Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Trudy Trudy Trudy Trudy Trudy.... I wanna smack your hubs... Still think you got the better of the two? Although at one point mine said the same damn thing. He had to hear it from the doctors that he was all wrong. Okay... lets address all of this piece by piece... researching for you here... plus I always have my opinions! Cant get by without me throwing a few in huh? What did I say the other day about the Neuro symptoms being drug related? I called that one. And... I think your stuttering started about when they put you on Elavil! Hmmm... lets see what happens when you come off bitch pills. Abnormally large and mis-shapen red blood cells huh... I know that answer but I found it on the web for you as well.. here you go.. it's no biggie. What can cause your red blood cells to be abnormally large? 3 years ago Report Abuse jkl Best Answer - Chosen by Voters Yes. Macrocytic red blood cells is not a disease in itself but the result of an underlying problem such as: Vitamin B-12 deficiency folate deficiency, liver disease, alcoholism a side effect of certain medications, such as chemotherapy drugs, an increased red blood cell production by the bone marrow (regeneration) to correct anemia, for example, after blood loss, etc. Source(s): Mayo Clinic Hmmm.. lets see here... Vitamin b-12 deficiency.. check Side effects of certain medications, such as CHEMOTHERAPY drugs.... checkBody trying to correct anemia.... check Next problem. MRI - degenerative sumthin sumthin - not surprising.. you're not 30 anymore. Oh back to that part I like... tremors and jerking may be drug induced... Didn't I tell you that just a few days ago? And I said it before the doctors did.. Where is that MD next to my name? I am as good as these guys are! On to the Butt Head.... formerly known as " the best husband on earth... " HA! He's still a male child Trudy! We have to remember that. No matter how good they are, they are still men. This kinda shit comes out of their mouths on occasion. I call it talk first, engage brain last. I got the " Go to bed at a normal hour and get up at a normal hour " comment too.. A few times. Idiots. They don't get it. I swear, unless you are us, you're not gonna get it either. Just ignore his comments for now. Do more? Do more? He really said that? You're going to push yourself right over the edge if you listen to him. And the weight comment... he should know better than to even bring THAT up. But since he doesn't.... ignore the comment. SO typical... right? Now.. what he said about being cured... kinda jumping the gun there. We won't know if your treatment worked for another few months. You need to be SVR at 6 months post treatment. You ended treatment early, there is still a chance of the virus rebounding on you. Hopefully not a big one but the chance is there. I don't like raining on peoples parades but it's too early for the parade. You got awhile yet and he NEEDS to understand that. You know, with all the craziness that you have gone thru from before treatment started til now, if it were me..... I hate to even say this but.... I'd really be looking for some new doctors that would be up front with me and quit screwing around. All of this nonsense with having you go all over the place to all these different people and no one is close by and then not telling you why you are chasing your tail? I would tell your doctor " Tell me what is going on or I am out of here! " It's your body they are messing with and your mind that is getting messed with. I have never had a doctor tell me that they couldn't tell me what was going on until they confirmed the diagnosis. At least tell me what you are thinking? And why is it taking them so damn long? This crap has been going on for months and months now. It's gone beyond the stages of ridiculous. Dr. House would have an answer by now! It's either Lupus or Sarcoidosis..... Did you ever notice those two diseases are mentioned in EVERY House Episode? LOL! Company this weekend huh? Joy. Bet you can't wait to bust your ass to get that all ready... by the time folks get there you're going to be exhausted. And by the way.. QUIT RAKING THE DAMN LEAVES! Let it go. Not your problem, let the guy do that crap. It's time for a corn dog and a nap! Hugs,Teri On Tue, Mar 1, 2011 at 10:55 AM, trudykinsey@... <trudykinsey@...> wrote: Went to GP yesterday. Expained to him my frustration being sent to ALL my Docs ASAP. But no one says why. He explained that until there is a confirmed dx they won't. But he did look at my labs just ordered by Nuero. He said what jumped out at him is my B-12 didn't even register. So back on the weekly injection. He read the report of the back MRI. Said I have degenerative Sumth' sumth'. But it's the lower disk in spine are loosing the squishy padding. And (back to labs; sorry ) Dr said my red blood cells are abnormally large and misshaped. Not the nice perfect roundness.we dindnt talk about that. I quess I'm scared cause the Myaloma is a cancer in the bone marrow. Isn't that where RBC's come from? Oh, ready? Wait ..wait for it...he's weaning me off my " Bitch " pills Ha! Also called anti-dep! Look Out World! I told him I've been struggling with frustration,rage & deppession. So much so that with the currant dose ( 75 twice a day)I have to call Becky and reload from her Sanity and calmness. Doc thinks my tremors and jerking may be drug induced. And he looked up Side Effects and thinks it may be from Elavil So now no help from my Lttle Pills. I come home to Butt Head, formerly known as Hubby, who is pissed that I have all these drs and tests and nobody has Fixed Me yet. He said it's simple...go to bed on time, get up at daylight. Quit the naps. Stay busy and push each day to do more. Awww, hears the part that hurts the most...He says the weight I've put on is what's holding back. A lot of what he said is true. Just not yet. I nap cause the jerks and big time tremors get to be too much. And I do know for a fact that they are brought on by fatigue. Today I got up a 7 and Im almost done with raking leaves from the 1/4 acre where we entertain. Wonder what he will eat tonight when I'm all done in? And did I mention that we are hosting two cookouts & enterainment back-to-back? Sat , and another bigger on Sun. Oh Well as Butt Head would say, Im done with tx and cured. " A well-behaved woman never made history " Mae West http://facebook.com/people/andTrudy-Kinsey/1340460877 -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Well GalsWhile you are comparing butt-heads, I think I had the worst of them all, didn't I??Yup, Trudy, I heard all of those complaints numerous times!! His best was when I asked him if he had noticed that I lost 30 lbs on tx. The answer was not something I care to remember. Truly, I still had the pregnant look until a couple of months after the liver surgery. Then the whole 40 lbs was extremely noticeable. However, that raking the whole yard!!! I couldn't do that now and I'm over a year off tx and didn't have all the other stuff that you are going through. However, I'm definitely not over the Fibro. Hell, even today, I was bringing laundry in from the back of my truck. My first trip wasn't so bad; but, as I went out again to get the other load - I had to take a rest on the way. Trudy, you will understand the distance. My truck is parked only a couple of feet away from the front end of this 5th wheel. Not exactly very far to go at all.Also, I never was a person that could go to bed early and rise early!!! No, the early morning is not the most beautiful time of the day!! So, during and after tx, very little changed. Except that I do go to bed earlier; but, I can't get up till at least 8:00am. Also, as I used to point out to my butt-head, I can't nap in any part of the day. If I even try and actually fall asleep, either I can't get up or I'll get a raging headache. That's just not the cycles of my body!!Now, I definitely agree with Teri about the tongue engages long before the brain. In fact, that's what I would say to my husband a lot. Told him on many occasions that if he took a deep breath and let the brain work, he wouldn't get himself into such a pickle and then have to stubbornly refuse to take it back. Never happened though.Teri, you are a whole lot better than I am about accepting those stinging words and realizing that it's just King Baby, wanting his own way again. I've just never learned to not react!! In fact, it's better than I do live alone; because, then there is nothing to react to. However Trudy, your hubby is usually Mr. Wonderful!! Well Mr Wonderful sometimes has a bad day and of course, then they go right into that man thing. Finally, Teri is so right about no one understanding!! Nobody can, unless they've gone through what we have or very similar. I can only assume that going through tx effects all the people in the house. I say "only assume" because I have not had the experience of living with another person that was so sick.Oh ya, about that going off the anti-d's. Does the Dr. not understand what you are still going through. I'm not talking about the effects of tx. I mean all this with so many Dr's and no one telling you anything. It sure would drive me crazy!! Hell, I got a little crazy waiting for that 3 months to find out what was on my liver. Honestly, I firmly believed it was another tumour, for sure. Turned out it wasn't a tumour and now I feel a little stupid at how I reacted. However, taught me not to get so far ahead in my own thinking. Just today.Luv Gloria Trudy Trudy Trudy Trudy Trudy.... I wanna smack your hubs... Still think you got the better of the two? Although at one point mine said the same damn thing. He had to hear it from the doctors that he was all wrong. Okay... lets address all of this piece by piece... researching for you here... plus I always have my opinions! Cant get by without me throwing a few in huh? What did I say the other day about the Neuro symptoms being drug related? I called that one. And... I think your stuttering started about when they put you on Elavil! Hmmm... lets see what happens when you come off bitch pills. Abnormally large and mis-shapen red blood cells huh... I know that answer but I found it on the web for you as well.. here you go.. it's no biggie. What can cause your red blood cells to be abnormally large? 3 years ago Report Abuse jkl Best Answer - Chosen by Voters Yes. Macrocytic red blood cells is not a disease in itself but the result of an underlying problem such as: Vitamin B-12 deficiency folate deficiency, liver disease, alcoholism a side effect of certain medications, such as chemotherapy drugs, an increased red blood cell production by the bone marrow (regeneration) to correct anemia, for example, after blood loss, etc. Source(s): Mayo Clinic Hmmm.. lets see here... Vitamin b-12 deficiency.. check Side effects of certain medications, such as CHEMOTHERAPY drugs.... checkBody trying to correct anemia.... check Next problem. MRI - degenerative sumthin sumthin - not surprising.. you're not 30 anymore. Oh back to that part I like... tremors and jerking may be drug induced... Didn't I tell you that just a few days ago? And I said it before the doctors did.. Where is that MD next to my name? I am as good as these guys are! On to the Butt Head.... formerly known as "the best husband on earth..." HA! He's still a male child Trudy! We have to remember that. No matter how good they are, they are still men. This kinda shit comes out of their mouths on occasion. I call it talk first, engage brain last. I got the "Go to bed at a normal hour and get up at a normal hour" comment too.. A few times. Idiots. They don't get it. I swear, unless you are us, you're not gonna get it either. Just ignore his comments for now. Do more? Do more? He really said that? You're going to push yourself right over the edge if you listen to him. And the weight comment... he should know better than to even bring THAT up. But since he doesn't.... ignore the comment. SO typical... right? Now.. what he said about being cured... kinda jumping the gun there. We won't know if your treatment worked for another few months. You need to be SVR at 6 months post treatment. You ended treatment early, there is still a chance of the virus rebounding on you. Hopefully not a big one but the chance is there. I don't like raining on peoples parades but it's too early for the parade. You got awhile yet and he NEEDS to understand that. You know, with all the craziness that you have gone thru from before treatment started til now, if it were me..... I hate to even say this but.... I'd really be looking for some new doctors that would be up front with me and quit screwing around. All of this nonsense with having you go all over the place to all these different people and no one is close by and then not telling you why you are chasing your tail? I would tell your doctor "Tell me what is going on or I am out of here!" It's your body they are messing with and your mind that is getting messed with. I have never had a doctor tell me that they couldn't tell me what was going on until they confirmed the diagnosis. At least tell me what you are thinking? And why is it taking them so damn long? This crap has been going on for months and months now. It's gone beyond the stages of ridiculous. Dr. House would have an answer by now! It's either Lupus or Sarcoidosis..... Did you ever notice those two diseases are mentioned in EVERY House Episode? LOL! Company this weekend huh? Joy. Bet you can't wait to bust your ass to get that all ready... by the time folks get there you're going to be exhausted. And by the way.. QUIT RAKING THE DAMN LEAVES! Let it go. Not your problem, let the guy do that crap. It's time for a corn dog and a nap! Hugs,Teri On Tue, Mar 1, 2011 at 10:55 AM, trudykinsey@... <trudykinsey@...> wrote: Went to GP yesterday. Expained to him my frustration being sent to ALL my Docs ASAP. But no one says why. He explained that until there is a confirmed dx they won't. But he did look at my labs just ordered by Nuero. He said what jumped out at him is my B-12 didn't even register. So back on the weekly injection. He read the report of the back MRI. Said I have degenerative Sumth' sumth'. But it's the lower disk in spine are loosing the squishy padding. And (back to labs; sorry ) Dr said my red blood cells are abnormally large and misshaped. Not the nice perfect roundness.we dindnt talk about that. I quess I'm scared cause the Myaloma is a cancer in the bone marrow. Isn't that where RBC's come from? Oh, ready? Wait ..wait for it...he's weaning me off my " Bitch " pills Ha! Also called anti-dep! Look Out World! I told him I've been struggling with frustration,rage & deppession. So much so that with the currant dose ( 75 twice a day)I have to call Becky and reload from her Sanity and calmness. Doc thinks my tremors and jerking may be drug induced. And he looked up Side Effects and thinks it may be from Elavil So now no help from my Lttle Pills. I come home to Butt Head, formerly known as Hubby, who is pissed that I have all these drs and tests and nobody has Fixed Me yet. He said it's simple...go to bed on time, get up at daylight. Quit the naps. Stay busy and push each day to do more. Awww, hears the part that hurts the most...He says the weight I've put on is what's holding back. A lot of what he said is true. Just not yet. I nap cause the jerks and big time tremors get to be too much. And I do know for a fact that they are brought on by fatigue. Today I got up a 7 and Im almost done with raking leaves from the 1/4 acre where we entertain. Wonder what he will eat tonight when I'm all done in? And did I mention that we are hosting two cookouts & enterainment back-to-back? Sat , and another bigger on Sun. Oh Well as Butt Head would say, Im done with tx and cured. " A well-behaved woman never made history " Mae West http://facebook.com/people/andTrudy-Kinsey/1340460877 -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
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