Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 Hi Tonni I only mentioned - 'blowing me off' - because in your last responce to me, you said that you had read it all, way before you had time to read it. Tonni, I am streight forward with folks, and tell it like I see it. Im probably am a bit overwhelming, but I really care about yours, and everyones wellbeing. I really really want to help if I can. Please forgive me if I sound like a butthead sometimes - my intent is otherwise. I was going to suggest 'bone marrow testing', but Im not sure how far your doctors have tested you. You talk about pain that is deeper and more complicated than Fibromyalgia - and that might be a sign of something alot more serious. That is why I gave you the Bone Pain link. On the other hand, the doctors will tend to take things one step at a time - starting with the simplest and most likely explaination, and then going to more and more complicated things. They want to make sure, and rule out, before going to the next step. This long process is frustrating - I know, but hang in there, and keep pushing. Have you applied for Medicaid or Medicare? If you are working, you may not be elgible, but then again you might be. If your NOT working, have you applied for SSDI or SSI? If you go this route - be sure to get a lawyer. I wish I had some solid answers for you Tonni. I dont like it that anyone is suffering. I will keep trying to make suggestions to you, if that is ok with you. love don in ks I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then screamed. Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (16) Recent Activity: New Members 8 New Links 39 Visit Your Group Quote Link to comment Share on other sites More sharing options...
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