Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 the bone pain is the issue and is why I would consider myslef disabled and it started durign tretments, so I will apply for SSDI so AFP tests for cancers of the liver once you have cihrosis and/or cancer around the falopian tubes.....well, I have both tubes and do not belive I have cihrosis of the liver...guess I will just have to leave this one to the back burner til the 10th thank you all Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used... Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (18) Recent Activity: New Members 8 New Links 39 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 As I've posted before, there is absolutely no need for any of us to have pain from a liver biopsy!!! It's only because the Dr. doing it is in too much of a hurry and won't take the time to freeze us properly. That makes me so angry!! Now that I know that it doesn't have to hurt, I will never allow them to do another unless I'm completely frozen to the liver or they can damn well put me to sleep. To me, it's just another way that we are being marginalized and I say - let's be loud about the abuse!!!Gloria I was thinking about doing treatment again, with this new med, but now I am not sure...I am worse now than I was before I started treatment last time??????? I HATE liver biopsies...I had a vagal response and had to have them hurry so I could puke..that ripping that you hear as they go layer by layer is nauseating and painful....I know I do need one, but I will never request one, or deny one either....just the thought makes me cringe Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php now my pain seems a bit different...mine is not topical but inner bone from the butt down and from the elbows down...my hands and feet are always in pain and the more you use tem the more they curl up and don't want to work and then it feels like the muscles and boes are also trying to curl up and almost fear they will break if used... Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (18) Recent Activity: New Members 8 New Links 39 Visit Your Group Quote Link to comment Share on other sites More sharing options...
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