Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 TrudyI absolutely get what you are talking about!!! Even when I'm trying to give my opinion, I forget what it is... Not funny! It's gotten so that I don't talk very often anymore when I'm out in town. Now, I really surprised that more folks haven't noticed that because I'm not known for keeping my mouth shut.The worst thing that was taken from me, is reading. No matter what, I can not maintain or focus on a book. A friend gave me a copy of Dr. Wayne Dyer's one book that helped him get through the cancer. It was painful to get to the end of Chapter One and even then I couldn't remember what I had read. But, these chapters are not very big. Anyway, my son was supposed to be trying to get me a copy on tape.Hang in there!! Be grateful that you have so many Drs that are paying attention and make sure that ONE of them gets a copy of EVERYTHING. Here, that is my GP and some labs etc. do not advise to send a copy to her, so I make sure they are doing that.Now, I find it incredibly inconceivable to be having a cook out this time of the year!! But, why don't you find a hat that looks a little silly on you (something out of the Ozarks) and make sure that you keep your wonderful sense of humour. It will solve your worry about the loss of hair and folks will be looking at the hat, not at your mouth.Hey, I've had an overbite and crooked front teeth for most of my life. About 25 yrs ago, my now ex hit me with something and one of my front teeth fell out. I was given what they called a flipper for several years. When I came here and on the husband's dental, I went to have this problem dealt with. So, I guess you call it a bridge was made. It absolutely astounded me though that I didn't have any new cavities!! He wanted to fix one in the front bottom because he thought it should be white.Well, thank heavens it didn't cost much to get that done because of a dental plan. Because, for the month following the end of my first tx, every filling that I'd ever had fell out! Along with them went some of the teeth they were holding together. Anyway, I've decided that when the husband's welding rig sells, I'm going straight off to a surgical dentist and a denturist!!! Finally, at the rip old age of 60, I'm going to finally have teeth that I can smile with.Gloria I don't know,I'm feeling confused and overwhelmed. I don't think I need to see a Dr. Any Dr. Let me see, last I heard this Tues with Nuero and 2 weeks from today with Gastro. WTHeck, why am I seeing Gastro now? I quess I will have to call his Recpt/ Biatch and have them fax over lab orders cause the orders I have now wouldn't get to him before appt; especially VL.I'm just really tired & really tired of Docs. 1-2 a week for the last 7 months. The stutter is better. But this is the only form of communication I am comfortable with. I will start a senance , two words max, and I can't think of the next few words, and by the time I am bothered by it , hell, I don't know what the subject is. So very very frustrating. I just wish I would remember to keep my mouth shut. And now I have a BBQ to go to Sat. Very close friend ( and Hubbys boss). I know he would be cool with it, but I haven't meetmost of them( other foremen). Besides how I talk( and you know when I'm nervous it's worse), but you remember those two teeth that were giving me fits? Well they fell outduring tx. I can't do anything about it right now. Just a snaggley- toothed, hair-loosing Village Idiot. And we have the end of contruction cookout at our place the next Sat. I know Hubby will help tremendously. But again this will be his crews first time to meet me. I know, of all the problems in the world, I need to stop whining. But it's overwhelming in " my world" pity party , over, finito, done. Hey maybe I will just talk Italian! They won't have clue right or wrong! LoL " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 On Feb 17, 2011, at 3:31 PM, Theresa Gottlieb <theresagottlieb@...> wrote: The short term memory issues are par for the course.. it gets worse before it gets better but the falling and the drunk walk.... I don't have an explanation for those. My memory issues were pretty bad for about a year after treatment... really bad with word recognition and retrieval and forgetting names of people I've known all my life.. that kind of stuff. And yeah, the conversation you had with me 15 minutes before was lost. That eventually started to come back slowly. It's much better than it was. The walking and the falling sounds like it fits into the Neuro's line of fire... what's he say?Hugs,TeriOn Thu, Feb 17, 2011 at 3:24 PM, trudykinsey@... <trudykinsey@...> wrote: Or How lucky am I . Oncologist nurse called again today. Apparently, Oncol Dr wants me to see Gastro who gave me tx, Nuero Dr, and my internist almost immediately. I explained that Gastro only sees Hep patients two Fridays a month and I'm scheduled for the tenth. And I saw Internist two weeks ago. She said Not good enough. She would get everybody on board , hopefully all three Docs in Enid on the same day. Phew sounds exhausting with the 4 hr drive, round trip. Internist is here locally; she said may have to be a conference call. Personally I think Nuero would be enough. I explained that I was trying to let tx meds get out of my system more. Didn't want everybody on a wild tx-goose hunt. They are concerned with all my falls & " drunk walk " and my worsening short term memory. I really can't remember stuff back much more than 6-8 hrs. And laungauge skills( word regocnition) worse. Ha! They would freakout if they saw the Ssdi function test I filled out yesterday( yes, again!). Several times I wrote the wrong( stupidly wrong) words. I would re-read and try to fix but by that time I couldn't remember the correct word. Like, I was tryng to write back pain ( which I had already written correctly earlier) but wrote "flat park". Hey , it keeps my world interesting ! Hope they can read with all the crossed out words. Mailed it to my attny who wants to make copies. Maybe she will type also to send with my chicken scratch. Anyway it has been nice. This is the first week without a Dr visit. Quess they are about to heap it on me! " A well-behaved woman never made history " Mae West http://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
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