Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 praying for you From: jeff white <inmissouri2003@...>Subject: venting Date: Thursday, January 22, 2009, 2:19 AM sorry just here it is another night, 2:15 am and again pain level is so severe i am unable to sleep. has swollen again and body feels like on fire as my nerve ending are going nuts. maybe someday they can fix this until then i guess sufferjeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I sure hope they find a good way to help, Jeff!! and for the others who likewise suffer and also for my friend whose pain is increasing... Jean From: jeff white Sent: Thursday, January 22, 2009 3:19 AM Subject: venting sorry just here it is another night, 2:15 am and again pain level is so severe i am unable to sleep. has swollen again and body feels like on fire as my nerve ending are going nuts. maybe someday they can fix this until then i guess sufferjeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I'm so sorry to hear about your bad night. Those of us with chronic pain just can't seem to get a break.And they say if you don't get enough sleep it makes the pain worse. I hope you have been able to get some rest today and have managed to get your pain under control. In My Prayers & Take Care, B. in TEXASFrom: jeff white <inmissouri2003@...> Sent: Thursday, January 22, 2009 2:19:22 AMSubject: venting sorry just here it is another night, 2:15 am and again pain level is so severe i am unable to sleep. has swollen again and body feels like on fire as my nerve ending are going nuts. maybe someday they can fix this until then i guess sufferjeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I am praying for you. T. aka Pegasus -- venting sorry just here it is another night, 2:15 am and again pain level is so severe i am unable to sleep. has swollen again and body feels like on fire as my nerve ending are going nuts. maybe someday they can fix this until then i guess sufferjeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 YOU MAY HATE YOUR LIFE BUT I AM GLAD YOU ARE HERE! atleast someone else understand what i am going through with my MS i also am bi-polar and have MS and ADHD and having drug reactions to medications. and get depressed. so WE NEED TO STICK TOGETHER. SO KEEP VENTING and BE LIKE THE ENGERGIZE BUNNY no matter how annoying he is he keeps on going that is how we have to be. later k Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 YOU BE CAREFUL;; NOT GOOD TO MESS WITH YOUR GLOCOSE LEVELS HEALTHY ((HUGS))) DORT From: LMay <mark9_41cupofwater@...>Subject: VENTING Date: Thursday, March 26, 2009, 9:31 PM twisHi to All the doc put me on a new med for HBP and parkinsions med works great but it stomps on my blood sugars my gulcose levels are all over the place and a few thru the roof. my eye sight is nasty and i don't want any thing to drink I am treed if things get any worse i will be one of them running doing twit twit i sleep more than i ever have and i have to stay awake to get food saturday to pass out to others WHINE WHINE POOR ME now time to get off of my pitty pot and face life head on may Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 , ***HUGS*** Hang in there, hun. I know the days are longer than others sometimes. But you sound like you have a good grasp on what you need and want from life for you and your son. Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 , ***HUGS*** Hang in there, hun. I know the days are longer than others sometimes. But you sound like you have a good grasp on what you need and want from life for you and your son. Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 In many ways I think we are all alone. The thing that unites me to others is love. We all have our strengths and our weaknesses; so because of our love we tolerate or overlook others weaknesses and focus on and appreciate their strengths. Love enables me to look outside of myself and care for others; I'm not always good at that, but when I do I feel connected. You express yourself really well. Love and blessings, Pat K Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 In many ways I think we are all alone. The thing that unites me to others is love. We all have our strengths and our weaknesses; so because of our love we tolerate or overlook others weaknesses and focus on and appreciate their strengths. Love enables me to look outside of myself and care for others; I'm not always good at that, but when I do I feel connected. You express yourself really well. Love and blessings, Pat K Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 thank you for putting your feelings into words. My husband has asperger's and I am always asking why he does this or that and blaming it on his issue but really that isn't fair I know he is just him no matter what else is going on. I need to be more kind when he has what we call a flare up emotionally.From: Vivace <rachel_vivace@...>Subject: Venting"autism" <autism >Date: Sunday, November 1, 2009, 1:48 AM Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 thank you for putting your feelings into words. My husband has asperger's and I am always asking why he does this or that and blaming it on his issue but really that isn't fair I know he is just him no matter what else is going on. I need to be more kind when he has what we call a flare up emotionally.From: Vivace <rachel_vivace@...>Subject: Venting"autism" <autism >Date: Sunday, November 1, 2009, 1:48 AM Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 God love you sweet lady...vent away -- I'm sooo sorry you are going through this, and have your whole life.....while I don't have Aspergers, I know the pain of watching a mom struggle with Bi-polar...we all have something...was talking to a neighbor the other day who lost her daughter 6 yrs ago....she was 28. Have a friend on group who lost her 13 month old daughter....Have friends who struggle with depression and or cancer....it's a hard world we live in and it's getting harder......I was feeling yucky the other day, when my neighbor left I realized that even though I suffer and we all do....Life is just that way ---- God is good, and HE can make me whole one day at a time. I'm proud of you for talking, for venting...it's a good thing.... Vent away my dear --- try to find something today, just a tiny thing to be grateful for and praise God for it....I will praise him with you.... Blessings, e From: Vivace <rachel_vivace@...>autism <autism >Sent: Sun, November 1, 2009 1:48:06 AMSubject: Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 God love you sweet lady...vent away -- I'm sooo sorry you are going through this, and have your whole life.....while I don't have Aspergers, I know the pain of watching a mom struggle with Bi-polar...we all have something...was talking to a neighbor the other day who lost her daughter 6 yrs ago....she was 28. Have a friend on group who lost her 13 month old daughter....Have friends who struggle with depression and or cancer....it's a hard world we live in and it's getting harder......I was feeling yucky the other day, when my neighbor left I realized that even though I suffer and we all do....Life is just that way ---- God is good, and HE can make me whole one day at a time. I'm proud of you for talking, for venting...it's a good thing.... Vent away my dear --- try to find something today, just a tiny thing to be grateful for and praise God for it....I will praise him with you.... Blessings, e From: Vivace <rachel_vivace@...>autism <autism >Sent: Sun, November 1, 2009 1:48:06 AMSubject: Venting Why do I have to be alone inside myself all the time, even in a crowd? I like being alone, but it hurts too much sometimes too. Sometimes it is almost impossible to bear. I sometimes wish this world would fade away. I can't stand who I am anymore. I don't want to be me anymore; it's too hard--the sensory overload, the emptiness, all the people looking at me. Why do I, as high functioning, have to be mentally dissected all the time, as if I know the answers any more than anybody else? I am just one person trying to get by in this crazy world. I am not depressed or suicidal; this is just the way life is, and has been, for forever it seems, at least for me. With ptsd and bipolar added into the mix, my world is pretty topsy turvy. I wish I was truly accepted and not merely tolerated; god, I hate the word tolerance--it basically means that people put up with me because they feel they have to, not because they want to. I just don't seem to fit in anywhere; I'm a square peg in a round hole, and I have no tools to even out the score. Thanks for letting me vent. , 34yo woman with Asperger's Syndrome, Mother to , 14yo with autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 You have made a great choice and all will be well. You will be so healthy you will be glad you said yes.. Jo From: shrlols@...Date: Wed, 11 Nov 2009 23:23:38 -0500Subject: venting hi everyone, after three years of following all the great posts i am talking with and submitting paperwork for the sleeve hopefully mid december. i'm happy with my decision but keep having spells of high anxiety, OMG what am i getting myself into. my husband thinks i'm nuts, but is willing to accompany me to mexicalli. haven't shared with friends or family, can't deal with the negative feedback. i think i'm making a well informed decision. Shirley O Find the right PC with Windows 7 and Windows Live. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 U are doing the right thing I had my sleeve four wks ago in mexicali and I love it Sent via BlackBerry from T-MobileFrom: shrlols@...Date: Wed, 11 Nov 2009 23:23:38 -0500< >Subject: venting hi everyone, after three years of following all the great posts i am talking with and submitting paperworkfor the sleeve hopefully mid december. i'm happy with my decision but keep having spells of high anxiety,OMG what am i getting myself into. my husband thinks i'm nuts, but is willing to accompany me to mexicalli.haven't shared with friends or family, can't deal with the negative feedback.i think i'm making a well informed decision.Shirley O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 Yeah Shirley--now you are on your way. Just keep checking in with us. We are hear to help you every step of the way. Hugs, Suzanne In a message dated 11/12/2009 2:04:06 P.M. Pacific Standard Time, shrlols@... writes: Just heard from , I've been approved and have a confirmed date, Dec 12. I'm so excited and scared. Thank you everyone for your words of encouragement. Shirley O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 , Your doctors behavior is disgusting. I hope the second opinion turns out much better. I wish I had some great words of advice but unfortunately the most I can say is I have been there and it sucks; being 15 with JIA is not fun. I hope this next doctor can find a way to make your pain better. You are in my thoughts. With Love, (MCTD, 24) From: <kiml1994@...> Subject: Venting Date: Thursday, November 12, 2009, 7:57 PM  I am just coming here to vent. I went with my mom to see my rhuemy yesterday. As we walked into the room, she was standing at the counter and gave me and my mom this dirty look. They did all the normal stuff. Then she came in and yelled at me about not getting my blood work done. Well I'm 15 and have no way to drive myself to go get it done and my mom couldn't find the time so I got yelled at by her. She told me that if I did that again (this was NOT my fault) that the relationship would be terminated. She then went on to yell at me about my wrist braces- I wore ones with metal supports until about July of this year and then switched into ones that were just fabric and no supports because I was in physical therapy. My rheumy always yells at me about them every time I visit her. I know that they need to come off- but I know from experience that when I take them off, my pain intensifies. So continuing on, she yelled at me for my wrist braces and said they needed to go. I told her that they were not coming off until she did something about my pain. She then went on and started her normal routine. I was upset, yelled at her and she yelled back and told me that nothing was making sense to her. My blood work doesn't show inflammation but yet I get major swelling in my joints and am an pain of various degrees every moment that I live. She told me that if I was in pain, I shouldn't be doing activities and I shouldn't be playing the trumpet- my passion among other things. She got tired of me, said " fine, keep a diary " and explained how to do so, putting in to make sure I write down the activities I do and said that it was probably more of activities and less of the JRA then said that I'll see her in 3 weeks and left the room. I don't understand this! She's supposed to be my doctor, supposed to help me get out of pain and she's totally ignoring me. And being 15, I'm just tired of living in pain all day and not being able to do the things I want to. I can't even write in school because of my JRA now. How is everything ok when I can't live a normal life? She just frustrates me! Good news is though that there is 1 other rheumy in town- adult rheumy like mine and because of what happened, my parents have been willing to get a 2nd opinion to see what he says. Hopefully everything works out. Thanks for letting me vent. JRA, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 PLEASE go to the other rheumy. Your rheumy is NOT listening to you and is not your advocate. To tell a 15 year old that they just have pain because of activities? Having pain is NOT NORMAL! I hope that your parents do take you to the second opinion. You are so right to be frustrated and I hope that you get more humane treatment...take care. , adult onset RA, mom to Rob, 20, JAS Venting > I am just coming here to vent. I went with my mom to see my > rhuemy yesterday. As we walked into the room, she was standing > at the counter and gave me and my mom this dirty look. They did > all the normal stuff. Then she came in and yelled at me about > not getting my blood work done. Well I'm 15 and have no way to > drive myself to go get it done and my mom couldn't find the time > so I got yelled at by her. She told me that if I did that again > (this was NOT my fault) that the relationship would be > terminated. She then went on to yell at me about my wrist braces- > I wore ones with metal supports until about July of this year > and then switched into ones that were just fabric and no > supports because I was in physical therapy. My rheumy always > yells at me about them every time I visit her. I know that they > need to come off- but I know from experience that when I take > them off, my pain intensifies. So continuing on, she yelled at > me for my wrist braces and said they needed to go. I told her > that they were not coming off until she did something about my > pain. She then went on and started her normal routine. I was > upset, yelled at her and she yelled back and told me that > nothing was making sense to her. My blood work doesn't show > inflammation but yet I get major swelling in my joints and am an > pain of various degrees every moment that I live. She told me > that if I was in pain, I shouldn't be doing activities and I > shouldn't be playing the trumpet- my passion among other things. > She got tired of me, said " fine, keep a diary " and explained how > to do so, putting in to make sure I write down the activities I > do and said that it was probably more of activities and less of > the JRA then said that I'll see her in 3 weeks and left the > room. I don't understand this! She's supposed to be my doctor, > supposed to help me get out of pain and she's totally ignoring > me. > And being 15, I'm just tired of living in pain all day and not > being able to do the things I want to. I can't even write in > school because of my JRA now. How is everything ok when I can't > live a normal life? She just frustrates me! > > Good news is though that there is 1 other rheumy in town- adult > rheumy like mine and because of what happened, my parents have > been willing to get a 2nd opinion to see what he says. Hopefully > everything works out. > > Thanks for letting me vent. > > > > JRA, poly > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 , I pray that you will be able to get into the second doctor and have a much better relationship with him. There are wonderful doctors out there and you deserve to find one that will listen to you and work with you. Let us know when your appointment with the new doctor is so we can pray for you and the doctor to work well together. Veri & Jaye 15 poly Venting I am just coming here to vent. I went with my mom to see my rhuemy yesterday. As we walked into the room, she was standing at the counter and gave me and my mom this dirty look. They did all the normal stuff. Then she came in and yelled at me about not getting my blood work done. Well I'm 15 and have no way to drive myself to go get it done and my mom couldn't find the time so I got yelled at by her. She told me that if I did that again (this was NOT my fault) that the relationship would be terminated. She then went on to yell at me about my wrist braces- I wore ones with metal supports until about July of this year and then switched into ones that were just fabric and no supports because I was in physical therapy. My rheumy always yells at me about them every time I visit her. I know that they need to come off- but I know from experience that when I take them off, my pain intensifies. So continuing on, she yelled at me for my wrist braces and said they needed to go. I told her that they were not coming off until she did something about my pain. She then went on and started her normal routine. I was upset, yelled at her and she yelled back and told me that nothing was making sense to her. My blood work doesn't show inflammation but yet I get major swelling in my joints and am an pain of various degrees every moment that I live. She told me that if I was in pain, I shouldn't be doing activities and I shouldn't be playing the trumpet- my passion among other things. She got tired of me, said " fine, keep a diary " and explained how to do so, putting in to make sure I write down the activities I do and said that it was probably more of activities and less of the JRA then said that I'll see her in 3 weeks and left the room. I don't understand this! She's supposed to be my doctor, supposed to help me get out of pain and she's totally ignoring me. And being 15, I'm just tired of living in pain all day and not being able to do the things I want to. I can't even write in school because of my JRA now. How is everything ok when I can't live a normal life? She just frustrates me! Good news is though that there is 1 other rheumy in town- adult rheumy like mine and because of what happened, my parents have been willing to get a 2nd opinion to see what he says. Hopefully everything works out. Thanks for letting me vent. JRA, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 , That is so sad. You are having to deal with meaness and a bad disease. Hopefully, you'll find a really nice understanding doctor. Audra > > I am just coming here to vent. I went with my mom to see my rhuemy yesterday. As we walked into the room, she was standing at the counter and gave me and my mom this dirty look. They did all the > > > JRA, poly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 , seek out the second doc asap. Its bad enough having to deal with the crap JA brings but to deal with a doc who lacks empathy is not helpful > Move on and keep your chin up...Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 It is important to remember and to remind the doctor that they are essentially an employee. You hire them for their expertise, just the same as you would hire a mechanic or handyman. There is absolutely no reason to accept being treated with anything less then total respect from your employee (doctor). I am sorry you have to learn this so young. I wish you much luck with your new doctor. :-) Carleen mom of Sierra 11 polyarticular _____ From: [mailto: ] On Behalf Of ajaoky@... Sent: Saturday, November 14, 2009 9:01 AM Subject: Re: Venting , seek out the second doc asap. Its bad enough having to deal with the crap JA brings but to deal with a doc who lacks empathy is not helpful > Move on and keep your chin up...Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 , As you have heard from others---it is time for a new doctor. As for playing the trumpet---keep doing it--don't quit. It provides great therapy for you. Ask for an evaluation from an occupational therapist to help you with your hands. You do need to get rid of the braces---the joints may feel better braced but it is not helping you. For a bit you're going to have to push through the pain. Ask to referred to an OT who can teach you exercises to help--and exercise the hand--in warm water, in the paraffin wax bath things, etc. You shouldn't be treated like this by a doctor and if this is how the doctor chooses to treat you--then you need to go to another. If your mom and dad can't get you to the lab etc see if a friend, family member, church member or whatever can do it. But even if there are problems the doctor should not ever treat you like that. Keep playing that instrument---sadly part of having arthritis or other health conditions is learning to do things even if it hurts---ideally you'll get to a place where that won't be the issue but for now don't let it stop you from the things you love. Best of luck to you----and come here whenever you need to. e, mom to " joe " 23 poly+ From: <kiml1994@...> Subject: Venting Date: Thursday, November 12, 2009, 7:57 PM  I am just coming here to vent. I went with my mom to see my rhuemy yesterday. As we walked into the room, she was standing at the counter and gave me and my mom this dirty look. They did all the normal stuff. Then she came in and yelled at me about not getting my blood work done. Well I'm 15 and have no way to drive myself to go get it done and my mom couldn't find the time so I got yelled at by her. She told me that if I did that again (this was NOT my fault) that the relationship would be terminated. She then went on to yell at me about my wrist braces- I wore ones with metal supports until about July of this year and then switched into ones that were just fabric and no supports because I was in physical therapy. My rheumy always yells at me about them every time I visit her. I know that they need to come off- but I know from experience that when I take them off, my pain intensifies. So continuing on, she yelled at me for my wrist braces and said they needed to go. I told her that they were not coming off until she did something about my pain. She then went on and started her normal routine. I was upset, yelled at her and she yelled back and told me that nothing was making sense to her. My blood work doesn't show inflammation but yet I get major swelling in my joints and am an pain of various degrees every moment that I live. She told me that if I was in pain, I shouldn't be doing activities and I shouldn't be playing the trumpet- my passion among other things. She got tired of me, said " fine, keep a diary " and explained how to do so, putting in to make sure I write down the activities I do and said that it was probably more of activities and less of the JRA then said that I'll see her in 3 weeks and left the room. I don't understand this! She's supposed to be my doctor, supposed to help me get out of pain and she's totally ignoring me. And being 15, I'm just tired of living in pain all day and not being able to do the things I want to. I can't even write in school because of my JRA now. How is everything ok when I can't live a normal life? She just frustrates me! Good news is though that there is 1 other rheumy in town- adult rheumy like mine and because of what happened, my parents have been willing to get a 2nd opinion to see what he says. Hopefully everything works out. Thanks for letting me vent. JRA, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Hi all, i really am considering quiting treatment it seems like everything is against me i am on the street tomorrow i just cant heal with the constant stress its getting too much i was doing so well then the place that was gonna take me gave my space to someone else & they closed the office early & i didnt get my meds for tonig Blessed be marie--------- Sent from AT & T's Wireless network using Mobile Email Quote Link to comment Share on other sites More sharing options...
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