Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 I am looking forward to Deb & Eddie telling us their specific needs so we can help in more ways than just prayer. , I’ll call you this weekend. Re: Marie , I am so sorry, I had no idea that Deb lived on the coast or at least not in that area. Good Lord - I am so.............. sorry!! I have been watching CNN and CSNBC around the clock, and I usually am crying and praying while watching, I have donated money, but it just doesn't feel like enough. I wish there was more that I could do. Thanks for asking about Mom - she is back in the hospital again, she came home for 4 weeks and now is back, I guess it's been 12 days now or so. I am just doing what I can for her, and lost of prayers... I hope all is well with you Girl - stay in touch Here is my number # 720-859-7009 Call me sometime, I have misplaced yours... And please let me know if there is something I can do for Deb or any of these catastrophy victoms. I will help any way I can May God Bless You and all and keep you and the katrina victoms and family in his loving arms By Gods Grace Only, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 AWWW chris,, actually YOU ARE Right!!! being in love IS a choice,, the other is lust,, so one CAN choose to be in love with someone,, I was so very fortunate to meet my a year before I found out I had this awful virus,, he has been my rock and has helped me to make it through tx along with all those here too.. but I would have to say that I agree with you fully that being in love with someone and keeping a positive outlook on life CAN make the difference in tx,,, however,,,I remember how hard it was to keep a positive attitude while feeling so crappy on tx,, NO way are you going to get ignored,, you are part of our family here now,, we dont do that to anyone,, unless they become a maniac and start calling names,, hehe,, only have seen that twice here in all the years I have been a member! hugs jaxHunter <us2china2@...> wrote: Please, please, please! Don't apologize. It's not needed in this case. If you were reading posts here, it would be very easy to think I had specific plans... I did! If you missed one of my posts you might have no idea that she called off the wedding. No big! I have become pretty darn good at handling rejection. I'm glad you've been in love before, even if only once. I think its the best feeling! I credit my turn-around in health to the fact that I was in love. (Very happy for three months of more.) Nothing else changed. Not my diet, meds, sleep habbits, etc. It must be love. So, I suggest to everyone that reads this: Find somebody to love! then tell them you are "In love" with them. Then tell many people that you are "in love". You will begin to believe it, and that's all that matters. As for there being "a" special person... Maybe. I think everyone is that special person. It is just a matter of timing and looking at the person with loving eyes. Beauty is in the eye of the beholder. So, now that I've truely expossed what kind of nut I am, I suppose I'll be dropped from the membership list, put on "ignor" by all who know me from here, and have to find a new place to write my crazy ideas. I REALLY doubt it. People here are too loving and understanding for that. ((((((((((Group Hug)))))))))) Love to all, Eat well, sleep well, love! Davies <davies@...> wrote: I apologize, I thought you were making wedding plans as in getting married to someone in particular. My fault - I didn't read correctly. I believe there is someone out there for everyone, and I also believe there is a difference between loving someone and being "on-love". In my 41 years I have been "in-love" once, although I have had relationships and loved others, I just wasn't in-love. Anyway, I feel very blessed to have known it once, so if it happens again, GREAT - if it doesn't I am just happy for the time I did have... You sound like a very special person, and I am sure you will find that one special person - just don't ever loose hope my friend. Don't ever give up or give in Love, hugs, and prayers marie -- I think my results improved because... . I have been "in love" and very happy for the last three months.Hey , and everyone else for that matter, if you have time, can you find something that quantifies or validates the idea that being happy is good for your health? Let¡¯s see how much proof we can bring together in the next few days. I¡¯ve known/felt this to be true for quite some time, but in today¡¯s world of scientific proofs, and ¡°accepted¡± knowledge, I¡¯d like to have something to point to and say, ¡°You see! It¡¯s not just me, this study proves it.¡±I just got test results back from my latest blood test. My meds have not changed, and my previous tests showed my condition worsening. I was not as happy at that time as when the blood was drawn for my most recent test. I was very happy, in love, and planning a marriage when my most recent blood tests were drawn. Today I went to get the results, thinking that I will have to go back on Inf+Rib again. My doctor says, ¡°I¡¯ve got great news for you!¡± And she most certainly did. All liver functions are in the normal range, and my viral load is the lowest its been since it returned after TX. So, I conclude that it is either happiness, being in love, or planning for the future that caused a spontaneous increase in my overall health. I think one big part of being in love is the happiness that comes with it, and that the planning I was doing also gave me feelings of happiness, since I was planning happy stuff.Today I¡¯m very happy! And tomorrow I will wake and say ¡°This is a great day, and I¡¯m happy to be alive!¡±Magic WordsMagic words are magic seedsIn our minds and in our deedsOur words when spoken Become a tokenOf our consentAnd our intent¡°I am happy!¡±And I am.Eat well, sleep well, be happy! It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 I know what you mean about it being difficult to stay positive while on RX. The INT+RIB treatment was very hard on me. I have shunned all western medicines since. I would do without the herbals if I could stay happy enough all the time, but I battle chronic depression. Some days I'm fine. Others, less than fine. The herbals give my liver a better chance of staying healthy, even on the down days. I know you won't kick me out just because I'm weird. I like to think of myself as unique, just like everybody else. Hugs, Eat well, sleep well, be happy!Jackie on <redjaxjm@...> wrote: AWWW chris,, actually YOU ARE Right!!! being in love IS a choice,, the other is lust,, so one CAN choose to be in love with someone,, I was so very fortunate to meet my a year before I found out I had this awful virus,, he has been my rock and has helped me to make it through tx along with all those here too.. but I would have to say that I agree with you fully that being in love with someone and keeping a positive outlook on life CAN make the difference in tx,,, however,,,I remember how hard it was to keep a positive attitude while feeling so crappy on tx,, NO way are you going to get ignored,, you are part of our family here now,, we dont do that to anyone,, unless they become a maniac and start calling names,, hehe,, only have seen that twice here in all the years I have been a member! hugs jaxHunter <us2china2@...> wrote: Please, please, please! Don't apologize. It's not needed in this case. If you were reading posts here, it would be very easy to think I had specific plans... I did! If you missed one of my posts you might have no idea that she called off the wedding. No big! I have become pretty darn good at handling rejection. I'm glad you've been in love before, even if only once. I think its the best feeling! I credit my turn-around in health to the fact that I was in love. (Very happy for three months of more.) Nothing else changed. Not my diet, meds, sleep habbits, etc. It must be love. So, I suggest to everyone that reads this: Find somebody to love! then tell them you are "In love" with them. Then tell many people that you are "in love". You will begin to believe it, and that's all that matters. As for there being "a" special person... Maybe. I think everyone is that special person. It is just a matter of timing and looking at the person with loving eyes. Beauty is in the eye of the beholder. So, now that I've truely expossed what kind of nut I am, I suppose I'll be dropped from the membership list, put on "ignor" by all who know me from here, and have to find a new place to write my crazy ideas. I REALLY doubt it. People here are too loving and understanding for that. ((((((((((Group Hug)))))))))) Love to all, Eat well, sleep well, love! Davies <davies@...> wrote: I apologize, I thought you were making wedding plans as in getting married to someone in particular. My fault - I didn't read correctly. I believe there is someone out there for everyone, and I also believe there is a difference between loving someone and being "on-love". In my 41 years I have been "in-love" once, although I have had relationships and loved others, I just wasn't in-love. Anyway, I feel very blessed to have known it once, so if it happens again, GREAT - if it doesn't I am just happy for the time I did have... You sound like a very special person, and I am sure you will find that one special person - just don't ever loose hope my friend. Don't ever give up or give in Love, hugs, and prayers marie -- I think my results improved because... . I have been "in love" and very happy for the last three months.Hey , and everyone else for that matter, if you have time, can you find something that quantifies or validates the idea that being happy is good for your health? Let¡¯s see how much proof we can bring together in the next few days. I¡¯ve known/felt this to be true for quite some time, but in today¡¯s world of scientific proofs, and ¡°accepted¡± knowledge, I¡¯d like to have something to point to and say, ¡°You see! It¡¯s not just me, this study proves it.¡±I just got test results back from my latest blood test. My meds have not changed, and my previous tests showed my condition worsening. I was not as happy at that time as when the blood was drawn for my most recent test. I was very happy, in love, and planning a marriage when my most recent blood tests were drawn. Today I went to get the results, thinking that I will have to go back on Inf+Rib again. My doctor says, ¡°I¡¯ve got great news for you!¡± And she most certainly did. All liver functions are in the normal range, and my viral load is the lowest its been since it returned after TX. So, I conclude that it is either happiness, being in love, or planning for the future that caused a spontaneous increase in my overall health. I think one big part of being in love is the happiness that comes with it, and that the planning I was doing also gave me feelings of happiness, since I was planning happy stuff.Today I¡¯m very happy! And tomorrow I will wake and say ¡°This is a great day, and I¡¯m happy to be alive!¡±Magic WordsMagic words are magic seedsIn our minds and in our deedsOur words when spoken Become a tokenOf our consentAnd our intent¡°I am happy!¡±And I am.Eat well, sleep well, be happy! It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 welll , from one weirdo to another, hehe,, just kidding hon... I love your sense of humor,,and I have a really off the wall sense of humor,, had to when working on the ambulance,, wouldnt have survived if I hadnt had a bloody sense of humor!!! I too suffer from depression.. Im learning about supplements for brain chemistry and will be moving towards treating my depression that way as I get closer to being done with my studies.. There is a wonderful book you might be interested in purchasing ,, its called "Conscious Eating" and it talks about brain chemistry and how one can effect a change of depression by certain foods that help to stabilize the seretonin and nor epi in the brain.. just a thought hon! hugs, jaxHunter <us2china2@...> wrote: I know what you mean about it being difficult to stay positive while on RX. The INT+RIB treatment was very hard on me. I have shunned all western medicines since. I would do without the herbals if I could stay happy enough all the time, but I battle chronic depression. Some days I'm fine. Others, less than fine. The herbals give my liver a better chance of staying healthy, even on the down days. I know you won't kick me out just because I'm weird. I like to think of myself as unique, just like everybody else. Hugs, Eat well, sleep well, be happy!Jackie on <redjaxjm@...> wrote: AWWW chris,, actually YOU ARE Right!!! being in love IS a choice,, the other is lust,, so one CAN choose to be in love with someone,, I was so very fortunate to meet my a year before I found out I had this awful virus,, he has been my rock and has helped me to make it through tx along with all those here too.. but I would have to say that I agree with you fully that being in love with someone and keeping a positive outlook on life CAN make the difference in tx,,, however,,,I remember how hard it was to keep a positive attitude while feeling so crappy on tx,, NO way are you going to get ignored,, you are part of our family here now,, we dont do that to anyone,, unless they become a maniac and start calling names,, hehe,, only have seen that twice here in all the years I have been a member! hugs jaxHunter <us2china2@...> wrote: Please, please, please! Don't apologize. It's not needed in this case. If you were reading posts here, it would be very easy to think I had specific plans... I did! If you missed one of my posts you might have no idea that she called off the wedding. No big! I have become pretty darn good at handling rejection. I'm glad you've been in love before, even if only once. I think its the best feeling! I credit my turn-around in health to the fact that I was in love. (Very happy for three months of more.) Nothing else changed. Not my diet, meds, sleep habbits, etc. It must be love. So, I suggest to everyone that reads this: Find somebody to love! then tell them you are "In love" with them. Then tell many people that you are "in love". You will begin to believe it, and that's all that matters. As for there being "a" special person... Maybe. I think everyone is that special person. It is just a matter of timing and looking at the person with loving eyes. Beauty is in the eye of the beholder. So, now that I've truely expossed what kind of nut I am, I suppose I'll be dropped from the membership list, put on "ignor" by all who know me from here, and have to find a new place to write my crazy ideas. I REALLY doubt it. People here are too loving and understanding for that. ((((((((((Group Hug)))))))))) Love to all, Eat well, sleep well, love! Davies <davies@...> wrote: I apologize, I thought you were making wedding plans as in getting married to someone in particular. My fault - I didn't read correctly. I believe there is someone out there for everyone, and I also believe there is a difference between loving someone and being "on-love". In my 41 years I have been "in-love" once, although I have had relationships and loved others, I just wasn't in-love. Anyway, I feel very blessed to have known it once, so if it happens again, GREAT - if it doesn't I am just happy for the time I did have... You sound like a very special person, and I am sure you will find that one special person - just don't ever loose hope my friend. Don't ever give up or give in Love, hugs, and prayers marie -------Original Message------- From: Hunter Date: 02/09/06 01:22:00 Hepatitis C Subject: Re: I think my results improved because... Thanks , I'll keep up what I can, and try to let you know when I do get married. I need to find a new fiancee first though. No problem! I was talking to a very cute young lady yesterday who said she'd marry me in a minute. I've known her for about a year, but as I told her yesterday, she's too young. (She's 20 and I'm 47) Not to worry, the right one will find me. Thanks again for the well wishes, Eat well, sleep well, be happy! Davies <davies@...> wrote: - Hey Congrats on your up coming marriage, and most important your "Happiness". I too believe that so much is a state of mind and how we react to things. And also congrats on your wonderful news from the Doctor - keep up the good work... Love, Hugs, and Prayers May God Continue to Bless Us All Marie -- I think my results improved because... . I have been "in love" and very happy for the last three months.Hey , and everyone else for that matter, if you have time, can you find something that quantifies or validates the idea that being happy is good for your health? Let¡¯s see how much proof we can bring together in the next few days. I¡¯ve known/felt this to be true for quite some time, but in today¡¯s world of scientific proofs, and ¡°accepted¡± knowledge, I¡¯d like to have something to point to and say, ¡°You see! It¡¯s not just me, this study proves it.¡±I just got test results back from my latest blood test. My meds have not changed, and my previous tests showed my condition worsening. I was not as happy at that time as when the blood was drawn for my most recent test. I was very happy, in love, and planning a marriage when my most recent blood tests were drawn. Today I went to get the results, thinking that I will have to go back on Inf+Rib again. My doctor says, ¡°I¡¯ve got great news for you!¡± And she most certainly did. All liver functions are in the normal range, and my viral load is the lowest its been since it returned after TX. So, I conclude that it is either happiness, being in love, or planning for the future that caused a spontaneous increase in my overall health. I think one big part of being in love is the happiness that comes with it, and that the planning I was doing also gave me feelings of happiness, since I was planning happy stuff.Today I¡¯m very happy! And tomorrow I will wake and say ¡°This is a great day, and I¡¯m happy to be alive!¡±Magic WordsMagic words are magic seedsIn our minds and in our deedsOur words when spoken Become a tokenOf our consentAnd our intent¡°I am happy!¡±And I am.Eat well, sleep well, be happy! It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Thank you jax! I was also treated at the VA for the depression. I tried about 8 different drugs, all of which had some strange effect. Maybe the side effects were all in my head, but that makes no difference really. They seemed real enough at the time. Food however, is a different story. I can eat near anything... and do! I'll try to get my sister to send me that book. I assume it was written by a reputable author.?.? Eat well, sleep well, be happy!Jackie on <redjaxjm@...> wrote: welll , from one weirdo to another, hehe,, just kidding hon... I love your sense of humor,,and I have a really off the wall sense of humor,, had to when working on the ambulance,, wouldnt have survived if I hadnt had a bloody sense of humor!!! I too suffer from depression.. Im learning about supplements for brain chemistry and will be moving towards treating my depression that way as I get closer to being done with my studies.. There is a wonderful book you might be interested in purchasing ,, its called "Conscious Eating" and it talks about brain chemistry and how one can effect a change of depression by certain foods that help to stabilize the seretonin and nor epi in the brain.. just a thought hon! hugs, jaxHunter <us2china2@...> wrote: I know what you mean about it being difficult to stay positive while on RX. The INT+RIB treatment was very hard on me. I have shunned all western medicines since. I would do without the herbals if I could stay happy enough all the time, but I battle chronic depression. Some days I'm fine. Others, less than fine. The herbals give my liver a better chance of staying healthy, even on the down days. I know you won't kick me out just because I'm weird. I like to think of myself as unique, just like everybody else. Hugs, Eat well, sleep well, be happy!Jackie on <redjaxjm@...> wrote: AWWW chris,, actually YOU ARE Right!!! being in love IS a choice,, the other is lust,, so one CAN choose to be in love with someone,, I was so very fortunate to meet my a year before I found out I had this awful virus,, he has been my rock and has helped me to make it through tx along with all those here too.. but I would have to say that I agree with you fully that being in love with someone and keeping a positive outlook on life CAN make the difference in tx,,, however,,,I remember how hard it was to keep a positive attitude while feeling so crappy on tx,, NO way are you going to get ignored,, you are part of our family here now,, we dont do that to anyone,, unless they become a maniac and start calling names,, hehe,, only have seen that twice here in all the years I have been a member! hugs jaxHunter <us2china2@...> wrote: Please, please, please! Don't apologize. It's not needed in this case. If you were reading posts here, it would be very easy to think I had specific plans... I did! If you missed one of my posts you might have no idea that she called off the wedding. No big! I have become pretty darn good at handling rejection. I'm glad you've been in love before, even if only once. I think its the best feeling! I credit my turn-around in health to the fact that I was in love. (Very happy for three months of more.) Nothing else changed. Not my diet, meds, sleep habbits, etc. It must be love. So, I suggest to everyone that reads this: Find somebody to love! then tell them you are "In love" with them. Then tell many people that you are "in love". You will begin to believe it, and that's all that matters. As for there being "a" special person... Maybe. I think everyone is that special person. It is just a matter of timing and looking at the person with loving eyes. Beauty is in the eye of the beholder. So, now that I've truely expossed what kind of nut I am, I suppose I'll be dropped from the membership list, put on "ignor" by all who know me from here, and have to find a new place to write my crazy ideas. I REALLY doubt it. People here are too loving and understanding for that. ((((((((((Group Hug)))))))))) Love to all, Eat well, sleep well, love! Davies <davies@...> wrote: I apologize, I thought you were making wedding plans as in getting married to someone in particular. My fault - I didn't read correctly. I believe there is someone out there for everyone, and I also believe there is a difference between loving someone and being "on-love". In my 41 years I have been "in-love" once, although I have had relationships and loved others, I just wasn't in-love. Anyway, I feel very blessed to have known it once, so if it happens again, GREAT - if it doesn't I am just happy for the time I did have... You sound like a very special person, and I am sure you will find that one special person - just don't ever loose hope my friend. Don't ever give up or give in Love, hugs, and prayers marie -- I think my results improved because... . I have been "in love" and very happy for the last three months.Hey , and everyone else for that matter, if you have time, can you find something that quantifies or validates the idea that being happy is good for your health? Let¡¯s see how much proof we can bring together in the next few days. I¡¯ve known/felt this to be true for quite some time, but in today¡¯s world of scientific proofs, and ¡°accepted¡± knowledge, I¡¯d like to have something to point to and say, ¡°You see! It¡¯s not just me, this study proves it.¡±I just got test results back from my latest blood test. My meds have not changed, and my previous tests showed my condition worsening. I was not as happy at that time as when the blood was drawn for my most recent test. I was very happy, in love, and planning a marriage when my most recent blood tests were drawn. Today I went to get the results, thinking that I will have to go back on Inf+Rib again. My doctor says, ¡°I¡¯ve got great news for you!¡± And she most certainly did. All liver functions are in the normal range, and my viral load is the lowest its been since it returned after TX. So, I conclude that it is either happiness, being in love, or planning for the future that caused a spontaneous increase in my overall health. I think one big part of being in love is the happiness that comes with it, and that the planning I was doing also gave me feelings of happiness, since I was planning happy stuff.Today I¡¯m very happy! And tomorrow I will wake and say ¡°This is a great day, and I¡¯m happy to be alive!¡±Magic WordsMagic words are magic seedsIn our minds and in our deedsOur words when spoken Become a tokenOf our consentAnd our intent¡°I am happy!¡±And I am.Eat well, sleep well, be happy! It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Personally, I think your attitude is wonderful and you are an amazing man. And you are very right about this group being loving and compassionate - from what I have seen, I think so too. We are all so blessed to have these groups to lean. Nonetheless, I am sorry about your broken engagement, I know it can be hard, even if we consider ourselves use to rejection. I have been through rejection once in my life, and it being the one man that I was "in-love" with, wouldn't ya know... LOL But just after that one time, I don't think it is something that I could ever get use to, I am probably the opposite and have somewhat closed my heart so that I don't have to endure it again. But then, we don't really have a choice who we love or who we fall "in - love" with - our hearts do that for us, and we usually don't have any control over our hearts. And as the old sane goes - a heart don't lie.. So even though I probably appear to be closed off from love, if it were to happen - it would just happen rather I tried to fight it or not... Talk about someone who is babbling on and on... LOL Now I might be kicked out ... LOL I have truly enjoyed chatting with you and look forward to getting to know you and the entire gang much better. And hopefully I can be of some sort of help to some of you all. I have still got mail to return Love, Hugs and Prayers to you all May God Bless you all Marie -- I think my results improved because... . I have been "in love" and very happy for the last three months.Hey , and everyone else for that matter, if you have time, can you find something that quantifies or validates the idea that being happy is good for your health? Let¡¯s see how much proof we can bring together in the next few days. I¡¯ve known/felt this to be true for quite some time, but in today¡¯s world of scientific proofs, and ¡°accepted¡± knowledge, I¡¯d like to have something to point to and say, ¡°You see! It¡¯s not just me, this study proves it.¡±I just got test results back from my latest blood test. My meds have not changed, and my previous tests showed my condition worsening. I was not as happy at that time as when the blood was drawn for my most recent test. I was very happy, in love, and planning a marriage when my most recent blood tests were drawn. Today I went to get the results, thinking that I will have to go back on Inf+Rib again. My doctor says, ¡°I¡¯ve got great news for you!¡± And she most certainly did. All liver functions are in the normal range, and my viral load is the lowest its been since it returned after TX. So, I conclude that it is either happiness, being in love, or planning for the future that caused a spontaneous increase in my overall health. I think one big part of being in love is the happiness that comes with it, and that the planning I was doing also gave me feelings of happiness, since I was planning happy stuff.Today I¡¯m very happy! And tomorrow I will wake and say ¡°This is a great day, and I¡¯m happy to be alive!¡±Magic WordsMagic words are magic seedsIn our minds and in our deedsOur words when spoken Become a tokenOf our consentAnd our intent¡°I am happy!¡±And I am.Eat well, sleep well, be happy! It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 I appreciate your kind words for me and the group. It's very nice here! You say you've only experienced rejection "ONCE"!!! Lucky you! You probably don't use the same accounting method I do. That or you have totally closed your heart. If you don't account the same way I do, good for you! If you have closed your heart, even to protect yourself from being hurt again, .... well, I guess that's your choice and I should say nothing. But I can't help it, I have to say something. Let's say your heart, and love, are like a party. If you've ever hosted a party, (at least the kind I used to attend) you know that some bad things can happen. Things get broken, people spill things, (like the contents of their stomach) arguements and even fights, or your spouse and best friend disappear for an hour and a half. Before the party, we never know who will do what, so we don't know who to invite and who to exclude. But remember, at the same party there is dancing and merryment, good food and drink, companionship and bonding, and flirting with your best friend's spouse who is also feeling strangely alone. My point is, if you don't let anyone come to the party, sure, you don't have to clean up vomit the next day, but you also have to dance by yourself. I try to love like there is nothing more important. I believe it's true. Janet, , or someone else here can probably even give "scientific research" that shows "crying can be good for us, even healthy" (How about it ladies?) So let someone in, have a dance, you don't really like that lamp in the corner anyway! Love to you, and this group of loving people, Eat well, sleep well, and well... LOVE! Davies <davies@...> wrote: - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 I know you are right about closing ones heart and I do understand about choosing to dance with others or alone. I would much rather dance with another, but I guess because of the pain and loss I went through, I guess you could say, that I will have to be love struck, so to speak. I will be totally "in-love" and he with me, and know it from the start - as I don't think I will be out looking if that makes any sort of sense to you all? I think some people dislike being alone so much that they are constantly looking for love, and maybe are even willing to settle for less, just so they won't have to be alone. Yet they grow to love this person, of course, but never knew what it was like to be "in-love". Now remember Gang - this is just simply my personal opinion and is in no way directed toward anyone. I guess just something that I learned along my way through life. I do understand what you said and meant and I do totally agree. And I still believe that our hearts choose who we love, and we don't have much control over that - what do you think? Hello and God Bless to you all Love, Hugs and Prayers Marie -- Re: Marie I appreciate your kind words for me and the group. It's very nice here! You say you've only experienced rejection "ONCE"!!! Lucky you! You probably don't use the same accounting method I do. That or you have totally closed your heart. If you don't account the same way I do, good for you! If you have closed your heart, even to protect yourself from being hurt again, .... well, I guess that's your choice and I should say nothing. But I can't help it, I have to say something. Let's say your heart, and love, are like a party. If you've ever hosted a party, (at least the kind I used to attend) you know that some bad things can happen. Things get broken, people spill things, (like the contents of their stomach) arguements and even fights, or your spouse and best friend disappear for an hour and a half. Before the party, we never know who will do what, so we don't know who to invite and who to exclude. But remember, at the same party there is dancing and merryment, good food and drink, companionship and bonding, and flirting with your best friend's spouse who is also feeling strangely alone. My point is, if you don't let anyone come to the party, sure, you don't have to clean up vomit the next day, but you also have to dance by yourself. I try to love like there is nothing more important. I believe it's true. Janet, , or someone else here can probably even give "scientific research" that shows "crying can be good for us, even healthy" (How about it ladies?) So let someone in, have a dance, you don't really like that lamp in the corner anyway! Love to you, and this group of loving people, Chris Eat well, sleep well, and well... LOVE! Davies <davies@...> wrote: - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 , this will probably sound like I disagree with you. Actually I don't. I think we can both be right, just seeing the same thing for a different perspective. Like if you stand on the beach, the ocean looks flat. But if you climb a mountain you can see that it is slightly curved. I only want you to be happy! If you are happy protecting your heart from being hurt, keep doing it. Just know that some of us will miss you at the party. YOU ARE INVITED! Eat well, sleep well, be happy! Davies <davies@...> wrote: I know you are right about closing ones heart and I do understand about choosing to dance with others or alone. I would much rather dance with another, but I guess because of the pain and loss I went through, I guess you could say, that I will have to be love struck, so to speak. I will be totally "in-love" and he with me, and know it from the start - as I don't think I will be out looking if that makes any sort of sense to you all? I think some people dislike being alone so much that they are constantly looking for love, and maybe are even willing to settle for less, just so they won't have to be alone. Yet they grow to love this person, of course, but never knew what it was like to be "in-love". Now remember Gang - this is just simply my personal opinion and is in no way directed toward anyone. I guess just something that I learned along my way through life. I do understand what you said and meant and I do totally agree. And I still believe that our hearts choose who we love, and we don't have much control over that - what do you think? Hello and God Bless to you all Love, Hugs and Prayers Marie -- Re: Marie I appreciate your kind words for me and the group. It's very nice here! You say you've only experienced rejection "ONCE"!!! Lucky you! You probably don't use the same accounting method I do. That or you have totally closed your heart. If you don't account the same way I do, good for you! If you have closed your heart, even to protect yourself from being hurt again, .... well, I guess that's your choice and I should say nothing. But I can't help it, I have to say something. Let's say your heart, and love, are like a party. If you've ever hosted a party, (at least the kind I used to attend) you know that some bad things can happen. Things get broken, people spill things, (like the contents of their stomach) arguements and even fights, or your spouse and best friend disappear for an hour and a half. Before the party, we never know who will do what, so we don't know who to invite and who to exclude. But remember, at the same party there is dancing and merryment, good food and drink, companionship and bonding, and flirting with your best friend's spouse who is also feeling strangely alone. My point is, if you don't let anyone come to the party, sure, you don't have to clean up vomit the next day, but you also have to dance by yourself. I try to love like there is nothing more important. I believe it's true. Janet, , or someone else here can probably even give "scientific research" that shows "crying can be good for us, even healthy" (How about it ladies?) So let someone in, have a dance, you don't really like that lamp in the corner anyway! Love to you, and this group of loving people, Eat well, sleep well, and well... LOVE! Davies <davies@...> wrote: - Helps protect you from nasty viruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Marie doesn't talk very often unless she feels it is important.She has her problems right now to deal with,plus work so she can only stretch herself so far.We probably won't hear from her until the doctor gets the test results back to her.She is a very strong lady emotionally. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Del ComptonSent: February 21, 2006 8:54 AMMy TP PosterPals/ HEPCop a Liver for me ASAP, now that I know I'm ESLD!!Cc: hepcingles2 Subject: Marie Buenos Dias.. Has anyone heard from Marie Davies lately? I'm not obssessing, but I believe she's going through a tough time now aand I don't know of a pattern (being new), she may display,,but have tried unsuccessfully to get in touch with her. I know she's noe petty, but even if she DIDN'T wanrt to talk to me, she would respond because of all of our UNIQUE SITUATION.... Does anyone know how to test a cyber microphone"" Can I call .....China.... with no per minute rate? Iy seems to work but I haven'y goyttn a resonse from anyone. There were some guys trying to break in though...sounded Russian...something about Mier?? Deli~Lama (I'm changing...a metanorphysis if you will, as the lowly caterpillar cra3wling on it's belly, after time, changes to a beautuiful, fling butterfly. \Intelligent too.....even though the brain of a Monar5ch Butterfly is theonly sme size as a Persian Lime. Relax. virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Dear , Yes it does take awhile to sink in, and I was a lot like you, I kept thinking " this really isn't happening to me " or " I'm going to wake up " or the test just have to be wrong " . Then I went through anger, then total denial, then blocking it out. I experienced every negative emotion that one can have. I too have always been more of a pessimist, glass half empty. However, through God, and counseling - I am slowly learning to change, and to find the positive and beauty in everything. Just like my hepatitis returning - I know deep down in my heart there are many good reasons why it has returned. First to bring my faith back to where it had been before. I had taken my health for granted again, there were times after I cleared the virus that I didn't take care of myself and I even partied again, as in drinking. As I reflect back to when I first got the hep, and facing my own mortality as one does when we have a chronic illness that can lead to early death - I remember how I became very humbled, how I stop to smell the roses, how I thanked God for every precious moment that he gave me on this earth. How all the little things that didn't mean so much - brought me so much joy. How I had to learn to lean on others, in fact complete strangers. I have always been very independent, and never had to depend on anyone, and it always seemed that every time I did, I always ended up hurt and let down in some way. I pushed people out of my life for years. I have always been a people person and have loved people in general - in the last 3 or 4 years, I ran them all off. I kept no one in my life except for my children and my grandkids, I buried myself in 2 jobs, and then went to take care of my Mother, therefor I buried myself in her life, so that I didn't have to look at mine. I had myself convinced that I didn't need or want anyone in my life, and in some ways I had become very bitter. There is so much more to the story - but I think you get my point. I believe that in everything that comes into our life, in all that we experience or endure - it is all with good reason, and something really wonderful will come out of it. I can tell you this much - if God would say to me " I can take back your Hep, as if you never had it, and give you back complete health " - I wouldn't do it for the world. I have met too many beautiful souls here on line. I have never seen them, but I cherish each and every one of them. Without the hep, I would have never been forced to trust others again, I would have never gotten to know these people, nor would I have ever been humbled, and most important I would have never known what it was like to walk in " Faith with the Lord " . I have stumbled, more than I care to say, and I am dreading this treatment more than you could know. However, I have the comfort in knowing that something beautiful will come out of it. I will be a better human being, a better friend, a better Christian, a better Mother, a better grandmother. Look, something wonderful has already happened - I have had the pleasure to meet you, and hopefully I can be of some help for you and you for me, and a new friend for life. It's funny that you said you adopted a pet - I too have beeen thinking about getting some kind of dog or kitty, as I could use the company. I have been a " caretaker " my whole life, I took care of so many that I neglected " " . I was at a point in my life if someone were to ask me what I needed or wanted in my life - I was clueless. And I think I figured out why I was always so compelled to do this, besides having an enormous heart; I believe by my taking care of others kept me from having to look at myself. I could solve everyone's problem snap, and couldn't even begin to know what to do for my own. I lost , I lost my identity, I became so co-dependent, that I got to where I was attracted to the needy. And the needy not only consumed me - the drained me. Now, after finding out that the hep has returned, I finally realize - it's time for me, I am forced to care for myself. I am forced to look directly in the mirror and face my flaws, so to speake, deal with them, and begin to heal. I hope some of this makes some sort of sense to you - it's late and I realize I am rambling on, for this I apologize. I hope that we can keep in touch, and if you decide to do the treatment, maybe we will be doing it together. I will close this up for now, I did want to tell you that I live in Kansas, I think I mentioned that I have 3 grown kids and two beautiful grand kids, that mean the world to me. I am 42yrs, just turned, I too am geno 1A, I had another biopsy last week, and I am stage1 grade 3, I praise the good Lord for these results, as I do know it could have been much worse. Okay - now it is your turn to tell me a little about yourself if and when you feel up to it. Know that I will be praying for you.. May God continue to bless and keep you and yours. Love, hugs, prayers, and peace Marie -- new to group > > Good morning all, > > My name is . I am 51 years old and I was diagnosed last month > w/hep c. My geno type is one which I understand is only 40-50 > responsive to treatment. Just had a liver biopsy this past > Wednesday, and the most difficult part for me was the local > injections at the site that they give to you ... triple ouch. > Unfortunately, I wasn't available for my doctor's phone call > yesterday, so will have to wait until after the holiday. > > Early in April, I started to feel lousy as if I was fighting a flu > bug, with on and off fevers, night sweats, no energy whatsoever, and > pains in my upper stomach. Went to the doctor thinking maybe I had > some gall bladder problems, and he sent me for an ultrasound and an > array of blood tests. No gall bladder problem, but my spleen was > swollen and my liver enzymes were high. > > I have been driving myself crazy, probably like everyone else, > trying to figure out where I got this virus. I had concluded that I > must have gotten it back in the 70s when I dabbled in drugs ... > snorting cocaine. In the back of my mind, however, I thought that I > must have gotten it from my on again, off again male friend of five > years because he was a former addict, and was never monogamous with > me when we were together. When I told him I was diagnosed with Hep > C and suggested that he get tested, he pretty much blew me off > telling me that he's been tested before and doesn't have it. Then > he pretty much blew me off. Only to find out recently that he > followed my advice, got tested, and guess what? He tested > positive. I had read that only 1 percent of the diagnosis contract > the disease through sexual contact -- wouldn't you know that that > would be me!! > > I've got a great sense of humor which I think is going to get me > through whatever happens. I adopted my very first dog from a rescue > organization a few weeks ago, a five year old Chihuahua, so I had a > little being to care for and think about rather than dwell on just > me. She is an absolute love ... but has had her problems too. Last > week the vet found a tumor on her chest and she had to have a doggy > mastectomy yesterday, and hopefully it won't be cancerous. > > Reading your postings, knowing that there are others going through > the same things, physically and emotionally, helps a lot. Take care. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hey Marie... I am curious, what is being done for your RA now? Is it likely to be better or worse during tx? Just me being nosey. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 hi pippa, im going to see my surgeon 25th nov, i will tell him about how im feeling, there is still a tightness there when i eat and ive choked 2 or 3 times the way i used to, my husband says he thinks i dont eat slow enough although i do try, .marie Marie Hi Marie I am sorry to hear that after you heller that you had six weeks ago that you don't seam to have noticed any difference.Have you been back to see your surgeon yet?It might be that you need a barium x-ray doing to see if some of the muscle fibers haven't quiet seperated enough, Meena had the same problem and went back for a dilation last week and has noticed a big improvement.I never put weight on I lost over two and half stone and now 5 weeks after my surgery I have put about 4 to 5 lbs back on and boy do I need to put the wieght back on I now weigh 6st 5lb.Take CarePippa (Northants, England) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Marie what sort of food are you eating I have been on a soft diet I eat chunky soups, weetabix or ready break, banana's and custard, ice cream, mashed potato and gravy. I know other here on the board were told to eat a soft and sloppy diet for the first 4 to 6 weeks to help the healing process. Do you chew the food till its completely mushy and drink fluids with your food to help it move down to your stomach? I am still feeling tight also that going to be there for a while did you have your heller by open or key hole surgery.? I am still waiting for my appointment to come through. could be right that there is still swelling, and if your eating hard and sharp food like crusty bread,crisps and crackers thing like that its not giving you oesophagus time to heal. Pippa x (ENGLAND) > > hi pippa, im going to see my surgeon 25th nov, i will tell him about how im feeling, there is still a tightness there when i eat and ive choked 2 or 3 times the way i used to, my husband says he thinks i dont eat slow enough although i do try, ..marie > Marie > > > Hi Marie I am sorry to hear that after you heller that you had six > weeks ago that you don't seam to have noticed any difference. > > Have you been back to see your surgeon yet? > > It might be that you need a barium x-ray doing to see if some of the > muscle fibers haven't quiet seperated enough, Meena had the same > problem and went back for a dilation last week and has noticed a big > improvement. > > I never put weight on I lost over two and half stone and now 5 weeks > after my surgery I have put about 4 to 5 lbs back on and boy do I need > to put the wieght back on I now weigh 6st 5lb. > > Take Care > > Pippa (Northants, England) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 pippa, my surgeon told me when i could eat in hospital i could go home, and then i was to take it easy, i wasnt told exactly what to eat, maybe ive been eating the wrong food, would this hinder my recovery ?,i always have to drink with a meal, im getting quite paranoid about making sure there is a drink waiting for me, it was keyhole surgery, maybe im expecting too much too soon, thanks for helping me......marie Marie> > > Hi Marie I am sorry to hear that after you heller that you had six > weeks ago that you don't seam to have noticed any difference.> > Have you been back to see your surgeon yet?> > It might be that you need a barium x-ray doing to see if some of the > muscle fibers haven't quiet seperated enough, Meena had the same > problem and went back for a dilation last week and has noticed a big > improvement.> > I never put weight on I lost over two and half stone and now 5 weeks > after my surgery I have put about 4 to 5 lbs back on and boy do I need > to put the wieght back on I now weigh 6st 5lb.> > Take Care> > Pippa (Northants, England)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Dear Marie, For the first few weeks you are still very fragile inside and you have to respect that by eating really sloppy food. Pippa has just been through this regime and has stuck to it like a little trooper and is feeling the benefits of it now. After 4-5 weeks it is safe to start progressing and then monitoring yourself and taking things step by step until you can eat anything again. What have you been eating during these six weeks? Please be honest, as that is the only way we can help you. Love from Ann (also in England) XXMarie <magicmarieuk@...> wrote: pippa, my surgeon told me when i could eat in hospital i could go home, and then i was to take it easy, i wasnt told exactly what to eat, maybe ive been eating the wrong food, would this hinder my recovery ?,i always have to drink with a meal, im getting quite paranoid about making sure there is a drink waiting for me, it was keyhole surgery, maybe im expecting too much too soon, thanks for helping me......marie Marie> > > Hi Marie I am sorry to hear that after you heller that you had six > weeks ago that you don't seam to have noticed any difference.> > Have you been back to see your surgeon yet?> > It might be that you need a barium x-ray doing to see if some of the > muscle fibers haven't quiet seperated enough, Meena had the same > problem and went back for a dilation last week and has noticed a big > improvement.> > I never put weight on I lost over two and half stone and now 5 weeks > after my surgery I have put about 4 to 5 lbs back on and boy do I need > to put the wieght back on I now weigh 6st 5lb.> > Take Care> > Pippa (Northants, England)> Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 i was careful for the first week or two, i was kinda scared to eat normally, then i went on to normal things like chicken and toast and stuff, do you think i have done something wrong, is that why i feel like choking again, i wasnt advised what to eat so i tried to chew slowly but i think ive done it too fast...marie Marie> > > Hi Marie I am sorry to hear that after you heller that you had six > weeks ago that you don't seam to have noticed any difference.> > Have you been back to see your surgeon yet?> > It might be that you need a barium x-ray doing to see if some of the > muscle fibers haven't quiet seperated enough, Meena had the same > problem and went back for a dilation last week and has noticed a big > improvement.> > I never put weight on I lost over two and half stone and now 5 weeks > after my surgery I have put about 4 to 5 lbs back on and boy do I need > to put the wieght back on I now weigh 6st 5lb.> > Take Care> > Pippa (Northants, England)> Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Dear Marie, I personally think that you have taken things too quickly and should have stayed on mushy stuff for at least four weeks after the surgery to give yourself the chance to heal properly. If I were you, I would backtrack a little now and start again with the easier food items and lots of water and take it gently from there. Chicken is very ambitious at that point, and toast is dodgy because it can scratch the oesophagus. I kept telling Pippa that if she ate like a six month-old baby for the first few weeks she would do ok. It has worked very well for her and it certainly did for me as well, so I think I am giving you good advice. It is not unusual that you are the only achalasian in the pack. It's the same for me at my GP's practice. He said to me that he had read about it at medical school but I was the first one he had ever met. So you see, we are very special people. Love from Ann XXMarie <magicmarieuk@...> wrote: i was careful for the first week or two, i was kinda scared to eat normally, then i went on to normal things like chicken and toast and stuff, do you think i have done something wrong, is that why i feel like choking again, i wasnt advised what to eat so i tried to chew slowly but i think ive done it too fast...marie Marie> > > Hi Marie I am sorry to hear that after you heller that you had six > weeks ago that you don't seam to have noticed any difference.> > Have you been back to see your surgeon yet?> > It might be that you need a barium x-ray doing to see if some of the > muscle fibers haven't quiet seperated enough, Meena had the same > problem and went back for a dilation last week and has noticed a big > improvement.> > I never put weight on I lost over two and half stone and now 5 weeks > after my surgery I have put about 4 to 5 lbs back on and boy do I need > to put the wieght back on I now weigh 6st 5lb.> > Take Care> > Pippa (Northants, England)> Send instant messages to your online friends http://uk.messenger. Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 things have changes a bit, we went out the other day to eat, i was feeling nervous, i had macaroni cheese and it just slid down, i was so excited and happy, yet at night i was eating tomato soup with a slice of bread and it just stuck,and i had to drink loads before it went down, i still get spasms since my op. which terrify me with the quickness they come on, but ive not had a really bad one for a while, I had my surgery on 13 sept. and i see my surgeon in 2 weeks time, what do i say, that its good or bad, i dont know... from marie (scotland) Marie Marie You had your surgery about the same time as me (mine is just over six weeks now) have things not improved for you since your surgery? Have you contacted your surgeon or consultant to let him know that you are still having problems?Pippa (England) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Marie, I've heard of the book but haven't read it yet. I forgot to mention that my daughter is Chinese. I think that HLA B27 presents a bit differently - I think it is less of an indicator of AS and related diseases in Chinese than among Caucasians in general. That is probably part of the reason she hasn't been tested yet. I feel very blessed to have found this group. Lianna's doctors have all been great, but I've learned more from this group than from all of them put together :-) Jo Anne OK - I know that fatigue is > > a > > > > big part of JIA, but do your children > > > > > face it constantly or is it something that comes and > > > > goes with a > > > > flare- > > > > > up? If I keep my daughter home with me for > > several > > > > days in a > > > > row , > > > > > she is fine. But going away (shop, visit > > friends, > > > > library . . .) > > > > > leaves her totally wiped out. > > > > > She's just started pre-school, two mornings a week > > and > > > > she comes > > > > home > > > > > so tired, she sleeps all afternoon. > > > > > Lianna has met with two different rheumys and they > > both > > > > are > > > > thinking > > > > > that her arthritis is secondary to something else - > > > > possibly > > > > crohn's > > > > > or liver disease. Most of her blood work is > > normal > > > > which is > > > > making a > > > > > real diagnosis even harder. > > > > > So, is continual faitigue just a part of the > > arthritis, > > > > or is it > > > > more > > > > > likely from whatever else is going on? Also, > > does > > > > anyone else > > > > have a > > > > > child with arthritis secondary to some other > > > > disease? Thanks so > > > > > much. > > > > > > > > > > Jo Anne, mama to a sleeping 5yr. old (ERA) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > > Building a website is a piece of cake. > > > > > Small Business gives you all the tools to get online. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 JoAnneThat is interesting...I wasn't aware that it was expressed differently in Asians. My son is also adopted, yet we do not know his heritage. I had also read somewhere that the HLA B27 gene was prominent in American Indians. All very interesting. Anyway, I'm so glad that you joined and I do hope that you find answer and comfort here. Its so hard watching your child struggle, and I hope that Lianna is feeling better very very soon. Take care. and Rob 18 Spondy Re: Marie > Marie,> > I've heard of the book but haven't read it yet. I forgot > to mention > that my daughter is Chinese. I think that HLA B27 presents > a bit > differently - I think it is less of an indicator of AS and > related > diseases in Chinese than among Caucasians in general. That > is > probably part of the reason she hasn't been tested yet.> > I feel very blessed to have found this group. Lianna's > doctors have > all been great, but I've learned more from this group than from > all > of them put together :-)> > Jo Anne> > OK - I know that fatigue is > > > a > > > > > big part of JIA, but do your children > > > > > > face it constantly or is it something that comes > and > > > > > goes with a > > > > > flare-> > > > > > up? If I keep my daughter home with me for > > > several > > > > > days in a > > > > > row , > > > > > > she is fine. But going away (shop, visit > > > friends, > > > > > library . . .) > > > > > > leaves her totally wiped out. > > > > > > She's just started pre-school, two mornings a > week > > > and > > > > > she comes > > > > > home > > > > > > so tired, she sleeps all afternoon. > > > > > > Lianna has met with two different rheumys and > they > > > both > > > > > are > > > > > thinking > > > > > > that her arthritis is secondary to something > else - > > > > > possibly > > > > > crohn's > > > > > > or liver disease. Most of her blood work > is > > > normal > > > > > which is > > > > > making a > > > > > > real diagnosis even harder. > > > > > > So, is continual faitigue just a part of the > > > arthritis, > > > > > or is it > > > > > more > > > > > > likely from whatever else is going on? > Also, > > > does > > > > > anyone else > > > > > have a > > > > > > child with arthritis secondary to some other > > > > > disease? Thanks so > > > > > > much. > > > > > > > > > > > > Jo Anne, mama to a sleeping 5yr. old (ERA)> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > > Building a website is a piece of cake. > > > > > > Small Business gives you all the tools to get online.> > > > > >> > > > > > > > > > > > > > >> > > >> > > > > > > > >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 I had no clue that Rob was adopted. --- snooksmama@... wrote: > JoAnne > That is interesting...I wasn't aware that it was > expressed differently in Asians. My son is also > adopted, yet we do not know his heritage. I had also > read somewhere that the HLA B27 gene was prominent > in American Indians. All very interesting. > Anyway, I'm so glad that you joined and I do hope > that you find answer and comfort here. Its so hard > watching your child struggle, and I hope that Lianna > is feeling better very very soon. > Take care. > and Rob 18 Spondy > Re: General Tiredness & > Secondary Arthritis > > > > > > > > > > > > > > > > , > > > > > > > > > > > > I definitely made a mistake - the LIVER > biopsy was to > > > > determine > > > > > > why > > > > > > Lianna's AST has been elevated for two > years - the > > > > COLONOSCOPY > > > > > > was to > > > > > > determine crohn's. Too many possibilities > rolling > > > > around > > > > > > in my head. > > > > > > > > > > > > I would say that, like , fatigue is > just as much > > if > > > > not > > > > > > more of > > > > > > an issue than pain. She has very little > visible > > > > swelling - > > > > > > just a > > > > > > little puffiness now and then. And the > pain she > > tells > > > > us > > > > > > is all the > > > > > > time - usually a #3 out of 5 - but she > really tries hard > > to > > > > > > forget it > > > > > > and be involved with whatever is going on. > Has > > > > > > been > > > > > > able to > > > > > > keep up with her class in school? We're > so > > concerned > > > > that > > > > > > if Lianna > > > > > > can't handle preschool, how will she ever > manage a whole > > day > > > > of > > > > > > kindergarten? I know, I'm looking too far > ahead :-0 > > > > > > > > > > > > We tried NSAID's for Lianna, but she her > stomach and > > bowels > > > > were > > > > > > very > > > > > > irritated. She has been on Sulfasalazine > for two > > > > months > > > > > > now and so > > > > > > far no change. She's had many intestinal > > > > problems: > > > > > > reflux, severe > > > > > > constipation, blood in stools and a very > nasty parasite > > (she > > > > > > spent > === message truncated === ________________________________________________________________________________\ ____ Don't let your dream ride pass you by. Make it a reality with Autos. http://autos./index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 a, Yes we night shifters have a lot in common. Keep on truckin'.................Lorettaa <blackfeet61@...> wrote: Marie, I know what you mean and how you feel being a higher BMI. My BMI is nearly 59 and it seems like so much to lose compared to 80 or 100 pounds. With that said, I will also say I'm sure the 80 or 100 pounds to lose seemed like a million to all those who have lived any part of their lives overweight too. I was in the 240-260 pound range from age 18 until age 36 and I remember never being able to get below 220 no matter how hard I tried or what I did. I gained nearly 100 pounds in less than a year after I began working nights. Had I known this would happen I may have chosen to remain unemployed and at home with my baby instead of thinking working nights was the best of both worlds. My baby is 12 now and I still work 60 hours a week at night to support my family. The only thing I know is that I can no longer stay in this body which limits my life as it does. I am scheduled for the Lapband with Dr. A and his team on March 27th. I can't wait to begin my new journey. I know it will work since I have made drastic changes over the past 5 years or so. I continue to address the issues in counseling which got me to this point and I enjoy the gym and my workouts so I believe I am ready for the final step. Good luck with your decisions and don't give up hope. aBipley <Bipleygmail> wrote: Someone please correct me if I am wrong, but wasn't it that lost over 200# and did it in something like 14-16 months? I hardly see her posting anymore. ( On Tue, Feb 26, 2008 at 4:25 PM, apanther97 <apanther97 > wrote: I am so very impressed with the success stories on this board. However I am curious, and I don't want this to come out wrong... and do not want it to sound disrespectful but it seems like alot of the stories are from those that were out to loose less than 100 lbs(not that that is a easy task). I have a BMI of 52 and have a lot of weight to loose. My goal is not going to be in LBS as much as I want that healty BMI of 25. I would like to hear some success stories of those that were in a similiar situation. How long it took, Banded, sleeved or bypassed? Have you been able to maintain etc.... you can email me privatly if you perfer not to post on the board. Thanks in advance.Marie Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I don't post often but I have lost 148lbs in less then 18 months it has been rather easy process with the help of my magic band. I feel like a young kid again (I am 51 years young). I still have a hard time believing that its me in the mirror and not someone else. If you have further questions or need help you can contact me any time. Kathy Jemison 288/144/135 Re: Marie a, Yes we night shifters have a lot in common. Keep on truckin'.... ......... ....Lorettaa <blackfeet61> wrote: Marie, I know what you mean and how you feel being a higher BMI. My BMI is nearly 59 and it seems like so much to lose compared to 80 or 100 pounds. With that said, I will also say I'm sure the 80 or 100 pounds to lose seemed like a million to all those who have lived any part of their lives overweight too. I was in the 240-260 pound range from age 18 until age 36 and I remember never being able to get below 220 no matter how hard I tried or what I did. I gained nearly 100 pounds in less than a year after I began working nights. Had I known this would happen I may have chosen to remain unemployed and at home with my baby instead of thinking working nights was the best of both worlds. My baby is 12 now and I still work 60 hours a week at night to support my family. The only thing I know is that I can no longer stay in this body which limits my life as it does. I am scheduled for the Lapband with Dr. A and his team on March 27th. I can't wait to begin my new journey. I know it will work since I have made drastic changes over the past 5 years or so. I continue to address the issues in counseling which got me to this point and I enjoy the gym and my workouts so I believe I am ready for the final step. Good luck with your decisions and don't give up hope. aBipley <Bipleygmail (DOT) com> wrote: Someone please correct me if I am wrong, but wasn't it that lost over 200# and did it in something like 14-16 months? I hardly see her posting anymore. ( On Tue, Feb 26, 2008 at 4:25 PM, apanther97 <apanther97 (DOT) com> wrote: I am so very impressed with the success stories on this board. However I am curious, and I don't want this to come out wrong... and do not want it to sound disrespectful but it seems like alot of the stories are from those that were out to loose less than 100 lbs(not that that is a easy task). I have a BMI of 52 and have a lot of weight to loose. My goal is not going to be in LBS as much as I want that healty BMI of 25. I would like to hear some success stories of those that were in a similiar situation. How long it took, Banded, sleeved or bypassed? Have you been able to maintain etc.... you can email me privatly if you perfer not to post on the board. Thanks in advance.Marie Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Gabby Thank you for your kindness. I know what you mean. It hasn't been a good year so far for our family. My husband has lost 6 aunts & uncles and Saturday a 47 yr. old girlfriend of a relative died of a brain tumor that she was misdiagnosed with over a year ago. So sad to think that if the doctors had done a better job a long time ago she might have had a better chance. I sure hope the rest of the year is better because I don't know if I can take much more bad news. Natural thumbs up! > > OK OK OK, so 100% natural is not for everybody. Myself, I am taking baby > steps where I can and as I become aware. Sometimes my hubby calls me his > gypsy.. I donno, whateeevver. When I talk about using ACV for controling > breakouts or using soap on teeth or I get flack when I wont buy any soda > and > I wont buy sugar... but its baby steps and they have babier steps. > > Here is something pretty cool... Last weekend I got some pretty nasty > little lye burns on my arm from splitting up a 50 pound bag. My own > stupid > mistake for not wearing sleeves and it was a little bit of humidity in > the > air. Anyway so I got some burns. I have been putting emu/lavender and > sometimes comfrey oil and sometimes Debs comfrey salve on it.. and Im > sure > the 3 hours a week I spend in a clorinated pool dont hurt it either (no, > not > natural but pretty disinfective) Anwyay its already starting to heal up > nicely. I dont know what kind of scar I will get or if that will go away > too but I beleive the comfrey, lavender and emu are doing a great job of > healing me up fast. You know these burns usualy take a while to heal. So > there is my testiment to it. (I wish Comfrey salve could help my car > ) > Thumbs up natural! Now If I can figure out what chickweed looks like... > hmmmmm > Hey, I have a tiny patch of violets under my birdfeeder. Anything I can > do > with just a little bit? > Thanks guys > > Shaye > > Quote Link to comment Share on other sites More sharing options...
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