removal. Linolic acid is great too.

Just remeber, if the explant didnt do it for you, do not lose hope that you will not get better. make some gradual steps ...Start to change your diet, get your hormonal levels checked, too. I didnt feel as great as I am now, until I found I was estogen dominant, as implants have way too many estrogens, and our enviroment is already loaded with them, and taking progesterone( natural) according to a saliva test, helped me a huge deal! I mean like life changing, ask Patty, I wouldnt shut up the week I went on it! Joint pain decreased by the next day! Periods went back to normal in like 1 month, now again, my 2nd period-every 28 days, when since the last 2 years, they were every 19 days. Get your estogen, progesterone, and cortisol done by saliva essay. (I can give you some internet sites I have tried)

Remember, that implants- once out, may still have left a huge hormonal upheaval, and/or left behind toxic metals and chemicals (of which we can pull out)of which needs to be addressed. Just because they are out, doesnt mean they havent left behind a mess.Amess lingering, causing multiple problems. Some girls get better after a while doing nothing, not many though. You had them a while, and also had leakage.Try out some diet things, like cut out sugar for 2 weeks, and also start taking supplements, just until at least you are feeling better, help to support your immunity in getting better right now.Good Luck to you, Dee. In due time, you will get beter, and better.I never thought I would have, and I cant believe how great I am feeling, and you can see it too! Its a step, by step process. Keep trying different things to get better. For me it was doing the following: Diet 1st, Explant 2nd, Supplements 3rd, detoxing 4th, Check Hormones 5th,and always try to work out.Sweating relaeases all sorts of junk, and releases endorphins that are good for you! People keep asking me what I am doing different, that I glow, why? Becuase I am getting better! You will too!Just try new things....Love you! . nna

>From: "Dee Todd"

>Reply- >

>Subject: Re: Question about tests/disease >Date: Thu, 10 Jul 2003 13:46:25 -0400 > >nna, Thanks for your reply. How long did it take for your symptoms to "all disappear" after explant? I think I am still so sick because my explant was only 7 months ago, at least I am hoping that is the reason for still so many problems. Some of my friends think it may be the fact that the silicone was ruptured wide open in both implants for several years and I had the silicone in for 19 years. Maybe I am being too impatient. dee > ----- Original Message ----- > From: JOSEPH PALANCA > > Sent: Thursday, July 10, 2003 10:45 AM > Subject: Re: Question about tests/disease > > > Dee, I also had some neurological symptoms like fast muscle twitiching(fasculations)all over my body, mostly in legs, arms, (much like ALS) and also numbness and tingling in my hands and feet, and off balance feeling (much like MS) and was tested 3 times in different tests (one where they use electrical shocks to see how your muscles react- very bad) all came up negative. I had this all done after I had a bells palsy attack. This was then at the point that my nueorologist , (1st doctor that told me this) said to get the implants out as she never saw this many different, and dangerous symptoms in a patient my age, before with no outcome on tests. She was the one that gave a medical letter requesting to my ins that they cover my explant. I love her. She was so sweet., and so open. We still are in contact, as she is so intrigued with all this. > > Anyway, I also had these weird strange things going on, that all resembled so many diseases I thought I was dying, as I had already tested Positive for Hashimtos and RA. > > Funny, they all disapeared after explant. HMMMM nna > > > > > > > > >From: "*~Patty~*" > >Reply- > >> >Subject: Re: Question about tests/disease > >Date: Wed, 9 Jul 2003 16:52:55 -0700 > > > >DeeJ, > >Daryl has also never tested positive for anything. If you asked my rheumy, he would have told you that I didn't test positive for anything either--he told me I was "all better and didn't need to see him anymore." > > > >I don't know why some of you women never have abnormal blood work, but it is obvious they just haven't figured out what the heck is going on with us. With the attitude most of them have, I doubt if we will ever get any answers. They don't CARE to know. The easiest thing for them to do with us is tell us we have fibromyalgia or undifferentiated connective tissue disease, or it is all in our heads. Just a waste of time, really. > > > >I keep thinking maybe it is something with hormones, or toxic metals, or enzymes, or something that they just don't test for, maybe even a combination of things, because, obviously, something is very wrong. They just haven't pinpointed it yet. But they don't play fair--rather than try to help us, they try to blame us for being difficult and turn their backs on us. > > > >It is so frustrating to be treated this way, isn't it? That's why I pretty much gave up and took care of myself. > >Patty > > ----- Original Message ----- > > From: DepoDeeva > > > > Sent: Wednesday, July 09, 2003 4:13 PM > > Subject: Question about tests/disease > > > > > > Hey, everyone: > > > > I just got back from my new rheumy. She's tough. Direct. VERY strong personality. > > > > In a nutshell, she gave me the blowoff. I'm not very happy about this. > > She told me that after reviewing my hospital chart which is about 100 pages and my other doc's files, she cannot for the life of her diagnose me. > > I didn't know this until today, but she told me that I test negative for everything. Rheumatoid factor, ANA......everything is clear. Made mention that depression can cause pain symptoms. When she said that, I pulled out a printed copy I made of ALL my symptoms. And I asked her if depression can cause all these? I got no answer. > > > > I filled her in on us and how we all have the same symptoms. She wouldn't really comment. > > She told me last month she'd be happy to talk to Dr. Kolb. She didn't call her. Apparently she went to her colleagues first and thereafter changed her mind about calling Dr. Kolb. > > She simply would not "go there," if you now what I mean......she even went so far as to say that she has lots of patients with implants. I said, "Yeah, that's my point." That really stumped her cuz she didn't mean it that way and I probably put two and two together for her. > > > > This really stinks! > > She ruled out fibromyalgia, crohn's disease which my first doc said I had, she ruled out Pemphigus which my last rheumy said I had. She said I don't have arthritis. But I do have migratory arthralgia (however you spell it.) > > > > Why don't I test for anything? How can I be having all these symptoms and nothing shows up on a test?? > > I just don't understand this. > > For the women in here who were diagnosed with fibromyalgia, how do your docs know you have that? Is there a test or something for that? > > > > DeeJ > > > > >------------------------------------------------------------------------------ > Add photos to your e-mail with MSN 8. Get 2 months FREE*. >

[Guest guest]

Yes, Dee, 7 months is nothing--not to trivialize it or anything, because I know it seems like a long time, but in the whole grand scheme of things, you need alot longer than 7 months to get feeling really good again. I think said it took her about 18 months...I took 3 years and more...so definitely be patient, but keep at it. Detoxing, or the change in lifestyle that focuses on keeping your body cleared out of toxins is going to become a life-long project for you. It becomes a lifestyle that will ultimately keep you at your healthiest.

Hugs,

Patty

----- Original Message -----

From: Dee Todd

Sent: Thursday, July 10, 2003 10:46 AM

Subject: Re: Question about tests/disease

nna, Thanks for your reply. How long did it take for your symptoms to "all disappear" after explant? I think I am still so sick because my explant was only 7 months ago, at least I am hoping that is the reason for still so many problems. Some of my friends think it may be the fact that the silicone was ruptured wide open in both implants for several years and I had the silicone in for 19 years. Maybe I am being too impatient. dee