Getting better

[Guest guest]

Steve,

Dr. Cheney is the only doctor of 12+ I've seen who is working on treatments

with the potential to significantly alleviate symptoms and is able to

provide things that help on a day to day basis. I tried over 40 of Dr.

Goldstein's drugs and built a tolerance to all about a dozen that helped.

Neurontin is safe and beneficial. Ariciept causes severe stomach upset in a

lot of people. Even some with Alzheimer's won't take it. Talwin and

Nimodipine are two I built a tolerance to but began working again a year

later if taken only occassionally. I take them during any trips or

vacations. I would vary the doses of the Talwin to avoid this problem if

your going to take it more than 1-2x a week. It may be one of only a few

drugs that reduce your symptoms and you don't want to lose the benefits.

Steve B.

getting better

> I do not know anything about getting better but I do know a few things

about

> dealing with flu like symptoms. Neurontin and Aricept are the drugs of

> choice for me. And when I can't get out of bed Talwin help a lot but if

you

> over do it nothing can help you there. I really believe in the drugs list

> above but all they do is help manage my symptoms. I am taking abxs but I

> really cannot tell if they are working. Be careful about doc who think

they

> know the root cause of this disease. Like you I searched such Drs out but

I

> take them with a grain of salt. So keep trying those root cause drugs but

> also let your doctors know you want some help with immediate symptoms. I

> think the best thing to do is have to sets of docs -- those that search

for

> a cure -- and those that try things that help you managed from day to day.

I

> see about 4 or 5 doc on a regular basis. I know the strength and

limitation

> of each one of them (they probably know a lot about me too). I know which

> ones I can ask to write a report and I know which ones I can get

symptomatic

> help, and I know those that think they have know the root cause. Root

cause

> gurus tend to be a little single minded and tend to over look day to day

> symptom management. If you got a doc that can do it all God Bless you. If

> not do what I do.

>

> Steve

>

>

>

[Guest guest]

Way to go, Beej!! Keep up the good work!!

P.S. I quit smoking a couple of years ago. I feel so much better

now--it is so worth it!!

> Once again I want to thank everybody who gave me the inspirational

> words and support last week, I am truly blessed to have people who

> can be concerned for somebody they don't know, so THANK YOU!!!!!!!

> Things are looking up. I have decided that he is not worth

fighting

> the bimbo for, she can have him. He and are going to be friends,

but

> that is it. I woke up this morning much more committed to myself

and

> my boys and my new BODY FOR LIFE!!!!

> Did my measurements today just for kicks and giggles...and this is

> were I am starting today.....the weight kinda excites me, I am

down

> 14 3/4 pounds since January 1st

> Height: 5'3 "

> Weight: 135 1/4

> Chest: 34C

> Waist: 33

> Hips: 34 1/2

> R. thigh: 21

> L. thigh: 21 1/2

> R. calf: 11 1/4

> L. calf: 11

> R. Bicep 11

> L. Bicep: 11 1/4

> My goal is to get down around 120ish, build more muscle, quit the

> caffeine and smokes, and feel better. Right now I am in a loose

7,

> would like to be in an " AWESOME 5 " by mid September. I have cut

down

> on the smokes, going to give them up completely after this pack

and

> use the patch to get over it. I have quit drinking mu normal 4

> Pepsi's a day and switched to ice tea, not too much better, but no

> carbonation.

> Sorry this was so long, but had to let you all know what and

> inspiration you have been for me.

> Thanks again, and have a WONDERFULL DAY!!!!!

> Beej

[Guest guest]

Yea Beej. You can do it!!!!!

Bridgette

> > Once again I want to thank everybody who gave me the

inspirational

> > words and support last week, I am truly blessed to have people

who

> > can be concerned for somebody they don't know, so THANK YOU!!!!!!!

> > Things are looking up. I have decided that he is not worth

> fighting

> > the bimbo for, she can have him. He and are going to be friends,

> but

> > that is it. I woke up this morning much more committed to myself

> and

> > my boys and my new BODY FOR LIFE!!!!

> > Did my measurements today just for kicks and giggles...and this

is

> > were I am starting today.....the weight kinda excites me, I am

> down

> > 14 3/4 pounds since January 1st

> > Height: 5'3 "

> > Weight: 135 1/4

> > Chest: 34C

> > Waist: 33

> > Hips: 34 1/2

> > R. thigh: 21

> > L. thigh: 21 1/2

> > R. calf: 11 1/4

> > L. calf: 11

> > R. Bicep 11

> > L. Bicep: 11 1/4

> > My goal is to get down around 120ish, build more muscle, quit the

> > caffeine and smokes, and feel better. Right now I am in a loose

> 7,

> > would like to be in an " AWESOME 5 " by mid September. I have cut

> down

> > on the smokes, going to give them up completely after this pack

> and

> > use the patch to get over it. I have quit drinking mu normal 4

> > Pepsi's a day and switched to ice tea, not too much better, but

no

> > carbonation.

> > Sorry this was so long, but had to let you all know what and

> > inspiration you have been for me.

> > Thanks again, and have a WONDERFULL DAY!!!!!

> > Beej

[Guest guest]

Great to hear Leo. Group I do want to apoligize for lacking in posting.

I started a Chronic pain group general topics.

NACPS We have over 30 members Join if

you like to. Mike

[Guest guest]

Hi Lynn

Yea.....!

The esp really fixed up zooks too.

Good report , so happy for you .

Bye ,

Bill

Lynn wrote:

>  

> Hi have had two nights of descent sleep. The Gold Bond and

the esp products are really protecting me. All day I have had lots of peaceful

spaces. The Lemon I am taking is really starting to kick butt. I sure hope its

not the wheather change making it more peaceful but what I am doing.

> Today I swiftered the whole room ceiling to floor with Echo Orange concentrate

and the wood furniture with s oil soap added in. I sprayed Bonide Mite-x

on the box springs and mattress and washed all my bedding with Bio-Kleen laundry

soap. I love this soap. It really makes the clothes feel clean. I bought some

roach puff to put under all the furniture and between cushions. I sprinkle my

throw rugs with Borax soap and will vacumm tomarrow. I got very crippled up from

all this and had to take a Vicadin to releive the aweful pain. I am getting

sleepy and hoping the room will be descently peaceful like the day has been.

Today is the first time I have felt like dancing and singing. For the first time

I have not had anything crawl into my bumm or vaginal or bite the surrounding

area.

> Another thing of interest I want to add is that when I got the esp soaps and

spray and balm I had arms with white little circles all over my arms whare it

looked like my skin color had vanished. Also I had many little red dots that

almost looked like a cross between a blood blister or strawberry but smooth and

perfectly round. Now after less than two months of use of esp products I have

almost no red dots and even less white circles. When I went to the Old Walmart

in Ceres and stood under the air vent I did not get any fire work pin pricks on

my arm. I did notice all day other people whose arms looked like mine use to.

Ummmm.....Makes me wonder. Good night all. I love you all and wish you a peace

in the very near future from all this maddness. Now only to try and hang onto

it. The rollor coaster for me is two steps forwards one step back. A very

special thanks to one of the people here who had taken me under wing and guided

me in areas that I was not

able to overcome.

> Also thank you all so very much for the hand holding and all the stuff I

learned to get some immidiate relief while trying to figure this out. I do not

know for sure if I am on my way to being healed yet, but what I have right now

is pretty blissful.

> In Light always Lynn

>

[Guest guest]

Good for you. So many people are in the same boat you were in. If only they

knew.

God bless,

>...> Since I've started taking Iodine, I have noticed a big difference in

how I feel. It took a couple of months, but once I raised my dose to 37.5(

Iodoral), I felt it. I also noticed I don't need to take as much Isocort for

my adrenals now. I've also noticed the goiter I have (had) is almost gone. No

more sore throat! The edema is mostly gone too. I feel like a new person.

I've struggled with these symptoms and more for over 10 years. None of the

doctors I have gone to have even come close to getting me better. But after @ 4

months of taking Iodine, I feel better than I have in years.

> > Thanks again everyone.

> > Robin

>

[Guest guest]

thanks for sharing your success story!

susan

>

> I just want to thank everyone who contributes to this group. I read all the

messages, but I don't post much.

>

> Since I've started taking Iodine, I have noticed a big difference in how I

feel. It took a couple of months, but once I raised my dose to 37.5( Iodoral),

I felt it. I also noticed I don't need to take as much Isocort for my

adrenals now. I've also noticed the goiter I have (had) is almost gone. No

more sore throat! The edema is mostly gone too. I feel like a new person.

I've struggled with these symptoms and more for over 10 years. None of the

doctors I have gone to have even come close to getting me better. But after @ 4

months of taking Iodine, I feel better than I have in years.

>

> Thanks again everyone.

>

> Robin

>

[Guest guest]

Robin,

I am curious to know what your experience has been taking Isocort and iodine? I

am currently taking Isocort, but I am not noticing much of a difference, except

perhaps in temps...and I will be starting Lugol's iodine soon...

Regan

> >

> > I just want to thank everyone who contributes to this group. I read all

the messages, but I don't post much.

> >

> > Since I've started taking Iodine, I have noticed a big difference in how

I feel. It took a couple of months, but once I raised my dose to 37.5(

Iodoral), I felt it. I also noticed I don't need to take as much Isocort for

my adrenals now. I've also noticed the goiter I have (had) is almost gone. No

more sore throat! The edema is mostly gone too. I feel like a new person.

I've struggled with these symptoms and more for over 10 years. None of the

doctors I have gone to have even come close to getting me better. But after @ 4

months of taking Iodine, I feel better than I have in years.

> >

> > Thanks again everyone.

> >

> > Robin

> >

>

[Guest guest]

I have been on Isocort for a couple of years. My adrenals had tanked and it

has taken a long time to get where I feel good! First, I ramped up to where I

felt I needed the dosage to get moving again. And then as I've been feeling

better, I've cut back on what I need to take. I do notice whenever I'm

overactive, I might need an extra tablet or two. Stress dosing.

When I first started taking Iodoral, I didn't notice any difference in how my

body was reacting to it. I started with 1 tablet (12.5) for about a month to

watch for any reactions. I'm maybe overly cautious. Once I moved to the 25

mg dose, I noticed that I would get hot flashes and sweat. It took a while for

me to figure out that I was taking my first dose of Isocort and Iodoral at the

same time. So I cut back 1 tablet at a time to where I wouldn't have the sweats

and hot flashes. I split my Iodoral dose to 2x a day, at breakfast and between

1pm & 2pm.

Now that I'm at 37.5 mg, I am still adjusting my Isocort. I don't have to

take as much as I did, which is a plus.

I want to get off Isocort eventually, but I know it will be a while down the

road for that. I joined the group NaturalThyroidHealth when I first found

out I was hypo. They were a great wealth of information for both the thyroid

and adrenal issues. I did the temps too and it wasn't until I started on Iodoral

that my temps really came up. I was stuck in the 96 range.

Good luck Regan. Be persistant, don't always rely on drs., go with your gut

instinct. Your body will tell you what it needs, you just have to learn how to

read it. Educate yourself. Good luck.

Robin

>

> Robin,

>

> I am curious to know what your experience has been taking Isocort and iodine?

I am currently taking Isocort, but I am not noticing much of a difference,

except perhaps in temps...and I will be starting Lugol's iodine soon...

> Regan

[Guest guest]

Wow! Gloria, so you can tell from chatting that I'm better??

Yes, my mind & emotional self is better. I'm still stuttering BAD, but

it is cause I'm so tired. Went shopping a bit with Becky yesterday .

Still trying to recover. I was so excited to even care about shopping.

Today I cleaned house. Adding up to a real crash of stregnth & energy.

Dang I wish I was not so bull-headed! Yeah, for now I just enjoy the

good days.

Teri, I've almost got all of my taster back!!

Some one said thier memory was bad ? Don't remember who . LOL. But yes

tx messes with your short - term memory. Mine was very bad. Two weeks

after tx and memory getting better, sometimes.

marie & . Everyone on tx: my thoughts are with you tonight.

Again, I really hope tonight's shot is kind. Gloria, do you still have

candles to light??

Cinder, glad you are home. Please be kind to yourself. You are worth

it.

ok, I'm off line ( until some post catches my attention ).

Love & Warm Hugs for all

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

" A well- behaved woman never made history " ...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

TrudyYou bet we can tell even by your posts! You've lightened up about any of the other medical worries and just about back to sparring with humour.But, please don't over do it!! Or, if you do, then know that you are still going to pay for it in the evening. As time goes on, you'll suddenly begin to realize that your on the go like you were before tx.You bet I've still got the candles.Luv Gloria

Wow! Gloria, so you can tell from chatting that I'm better??

Yes, my mind & emotional self is better. I'm still stuttering BAD, but

it is cause I'm so tired. Went shopping a bit with Becky yesterday .

Still trying to recover. I was so excited to even care about shopping.

Today I cleaned house. Adding up to a real crash of stregnth & energy.

Dang I wish I was not so bull-headed! Yeah, for now I just enjoy the

good days.

Teri, I've almost got all of my taster back!!

Some one said thier memory was bad ? Don't remember who . LOL. But yes

tx messes with your short - term memory. Mine was very bad. Two weeks

after tx and memory getting better, sometimes.

marie & . Everyone on tx: my thoughts are with you tonight.

Again, I really hope tonight's shot is kind. Gloria, do you still have

candles to light??

Cinder, glad you are home. Please be kind to yourself. You are worth

it.

ok, I'm off line ( until some post catches my attention ).

Love & Warm Hugs for all

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

"A well- behaved woman never made history"...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

Trudy,Seeing it from this side of the monitor, I gotta agree, even your texts are more coherent and understandable, you've got a lot to be excited for!I know several of us keep harping on this, but take it easy! I made the same mistake, but you're not back to 110% six minutes after your last shot, lady...It's encouraging to see you start to bounce back.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Getting better

Wow! Gloria, so you can tell from chatting that I'm better??

Yes, my mind & emotional self is better. I'm still stuttering BAD, but

it is cause I'm so tired. Went shopping a bit with Becky yesterday .

Still trying to recover. I was so excited to even care about shopping.

Today I cleaned house. Adding up to a real crash of stregnth & energy.

Dang I wish I was not so bull-headed! Yeah, for now I just enjoy the

good days.

Teri, I've almost got all of my taster back!!

Some one said thier memory was bad ? Don't remember who . LOL. But yes

tx messes with your short - term memory. Mine was very bad. Two weeks

after tx and memory getting better, sometimes.

marie & . Everyone on tx: my thoughts are with you tonight.

Again, I really hope tonight's shot is kind. Gloria, do you still have

candles to light??

Cinder, glad you are home. Please be kind to yourself. You are worth

it.

ok, I'm off line ( until some post catches my attention ).

Love & Warm Hugs for all

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

"A well- behaved woman never made history"...Mae West

http://oktravels.wordpress.com

http://allrecipes.com/cook/TrudyK/profile.aspx