Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Hi Tonni Im going to piggyback here, and make some suggestions too. 1 - Take it easy. If you get a good day, act like its a bad day, and dont push yourself so hard. Its real easy to overdo it and end up suffering. 2 - Here are some links I want you to click on, and read. - foods that help pain http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=foods%20that%20help%20pain & type= - suppliments that help pain http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=suppliments%20that%20help%20pain & type= - natural pain management http://search./search?ei=utf-8 & fr=slv8-tyc7 & p=natural%20pain%20management & type= This info may not solve all your pain issues, but I will bet that they might help you some. - One thing I know for sure - 'sugar products cause pain flair-ups'. [Have you ever gotten a headache from too much sugar? Well sugar can make our bodies hurt too.] - And proper nutrition is very important to our feeling good. For example - low potassium gives me muscle cramps - solution - bananas. The Lyrica and Toradol didnt work for me at all. Expensive candy. I had to get Oxycontin [time release]. It doesnt 'stone' me, and it really does help most days. Talk to your doctor about it. love don in ks almost 2 full weeks dang near pain free with Lyrica and tordol with acetaminophine, and tonight, boom, it is all back...anyone else this really stinks, i could do almost everything, and now back to the reality that I can do darn near nothing...docs say it is nothing they ever learned in med school, I fit in no category, yet numerous people here know exactly what I am talking about...butt pain, complete bone pain, hands and feet that want to wrinkle, even muscles thruought body feeling like wrinkling up and bones gonna just shrivel...muscles don't work, fatigue from just doing one simple little thing...this is mentally hard..I was facing the fact of what my life had become, but to get it back, get that taste, this is so not fair I am disabled, but can't prove it...I live in constant pain, but no ne knows why, yet numerous hep c treated people have my same pains I have a special needs son that depends on my arms and legs to be his arms and legs...I need my life back....what now Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php Quote Link to comment Share on other sites More sharing options...
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