Guest guest Posted February 2, 2000 Report Share Posted February 2, 2000 >From: " Florence " <femorris@...> >Reply-Hepatitis Conelist ><Hepatitis Conelist> >Subject: Re: Re: NEWCOMER Hello Kimi >Date: Wed, 2 Feb 2000 04:23:59 -0800 > >Amen, Claudine.. > > This is what I was trying to express earlier in a post but it had to do >with insomnia. Hopefully the doctors will get a clue that there are MANY >symptoms experienced no matter what degree of damage. It does not only >come with end stage. My symptoms are periodic, some days better than >others, but I feel it is because of the stage I am in. And when I feel on >top of mountain, BANG... liver here! Seem to always get brain fog when the >head needs to be cleared! I am always made aware I have to slow down. To >me >in the later stages of liver damage you would constantly feel symptoms and >to a greater degree. > When I went to my gastro for my thyroid, I told her that I couldnt >think >or concentrate and felt in a fog. She looked at my strangely , patted my >knee and said we'll get you better. So I always assumed it had to do with >my thyroid. > That's why this list is important to me. I have learned so much and >feel comfortable to express myself if needed without reproach. > > Florence > > > > I hear so much about the " brain fog " I can't believe the docs >haven't > > figured out it's present no matter what degree of liver damage you have> > > Claudine > > > > > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Would like to know a remedy myself, found St. 's Wort, helped though occassionally I'd find my brain racing, Prozac with my combi seems to help, but wouldn't advise them for everyone. Love & Health, Dave. Brain Fog > fog, that's a good way to describe the way I have been feeling lately. > It has also caused me some embarrassment at work, which is something that > has been happening a lot recently. Anyone else suffer, I just seemed to get > confused and can't cope with more than a couple of things at once, maybe I'm > just getting old ( 43 !) > > Anyone got a remedy to help. > > Thanks and good health to everyone. > > Russ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Russ, I seem to be experienceing the same brain fog. It is like i can not think or remember anything. I forget to start supper or just simple things. It is not all the time but on most of the days. I have no solution except when i get just too foggy i laid down for a while or stop everything i am doing and take a break. I am trying to save up energy for the next week because my projects have to be done and i can not think. While got to go and take my shot. I hope this does not last long. I am starting my own business and can not walk around losted. Ladonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2001 Report Share Posted May 7, 2001 Amino Acids are good for brain fog which is caused by too much ammonia in your system. Amino Acids Ornithine or Arginine, L-Tyrosine. The first two in particular Health and Healing Robyn _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Brain fog is what we call as subclinical encephalopathy and is a part of liver disease. It is not easy to detect clinically and you have to actually seek it out from a person..the others living with the person are usually able to confirm these mild changes in behaviour or mannerisms. Sometimes it is that subtle. It is the thought processing center in the brain that gets affected through certain transmitters or rather through their lack due to liver disease. There is never any structural damage to the brain and no...the virus does not reach the CNS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Well I've read how the virus can cause brain lesions as well as lesions in other areas of the body. Now I don't know how it does that and I 'assume' it's end stage stuff, but there is no doubt that the virus itself causes a lot of symptoms and sure doesn't need any liver damage to help it along. I just consoled a lady friend online last nite. She lives in Hawaii and she had gone to the " best " gastro on the island and he told her that her brain fog and joint pain and fatigue was " all in her head " , she knew better intellectually, but it's so devistating to have a doctor tell you this, I know, I've been there. I felt so sorry for her and wanted to bash in that doc's nose ya know! Good thing it's a long walk from Texas to Hawaii haha. Sometimes we just need validation as people, that we aren't crazy or hyperchondriacs. I know it helps me to put a name to something, to have a cause and effect thing, even if I don't totally understand the techy stuff. It gives me confidence in myself, that I'm not imagining all the aches and pains, and helps me feel better, knowing it's ok. And it's hard to sometimes to separate the hep caused problems and other problems. I know sometimes I let things go when I should be getting something taken care of haha like my darn sinus and allergy junk. I expect to feel bad, so I don't think about taking my sinus meds early enough sometimes and then BAM, I've gotta get to the doc for some help. hugs / Andromeda Gurl/ Alleypat Grand Prairie, Tx, USA, Earth http://members.home.com/andromedagurl ICQ: 12631861 AOL IM: DallasAlleyPat MSN: PJHauldren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 hi everyone hope you all are doing ok i been on the list for 2 ys. went through the combo for ayear i was anone responder doc told my liver my viral load was 5 million at begining of treatment my liver function test was normal range he said to see him in 1 yr.a year later he said see him in another yr. that was in jan. of 2001 i wiil see him in 6 months he said he waiting a nonenterferon i been on milk thi. liver rite vit.c vit.e and lots of milk i worked while on on meds this is why i responded to brainfog i drive a tractor trailer for 10 ys. for the same co.and had a perfect record even recieved awards for safe driver i had 2 incidents while on meds i was put on probation and 1more my contract would be termanited which put more pressure on me as i drive around phila. pa. area one day went to work and my dispather noticed i was wearing 2 different boots on which he brought to my attention i also left my truck running a number of times messed my paper work and log book up a number of times and i thought it was the meds and i been ok since i got off the meds my doc. that i see in 1 yr.is my gas. doc.i need to have blood work done through my prime doc.2 times a yr.which i have not done yet cause i am afraid because i been drinking on weekends oh and i am in first stage of fib. fatty liver and inflamation. also 1b hang in there be positive good luck charley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 hi everyone hope you all are doing ok i been on the list for 2 ys. went through the combo for ayear i was anone responder doc told my liver my viral load was 5 million at begining of treatment my liver function test was normal range he said to see him in 1 yr.a year later he said see him in another yr. that was in jan. of 2001 i wiil see him in 6 months he said he waiting a nonenterferon i been on milk thi. liver rite vit.c vit.e and lots of milk i worked while on on meds this is why i responded to brainfog i drive a tractor trailer for 10 ys. for the same co.and had a perfect record even recieved awards for safe driver i had 2 incidents while on meds i was put on probation and 1more my contract would be termanited which put more pressure on me as i drive around phila. pa. area one day went to work and my dispather noticed i was wearing 2 different boots on which he brought to my attention i also left my truck running a number of times messed my paper work and log book up a number of times and i thought it was the meds and i been ok since i got off the meds my doc. that i see in 1 yr.is my gas. doc.i need to have blood work done through my prime doc.2 times a yr.which i have not done yet cause i am afraid because i been drinking on weekends oh and i am in first stage of fib. fatty liver and inflamation. also 1b hang in there be positive good luck charley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 Doc, I know what scientific evidence says... however, being a hepper with no liver damage.... brain fog is still a problem, and especially on treatment. Of course, that does not mean I don't have ANY problems with my liver, there is a 20% error in biopsy results either way. But whether it's due to fatigue or the virus or the liver damage, a dull brain is definitely there. wish it weren't / Andromeda Gurl/ Alleypat Grand Prairie, Tx, USA, Earth http://members.home.com/andromedagurl ICQ: 12631861 AOL IM: DallasAlleyPat MSN: PJHauldren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 Doc, I know what scientific evidence says... however, being a hepper with no liver damage.... brain fog is still a problem, and especially on treatment. Of course, that does not mean I don't have ANY problems with my liver, there is a 20% error in biopsy results either way. But whether it's due to fatigue or the virus or the liver damage, a dull brain is definitely there. wish it weren't / Andromeda Gurl/ Alleypat Grand Prairie, Tx, USA, Earth http://members.home.com/andromedagurl ICQ: 12631861 AOL IM: DallasAlleyPat MSN: PJHauldren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 MILD changes in behavior??????????? There have been several times when I have truly wondered if I wasn't a candidate for the guys in the white coats. One thing is for certain, I, who used to be an expert at crisis management, can no longer function for long under stress. But doesn't being post-menopausal have something of the same effect........or am I confusing my problems here. Thanks, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 MILD changes in behavior??????????? There have been several times when I have truly wondered if I wasn't a candidate for the guys in the white coats. One thing is for certain, I, who used to be an expert at crisis management, can no longer function for long under stress. But doesn't being post-menopausal have something of the same effect........or am I confusing my problems here. Thanks, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 ha Anne been there That's why most heppers are on antidepressants, the hep really messes with us. / Andromeda Gurl/ Alleypat Grand Prairie, Tx, USA, Earth http://members.home.com/andromedagurl ICQ: 12631861 AOL IM: DallasAlleyPat MSN: PJHauldren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 This message is for Charley... If you ever decided to take a piece of advice...please take this one... You MUST not drink alcohol with Hep C. It will destroy your liver quckly. And if you ever do need a liver they will not list you if you drink. Do not miss doctor appointments because you are afraid he will find out you have been drinking...your doctor is your " captian " of all of this, and needs to watch your levels. I have hep c myself...and I care what happens to you. Glenna _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 It is better to cut out all animal proteins for sometime if you are experiencing " brain fog " and keep a check that you are having enough salt . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/2001 8:24:18 AM Eastern Daylight Time, alleypat@... writes: > That's why most heppers are on antidepressants, the hep really messes with > us. > > I tried the anitdepressants, Pat. Boy was that a mistake. If I'm going to take Welbutron or Paxel, somebody will also have to write a script for an anticonvulsant. I'm not a depressive personality, but this show will definitely slow you down. But the antidepressants, physically wire me. Never have reacted to drugs " normally " . Hence, the non-responder, I guess. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Dear Charley please stop drinking ! honestly, don't have any at all. also there are lots of things you can do with your diet to help you feel better. cut out caffiene, fat, sugar etc and eat lots of fresh fruit & veg, fish & chicken are good but not too much red meat. good luck, love Sylv Re: brain fog > hi everyone hope you all are doing ok i been on the list for 2 ys. went > through the combo for ayear i was anone responder doc told my liver my > viral load was 5 million at begining of treatment my liver function test > was normal range he said to see him in 1 yr.a year later he said see him > in another yr. that was in jan. of 2001 i wiil see him in 6 months he > said he waiting a nonenterferon i been on milk thi. liver rite vit.c > vit.e and lots of milk i worked while on on meds this is why i > responded to brainfog i drive a tractor trailer for 10 ys. for the same > co.and had a perfect record even recieved awards for safe driver i had 2 > incidents while on meds i was put on probation and 1more my contract > would be termanited which put more pressure on me as i drive around > phila. pa. area one day went to work and my dispather noticed i was > wearing 2 different boots on which he brought to my attention i also > left my truck running a number of times messed my paper work and log > book up a number of times and i thought it was the meds and i been ok > since i got off the meds my doc. that i see in 1 yr.is my gas. doc.i > need to have blood work done through my prime doc.2 times a yr.which i > have not done yet cause i am afraid because i been drinking on weekends > oh and i am in first stage of fib. fatty liver and inflamation. also 1b > hang in there be positive good luck charley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 im told to cut out red meat all i been eating is dear meat aint that suppose to be good for you compare to beef or pork Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Anne, It is never a very good idea to completely give up salt. 5 gm salt every day (one flatenned teaspoon full) is your minimun requirement and it wont upset your BP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 In a message dated 6/5/2001 3:17:38 AM Eastern Daylight Time, CHARLEY118@... writes: > im told to cut out red meat all i been eating is dear meat aint that > suppose to be good for you compare to beef or pork > Yes, deer meat is the best you can do. It has less fat than either chicken or turkey. If you have any to spare, I'm up for taking some off your hands. wasn't able to hunt this year because of his hernia, so I'm down to one side of beef. I can feel a panic attack setting in. Also, if you'll e-mail me at avansi7465@..., I'll send you my special deer barbecue recipe. It's delicious, if I do say so myself. Take care and stay healthy, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Dr. MIsra, Could you define enough salt? Along with everything else that has come apart since I did the Ribavirin treatment, I have developed moderately high blood pressure. It's not out of the normal range, but it is higher than what is normal for me. Consequently, I've virtually stopped using salt. Have I goofed here? Thanks, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Dear Dr. Misra, Thank you for the advice. I gave up salted with the idea in mind that I'm probably getting enough sodium from canned goods and my canned pickles, etc., to cover the amount. I don't retain water, so maybe I should add a little. Thanks again, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Dear Dr. Misra, Thank you for the advice. I gave up salted with the idea in mind that I'm probably getting enough sodium from canned goods and my canned pickles, etc., to cover the amount. I don't retain water, so maybe I should add a little. Thanks again, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 I know I may sound like a broken record but for me freshly ground flax seed daily has been a great help with my occasional mild depression, without side effects. I am curious about the salt minimum tho. " It is never a very good idea to completely give up salt.5 gm salt every day (one flatenned teaspoon full) is your minimun requirement and it wont upset your BP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 I know I may sound like a broken record but for me freshly ground flax seed daily has been a great help with my occasional mild depression, without side effects. I am curious about the salt minimum tho. " It is never a very good idea to completely give up salt.5 gm salt every day (one flatenned teaspoon full) is your minimun requirement and it wont upset your BP. Quote Link to comment Share on other sites More sharing options...
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