Re: pain all returned - Teri

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doc said he didn't believe in fibro, but grabbed my arm in a couple spots, saying they were marker spots but since I had no pain in that area then I did not have it.....quite often, with the rheumotoid and fibro, they go to joint pain...mine is in the bones, not the joints

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

TonnieI feel sooo bad for you!! Yes, we do know! Get your Dr. to send you to an Arthirites specialist. No more fooling around about it. It's true that you have pain and it's definitely not all in your head.When I first ended treatment back in 2005, it didn't take very long at all to realize what it left in its wake. At that time, we were living upstairs of a store, in the 2000sq ft "apartment". Unfortunately, that was two flights of stairs!! I'd get to the landing and she stand there and cry it was so bad. Another one was trying to unload the dishwasher!! I just couldn't do it because I'd have to bend over and one of the worst spots of Fibro that I have, is right at the bottom of my spine.By the way, I'm Canadian; but, I don't think our disability rules are much different. Only that we get ours a

whole lot faster and it doesn't take a lawyer. Anyway, when I applied for mine, I could say without a doubt, that I still had HepC and Fibro. Got my disability first time out.Gloria

almost 2 full weeks dang near pain free with Lyrica and tordol with acetaminophine, and tonight, boom, it is all back...anyone else

this really stinks, i could do almost everything, and now back to the reality that I can do darn near nothing...docs say it is nothing they ever learned in med school, I fit in no category, yet numerous people here know exactly what I am talking about...butt pain, complete bone pain, hands and feet that want to wrinkle, even muscles thruought body feeling like wrinkling up and bones gonna just shrivel...muscles don't work, fatigue from just doing one simple little thing...this is mentally hard..I was facing the fact of what my life had become, but to get it back, get that taste, this is so not fair

I am disabled, but can't prove it...I live in constant pain, but no ne knows why, yet numerous hep c treated people have my same pains

I have a special needs son that depends on my arms and legs to be his arms and legs...I need my life back....what now

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

[Guest guest]

i have based on that chart knees hips and neck/shoulders...not arms, so 12 spots...however, if relaxed and not active, then they aren't as sensitive, but when I have done soemthing,clean kitchen, etc, then they are sore?????

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

TonnieI feel sooo bad for you!! Yes, we do know! Get your Dr. to send you to an Arthirites specialist. No more fooling around about it. It's true that you have pain and it's definitely not all in your head.When I first ended treatment back in 2005, it didn't take very long at all to realize what it left in its wake. At that time, we were living upstairs of a store, in the 2000sq ft "apartment". Unfortunately, that was two flights of stairs!! I'd get to the landing and she stand there and cry it was so bad. Another one was trying to unload the dishwasher!! I just couldn't do it because I'd have to bend over and one of the worst spots of Fibro that I have, is right at the bottom of my spine.By the way, I'm Canadian; but, I don't think our disability rules are much different. Only that we get ours a

whole lot faster and it doesn't take a lawyer. Anyway, when I applied for mine, I could say without a doubt, that I still had HepC and Fibro. Got my disability first time out.Gloria

almost 2 full weeks dang near pain free with Lyrica and tordol with acetaminophine, and tonight, boom, it is all back...anyone else

this really stinks, i could do almost everything, and now back to the reality that I can do darn near nothing...docs say it is nothing they ever learned in med school, I fit in no category, yet numerous people here know exactly what I am talking about...butt pain, complete bone pain, hands and feet that want to wrinkle, even muscles thruought body feeling like wrinkling up and bones gonna just shrivel...muscles don't work, fatigue from just doing one simple little thing...this is mentally hard..I was facing the fact of what my life had become, but to get it back, get that taste, this is so not fair

I am disabled, but can't prove it...I live in constant pain, but no ne knows why, yet numerous hep c treated people have my same pains

I have a special needs son that depends on my arms and legs to be his arms and legs...I need my life back....what now

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

[Guest guest]

sounds like you have fibro to me......On Sun, Jan 30, 2011 at 4:16 PM, Tonni Brende <tbrende7@...> wrote:

 

i have based on that chart knees hips and neck/shoulders...not arms, so 12 spots...however, if relaxed and not active, then they aren't as sensitive, but when I have done soemthing,clean kitchen, etc, then they are sore?????

 

Tonni Brende     Wife, Mother, Grandma too...

 

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

 

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

 

 

TonnieI feel sooo bad for you!!  Yes, we do know!  Get your Dr. to send you to an Arthirites specialist.  No more fooling around about it.  It's true that you have pain and it's definitely not all in your head.

When I first ended treatment back in 2005, it didn't take very long at all to realize what it left in its wake.  At that time, we were living upstairs of a store, in the 2000sq ft " apartment " .  Unfortunately, that was two flights of stairs!!  I'd get to the landing and she stand there and cry it was so bad.  Another one was trying to unload the dishwasher!!  I just couldn't do it because I'd have to bend over and one of the worst spots of Fibro that I have, is right at the bottom of my spine.

By the way, I'm Canadian; but, I don't think our disability rules are much different.  Only that we get ours a

whole lot faster and it doesn't take a lawyer.  Anyway, when I applied for mine, I could say without a doubt, that I still had HepC and Fibro.  Got my disability first time out.Gloria

 

almost 2 full weeks dang near pain free with Lyrica and tordol with acetaminophine, and tonight, boom, it is all back...anyone else

this really stinks, i could do almost everything, and now back to the reality that I can do darn near nothing...docs say it is nothing they ever learned in med school, I fit in no category, yet numerous people here know exactly what I am talking about...butt pain, complete bone pain, hands and feet that want to wrinkle, even muscles thruought body feeling like wrinkling up and bones gonna just shrivel...muscles don't work, fatigue from just doing one simple little thing...this is mentally hard..I was facing the fact of what my life had become, but to get it back, get that taste, this is so not fair

 

I am disabled, but can't prove it...I live in constant pain, but no ne knows why, yet numerous hep c treated people  have my same pains

I have a special needs son that depends on my arms and legs to be his arms and legs...I need my life back....what now

 

Tonni Brende     Wife, Mother, Grandma too...

 

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

  athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

 

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Fibro pain can be anywhere and described multiple ways.  My very best way to describe this feeling is its as if I was in a fight and the other person had a crow bar.  My legs from the knees down always feel like they are bruised if they are touched anywhere.. there is pain in my hips and in my back...  My elbows hurt, my knees hurt.. my muscles cramp up for no apparent reason.  The pain can be intense or it can be annoying.  It changes.  There is no rhyme or reason just pain.  My skin hurts most of the time too.

Hugs,TeriOn Sun, Jan 30, 2011 at 10:07 PM, Gloria <gadamscan@...> wrote:

 

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from.  I believe that Fibro affects the tendons and things like that.  That's why you feel it in your bones. 

I do get those spots of pain your Dr. was talking about.  But, it's not an every day pain in the same place.  It jumps around and then you can have good days and then the days that you don't want to get out of bed.  So, your Dr. didn't find it because it wasn't there at that time.  Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the

drive.  Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then screamed.

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now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then

screamed.

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Tonni,i would find a doctor who is going to take you seriously.  this may be something way other than fibro pain.  bone pain is something not to be taken lightly.  it can be the symptom of all sorts of maladies.  i would search out a rheumatoid arthritis doctor and go from there.  i don't want to scare you with possibilities but i think you should be checked by someone other than a GP.  someone has to take your symptoms seriously.

hugs,teriOn Mon, Jan 31, 2011 at 6:39 AM, Tonni Brende <tbrende7@...> wrote:

 

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

 

Tonni Brende     Wife, Mother, Grandma too...

 

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

 

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

 

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I saw a rheumotologist. He is the one thta put me on Lyrica. The regular doc just added the tordol w/ acetominophine, that gave me almost 2 weeks of nearly no pain....see GI and rheumo docs the 10th and 15th..ultrasound this am shows liver still enlarged but lady said she saw no tumors...EXCELLENT NEWS!!!

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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Well Lyrica is for Fibromyalgia.. not sure why he'd put you on that if he didn't think you had Fibro....On Mon, Jan 31, 2011 at 10:46 AM, Tonni Brende <tbrende7@...> wrote:

 

I saw a rheumotologist. He is the one thta put me on Lyrica. The regular doc just added the tordol w/ acetominophine, that gave me almost 2 weeks of nearly no pain....see GI and rheumo docs the 10th and 15th..ultrasound this am shows liver still enlarged but lady said she saw no tumors...EXCELLENT NEWS!!!

 

Tonni Brende     Wife, Mother, Grandma too...

 

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

 

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

 

 

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

 

Tonni Brende     Wife, Mother, Grandma too...

 

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

 

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

 

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TonniRight off, I would highly suggest that you go to a Dr. that will test whether your blood is actually getting all the way to your hands or your toes!!

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother,

Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were

then

screamed.

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wouldn't they be blueish if they weren't???

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then

screamed.

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TonniIs your liver badly damaged?? Such as, what genotype Hep C do you have and what stageis it at?? I don't understand why they would be looking at your liver for any tumours. I do have to be checked every 6 months but that's because I've already had liver cancer. Most of the time, we are only in danger of

having tumours if you've had any cirrhosis. Even then, the percentage of people that have had bad damage to their livers and into cirrhosis, is very low.

I saw a rheumotologist. He is the one thta put me on Lyrica. The regular doc just added the tordol w/ acetominophine, that gave me almost 2 weeks of nearly no pain....see GI and rheumo docs the 10th and 15th..ultrasound this am shows liver still enlarged but lady said she saw no tumors...EXCELLENT NEWS!!!

Tonni Brende Wife, Mother,

Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother,

Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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TonniNo!! That is not what happens. Your arteries may be blocked with plague. Are your feet really cold when this happens and what about your hands?? My now deceased husband was told by his Dr. many years ago that if he didn't quit smoking his blockages he might have to amputate limbs. He was not blue, just ornery as usual.Gloria

wouldn't they be blueish if they weren't???

Tonni Brende Wife, Mother,

Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were

then

screamed.

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one thing no part of my body ever is is cold...I am always the opposite, shorts in the blizzard just to stay comfortable...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then

screamed.

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I am 1a..last I heard, which was when I was first tested early 2008, I was high stage 2...my quantum when diagnosed was 1, 134, 000 now I am 1, 300,000 my AFP when diagnosed was 3.6, later that Dec it was 8.6, then i started the treatments, did 17 weeks, before had to stop due to severe heart flutter and skippedbeats, quantum wnt down less than half, yet ending AFP was 8.9...now AFP is 10.8...oh, and liver as swollen last eyars ultrasound, yesterdays they said it is about the same......I just know my bone pain is worse than it was, taking over my life even, I know somehting is up w liver, for I get pains there once in a while...beyond that, no one even told me last year that this AFP was high and the liver was enlarged, so don't know that it means anything now since it didn't mean enough then to even tell me about it???????

See GI on the 10th and rheumotologist on the 15th

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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