Re: Treatment, Biopsy, Alternatives - Tonni

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I already take milkthistle supplements for the liver. I am a coffee frak, so that may be the reason behind my large liver. I drink maybe a 5 pack of wine coolers a year. I quit smokin in 2004 ans 13 years off drugs. I'm still not sure how I got my Hep C, since it is only dormant a short while, for I was sober a year before I got pregnant with my son and I was tested for it while I was pregnant..All my tattoes and IV use was before that pregnancy. I can only assume the car accident that I helped with in 1999 is where; a man was thrown from a car and bleeding from the head so I held pressure..maybe I had a cut on y hand????? all I can think...

I will do the biopsy if they request it. I was wanting to try the new treatment, but now I don't know. I am now worse off than I was before I started the 1st round of treatments; I can't risk getting worse, but how can I not risk a chance to get better, to beat this???? Again, will just have to see what docs say..

There are also natural oils that work for Hep C. www.abundant-health.com has 2 books, on natural oils and supplements that cover everything, including hep c, the desk reference has a daily program...again, they are spendy and everything works different for different people.

Thanks for all your help Don

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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Hi Tonni

The Milk Thistle is good.

I have posted several scientific articles that say that it inhibits HCV reproduction.

Black coffee [caffine?] is good to slow down Cirrhosis.

I have posted about this too.

Tonni, you mention alcohol use, and that bothers me.

I have read so many reports about alcohol encouraging HCC [liver cancer], my head spins.

Alcohol use is like pouring gasoline on a fire when it comes to Hepatitis and liver diseases.

/links/Tobacco_and_Hepatitis_C_001254725475/

I also have personal experiance with alcohol and HCV.

My ex ladys sister died in my arms from alcohol related liver cancer.

In just 2 years she went from treatable HCV, to untreatable HCC, and I watched it happen right in front of me.

Dr Berkson uses Alpha Lipoic Acid with his HCV patients.

He is a REAL doctor, and not out to sell anyone anything.

He is a leader in his field worldwide.

/links/006N___Dr_Berkson_001287085127/

Tonni, if you buy suppliments from a company or internet site your going to pay bunches.

They are expensive because they want to make money off of people.

The suppliments I have listed in the Links Library, you can buy from a Health Food store for a lot less money, and they will do the same thing for you.

[This is what I do.]

This is why I have listed them individually like I have, and not whole websites that sell products.

I endorse the suppliments themselves, not someone out to bleed people with magical blends.

With each suppliment I list in the Links Library, I also include info on exactly how they help the body, but someone can also research them, and find this info.

I believe in alternatives only as far as making our bodys healthier, so that the body itself can fight diseases.

[Thats why I use them, not to cure me.]

In over 2 years of researching, I have yet to find an alternative answer that will cure liver diseases.

I know a lot of people swear that this or that helps, or has cured them, but I have no 'proof' other than their word.

I do know though that there is a cure using conventional medicine sometimes.

But to be fair, I post about both alternative and conventional medicine.

Im not out to push anything to sway anyone, or help sell anything.

My goal is to gather as much info as I can about all of it, and present it to folks.

Then each person must make up their own mind which protocal to use.

Tonni, I dont play God, or Mr Know-it-all with peoples lives.

Thats not my place, and the only thing I know 'for sure' is my big toe. LOL :-).

I give my honest opinion about what I have learned or think, and then its up to you and everyone else to choose.

I care only that everyone be fully informed, so that we can heal.

Maybe God will bless me also, and I will benefit from the same information.

Now, I know it bugs each of us - how we got infected.

I have mulled it over and over myself, many times.

But the reality is that this is not as important as healing.

So play with it, but keep your mind on the future.

Stay well my friend, and please let us know everything you find out about yourself.

This info may help someone else.

love

don in ks

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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TonniSure sounds to me like you are looking after yourself great. Better than I am, since I'm still smoking, even after liver surgery. I can bet my bottom dollar that you will never know how you contracted Hep C. The information that is publicized and the true facts about getting infected, are a long way off. Thus, most of us just don't drive ourselves crazy with thinking HOW anymore. The only how now, is working to get rid of it.I'm sorry but my brain fog is extreme. I know that you have done tx before - did you end up being a non-responder or did you have to be taken off because it made you too sick?? This new med,

that is about to come online, is not one ounce better, when it comes to sides. However, it sure did give us, that failed tx our 1st time around, more hope. I participated in a clinical trial for this new addition and I'm so grateful to be able to say that I am now Hep C free. But, please understand that the new thing about it, is that they have added a Protease Inhibitor to the interferon/riba. I'm not convinced that treatment had anything to do with my Fibromyalgia. It's kinda like the chicken or the egg thing. I know lots of people that have the Fibro and there is nothing wrong with their livers. I can only try to imagine the difficulty that you must have, with physically dealing with your son's disabilities. It may be that your body is overtaxed and especially the older your son gets.Now, as for being worse after I did the 2nd tx - nope, I'm about

the same! I have periods where the Fibro rears it's ugly head and the pain is disabling. Then I can go for long periods without it bothering me so much, as long as I am very careful not to over do it. My Dr. put me on muscle relaxants and they work very well for me. They are call "Cyclobenzaprine". I know that our pain is not from the muscles; but, when our bodies are in pain from something, the muscles will be out of alignment as well. An example is, if I pull my back out down near the tailbone, I will have pain as high up as my neck, because all the muscles in the back are knocked off alignment to compensate for a vertebra that has slipped. Anyway, I hope that what I have tried to say makes sense to you. I can believe that you already have enough on your plate without worrying about being physically ill going through another tx.Gloria

I already take milkthistle supplements for the liver. I am a coffee frak, so that may be the reason behind my large liver. I drink maybe a 5 pack of wine coolers a year. I quit smokin in 2004 ans 13 years off drugs. I'm still not sure how I got my Hep C, since it is only dormant a short while, for I was sober a year before I got pregnant with my son and I was tested for it while I was pregnant..All my tattoes and IV use was before that pregnancy. I can only assume the car accident that I helped with in 1999 is where; a man was thrown from a car and bleeding from the head so I held pressure..maybe I had a cut on y hand????? all I can think...

I will do the biopsy if they request it. I was wanting to try the new treatment, but now I don't know. I am now worse off than I was before I started the 1st round of treatments; I can't risk getting worse, but how can I not risk a chance to get better, to beat this???? Again, will just have to see what docs say..

There are also natural oils that work for Hep C. www.abundant-health.com has 2 books, on natural oils and supplements that cover everything, including hep c, the desk reference has a daily program...again, they are spendy and everything works different for different people.

Thanks for all your help Don

Tonni Brende Wife, Mother,

Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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treament had to be stopped 17 weeks in due to severe heart palpitations and skipped beats...my quantum lowered greatly, but no clear...now all labs higher than before treatment

My pains started just a couple weeks into treatment. Doc said it just caused something to appear that would have showed its face a few years down the line and the treatment made it comeout quicker...thinkin it was arthritis though.

My son has doubled in weight but if my muscles and fatigue weren't so bad and some days even worse, then all woud be well. Just givign him a shower takes all my days energy and it ain't that big a deal. But that is anything, clean one room deep scrub now instead of whole house. My son is who truly keeps me doing the minimum, for he only wants someone to hold him and watch cartoons with him, or drive anywhere, everywhere, adn niether of those take much more than picking him up. But some days, even that is hard.

I am so happy to hear you cleared. Gives us others great hope. I want to try again, for I refuse to let this disease beat me. I will stop instantly if any heart issues arrise, for I am not willing to trade heart disease for liver disease. But I feel I am a quitter if I don't try and that I m not. Yet, now knowing that the benefits from last time are not only gone, 2 years later, but gone and I am worse off....that places the doubt and wonder in the back of my head. That is hy I will discuss it all with doc and let them tell me.

I just completed the online app for SSDI; we will see what happens. Even if they deny, I will keep at it until they approve me, for I know I am disabled. I hate it, but it is my life and I am ready to face it completely.

Thank you for all your help. Your words are helpful and encouraging. You and Don have really been a blesing.

Tonni Brende Wife, Mother, Grandma too... " Life is not about waiting for the

storms to pass... it's about learning how to dance in the rain. " athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.http://johnathanourgift.synthasite.com/index.php --- On Wed, 2/2/11, Gloria <gadamscan@...> wrote:From: Gloria <gadamscan@...>Subject: Re: [ ] Treatment, Biopsy, Alternatives - Tonni Date: Wednesday, February 2, 2011, 11:32

PM

TonniSure sounds to me like you are looking after yourself great. Better than I am, since I'm still smoking, even after liver surgery. I can bet my bottom dollar that you will never know how you contracted Hep C. The information that is publicized and the true facts about getting infected, are a long way off. Thus, most of us just don't drive ourselves crazy with thinking HOW anymore. The only how now, is working to get rid of it.I'm sorry but my brain fog is extreme. I know that you have done tx before - did you end up being a non-responder or did you have to be taken off because it made you too sick?? This new med,

that is about to come online, is not one ounce better, when it comes to sides. However, it sure did give us, that failed tx our 1st time around, more hope. I participated in a clinical trial for this new addition and I'm so grateful to be able to say that I am now Hep C free. But, please understand that the new thing about it, is that they have added a Protease Inhibitor to the interferon/riba. I'm not convinced that treatment had anything to do with my Fibromyalgia. It's kinda like the chicken or the egg thing. I know lots of people that have the Fibro and there is nothing wrong with their livers. I can only try to imagine the difficulty that you must have, with physically dealing with your son's disabilities. It may be that your body is overtaxed and especially the older your son gets.Now, as for being worse after I did the 2nd tx -

nope, I'm about

the same! I have periods where the Fibro rears it's ugly head and the pain is disabling. Then I can go for long periods without it bothering me so much, as long as I am very careful not to over do it. My Dr. put me on muscle relaxants and they work very well for me. They are call " Cyclobenzaprine " . I know that our pain is not from the muscles; but, when our bodies are in pain from something, the muscles will be out of alignment as well. An example is, if I pull my back out down near the tailbone, I will have pain as high up as my neck, because all the muscles in the back are knocked off alignment to compensate for a vertebra that has slipped. Anyway, I hope that what I have tried to say makes sense to you. I can believe that you already have enough on your plate without worrying about being physically ill going through another tx.Gloria

I already take milkthistle supplements for the liver. I am a coffee frak, so that may be the reason behind my large liver. I drink maybe a 5 pack of wine coolers a year. I quit smokin in 2004 ans 13 years off drugs. I'm still not sure how I got my Hep C, since it is only dormant a short while, for I was sober a year before I got pregnant with my son and I was tested for it while I was pregnant..All my tattoes and IV use was before that pregnancy. I can only assume the car accident that I helped with in 1999 is where; a man was thrown from a car and bleeding from the head so I held pressure..maybe I had a cut on y hand????? all I can think...

I will do the biopsy if they request it. I was wanting to try the new treatment, but now I don't know. I am now worse off than I was before I started the 1st round of treatments; I can't risk getting worse, but how can I not risk a chance to get better, to beat this???? Again, will just have to see what docs say..

There are also natural oils that work for Hep C. www.abundant-health.com has 2 books, on natural oils and supplements that cover everything, including hep c, the desk reference has a daily program...again, they are spendy and everything works different for different people.

Thanks for all your help Don

Tonni Brende Wife, Mother,

Grandma too...

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

" Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. "

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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milk thistle "inhibits" hep c...you mean makes it worse?????

coffee can cause an enlarged liver, but also can wean off scirossis...is there any "problems" from an enlarged liver other than sporadic pains????

I do not fret over the how any more, I knwo I used dirty needles and tried to kill myslf in my using days...dormant for months, or years, who truly knows...not like this wasn't something I knew could be the outcome....just different now that I no longer want to die...but either way, not an issue any more.the alcohol, is very sporadic and again, not even close to a 12 pack a year..I know it says none, but some summer days I just want one...or a Chiefs game makes you just want one....one here and there, ain't that bad...but I hear your reasoning and hat is why I also make sure it only one and very seldom.

Heading to those research sites.

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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great about milk thistle...short freak out there

the coffee thing I read on one of the research pages but not sure which as have read so many this last week

we all are passionate about things that we have seen and know...those feelings are also very necessary in helping others to see other sides of things

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

From: Tonni Brende <tbrende7@...>Subject: Re: [ ] Treatment, Biopsy, Alternatives - Tonni Date: Thursday, February 3, 2011, 10:15 AM

milk thistle "inhibits" hep c...you mean makes it worse?????

coffee can cause an enlarged liver, but also can wean off scirossis...is there any "problems" from an enlarged liver other than sporadic pains????

I do not fret over the how any more, I knwo I used dirty needles and tried to kill myslf in my using days...dormant for months, or years, who truly knows...not like this wasn't something I knew could be the outcome....just different now that I no longer want to die...but either way, not an issue any more.the alcohol, is very sporadic and again, not even close to a 12 pack a year..I know it says none, but some summer days I just want one...or a Chiefs game makes you just want one....one here and there, ain't that bad...but I hear your reasoning and hat is why I also make sure it only one and very seldom.

Heading to those research sites.

[Guest guest]

TonniI don't blame you for quitting tx because of heart palpitations!! I had a few minor palpitations; but, fortunately nothing to see the Dr. about for sure.I'm a firm believer that a no-quit attitude has to be maintained in fighting off the dragon. Sometimes that's all we've got - the courage to fight! The last tx was very hard on me emotionally and thus, it was hard on others around me. Then, I had the last 3 months of tx to go, when the Drs figured I had acquired liver cancer. So, I completed the clinical on Jan 14th 2010, went over on my 12 hr round trip visit to the big city to have another CT Scan. On Feb 2nd, the Gastro phoned to tell me that yes, I did indeed

have two tumours. Really, I wasn't finished with the fight with the dragon quite yet and it felt like I just needed to keep fighting through the cancer as well. I don't think I ever thought I had a choice anyway. My marriage failed after 21 years together; but, until recently I just thought my husband was one of those people that can't deal with illness around them. Turns out he was actually sicker than I was and we didn't know it. He passed away on Christmas Eve.By the way, there are a whole lot of us here that will be supportive to you in any way possible. We know the rigours of dealing with a chronic illness and having to take poison to kill the virus. I honestly think that the whole fight that I've been in since 2004, has really changed me for the better!! I often wondered if I would be the type of person that could deal with a sick friend. Well, I have no question left on that

issue! It was awful that so many people turned away from me during my fight and especially before the cancer. So, today I am absolutely positive that if anyone anywhere needs a shoulder to cry on, an ear to listen or just a hand out with the offer - I'll be there. That's what my Higher Power has taught me through this whole thing.Luv GloriaFrom: Tonni Brende <tbrende7@...> Sent: Thu, February 3, 2011 8:04:57 AMSubject: Re: [ ] Treatment, Biopsy, Alternatives - Tonni

treament had to be stopped 17 weeks in due to severe heart palpitations and skipped beats...my quantum lowered greatly, but no clear...now all labs higher than before treatment

My pains started just a couple weeks into treatment. Doc said it just caused something to appear that would have showed its face a few years down the line and the treatment made it comeout quicker...thinkin it was arthritis though.

My son has doubled in weight but if my muscles and fatigue weren't so bad and some days even worse, then all woud be well. Just givign him a shower takes all my days energy and it ain't that big a deal. But that is anything, clean one room deep scrub now instead of whole house. My son is who truly keeps me doing the minimum, for he only wants someone to hold him and watch cartoons with him, or drive anywhere, everywhere, adn niether of those take much more than picking him up. But some days, even that is hard.

I am so happy to hear you cleared. Gives us others great hope. I want to try again, for I refuse to let this disease beat me. I will stop instantly if any heart issues arrise, for I am not willing to trade heart disease for liver disease. But I feel I am a quitter if I don't try and that I m not. Yet, now knowing that the benefits from last time are not only gone, 2 years later, but gone and I am worse off....that places the doubt and wonder in the back of my head. That is hy I will discuss it all with doc and let them tell me.

I just completed the online app for SSDI; we will see what happens. Even if they deny, I will keep at it until they approve me, for I know I am disabled. I hate it, but it is my life and I am ready to face it completely.

Thank you for all your help. Your words are helpful and encouraging. You and Don have really been a blesing.

Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the

storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.http://johnathanourgift.synthasite.com/index.php ---I

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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Gloria,

You are a very strong woman. I don't know how I could handle things if I had been standing in your shoes at that time. SOrry, but I also hope I never have to. To fight thru treatment, then wind up wiht yet another demon...truly amazingly strong lady you are.

One thing I learned when I got sober...I had lots of friends back then, but only a few after I got busted, same thing here...today I know for sure who my friends are and there is nothing I wouldn't do for any of them...there are no questions today of where I stand, or where they atnd with me...a few good ones is all anybody needs.

And, without God, I would not have even made it this far. He is my peace, He is my strength. He is my everything. Hands down.

Thank you for sharing. Your words encourage others to keep fighting. God bless you.

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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TonniI really do not feel like a strong woman!! As the saying goes "God never gives you more than you can handle". Well, many many times, I've looked to the heavens and asked if He didn't have me confused with someone else. Then I figured that although I didn't know why I had to get stronger, I might as well just hold the hand of my Spiritual Higher Power and get through whatever was in front of me.To me, you must be an awfully strong and special lady!! To pull yourself out of the drugs/alcohol and then continue to be strong for your disabled son! C'mon, that takes a whole lot of courage!! You certainly have proved that, with attitude, you are certainly no

quitter.Gloria

Gloria,

You are a very strong woman. I don't know how I could handle things if I had been standing in your shoes at that time. SOrry, but I also hope I never have to. To fight thru treatment, then wind up wiht yet another demon...truly amazingly strong lady you are.

One thing I learned when I got sober...I had lots of friends back then, but only a few after I got busted, same thing here...today I know for sure who my friends are and there is nothing I wouldn't do for any of them...there are no questions today of where I stand, or where they atnd with me...a few good ones is all anybody needs.

And, without God, I would not have even made it this far. He is my peace, He is my strength. He is my everything. Hands down.

Thank you for sharing. Your words encourage others to keep fighting. God bless you.

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used...

Tonni Brende Wife, Mother, Grandma too...

"Life is not about waiting for the storms to pass... it's about learning how to dance in the rain."

athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful.

http://johnathanourgift.synthasite.com/index.php

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