Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 I never blew you off last time... I read thru this, but it all gives diagnosies about bone pain...I can't even get a doctor to listen, test,etc writing me off ...knowing that I may have one of these mroe serious things, just aggravates me more, but then gets me no where. I read this and then set up appointments with all my docs. I have seen one and got labsand ultrasound....now I have to wait to see the other 2 and hope hey finally listen to me...this whole tumor marker eing high and my bone pain worsening and reading this hasme a bit freaked out, but again, I am trying to relax and wait, for there is nothing I can do today...I realize I need to request a bone marrow test, but will probably be lucky to get a bone density test?????? Having no insurance also makes a difference in what they will and won't do for me.. I read your research. I do. And I have researched some on my own..I am just overloaded and now awaiting the next step... Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php I believe and could be very wrong; but, Fibro is not joint pain although that's where it always seems to emanate from. I believe that Fibro affects the tendons and things like that. That's why you feel it in your bones. I do get those spots of pain your Dr. was talking about. But, it's not an every day pain in the same place. It jumps around and then you can have good days and then the days that you don't want to get out of bed. So, your Dr. didn't find it because it wasn't there at that time. Even when I drove 3 hrs down to a larger city, I figured for sure the Fibro would be screaming from the drive. Nope - no pain except when he had a hold on my ankle and pushing my leg up, where his fingers were then screamed. Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (16) Recent Activity: New Members 8 New Links 39 Visit Your Group Quote Link to comment Share on other sites More sharing options...
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