Re: Clinical Encounter Report

[Guest guest]

Cynde,Sounds like you put your best foot forward and let the doctors know that you were in the drivers seat with your health.. good job.  I agree with you totally on the Medical Marijuana thing.  Good Lord a doc is prescribing it for severe pain and that could keep you from getting a transplant if needed.  Unfortunately this has been happening all around the Country lately.  It does sound like you found a great source of Liver Specialists and truly if the personality fit is good you should be in great hands.  I am a firm believer in Liver Specialist over a Gastro any day but again, that is JUST my opinion and my experience.  

Glad you found a clinic to work with!Hugs,TeriOn Sun, Feb 20, 2011 at 9:05 AM, Cynde Moya <cyndemoya@...> wrote:

 

Hi

 

Well I went to that new Doctor and asked him a bunch of questions. Like, Do you know the Standard of Care for HepC patients? That woke him up a bit. I got referrals for ultrasound, my last one was a year ago. And there’s a new hepatology clinic in town; so I got a referral to that. I’m in Seattle, BTW.

 

The other hepatologist, Maggie Shuhart, does a clinic every Thursday morning at the charity hospital, Harbor View. Now there is another one, at Swedish Hospital, in conjunction with their new Transplant Clinic. Since I’ve already talked to Shuhart and been to the Harbor View clinic, I decided to go see what this new hepatology clinic is all about.

 

There was recently a case here in Seattle where the hospital refused to give a liver transplant to a Medical Marijuana patient, because they consider Medical Marijuana users “drug addicts.” So I said to this new General Practitioner, well, that sounds nice over at Swedish, but they won’t give me a transplant because I use Medical Marijuana. But he told me that the new Swedish hepatologist had spoken to their clinic, and said that they are no longer absolutely refusing transplants to MM users.

 

Not that I want a transplant; it’s about the most revolting, disgusting thing I could imagine. But the body has this way of wanting to live, and who knows what I would decide when the time comes.

 

I want to thank, I think it was Teri, who recommended I go into these doctor visits with the attitude that I have my sick baby, my liver, and I have to take charge and press for answers. It worked for me, and I felt more grown up than I have . . . well, ever.

 

Cynde

 

 

 

 

 

 

[Guest guest]

CyndeJust too excellent!!Is that not the dumbist thing any of us could imagine?? The patient prefers to use medical mj instead of addictive narcotics, plus it's legal and then this little demi gods give that kind of news to a patient that is on the verge of life and death??? Away too much!!By the way, I live off the coast of Washington State. On the island that the border has to take all kinds of bends and kinks to get around the little islands; but, left Vancouver Island for the Canadians. Good think too!! is the capital of the province.I definitely feel like you do about a transplant!! My reason though, is that I've lived a pretty good life, good and bad; but, never boring. I could not conceive of taking that liver

when there are people younger than I am that deserve to live longer. Thank heavens I will likely never have to think about it anyway. Fortunately, I fought off the dragon and won! So, now, it's just fighting any cancer that comes up, as it comes up.Gloria

Hi

Well I went to that new Doctor and asked him a bunch of questions. Like, Do you know the Standard of Care for HepC patients? That woke him up a bit. I got referrals for ultrasound, my last one was a year ago. And there’s a new hepatology clinic in town; so I got a referral to that. I’m in Seattle, BTW.

The other hepatologist, Maggie Shuhart, does a clinic every Thursday morning at the charity hospital, Harbor View. Now there is another one, at Swedish Hospital, in conjunction with their new Transplant Clinic. Since I’ve already talked to Shuhart and been to the Harbor View clinic, I decided to go see what this new hepatology clinic is all about.

There was recently a case here in Seattle where the hospital refused to give a liver transplant to a Medical Marijuana patient, because they consider Medical Marijuana users “drug addicts.†So I said to this new General Practitioner, well, that sounds nice over at Swedish, but they won’t give me a transplant because I use Medical Marijuana. But he told me that the new Swedish hepatologist had spoken to their clinic, and said that they are no longer absolutely refusing transplants to MM users.

Not that I want a transplant; it’s about the most revolting, disgusting thing I could imagine. But the body has this way of wanting to live, and who knows what I would decide when the time comes.

I want to thank, I think it was Teri, who recommended I go into these doctor visits with the attitude that I have my sick baby, my liver, and I have to take charge and press for answers. It worked for me, and I felt more grown up than I have . . . well, ever.

Cynde