Brain Fog

[Guest guest]

I have not heard about the brain fog being caused by ammonia build ups

in the brain...not that red meat might be the cause. Hmmmm...will have

to ask doc about that.

But if you have cirhossis, doesn't (and pardon my spelling here)

encepholitis usually accompany cirhossis or is that only at end stages?

Curlykew wrote:

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.. am

> applying for a fellowship to get a certificate to teach deaf

> education.. what i always wanted.. i do still have the hep c and

> cirrhosis but is like the report said.. the combo treatment may not

> have cleared me but it really improved things for me .. even tho i

> have cirrhosis.. doc hasnt pushed the new treatment as i am doing ok

> for now and treatment can almost make it so i can not work... i have a

> good job .. not high pay but good insurance and flexible schedule that

> helps when i am sick... well enuf bout me.. i just wanted to say ..

> that brain fog can be lessened by eating habits i believe... now if i

> can get back to good ones again.. LOL.. was easier when treatment

> inhibited my appetite.. started bicycling and is doing me wonders

> too.. well i dont contribute often but do read most all postings and

> this is .. like someone said .. an ACTIVE group

>

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

Hi Willem...

MSM is a wonderful thing. It is a derivative of DMSO (I'd have to look

up the scientific term for that if you are interested) and when I

learned that I started reading book after book about it. During my years

on the racetrack, my hands were always in DMSO...we would rub it on the

horses legs on top of the medicines to drive the medicines into the legs

and on sore muscles because of the heat that came from DMSO. My

arthritis never bothered me back then although I smelled like garlic all

the time (dmso gives you a garlic odor).

When I left the racetrack all the aches came back. Tried buying DMSO in

health stores and pet supplies stores but it was always 'dead' and

eventually gave up unless I could get it when the from a tack shop when

it was racing season here in Chicago. Good DMSO smokes when you open the

bottle...and it should always be stored in glass.

So when I learned that MSM was a deritive of DMSO, I started

reading...and still have at least one book around the house about it.

Started taking it many years ago and it has save me much suffering from

aches and pains.

I'll dig out that book and pass along some other interesting things

about MSM if you would like....just let me know.

Blessings

Tatezi

willem landstra wrote:

> HI.My brainfog was getting so bad,I.am off treatment,that I decided

> to do something about it.My Doc said if it does.nt go away I hve to

> see a neurologist.I went to a . ,person who knows a lot about

> food-supplements.She advised MSM and multi.vit.(the group also advised

> this)I bought MSM-vitals and multi from douglas lab,it has little iron

> in it.Coul.dnt get sup without iron.And you know what it helps.After a

> week my brainfog is getting less.Still hve this faint headache but

> that feeling that you are floating is getting less.Also the flickering

> of the eyes is getting less.Short memory is also better.Hope it will

> go on improving.If I relapse again,that would be the fourth time,I hve

> the promise that I can participate in a trial starting january with

> protease inhibitors at the Acadamic Hospital in Amsterdam.Right now

> I.am going to be a turtle who will put his Hep in the shell and going

> to enjoy my summer,whether my liver likes it or not.LOL..

> brain fog

>

>

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.. am

> applying for a fellowship to get a certificate to teach deaf

> education.. what i always wanted.. i do still have the hep c and

> cirrhosis but is like the report said.. the combo treatment may not

> have cleared me but it really improved things for me .. even tho i

> have cirrhosis.. doc hasnt pushed the new treatment as i am doing ok

> for now and treatment can almost make it so i can not work... i have a

> good job .. not high pay but good insurance and flexible schedule that

> helps when i am sick... well enuf bout me.. i just wanted to say ..

> that brain fog can be lessened by eating habits i believe... now if i

> can get back to good ones again.. LOL.. was easier when treatment

> inhibited my appetite.. started bicycling and is doing me wonders

> too.. well i dont contribute often but do read most all postings and

> this is .. like someone said .. an ACTIVE group

>

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

By Brain Fog if you mean encephalopathy, it is due to ammonia accumulation in

the brain and red meat is a big contributor.

In fact people with advanced liver disease should be only on vegetable proteins.

Dr Sharat Misra MD,DM,FACG

Re: brain fog

I have not heard about the brain fog being caused by ammonia build ups

in the brain...not that red meat might be the cause. Hmmmm...will have

to ask doc about that.

But if you have cirhossis, doesn't (and pardon my spelling here)

encepholitis usually accompany cirhossis or is that only at end stages?

Curlykew wrote:

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.. am

> applying for a fellowship to get a certificate to teach deaf

> education.. what i always wanted.. i do still have the hep c and

> cirrhosis but is like the report said.. the combo treatment may not

> have cleared me but it really improved things for me .. even tho i

> have cirrhosis.. doc hasnt pushed the new treatment as i am doing ok

> for now and treatment can almost make it so i can not work... i have a

> good job .. not high pay but good insurance and flexible schedule that

> helps when i am sick... well enuf bout me.. i just wanted to say ..

> that brain fog can be lessened by eating habits i believe... now if i

> can get back to good ones again.. LOL.. was easier when treatment

> inhibited my appetite.. started bicycling and is doing me wonders

> too.. well i dont contribute often but do read most all postings and

> this is .. like someone said .. an ACTIVE group

>

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

By Brain Fog if you mean encephalopathy, it is due to ammonia accumulation in

the brain and red meat is a big contributor.

In fact people with advanced liver disease should be only on vegetable proteins.

Dr Sharat Misra MD,DM,FACG

Re: brain fog

I have not heard about the brain fog being caused by ammonia build ups

in the brain...not that red meat might be the cause. Hmmmm...will have

to ask doc about that.

But if you have cirhossis, doesn't (and pardon my spelling here)

encepholitis usually accompany cirhossis or is that only at end stages?

Curlykew wrote:

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.. am

> applying for a fellowship to get a certificate to teach deaf

> education.. what i always wanted.. i do still have the hep c and

> cirrhosis but is like the report said.. the combo treatment may not

> have cleared me but it really improved things for me .. even tho i

> have cirrhosis.. doc hasnt pushed the new treatment as i am doing ok

> for now and treatment can almost make it so i can not work... i have a

> good job .. not high pay but good insurance and flexible schedule that

> helps when i am sick... well enuf bout me.. i just wanted to say ..

> that brain fog can be lessened by eating habits i believe... now if i

> can get back to good ones again.. LOL.. was easier when treatment

> inhibited my appetite.. started bicycling and is doing me wonders

> too.. well i dont contribute often but do read most all postings and

> this is .. like someone said .. an ACTIVE group

>

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

Hi ....I think that is a good idea....putting hepc on hold and

enjoying your summer. I'm going to take your advice about that lol. Is

MSM something I can buy at a local pharmacy?

Carol

willem landstra wrote:

> HI.My brainfog was getting so bad,I.am off treatment,that I decided

> to do something about it.My Doc said if it does.nt go away I hve to

> see a neurologist.I went to a . ,person who knows a lot about

> food-supplements.She advised MSM and multi.vit.(the group also advised

> this)I bought MSM-vitals and multi from douglas lab,it has little iron

> in it.Coul.dnt get sup without iron.And you know what it helps.After a

> week my brainfog is getting less.Still hve this faint headache but

> that feeling that you are floating is getting less.Also the flickering

> of the eyes is getting less.Short memory is also better.Hope it will

> go on improving.If I relapse again,that would be the fourth time,I hve

> the promise that I can participate in a trial starting january with

> protease inhibitors at the Acadamic Hospital in Amsterdam.Right now

> I.am going to be a turtle who will put his Hep in the shell and going

> to enjoy my summer,whether my liver likes it or not.LOL..

> brain fog

>

>

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

HI.Yes,good idea.There.s nothing I can do about it now,except taking care how I

live.Sometimes I think we.re too much pre-occupied about our Dragon.I.am a

pickheaded dutchman and suspicious about alternative treatment and supplements.I

spend a lot of money on our chinese citizens who hve little shops where tey

claim to hve herbs to cure anything from cancer to broken relations.The most

faith I hve is in Tibetan medicine.There is a non-profit making center here and

at least they are honest and tell you we cannot cure you but improve the quality

of your life.It.s the only alternative treatment which is paid for by the dutch

health insurance.this lady advised me to take MSM I had my doubts but I feel a

lot better now.I don.t know whether it.s the MSM or just natural recuperating.It

also helps against joint-pains etc.You can buy it anywhere.Tat,our Tat,knows

more about it.I had my first chess-game yesterday and for the first time I could

think three moves ahead and rememberd the moves I made.It was a lovely day iin

amsterdam,open air pubs and I could.nt resist the temptation and had the first

cold Heineken in 5 yrs.It was heaven.I will drink one everyday,very slowly.Have

a nice summer,life is short and who knows the great adventure which migt be

lurking on the other side.We should have a little bit more Humor on the

group..

brain fog

>

>

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

HI.Yes,good idea.There.s nothing I can do about it now,except taking care how I

live.Sometimes I think we.re too much pre-occupied about our Dragon.I.am a

pickheaded dutchman and suspicious about alternative treatment and supplements.I

spend a lot of money on our chinese citizens who hve little shops where tey

claim to hve herbs to cure anything from cancer to broken relations.The most

faith I hve is in Tibetan medicine.There is a non-profit making center here and

at least they are honest and tell you we cannot cure you but improve the quality

of your life.It.s the only alternative treatment which is paid for by the dutch

health insurance.this lady advised me to take MSM I had my doubts but I feel a

lot better now.I don.t know whether it.s the MSM or just natural recuperating.It

also helps against joint-pains etc.You can buy it anywhere.Tat,our Tat,knows

more about it.I had my first chess-game yesterday and for the first time I could

think three moves ahead and rememberd the moves I made.It was a lovely day iin

amsterdam,open air pubs and I could.nt resist the temptation and had the first

cold Heineken in 5 yrs.It was heaven.I will drink one everyday,very slowly.Have

a nice summer,life is short and who knows the great adventure which migt be

lurking on the other side.We should have a little bit more Humor on the

group..

brain fog

>

>

>

> I think that brain fog has a lot to do with ammonia build up in the

> brain.. and trying to remember what causes that.. think maybe too much

> red meat.. i used to study and research a lot about hep c..but i have

> the brain fog.. cant concentrate so much .. so i am not sure but know

> it is ammonia in the brain... I used to work for a big finance company

> but the brain fog really messed me up .. too much pressure and

> stress.. now i make 1/3 the income and hus left me in middle of

> treatment .. so my income level went down but, you know what, that

> didnt bother me so much. Hep C has made me look at life differently...

> i try to avoid stress .. in my situation that means .. dont worry ..

> LOL.. hard at times but i concentrate on the good in my life now ..

> and hus leaving was probably a good thing... now thinking of going

> back to teaching but scared.. as is a big responsibility to the kids..

> but was love of my life at one time .. to teach.. did it for 10

> years.. oh well .. we shall see what God has in store for me.

> content,

>

> Dawn

>

>

> My message to you: Don't worry, be happy!!

> Love to hear from YOU!

> Dawn

>

>

> ---------------------------------

>

[Guest guest]

Hi Kiss,

Nice to hear from you again. Now - brain fog - how to describe brain fog ? O K , I can remember things that happened 30 years ago , but ask me about yesterday I'm stumped. My doctor tells me to write myself notes , so I do then when I need them I realize they're on the coffee table at home - which would be O K if I was at home! I have trouble remembering peoples names unless I've known them for 20 years. I have to write things on my hands like T O GBG to remind myself to take out the garbage. Yesterday was garbage day -I made a note on my hand , I stuck one on the front door just in case, I was getting into bed when I noticed the note on my hand & had to get dressed & take out the garbage! If I have an appointment , I have to write it down in 3 or 4 different places or I'll miss it. Yesterday I had an appointment with my diabetes dietician , I was so pleased that I made it there on time until I found

out my appointment was tuesday.

I have heard of people getting lost while driving home from the supermarket. I don't drive so that doesn't bother me bit you find yourself searching for the book you were reading last night only to find it back in it's place on the shelf where you put it when you finished it.

It's frustrating, you know you used to remember things & were capable of doing so much more & other people don't even seem to notice. You adapt, you have too or you'll go nuts.

Hope this helps,

Suziekissmekar <kissmekar@...> wrote:

Hi all,I have been doing some thinking latley, and have heard many of you guys mentiong "brain fog". What exactaly is it? I have an idea but was wondering what it was is your terms. I would love to hear different explanations for it. Hugs sometimes, well you know he's not all there. I don't know if it's because he's not paying attention or if it's more.We are getting closer to the end of the six weeks. Of course I'm getting nervous. But otherwise all is calm over here. He still wont talk about it, actually out right refuses until he sees the Doc again..He canceled a dentist appointment, he's says until he knows whats going on, he doesn't want to go. He know he has to tell them he's infected, and I think it freaks him out.Anyway, thanks all for listening,

you are all wonderful for giving me support and information. I have learned so much.Kiss

Next time I'm coming back as a cat .

[Guest guest]

Kiss, Sweetie of course he's stressed - his entire life has changed by two words - Hep c Positive. I was a little crazed the first couple of months & I don't have a family to support ! Then I got into talk therapy with a local psychologist & it was the smartest thing I'd done in years. It really helps to have someone completely unbiased to talk to - someone who has no expectations beyond you showing up for your appointments. Do you think you could get Hugs to consider seeing a counsellor?

Why is he even thinking of quitting his job? This is absolutely the worst time for something like that. Right now you need a reliable source of income, sick days or medical leave - he won't have that at a new job - it'll take s few years to build up that sort of entitlement unless you have something like aflack.

Good luck to you Kiss, I know how stubborn men can be - thet's why I'm still single.

Suzie

kissmekar <kissmekar@...> wrote:

Thank you, I was kind of right about the brain fog thing. Hugs is not that bad. Just kind of tunes out sometimes. Sometimes I tell him the night before to buy milk on his way home, but then he comes home with no milk! Little things like that. He'll then say " You shoulda called me". I think it selective hearing...most men suffer that!! (Sorry no insult intented).He's stressed at work too, lately. Boss confronted him. Asked him why he's not the same anymore. Well, did he not lose it! Really lose it, he came home from work and spilled the beans to me. His boss is a ass#%^ & *. But regardless of that, Hugs did tell him that he's going through stuff. He told him that he's having problems with his liver and having some tests done. That acounts for he days

off. Any way I'm sure you don't care about Hug's days at work so I'll leave that for now. My piont is stress. Believe it or not, not me, but him. He has been with the same company for 7 years and really no complaints. But latley he's anal about everything..... Also thinking about changing jobs!?! (NO!!!) Is this normal? The major mood swings and stuff. He looking into like life changings decicions.....Not a good time for that I think....Is it me or are these changes really something.Suzie, Teri, thank you....your all so good to me...Kiss

Next time I'm coming back as a cat .

[Guest guest]

Hi Cheri,

On the Graves boards we are having a drawn-out discussion about just

that. Many stories, all different, yet all the same. So far as we

know, the only thing to be done to remove the brain fog is to get your

Frees (FT4 and FT3) where they belong for you. When that happens,

much of the brain fog will lift and you will feel like a different

person.

Brain fog sounds like a made-up little problem. When it's foggy

outside I can still do what I need to get done, no problem, I just

have to be more careful.

Brain fog can be completely debilitating. When I am having problems

with it (my levels are so unstable now it's pretty awful) I am a

hermit. I don't go anywhere because when I get into the car I'm never

sure where I'm going to end up or why I left the house in the first

place. I dont' have anyone over because I make a fool of myself

acting like an Alzheimer's patient sometimes and completely normal on

others. I can't even clean my house because I end up wandering from

room to room without getting anything done... all day long. From the

outside we look like normal people. Very few others except sufferers

know the agony that we go thru and the depression that this can cause.

Humiliation and a feeling of diminished self-worth are things we live

with every moment of every day... silently, because no one else but

another sufferer can understand. We can't even win a family argument

because everything we say will be discounted and discarded by those

that know us and have experienced our confusion that comes with the

fog. It is assumed that we are always confused and " foggy " . We are

afraid to go anywhere because we may get there and not know why we

left the house, or if it's a store, without money purse or list

(provided we remembered to make a list at all). We are afraid to

enter conversations because in the middle of a sentence we can

suddenly be completely unaware of the topic of discussion. We are

worried about endangering our children and ourselves. We live with the

shame of lowered self-worth and self-esteem caused when we are

ignored, not believed, or even made fun-of because of the on and off

unreliability of our mental status.

I'm so sorry if you are having to endure this fairly common problem.

There are many out there going thru the same things. This will do

little to make you feel better, but know that it is a normal part of

the disease even if your doc doesn't take you very seriously about

it.Get your hormones squared away and most of the problem will likely

go away.

E (Ellen in Missouri)

>

> How frequent and severe is brain fog typically and what can be done

about it?

>

> Thank you,

>

> Cheri

>

[Guest guest]

Cheri:

Brain fog is also associated with food sensitivies. Food sensitivies ...

mostly

studied in gluten and casein ... seem to cause the release of zonulin, which

causes the gut barrier AND the brain barrier to become porous. The

permeable gut barrier is then a common trigger of autoimmune diseases

(like thyroid disease), and the permeable brain barrier may be what causes

the brain fog.

I expect this is why some people feel so GOOD when they

do these cleansing fasts.

At any rate, I'm a total zombie if I drink milk or eat bread. I seriously

cannot THINK. The brain fog lasts 2 days.

I tend to think iodine fits in there somewhere too: since I've been

eating seaweed (my source of iodine) my food sensitivities have

gotten a lot better.

The gut permeability also can happen in response to some bacteria , so

I wonder if some types of dysbiosis cause it. Oral iodine, I would think,

would change the biotic makeup of the gut? Iodine also reacts somehow

with IgA (the antibodies that is implicated in food sensitivities) which

makes me wonder what exactly happens when one takes oral iodine ...

Anyway, Dr. Fasano's group is coming out with a zonulin blocker,

so it will be interesting to see what happens in terms of autoimmune

diseases. There is a thought that if the zonulin is blocked earlier

in life, that one can prevent much of the current rash of autoimmune

disease.

-- Heidi

>

>

>

>>How frequent and severe is brain fog typically and what can be done

>>

>>

>about it?

>

>

>>

>>Thank you,

>>

>>Cheri

>>

>>

>>

>

>

>

[Guest guest]

" Ellen " <ellen@...> wrote:

>Get your hormones squared away and most of the problem

> will likely

> go away.

>

> E (Ellen in Missouri)

I agree about the importance of hormones in clearing brain fog.

Not only the thryoid and adrenal hormones, but also estrogen

and testosterone, nutritional status, exercise for

oxygenation, healing of abuse and grief, stuck Qi, etc.

Not being understood just compounds

the problem, along with with not communicating about

one's state, and not having people in one's life who care

enough to hear you deeply (emotionally mature) and not just

write you off or ridicule you (a form of insanity imo).

I feel that hormones need to be considered/monitored

all throughout a person's life, and more often the older

they get.

Carol

[Guest guest]

I too have been watching Alba Therapuetics on their zonulin agonist clinical

trials. It's been highly successful & they are winning many awards before

the drug is even FDA approved (!)

Congrats on finding help for brain fog. I'm on gluten-free & casseinate-free

diet & still get brain fog. Like Ellen says, it can be pretty embarrasing

when it's bad.

Amy

HeidiS wrote:

Anyway, Dr. Fasano's group is coming out with a zonulin blocker,

so it will be interesting to see what happens in terms of autoimmune

diseases. There is a thought that if the zonulin is blocked earlier

in life, that one can prevent much of the current rash of autoimmune

disease

[Guest guest]

My brain fog before I began thyroid medication was mild compared to

what it became after I had been on the treatment for a couple of

weeks. I later found out that for me the cause of it was low

cortisol

and the thyroid medication was making it worse since it was floating

around in the blood raising my test scores but not getting into the

cells. When I began taking Isocort for my adrenals the brain fog

left

within two days. Unfortunately now that I am weaning off of adrenal

support so that I can have some tests done the brain fog is back in

full force.

Dianne

>

> How frequent and severe is brain fog typically and what can be done

about it?

>

> Thank you,

>

> Cheri

>

[Guest guest]

Brain Fog can also be caused by candida.

I had terrible brain fog. It got much better when switching from Levoxyl to Armour, but still was there, and always much, much worse on overcast days. When I finally treated Candida, the brain fog is gone! Even on rainy days. Yipeeee!!!!!!!!!

Best,http://www.ChestnutHillDesigns.comhttp://www.CurlyRescue.comView my Blog ~ http://shellyct.blogspot.com/

If you hate a person, you hate something in him that is part of yourself. What isn't part of ourselves doesn't disturb us. -- Hermann Hesse

only thing to be done to remove the brain fog is to get yourFrees (FT4 and FT3) where they belong for you. When that happens,much of the brain fog will lift and you will feel like a differentperson. Brain fog sounds like a made-up little problem. When it's foggyoutside I can still do what I need to get done, no problem, I justhave to be more careful.

..

[Guest guest]

Although my hormones are still relatively whacked out, my brain fog

cleared substantially with vitamin D supplementation.

Warmly,

>

> I agree about the importance of hormones in clearing brain fog.

> Not only the thryoid and adrenal hormones, but also estrogen

> and testosterone, nutritional status, exercise for

> oxygenation, healing of abuse and grief, stuck Qi, etc.

> Not being understood just compounds

> the problem, along with with not communicating about

> one's state, and not having people in one's life who care

> enough to hear you deeply (emotionally mature) and not just

> write you off or ridicule you (a form of insanity imo).

> I feel that hormones need to be considered/monitored

> all throughout a person's life, and more often the older

> they get.

>

> Carol

>

[Guest guest]

Apricot85 wrote:

> I too have been watching Alba Therapuetics on their zonulin agonist

> clinical trials. It's been highly successful & they are winning many

> awards before the drug is even FDA approved (!)

>

> Congrats on finding help for brain fog. I'm on gluten-free &

> casseinate-free diet & still get brain fog. Like Ellen says, it can

> be pretty embarrasing when it's bad.

> Amy

Tell me about it! I'm a consultant and I'm *supposed* to be able to

figure stuff out, not act like I've been taking stupid pills..

It's too bad the GFCF diet didn't help immediately ... I think, myself,

that the brain fog is a secondary reaction, likely the zonulin, and

gluten and casein aren't the only things that trigger it. I have heard

of people who got better when they fixed various gut dysbiosis issues,

so I tend to think that it has to do with gut permeability or something

along those lines.

Iodine (I think) also seems to make a difference in brain function. I

can't back this up with studies, but when I eat more seaweed than usual,

I get more vivid (colorful) dreams and my thinking style changes. Also I

can focus my eyes better (I think the interocular pressure goes down:

the eyeballs are " squishier " and I guess I got a really good score on

the glaucoma test).

-- Heidi

[Guest guest]

Boy, do I know that feeling!

I get slightly different brain fogs from a variety of things. Gluten and casein are big ones for me, low hormones/not enough cholesterol, not enough CLO, and salicyclates fog me up too.

-Lana

On 12/6/06, Apricot85 <apricot85@...> wrote:

..

Congrats on finding help for brain fog. I'm on gluten-free & casseinate-free diet & still get brain fog. Like Ellen says, it can be pretty embarrasing when it's bad. Amy

[Guest guest]

When I had my appointments with the Endo, unless the one I wanted to see came out and called my name, I used to say, sorry I have to see ...... and they put your file back and get the next one - worth a try and good luck.

Luv nne

Not sure whether I will actually see Shotliff but will of course report back when I get home.

Nix

[Guest guest]

Good luck Nix - I hope you see the big man.

Luv - Sheila

Brain Fog

Well talk about brain fog... I could have sworn that the hospital receptionist told me my appointment was on 14th September. Even wrote and told my thyroid friends that it was that date. Just had a letter from the hospital to say that it is tomorrow eek. Trying to get all the info together now for the Endo, at least I won't be without meds for too much longer thank goodness. Not sure whether I will actually see Shotliff but will of course report back when I get home.

Nix

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.13.2/985 - Release Date: 02/09/2007 16:32

[Guest guest]

> Good luck Nix - I hope you see the big man.

>

Hi everyone

Well you probably know what I'm going to write so I won't even bother

with the lurid details. I didn't see the big man but I did see a

consultant in his team. The appt was pretty much a waste of time. I

even got the, " Well women can put on weight as they get older. "

arrgghh Only good thing is that he has ordered quite a few blood

tests and we'll see where we go from there.

He was not happy with the meds I was taking of course, looked

horrified at the 'bovine' thyroid glandular and said of course that

it would never be passed by the NHS. He definitely wasn't a Barry

Peatfield fan and told me that he's been struck off and that I

shouldn't see him again <g>

I feel a bit of a wimp as I didn't really cross question him as I'd

have liked to... he rubbished my TSH and said there was no such thing

as an 'optimal range' you were either in or out... yup... frightening

isn't it. He also dissed the adrenal test results and said that he

would expect them to look like that as that's what adrenals do, they

don't stay the same all the time. So all in all I was pretty useless

but then so was he.

Can I just check something with you guys? In dogs, the thyroid has to

be two thirds destroyed before it shows up in blood tests (other than

antibody test) and I've assumed it's the same for us?

Here are the tests I'm having done, I'm assuming that the thyroid

test is a fairly full panel, let's hope so.

Nix

CHEM - Cortisol

CHEM - Urea and electrolytes

CHEM - LFT and bone profile

CHEM - Cholesterol and triglycerides

CHEM - Thyroid Function Tests

HAEM - Full Blood Count (Coulter)

HAEM - Sedimentation Rate

IMM - Thyroid Peroxidase Antibody

[Guest guest]

Ellie,I respectfully disagree. Now, I do see where taking a bunch of meds can cause someone to be "spacey," but, I had brain fog long before I ever started taking any medications. I still have brain fog, yet none of the meds I'm on are every-day meds.I personally believe fibro is a neurological disorder which to me, explains the brain fog. Amity-------------------------------------------------------I think the drugs cause most of the brain fog stuff. Not the fibro. It is normal to have brain fog when you don't sleep well. Then the docs try to get you on these awful drugs and of course you stutter and forget things. It is drug induced at that point. I know someone who takes 10 fibro drugs and every other word is ummmmm. Yea , no wonder. My take based on my experience too. I took 1/5 of a trazadone for a week and could hardly find my way around town. No way for me to live.

ellie

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[Guest guest]

A few pills of taurine helped me quite a bit with the brain fog and my

motion sickness. Neurofeedback has been a very big help as well.

I've had trouble with noun recall since I was a kid. By time I was 40, it

was pretty bad. I've since recovered to a very large extent. I think it was

the thyroid, taurine, alpha keto-glutaric acid and time that allowed this to

heal. At one point, I tried one pill of GABA and it shut down my ability to

remember nouns to the point that it was again very difficult to speak.

However, for some people, GABA can be quite calming, so it is something that

can be useful. I wouldn't totally discount it.

I had one adjustment of my upper neck using the AtlasProfilax method and it

immediately improved my hearing --- not the loudness, but my ability to

distinguish what people were saying. As I said before, if a chiropractor

doesn't know what they are doing, they can make things worse. If they do

know, one or two adjustments can make a world of difference.

www.upcspine.com has a list of chiropractors that specialize in the upper

neck. That would be one of your best bets.

To be fair, I must say that I never have had fibromyalgia. I did have

Candidiasis / Dysbiosis.

[Guest guest]

I tend to lean, respectully, with Amity. I've been on the same bunch

of meds for a few years and sleep fairly consistently and I still silp

in and out of " fog. " It's usually my signal that a flare is coming.

[Guest guest]

I also have my good days and bad days with Fibro Fog, especially if I haven't gotten enough sleep.

Speaking of sleep. Whoever recommended HearOs ear plugs, I thank you from the bottom of my heart. Even though I use a CPAP machine, I have not been able to use it without sleeping pills. Since I started using the ear plugs (mind you I've not been able to use other brands as they hurt one of my ears) I don't have to use the extremely expensive sleeping pills. I am a really light sleeper and every noise startles me. The HearOs are a very soft material and don't hurt my ears. I did not wake last night until it was time for me to get up and get ready for work---that's a miracle! Thanks again for recommending HearOs.

Deb Halvorson

Re:brain fog

I tend to lean, respectully, with Amity. I've been on the same bunch of meds for a few years and sleep fairly consistently and I still silp in and out of "fog." It's usually my signal that a flare is coming.

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