Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 <<Cheryl! It is GOOD to have you back!! HUGS aW>> It's GOOD to be back. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 In a message dated 6/21/01 4:34:06 AM Pacific Daylight Time, okieleah@... writes: << with you keeping in preschool, it might give her growing time. the wandering/wetnoodle/dropnflop might decrease... just know you have support..... take care , leah >> Cheryl, How did you manage to keep her in preschool? My district says NO WAY- NO HOW. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Hi Leah, You make me laugh girl. The wetnoodle/dropnflop/wandering thing is sooooo true. A decrease would be excellent. Mind you.....it is nothing like the mushing and throwing poop thing that is currently happening. That's truely gotta be the first thing to go. Amazing how she can pick it up, play with it, toss it around, yet gagg and almost puke over the smell of it. I cannot imagine an IEP that took 47 hours to put together. You must be thouroughly exhausted from it all. How many pages long is it??? It is sad to lose team members that have been there awhile, isn't it. Especially when they are sooooo good with our kids. I hope all goes well for Ashton's entry next fall. Sounds like alot of new people involved. That is always so hard to transition through. man, we will really need to talk to and support each other next fall, while all of these transitions are happening. Take care, Cheryl > > cheryl, > i can understand the tears and the tide... it took over 47 hours to get > ashton's iep written and then it took me another two weeks of going back and > forth wanting things more clarified. i think your game plan sounds great to > me. i kept ashton in preschool an extra year and i am so very glad i did. > she likes that type of environment and the ot, st, pt and teacher seemed to > really mesh and all be positive team players..... we lost some fo that going > to elementary school. but now i think we have a great slp, but her favorite > ot is leaving for washington state and her aide quit and she will have all > new teachers, the esy staff is new too and then to add in next year... major > changes, if esy is a flop, i won't hesitate to pull her out... with you > keeping in preschool, it might give her growing time. the > wandering/wetnoodle/dropnflop might decrease... just know you have > support..... take care , leah > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Cheryl, I'll keep all my body parts crossed for you too! LOL Well, as many as this old body can cross! LOL I suspect Cheryl that it's not only the area you live in that makes a difference. It's probably more a knowledgeable, hard working parent that gets things done right. My hat's off to you! Gail << Hi Gail, I live in BC if that makes a difference. I recently attended a parent facilitator training workshop through our autism society, and while sitting at the table, hearing other families stories, I learned that other districts in our province were doing this when the team felt it was the best placement. The school is mandated to provide an educational program so that is a concern initially, but if the team can see the possiblities of providing it in a different environment, for the good of the child, doors may open. Ours hasn't been approved yet, but will likely hear today or very soon. Keeping my fingers, toes and eyes crossed very tightly. Cheryl >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Cheryl, I'll keep all my body parts crossed for you too! LOL Well, as many as this old body can cross! LOL I suspect Cheryl that it's not only the area you live in that makes a difference. It's probably more a knowledgeable, hard working parent that gets things done right. My hat's off to you! Gail << Hi Gail, I live in BC if that makes a difference. I recently attended a parent facilitator training workshop through our autism society, and while sitting at the table, hearing other families stories, I learned that other districts in our province were doing this when the team felt it was the best placement. The school is mandated to provide an educational program so that is a concern initially, but if the team can see the possiblities of providing it in a different environment, for the good of the child, doors may open. Ours hasn't been approved yet, but will likely hear today or very soon. Keeping my fingers, toes and eyes crossed very tightly. Cheryl >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Cheryl, i did delete it and ran a virus scan when i finished on the computer last night,nothing came up so i am clear.going to keep a close eye on things though. *hugz* karyn ===== i wish you mud puddles and dandelions __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 These viruses scare the heck out of me, they get tricker each time, guess it's a part of computer life, i'm sure not giving puter up, it's like my left leg, hahaha it's part of me!!!! ahhhhh, Cheryl RE: Cheryl Cheryl, i did delete it and ran a virus scan when i finished on the computer last night,nothing came up so i am clear.going to keep a close eye on things though. *hugz* karyn ===== i wish you mud puddles and dandelions __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 oh i agree totally Cheryl ! i would go crazier without my computer.ok i admit it iam an addict hehehe *hugz* karyn ===== i wish you mud puddles and dandelions __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 In a message dated 1/26/2002 5:53:11 PM Eastern Standard Time, cmagnussen@... writes: > My hip is improving nicely, thanks to all my kids helping out so very > much. I'm glad your hip is improving and the kids can help you out. Charlyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 In a message dated 1/26/2002 5:53:11 PM Eastern Standard Time, cmagnussen@... writes: > My hip is improving nicely, thanks to all my kids helping out so very > much. I'm glad your hip is improving and the kids can help you out. Charlyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 >>but I just wanted to remind you that our bones are heavier that the average persons. Carrying excess weight put stress on our bones and caused them to become denser, and therefore heavier. I wish I had saved the report that one of the post-ops posted about the study that was done on the weight of bones that had been subjected to the stress. Thist explains why you don't LOOK like you weigh 180! Are you and Rudie coming to the Valentines Party?? Hugs, Pat Lyle>>> Pat you sweetie, I wish you had that article. I'd be very interested in hearing about bone density. I guess that could explain why I am heavier than I look. Or, maybe I just " wear it well " , hahaha... I doubt Rudie and I will make it to the Valentine's Party. We are scheduled to go out of town that weekend with another couple, furniture shopping. Not sure where we will be but somewhere around Greensboro. It would be difficult to " cut out " to attend a party. Besides Rudie is still recovering from the Christmas Party, haha... He's just not into parties and larger groups of people. He likes small groups. Thank God he could talk to you at the Christmas party. I didn't have to worry about him being restless!!! I'm considering plastic surgery and exploring all options and checking out what people have to say about their doctors. IF anyone wants to share their experiences, please email me. I'd love to hear from you. Take care, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 You need to contact Breggin, MD -- his website is www.breggin.com. YOu will find his telephone number, etc listed there. He knows all about involuntary intoxication. The problem is that Steve's doctor is a complete dunderhead. He should never have been taken off the Effexor like that, and combining the cold meds, etc. probably catapulted him into serotonin syndrome. I can't believe something like this has happened (what the hell am I saying? I was only seconds from becoming a headline myself when I tried to get off Paxil!!) The other person I would contact is a lawyer named Don Farber. You can get his number and e-mail address off the Breggin site -- look under Paxil Lawsuit. What state are you in? Vickery & Waldner are in Texas and they handle cases like this all the time. This is going ot sound stupid, but HOW did Steve kill this person? You see, there is a pattern to the methods people use to commit these crimes. Wishing you the best of luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 You need to contact Breggin, MD -- his website is www.breggin.com. YOu will find his telephone number, etc listed there. He knows all about involuntary intoxication. The problem is that Steve's doctor is a complete dunderhead. He should never have been taken off the Effexor like that, and combining the cold meds, etc. probably catapulted him into serotonin syndrome. I can't believe something like this has happened (what the hell am I saying? I was only seconds from becoming a headline myself when I tried to get off Paxil!!) The other person I would contact is a lawyer named Don Farber. You can get his number and e-mail address off the Breggin site -- look under Paxil Lawsuit. What state are you in? Vickery & Waldner are in Texas and they handle cases like this all the time. This is going ot sound stupid, but HOW did Steve kill this person? You see, there is a pattern to the methods people use to commit these crimes. Wishing you the best of luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 This is absolutely amazing. I'll bet there are very few docctors around who even know about this study you just posted. And thank god Cheryl even mentioned the 1/4 Cherokee which got this ball rolling. I hope this information is useful, and even if it isn't, it just shows how tenacious and thorough and what good researchers we all are. Brava, Dawn!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 This is absolutely amazing. I'll bet there are very few docctors around who even know about this study you just posted. And thank god Cheryl even mentioned the 1/4 Cherokee which got this ball rolling. I hope this information is useful, and even if it isn't, it just shows how tenacious and thorough and what good researchers we all are. Brava, Dawn!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 This is absolutely amazing. I'll bet there are very few docctors around who even know about this study you just posted. And thank god Cheryl even mentioned the 1/4 Cherokee which got this ball rolling. I hope this information is useful, and even if it isn't, it just shows how tenacious and thorough and what good researchers we all are. Brava, Dawn!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 This is absolutely amazing. I'll bet there are very few docctors around who even know about this study you just posted. And thank god Cheryl even mentioned the 1/4 Cherokee which got this ball rolling. I hope this information is useful, and even if it isn't, it just shows how tenacious and thorough and what good researchers we all are. Brava, Dawn!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 HI Dawn. If you don't mind, please forward it to him. You are very well spoken, and I'm not. I will call tomorrow and get Tricia's e-mail address so we can start e-mailing them directly to her. I pray Mr. IS reading this stuff, as it is Steve's only hope for freedom, and my kids' only way to get TRUE justice and closure. We are STILL having a hard time with my ex's family. They continue to remove the flowers my daughter puts on her dad's grave. Today, when we went out to put them back (again), we found a very small vase with my daughter's flowers in it, along with a note that said " your daddy would like your flowers BETTER, if they are SEPERATED from OURS " !!! When will these people grow up? She has been through enough. Love.....Cheryl >From: " DAWN RIDER " <israelswarrior@...> >Reply-SSRI medications >SSRI medications >Subject: Cheryl >Date: Wed, 20 Mar 2002 15:12:56 -0700 > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Cheryl, I would say send him everything and anything that will shed light on the dangers of these drugs. If he doesn't want to use it, he can disregard it. Did you get an E-mail address for Trisha? Do you want me to forward this on to Mr. , or do you want to do it yourself? Let me know... The Avenging Angel Please sign the petitions at: http://www.petitiononline.com/lilpro http://www.petitiononline.com/oky71.html http://www.petitiononline.com/effexor ----Original Message Follows---- From: "Cheryl Graves" Reply-SSRI medications SSRI medications Subject: Re: Prozac (SSRIs), Zolfolt, Luzox, and Similiar Drugs, Vital Information Date: Wed, 20 Mar 2002 16:25:03 -0500 Send and receive Hotmail on your mobile device: Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Cheryl All I can say is "Oh, my God." I can't even imagine how bad that hurt. I would have passed right out at the sight of it. I'm sitting here wincing just thinking about it. Are you staying out of work for a while? RE: Anti-scar salves/allergic reactions/feedback Shaye,I haven't been keeping up with the list at all lately!! But I just gotstitches over a broken finger, just about tore the end of my finger off atwork with the bone snapping thru the skin, yikes! I just wanted to saythat comfrey heals so well you really don't want to use it on a deep cutwithout some kind of antibiotic added to the salve like tea tree. Theoutside of the cut will heal before the inside and if there is any chanceof infection inside it will get healed over, which isn't good! I also readsomewhere that calendula oil if applied every day AFTER the cut has healed(You have to use the oil at the very least a couple of months - 1 year)will help scars to dissapear. I hope your daughter is feeling better, that must have really smarted!!! Take care,Cheryl> Our Message Board> http://www.voy.com/21568/> > Check out these great Molds!!> http://soapwerks.com/martinworld.htm> > Member Kae's Site... Awesome oil Prices!> http://www.olivetreesoaps.com/> > > > All posts to this list are copyrighted by post author. They may NOT be> forwarded, copied, or used in anyway without the permission of the post> author with the exception of answering posts to this list. Posts are> personal opinions only.> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 In a message dated 8/8/2002 10:02:31 PM Central Daylight Time, writes: << Hi , this sounds a bit like a program they have here for kids in grades 9 to 12. they call it 'work experience' but I think it only runs for a one term out of the whole school year. I like the idea of making it part of the reg daily curriculum for kids who need to focus more on life skills vs academics. I have offered to have some of the kids from the resource room come out to work at our farm this year. I can't wait to have them come out to spend time here. Take care, Cheryl mom to Angel and Allie >> wow, that would be great. would love to go to a farm. We live in Wisconsin so he sees a lot of them but he has this great desire to go into barns. Don't quite understand that one. When I managed a group home the school district used it two days a week to work on cleaning and cooking. They also used a family home for the same purpose. The district now rents and apt. for this purpose. They have also used to for a couple of guys with ds who were working on staying alone overnight before renting their own apt. together. They got to " live " there for short periods of time. Our district also has kids working at a hotel learning to clean hotel rooms. They also do some work at a few retail stores. Unfortunately this isn't followed through much once school is no longer involved. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 In a message dated 8/8/2002 10:02:31 PM Central Daylight Time, writes: << Hi Joan, I like our psychiatrist alot. But he lives in Vancouver and we reside on the Island. This means we connect for short phone calls when something comes up, otherwise he sees her every 3 months. Our local ped is a very good friend of ours and is fab. He phones the psych to consult with when needed, which is great. But, I am not sure how much experience the psych has had in both ds-asd or in dealing with kids who have suffered extreme deprivation and neglect. Mind you, none of us really know yet what that does to a child's brain and what the long term effects shall be. Along with the pdd- nos diagnosis Allie has also been diagnosed with seizure disorder, tic disorder, adhd, and some attachment issues. I think all of these other things really complicate it all when you are using medications. One of the biggest things I have learned from this experience with medications is that I will ask the psych or ped to tell me every side effect we may encounter so that we know when we need to take action promptly. Plus I will be sure that we work out a better plan to monitor the medication. Our ped was fab in connecting with dev peds who specialize in the field of ds-asd when we were working on diagnosing Angel. He did a lot of research for our team and was great in advocating for autism funding for Angel. All in all I think we have a good medical support team. I would love to hear what Dr.Capone thinks is a good alternative to Risperidone. That would put me at ease when I consider meds again. Kind of like having a second opinion. Thanks and take care, cheryl mom to Angel and Allie >> Cheryl, I certainly can empathize on this one. We adopted . He came to us at 8 1/2. Then he had heart surgery two months late. The neglect and abuse issues including attachment issues and I believe PTSD are things that no one seemed to consider. Of course, trying to take all the info and apply it to a kid with ds and all his medical issues was not something anyone has the experience to understand. Add to that the fact that he has many autistic factors (a result of neglect, we don't know). Your Allie sounds a lot like 's brother. The only thing he doesn't have is seizures. He isn't with us but rather a friend of mine is adopting him. We have had a behavioral neuro that has been wonderful about trying new things but I think we have exhausted her vast knowledge and must move on. I'm considering working with an attachment therapist but am concerned that they don't know how to work with a 13 year old with limited speech and understanding. OK< now I " m babbling on. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 -Hi , I am hoping to one day run a group home of some sort here. Think it is a great place for indiv with special needs to live. Very therapudic. Neat that you used to run a group home. It's been my dream for a long time. Take care, Cheryl mom to Angel and Allie -- In @y..., KVanRyzin@a... wrote: > In a message dated 8/8/2002 10:02:31 PM Central Daylight Time, > @y... writes: > > << > Hi , this sounds a bit like a program they have here for kids in > grades 9 to 12. they call it 'work experience' but I think it only > runs for a one term out of the whole school year. I like the idea of > making it part of the reg daily curriculum for kids who need to focus > more on life skills vs academics. I have offered to have some of the > kids from the resource room come out to work at our farm this year. > I can't wait to have them come out to spend time here. > > Take care, > Cheryl > mom to Angel and Allie >> > wow, that would be great. would love to go to a farm. We live in > Wisconsin so he sees a lot of them but he has this great desire to go into > barns. Don't quite understand that one. > When I managed a group home the school district used it two days a week to > work on cleaning and cooking. They also used a family home for the same > purpose. The district now rents and apt. for this purpose. They have also > used to for a couple of guys with ds who were working on staying alone > overnight before renting their own apt. together. They got to " live " there > for short periods of time. > Our district also has kids working at a hotel learning to clean hotel rooms. > They also do some work at a few retail stores. > Unfortunately this isn't followed through much once school is no longer > involved. > > Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Hi , Wow, how did end up waiting that long to be adopted? Did you adopt from the States? It sure does sound like our kids are alot alike. How old is 's brother who is being adopted? It sure is incredible to realize the effects neglect can have on a child. I think the hard part of this is feeling very alone with it within the medical profession. It is so very new to the medical community and there is no way of really knowing what has happened to their brains or what the long term effects may be on their bodies, their brains and their souls. That is part of the reason we decided to adopt a child with DS. We knew there was tons of research out there and lots of supports as well. It has taken us 11 years to finally have someone say she has ASD. Everyone was telling us to wait and see as she may just recover totally from everything, etc. Finally our psychiatrist told us that if she this was solely the result of the neglect she should have lost most of the autistic behavior etc, As this was not the case the psych said that it was obviously a combo of both environmental and biological circumstances. Thus the diagnosis of ASD. Sure glad to finally have someone see the light and help us out. I did hire an attachment therapist for a few sessions. Ended up feeling like she was really just there for me to cry to, for a rate of $70per hour. Found a pyschologist that I could do the same with and he was free so switchws to working with him instead. I took a 4 day workshop on PTSD and attachment disorders a few years ago. That was of the most help to me. I do here there is a very good Attachment therapist in Seattle, Debra Gray. She comes very highly recommended. Thanks for sharing with us. I was awesome to see your post and see that you understand this issue so well. Take care, Cheryl mom to Angel and Allie > Cheryl, > I certainly can empathize on this one. We adopted . He came to us at 8 > 1/2. Then he had heart surgery two months late. The neglect and abuse issues > including attachment issues and I believe PTSD are things that no one seemed > to consider. Of course, trying to take all the info and apply it to a kid > with ds and all his medical issues was not something anyone has the > experience to understand. Add to that the fact that he has many autistic > factors (a result of neglect, we don't know). > Your Allie sounds a lot like 's brother. The only thing he doesn't have > is seizures. He isn't with us but rather a friend of mine is adopting him. > We have had a behavioral neuro that has been wonderful about trying new > things but I think we have exhausted her vast knowledge and must move on. I'm > considering working with an attachment therapist but am concerned that they > don't know how to work with a 13 year old with limited speech and > understanding. > OK< now I " m babbling on. > > Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Hi Margaret, Know what you mean. I had no probs with the DS diagnosis as we adopted Angel as a baby and knew it ahead of time. But, the autism diagnosis was a killer. Cried for a year straight I swear. Very hard to watch these things occur to your child. A healthy dose of denial is good sometimes. Allows you to take your time in dealing with it all. Cheryl mom to Angel and Allie > <<Along with the pdd-nos diagnosis Allie has also been diagnosed with seizure > disorder, tic disorder, adhd, and some attachment issues. I think all of > these > other things really complicate it all when you are using medications. cheryl> > > > > Hi, Everyone.....Cheryl....sorry the Risperdal made the seizures worse. > Gareth has also had the 'Tourette's' diagnosis included in his list of > 'labels.' For yrs., I refused to accept the autism dx. because the > Tourette's label was so much easier for me to accept. I had read up on it > and they said most kids outgrow it by their late teens. I could live with > that. The autism dx. took a while to settle in and accept. > Gail & Charlyne.....glad you guys had fun. Take care, > Everyone. > Margaret > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Hi Marisa, Was Brook also on meds for the seizures while taking the risperdal? This may be the difference as Allie doesn't currently take seizure meds. Everyone was hoping that the partial seizures might just simmer down as the complex seizures did once we stopped the risperdone. No such luck. I am wondering if we can use risperidone again if she is on seizure meds this time? (Joan, what do you think?) We are going to have to start seizure meds anyway and we need something that works as good as risperidone for certain. Allie is also using paxil. She was using it at the same time as the risperdone as they figured she needed to have both for some reason. She did use Zoloft before but it didn't help at all. How did Brook do one these? Thanks for sharing this information with me. It is great to know that Brook does well on the resperidone along with his seizure meds. Oh, and yes, I understand water obsessions. Angel showers so many times a day. If she gets the chance she is in there stripping naked and stimming in the shower til the hot water tank is empty, three or four times a day. And then she fills the tub and plays in it till she gets too cold. We have huge hydro bills. And the water bill is atrocious! I guess I should be happy that she can't turn on the bathroom tap by herself as it is too hard to pull out. Sometimes a little dependancy is a good thing! Thanks again, Cheryl, mom to Angel and Allie > Hi Cheryl, > Sorry it has taken me a while to get back to you on the Risperdal > article. My son Brook also has a seizure disorder and his neurologist said > that the Risperdal would be okay to take. I'm really sorry that it caused > more seizures for Allie. I read the full article and increased seizures is > not mentioned. The observation period was limited to 8 weeks, however, a > majority of the children continued to show positive results at 6 months. The > main adverse events observed in the study were weight gain, increased > appetite, fatigue, drowsiness, drooling, tremor, and constipation. We have > seen all of these except the tremor. The article doesn't compare risperidone > to other meds. What medication does Allie take for her seizures? Brook is > currently taking Lamictal, which has been working very well for him. What > other meds have you tried to help with the behavior problems? We tried > Zoloft and Paxil before trying Risperdal. > We didn't really need it for serious behavior problems, what we have is a > boy with a serious water obsession. It has helped tremendously with that > problem which was huge for us. We can now leave the bathroom door unlocked!! > Previous to the Risperdal, Brook would be flooding the bathroom at any and > every opportunity. I really hope you can find another med that will help > Allie with the picking and biting. > I found this article on Medscape regarding seizures and anticonvulsants, > that can cause seizures. I don't know if it will be helpful to you, but I > found it interesting. If you aren't a member of Medscape it is very easy to > join, just sign up, it's free. > <A HREF= " http://www.medscape.com/viewarticle/431546_4 " >Click here: http://www.medscape.com/viewarticle/431546_4</A> > > Marisa > Mom to Miles 15, Brook 12 and Genevieve 4 > > > Quote Link to comment Share on other sites More sharing options...
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