marie

[Guest guest]

Marie,

Hi, it has been a long time since I have written. I think about you often

and it sounds like you are doing very well. I have been debating about

coming to the convention/party and have decided to jump in and commit.

is pregnant and her due date is 12-24 so that makes me uncomfortable

with being away. She had complications last time so I am concerned.

However, I have decided that this is something I need to do for me. I am

looking forward to seeing you.

Darlene

[Guest guest]

Marie,

I will be leaving after work on Friday, so I will be in very late Friday.

It has been so long since I saw everyone that I don't want to miss a thing.

See you soon.

Darlene

[Guest guest]

Marie,

I wanted to let you know that had her baby and I have another

granddaughter. She was born yesterday. She named her Brooklyn.

waited for me to come back from the party. I was concerned about being so

far away . asked about you when I returned and was glad to hear how

wonderfully you are doing. Have a Merry Christmas.

Darlene

[Guest guest]

Congratulations on a new baby....

Re: Marie

Marie,

I wanted to let you know that had her baby and I have another

granddaughter. She was born yesterday. She named her Brooklyn.

waited for me to come back from the party. I was concerned about being so

far away . asked about you when I returned and was glad to hear how

wonderfully you are doing. Have a Merry Christmas.

Darlene

[Guest guest]

Marie,

You are too sweet!

I enjoyed seeing you!

Merry Christmas!!

Dana

Dana Tart!!

> Dana,

> Please thank your Dad, for the photo shoot!! Dana you look simply

> M a r v e l o u s Darling!!! You are so Skinny!! I'm jealous!!

> But I'm old!!

> Happy Holidays!!

> Marie

>

>

>

[Guest guest]

Marie: I agree It is hard to understand God's Infinate wisdom. There are

trials that come up in all our lives that make us sit back and look for the

answers. Well there is not an answer to us, to many of the things that get

in our paths, but God has that answer and He will help us thru it if we ask.

I am not preaching religion but believe this with all my heart. Each and

every person has the right to believe what they want but I feel it levels out

the valleys and peaks. Phyllis

[Guest guest]

Marie: I'll take the ten pounds you are offering. But I don't want them in the

bat wings. Anywhere else will do as long as it can be used to lift a few places

back north.

I'm contemplating whether I can make it to the picnic now...I'll decide in a few

days after I talk to my sister.

Hope to see you there!

Flo

[Guest guest]

Welcome Marie...I to had transfusion in 1974 after tubal pregnancy ruptured and

didnt find out until 1994. Then I was told nothing could be done so I stewed

until now. I am in my fifth week of just the pegintron and my viral lode

dropped from 1,650,000 to 650,000 after the third shot. The outlook is good for

me and I will pray for you as well. No need to feel alone...we are all rooting

for you.

Hugs and Prayers

Sandy

Marie Kuhn <mariemk@...> wrote:Hi everyone,

I've had Hep C since I received a blood transfusion in 1979 but only found

out about it in 1996, when I gave blood for my knee surgery. I'm sure this

is a very familiar story. I tried the interferon monotreatment in 1997-98,

and responded, but relapsed in about 6 months.

Now that my viral load is back around 2 million and my liver enzymes are

elevated again, my doctor is putting me on the combo treatment of Peg-Intron

and Rebetol beginning the middle of January, after my granddaughters first

birthday. I don't want to be sick for that.

I've read some books and internet sites on Hep C, but am beginning to feel

alone all over again. I'm looking forward to meeting others in the group

and to learn of other peoples experiences.

Thanks for being here,

Marie in NW Florida

[Guest guest]

Marie: By all means if you like your doctor then stay with him. Good doctors

are hard to find these days and if he is willing to study up on the disease then

he is the one you should stay with. I am with my regular medical doctor cause

my specialist is a jerk. He told me that he wouldnt consider treatments cause I

was too fat!...What a jerk..he even went so far as to tell me to go on a 500

calorie diet. I felt like slapping him but just left. I guess he thinks he

knows it all. It is hard enough to feel energetic with food, but to starve

myself is not in the plan.

God Bless and take care

Sandy

Marie Kuhn <mariemk@...> wrote:Thanks to everyone on the advice with the

viral load test. As far as my

internist goes, he's been my doctor for a long time and has been studying up

on Hepatitis C for a good while. He was my doctor when I was on the

interferon monotreatment. He has learned more about the combo treatment,

too. He's a caring and attentive doctor. There is only one

gastroenterologist within miles (we live in a small town) and he's a real

!#@ & #, if you know what I mean. I tried him once and was really put off. I

couldn't trust him. He'll tell me things that I knew were wrong and would

get upset if I seemed to know what I was talking about. Like, patients are

suppose to be dumb and not know anything. I was just a number to him.

Anyway, I think I'll do OK with my internist. He has a friend out of town

who's a gastroenterologist and he speaks to him from time to time, too. He

has really gone above and beyond the call of duty for me. It's hard to say

that about lots of doctors.

Thanks,

Marie

[Guest guest]

Good luck to you and GOD bless...Just remember that God wont give us anything we

cant handle...but like I say...I just wish He didnt trust me so much...LOL

Have a very Blessed Christmas

Sandy

Marie Kuhn <mariemk@...> wrote:I finally did it. I called my doctor's

office and left a message that asked

him to schedule a liver biopsy for me. He's always said it was up to me

whether I wanted to have it done or not. Everyone has convinced me that I

really should do it. Hopefully, I'll get a call back from him soon.

I'll update everyone when I hear from him.

Marie

[Guest guest]

Marie that all we can do is learn. I believe that some doctors out there really don't have a clue on HepC. Last treatment I did not take antidepressant because I never had a depressant problem before. Half why though the treatment around five I found out that my behavior was out of control. I should have taken them so this time I am going to take them. LaDonna

[Guest guest]

Thanks for the information. I'll bring this up with my doctor when I see

him in about a week. So far, I haven't needed an antidepressant, so maybe I

can do without one this time around. I had asked him for the Wellbutrin,

because it had helped me the firt time I was on interferon and it helped

with some depresssion. The first time, my psychiatrist had given it to me.

Hopefully, I won't need it this time, but if I do, I'll find something

that's not as bad for my liver.

Marie

>PLEASE DO A Search for wellbutrin. It is not liver friendly.... Is this a

>liver Dr???

>copy all info ya find ask pharmists. Will have pkg insert?? take to Dr. and

>ask why wants to kill U. Pete G

> " Chance favors the prepared mind "

>Louis Pasteur

>

>** If you can't be a good example then you have to be a horrible warning**

>

>Da YOOPER

><HTML>

>

[Guest guest]

I did not start treatment on Monday but will this coming Monday. I went in a the Doctor and he said one of the side effects is a detached retina and bleeding of the retina he would not start me until I went to have my eyes checked so he made me go to the eye doctor and get my eyes checked before they would give me the medicine. I found out that I now need glasses too. One more thing! Plus he has arranged for me to see a councilor on a regular basis because of the problems I had last treatment. Did any of you know about the retina problem?

I feel so sad about causing all this confusion. I just wanted to talk with someone instead of getting the jokes. I am so sorry. I'll go back to deleting again or leave.

[Guest guest]

Just delete, but don't leave. I need you guys.

I've never heard of the retina problems, but at least you found out that you

need glasses, right? You might not feel well with treatment, but you'll

be able to see to give yourself the injections now.

Hang in there,

Marie

At 01:56 PM 02/20/2003 EST, you wrote:

>I did not start treatment on Monday but will this coming Monday. I went in a

>the Doctor and he said one of the side effects is a detached retina and

>bleeding of the retina he would not start me until I went to have my eyes

>checked so he made me go to the eye doctor and get my eyes checked before

>they would give me the medicine. I found out that I now need glasses too. One

>more thing! Plus he has arranged for me to see a councilor on a regular basis

>because of the problems I had last treatment. Did any of you know about the

>retina problem?

>I feel so sad about causing all this confusion. I just wanted to talk with

>someone instead of getting the jokes. I am so sorry. I'll go back to deleting

>again or leave.

><HTML>

>

[Guest guest]

La donna,

I have never heard that but I do know that the treatment can cause side affects that deal with the eyes.So that test worked out to be a plus any way. Love Teri

Re: Marie

I did not start treatment on Monday but will this coming Monday. I went in a the Doctor and he said one of the side effects is a detached retina and bleeding of the retina he would not start me until I went to have my eyes checked so he made me go to the eye doctor and get my eyes checked before they would give me the medicine. I found out that I now need glasses too. One more thing! Plus he has arranged for me to see a councilor on a regular basis because of the problems I had last treatment. Did any of you know about the retina problem? I feel so sad about causing all this confusion. I just wanted to talk with someone instead of getting the jokes. I am so sorry. I'll go back to deleting again or leave.

[Guest guest]

Hi Pam,

I'm in Niceville, FL, south of Crestview and north of Destin and Ft. Walton

Beach. I know where Milton and the other cities you mentioned are. My

daughter and son are in Pensacola. I haven't met anyone else in NW Florida

who is a fellow hepper. Maybe one day I can.

Marie

At 01:43 AM 7/1/2003 -0400, you wrote:

><html><body>

>

>

><tt>

>Hi Marie........ can I ask where you are in NW Florida? & nbsp; My sis lives

in<BR>

>Quincy and my good hepper friend Tricia lives in Milton. & nbsp; Have many

friends<BR>

>in Pensacola. & nbsp; I used to live in Tallahassee. & nbsp; & nbsp; Was just

wondering & nbsp; :-) & nbsp; and<BR>

>I agree.....that was a GREAT Vaseline story & nbsp; LOL & nbsp; :-)<BR>

><BR>

>Peace and Love,<BR>

><BR>

>·´¨¨)) -:¦:-<BR>

>¸.·´.·´¨¨))<BR>

>((¸¸.·´ ..·´ -:¦:-Pam<BR>

>-:¦:- ((¸¸.·´*<BR>

><BR>

><BR>

> & quot;I have studied many philosophers and many cats. The wisdom of cats is<BR>

>infinitely superior. & quot; & nbsp; - Hippolyte Taine<BR>

><BR>

> Re: Re: ONE MORE DUMB THING ABOUT HAIR<BR>

>(dont shoot)<BR>

><BR>

><BR>

> My scalp has been really dry since I started treatment. & nbsp; Someone<BR>

>recommended the Head and Shoulders Dry Scalp formula and it seems to be<BR>

>helping. & nbsp; So<BR>

><BR>

><BR>

><BR>

>---<BR>

>Outgoing mail is certified Virus Free.<BR>

>Checked by AVG anti-virus system (<a

href= " http://www.grisoft.com). " >http://www.grisoft.com).</a><BR>

>Version: 6.0.487 / Virus Database: 286 - Release Date: 06/02/2003<BR>

><BR>

></tt>

>

><br>

>

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[Guest guest]

Hi Pam,

If you don't have my email address already, let me know where to send it.

I'd like to meet others in my area. There was a support group in Shalimar

(near Ft. Walton Beach), but I found out they don't meet any more. I

haven't seen anything on a Destin group.

Thanks,

Marie

t 12:50 AM 7/2/2003 -0400, you wrote:

><html><body>

>

>

><tt>

>Hi Marie. & nbsp; That finally rings a bell & nbsp; & nbsp; LOL & nbsp; & nbsp; We

have talked before & nbsp; :-)<BR>

>Tricia spends most of her time on Jims-Compassion list. & nbsp; & nbsp; I would

like to<BR>

>put you two in touch with each other. & nbsp; & nbsp; She doesn't know many

people in<BR>

>person in her area either. & nbsp; & nbsp; Would it be okay if I forwarded your

email to<BR>

>her? & nbsp; & nbsp; I think that would be great if the two of you could at

least phone<BR>

>each other but better if you got to meet in person. & nbsp; & nbsp; Anyway, let

me<BR>

>know........ I don't pass on addys or numbers without checking

first. & nbsp; & nbsp; Take<BR>

>care!<BR>

>BTW...... I love that area. & nbsp; & nbsp; There was a support group in Destin

and in Ft.<BR>

>Walton a few years ago. & nbsp; I visited them once. & nbsp; Don't know if they

are still<BR>

>there or not. & nbsp; I found them through EmeraldCoastHeppers or something

like<BR>

>that on but no one has posted there in quite awhile either. & nbsp;

TTYL<BR>

><BR>

>Peace and Love,<BR>

><BR>

>·´¨¨)) -:¦:-<BR>

>¸.·´.·´¨¨))<BR>

>((¸¸.·´ ..·´ -:¦:-Pam<BR>

>-:¦:- ((¸¸.·´*<BR>

><BR>

><BR>

> & quot;I have studied many philosophers and many cats. The wisdom of cats is<BR>

>infinitely superior. & quot; & nbsp; - Hippolyte Taine<BR>

><BR>

> Re: Marie<BR>

><BR>

><BR>

>Hi Pam,<BR>

>I'm in Niceville, FL, south of Crestview and north of Destin and Ft. Walton<BR>

>Beach. & nbsp; I know where Milton and the other cities you mentioned

are. & nbsp; My<BR>

>daughter and son are in Pensacola. & nbsp; I haven't met anyone else in NW

Florida<BR>

>who is a fellow hepper. & nbsp; Maybe one day I can.<BR>

><BR>

>Marie<BR>

><BR>

><BR>

><BR>

>---<BR>

>Outgoing mail is certified Virus Free.<BR>

>Checked by AVG anti-virus system (<a

href= " http://www.grisoft.com). " >http://www.grisoft.com).</a><BR>

>Version: 6.0.487 / Virus Database: 286 - Release Date: 06/02/2003<BR>

><BR>

></tt>

>

><br>

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[Guest guest]

Hi Teri,

I sure don't want another biopsy, even though I didn't have any problems

with my first one. I had heard that a CAT scan can show cirrhosis, but

that's all. In one of my Anatomy books it showed pictures from a CAT

scan of a regular liver and one with cirrhosis. Scary pictures!!

Marie

At 08:29 PM 11/8/2003, you wrote:

>Dear Marie,

>

>Wish I would have read this one before i sent the other one to you! The

>only way to find liver damage is a liver biopsey! Doesn't matter how bad

>or little damage there is that's the only way!

>

>Like I told Suzie you might want to do some research on liver biopseys

>because they have been changing there tune on wether it's worth the other

>risk factors. Hopefully you won't have to worry about doing it again!!

>

>Take care!

>

>Love,Teri

>

>

>

>

[Guest guest]

Hi Teri,

My thyroid gland is under active. I take .125 mg of Synthroid. I didn't

know about the Soy Protein. I'm glad you mentioned it. I can't drink milk

because I'm lactose intolerant, and ususlly drink the Lactaid milk. My

daughter had suggested Soy Milk and I hadn't gotten it yet. What reason

were you given about the Soy Milk?

I'll have more tests in March. The PCR test that I had in December just

showed that the virus was back, but not the viral load number, so in March

I want to know the viral load number. I've been feeling really great the

last few weeks. My energy has returned since being off of treatment. I

feel as good as new (for someone with cirrhosis). I get tired in the

evenings, but I guess that's normal for me. I'm getting back into my

volunteer work and Bible studies at my church now. It feels good to be

active again.

Marie

At 02:06 AM 1/6/2004, you wrote:

>Dear Marie,

>Well I was just real curious because of the fact they found mine prior to

>finding the Hep so I'm sure I had the Hep C first. I do know the Hep C can

>bring on lots of little helpers! So to speak!

>

>I have to take a yellow one then a pink one, because that's the only way

>they can keep mine normal. Do you have an underactive or over active? Mine

>is is underactive. You do know you can't do any soy products don't you?

>They are a no no, I was going to try something, can't even remember what

>it was now, called my pharmacist and they said deffinately not. Yeah I

>will have to take it forever also. I see an endocrinologist for mine.

>

>So how is your hep doing? I will go get my labs done sometime before May

>then to see my Gastro to see what he thinks I should do. So you don't have

>any symptoms from the Hep? I wish in ways I didn't, but guess if I didn't

>I wouldn't have I wouldn't have pursued my health problems.

>

>Well I have to go get my clothes out of the dryer! You take care!

>

>Love,Teri

>

>

>

>

>----------

>

[Guest guest]

Hi Teri,

Thanks for the info on the soy. I'll have to pass it on to my daughter,

too. She's always drinking Soy Milk.

Marie

At 06:54 AM 1/10/2004, you wrote:

>Dear Marie,

>About the soy: It is toxic to your thyroid, also toxic to estrogen

>sensitive tissue. Soy may cause cancer and brain damage. Warning!!!!!Do

>not give soy milk or formula to infants and children, has adverse affects

>on animals.

>

[Guest guest]

-Hi, Guys,

just want to put my two cents in here....don't be too quick to bash

soy, some babies need it to live. My first and only nephew may have

died if it were not for soy. He had all the formula and milk

alergies, and soy basicly saved his life. He is now 1 years old and

thriving, has gained weight and can keep food down. My step sister

thanks God every day for soy. For me I was lucky and breast fed all

my babies with great sucess.

Just my opinion, when it comes to Hep C and soy or adults I don't

know any different.....also on long term effects, I don't know, all I

know is my nephew is strong, alert, hungry, healthy and where he

should be at this age.

Thanks for listening,

Kiss

-- In Hepatitis C , Marie Kuhn <mariemk@c...> wrote:

> Hi Teri,

> Thanks for the info on the soy. I'll have to pass it on to my

daughter,

> too. She's always drinking Soy Milk.

> Marie

>

> At 06:54 AM 1/10/2004, you wrote:

> >Dear Marie,

> >About the soy: It is toxic to your thyroid, also toxic to estrogen

> >sensitive tissue. Soy may cause cancer and brain damage.

Warning!!!!!Do

> >not give soy milk or formula to infants and children, has adverse

affects

> >on animals.

> >

[Guest guest]

Hi,

I'll have my liver function, CBC, and Thyroid test on November 16th. If I

didn't already have cirrhosis, I might consider waiting for another

treatment, but they say something new is years away. Good luck with your

doctor appointment. I hope you have good lab test results.

Marie in NW Florida

At 08:53 PM 10/30/2004, you wrote:

>Hi Marie. Hope everything is OK with you. I go back to the Doc on the 15.

>Yes, all that poking and picking again.lol. I hate it don't you? I already

>did

>the TX. I am not going to do it again until they come out with something

>else. I

>feel great and I think that's all that matters at this time. Well, good luck.

>Take care of

>True.

>

>

>

[Guest guest]

Deb & her

family evacuated and were safe with the son-in-law’s family. But Deb can’t get proper medical treatment there, so she’s

going to stay with Pat. That’s the short version anyway.

Eddie

in Buloxi is OK, too.

How’s

your mom?

Love,

De

Re:

Group

Hi Pat,

How are you gal? Hope and pray all is well with

you. I got a chance to get on line again after an entire year of not

being on, it was so good to catch up. However I have been up at the

hospital with my Mother for two weeks and were not able to check in - can you

tell me how Deb is and what is going on with her?

Thanks so much

And take care and God Bless you all

Marie

[Guest guest]

Thank you De, They lost everything!

RE: Marie

Deb & her family evacuated and were safe with the son-in-law’s family. But Deb can’t get proper medical treatment there, so she’s going to stay with Pat. That’s the short version anyway.

Eddie in Buloxi is OK, too.

How’s your mom?

Love,

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of DaviesSent: Wednesday, September 07, 2005 10:00 PMHepatitis CSupportGroupForDummies Subject: Re: Group

Hi Pat,

How are you gal? Hope and pray all is well with you. I got a chance to get on line again after an entire year of not being on, it was so good to catch up. However I have been up at the hospital with my Mother for two weeks and were not able to check in - can you tell me how Deb is and what is going on with her?

Thanks so much

And take care and God Bless you all

Marie

[Guest guest]

,

I am so sorry, I had no idea that Deb lived on the coast or at least not in that area. Good Lord - I am so.............. sorry!! I have been watching CNN and CSNBC around the clock, and I usually am crying and praying while watching, I have donated money, but it just doesn't feel like enough. I wish there was more that I could do.

Thanks for asking about Mom - she is back in the hospital again, she came home for 4 weeks and now is back, I guess it's been 12 days now or so.

I am just doing what I can for her, and lost of prayers...

I hope all is well with you Girl - stay in touch

Here is my number # 720-859-7009

Call me sometime, I have misplaced yours...

And please let me know if there is something I can do for Deb or any of these catastrophy victoms. I will help any way I can

May God Bless You and all and keep you and the katrina victoms and family in his loving arms

By Gods Grace Only,

Marie

Pat McBride <pmcbride1@...> wrote:

Thank you De, They lost everything!

RE: Marie

Deb & her family evacuated and were safe with the son-in-law’s family. But Deb can’t get proper medical treatment there, so she’s going to stay with Pat. That’s the short version anyway.

Eddie in Buloxi is OK, too.

How’s your mom?

Love,

De

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of DaviesSent: Wednesday, September 07,

2005 10:00 PMHepatitis CSupportGroupForDummies Subject: Re: Group

Hi Pat,

How are you gal? Hope and pray all is well with you. I got a chance to get on line again after an entire year of not being on, it was so good to catch up. However I have been up at the hospital with my Mother for two weeks and were not able to check in - can you tell me how Deb is and what is going on with her?

Thanks so much

And take care and God Bless you all

Marie

Click here to donate to the Hurricane Katrina relief effort.