Re: my dumb boss

[Guest guest]

omg terri you hit the nail right on the head with your words. i prefer to say im fine when asked instead of saying i feel like crap because nobody wants to hear it. like today i felt fine and then i started laundry and making my bed and then all my joints started to hurt. who cares. keep going because the laundry isn't going to jump in and out of the machine its self, lol.

my boss just doesnt get it thoough. she acts like this is behind me and i should just get over it and move on. i said hello my dear but i have 16 weeks left. she says no you are fine. the doctor will tell you that next week. that is really getting on my last nerve i must tell you. then she says i bet she will let you stop treatment early too. Hello! you know nothing about this so why say things like that. UGH!

Re: [ ] family issues

I too have my immediate family.. the hubs, the kids. the kids friends who call us Mom and Pop... and close friends. I am content with that. My walk with hep c proved to me who was here for me for real. Those people have a place close to my heart. But you're right, they don't understand what we are dealing with. They can't. Unless you walk in these shoes... Granted, part of that is our fault because if you think about it, we don't let on completely as to what is going on with us. We are almost afraid to. Yep it's bad but we're not going to show just how bad... don't want to scare them... Then there's the self punishment part of it where we suffer in silence a lot. Funny thing is, there is no reason for the self punishment but most of us have done it.

I have aunts and uncles and cousins who I will never speak to again because of how they treated my mother when her brother passed away. Those aunts and uncles, he was their brother too. But he died without a will and money makes people ugly sometimes.

[Guest guest]

Your boss is ignorant.  Period.  Many people are when it comes to this...  Treatment is not something that is stopped early unless you are on the new drugs and in a clinical trial.  Stopping early almost always has catastrophic results.  The virus is hiding somewhere and hasn't been completely flushed out then the sucker mutates and it comes back meaner than before.  I've seen it happen too many times.  It JUST  happened to Trudy, it's happened to Beth and ny and those are just a few of the people on here that have dealt with treatment being interrupted early.  Current protocol is 48 weeks, sometimes longer for folks with 1a and 24 weeks for 1b.  I know of 2 people currently going to 72 weeks on treatment.  72 weeks...  imagine that.  48 weeks about killed me.  

Now as to saying your fine when someone asks you...  I just read something today that said if you mask your true feelings and say you're " Great " when you're not, it actually makes you feel worse!  I used to be a Kay rep and there was this big thing with them about always putting that smile on whether you felt it or not....  yeah... not so much.  When I was going thru treatment, I was brutally honest about how I felt.  Two of my favorite phrases were " I'd have to feel better to die " and " death warmed over pretty much sums it up " .  Did people get tired of hearing that?  I didn't care.  I felt like crap.  I needed any and all encouragement and kind words I could get from people around me.  I told them the truth.  Now those days that I really thought I was going to die.... I didn't let on.  They knew I felt badly but they didn't know how scared I really was.  My family was already scared enough.  My husband used to find relief just going to work...  poor guy.  But he called me every half hour to check on me.  My son...  my poor kid.  His dad has been a cardiac patient for my son's entire life...  He has spent his life knowing that his dad could die at any time.  Then I have this brush with mortality...  He had a rough time.  My step daughter, that little girl, OMG.  She cried herself to sleep every night so afraid that I was going to die.  I had no clue that was going on with her.  I didn't find out until after I was done with treatment.  Her best friends mother told me.  That was a shocker.  So for me, not letting on all the way was a good thing for them.  I sheltered them from what I could.  But I couldn't shelter them from what they could see.. and what they could see wasn't pretty.

You can manage to do laundry?  I couldn't do crap.  It took everything I had just to crawl to the bathroom.  Yep, crawl.   Tell your boss to take a long walk on a short pier would ya?

Hugs,TeriOn Sat, Mar 5, 2011 at 2:57 PM, <dmgarr@...> wrote:

 

omg terri you hit the nail right on the head with your words. i prefer to say im fine when asked instead of saying i feel like crap because nobody wants to hear it. like today i felt fine and then i started laundry and making my bed and then all my joints started to hurt. who cares. keep going because the laundry isn't going to jump in and out of the machine its self, lol.

my boss just doesnt get it thoough. she acts like this is behind me and i should just get over it and move on. i said hello my dear but i have 16 weeks left. she says no you are fine. the doctor will tell you that next week. that is really getting on my last nerve i must tell you. then she says i bet she will let you stop treatment early too. Hello! you know nothing about this so why say things like that. UGH!

[Guest guest]

sounds good to me! i'll let you know how she handles that. the nineth shot was last night and i only took 1 sick day so far. i have crawled in there more than once. i can do anything i want but i try to not over due it because then i drag all week. i have been one of the lucky ones so far. And i am truly grateful.

Re: [ ] my dumb boss

Your boss is ignorant. Period. Many people are when it comes to this... Treatment is not something that is stopped early unless you are on the new drugs and in a clinical trial. Stopping early almost always has catastrophic results. The virus is hiding somewhere and hasn't been completely flushed out then the sucker mutates and it comes back meaner than before. I've seen it happen too many times. It JUST happened to Trudy, it's happened to Beth and ny and those are just a few of the people on here that have dealt with treatment being interrupted early. Current protocol is 48 weeks, sometimes longer for folks with 1a and 24 weeks for 1b. I know of 2 people currently going to 72 weeks on treatment. 72 weeks... imagine that. 48 weeks about killed me.

Now as to saying your fine when someone asks you... I just read something today that said if you mask your true feelings and say you're "Great" when you're not, it actually makes you feel worse! I used to be a Kay rep and there was this big thing with them about always putting that smile on whether you felt it or not.... yeah... not so much. When I was going thru treatment, I was brutally honest about how I felt. Two of my favorite phrases were "I'd have to feel better to die" and "death warmed over pretty much sums it up". Did people get tired of hearing that? I didn't care. I felt like crap. I needed any and all encouragement and kind words I could get from people around me. I told them the truth. Now those days that I really thought I was going to die.... I didn't let on. They knew I felt badly but they didn't know how scared I really was. My family was already scared enough. My husband used to find relief just going to work... poor guy. But he called me every half hour to check on me. My son... my poor kid. His dad has been a cardiac patient for my son's entire life... He has spent his life knowing that his dad could die at any time. Then I have this brush with mortality... He had a rough time. My step daughter, that little girl, OMG. She cried herself to sleep every night so afraid that I was going to die. I had no clue that was going on with her. I didn't find out until after I was done with treatment. Her best friends mother told me. That was a shocker. So for me, not letting on all the way was a good thing for them. I sheltered them from what I could. But I couldn't shelter them from what they could see.. and what they could see wasn't pretty.

You can manage to do laundry? I couldn't do crap. It took everything I had just to crawl to the bathroom. Yep, crawl.

Tell your boss to take a long walk on a short pier would ya?

Hugs,Teri

[Guest guest]

You are on shot 9 and she's already talking about treatment ending early?  OMG she needs a lesson or two on HCV!On Sat, Mar 5, 2011 at 3:39 PM, <dmgarr@...> wrote:

 

sounds good to me! i'll let you know how she handles that. the nineth shot was last night and i only took 1 sick day so far. i have crawled in there more than once. i can do anything i want but i try to not over due it because then i drag all week. i have been one of the lucky ones so far. And i am truly grateful.

Re: [ ] my dumb boss 

Your boss is ignorant.  Period.  Many people are when it comes to this...  Treatment is not something that is stopped early unless you are on the new drugs and in a clinical trial.  Stopping early almost always has catastrophic results.  The virus is hiding somewhere and hasn't been completely flushed out then the sucker mutates and it comes back meaner than before.  I've seen it happen too many times.  It JUST  happened to Trudy, it's happened to Beth and ny and those are just a few of the people on here that have dealt with treatment being interrupted early.  Current protocol is 48 weeks, sometimes longer for folks with 1a and 24 weeks for 1b.  I know of 2 people currently going to 72 weeks on treatment.  72 weeks...  imagine that.  48 weeks about killed me.  

Now as to saying your fine when someone asks you...  I just read something today that said if you mask your true feelings and say you're " Great " when you're not, it actually makes you feel worse!  I used to be a Kay rep and there was this big thing with them about always putting that smile on whether you felt it or not....  yeah... not so much.  When I was going thru treatment, I was brutally honest about how I felt.  Two of my favorite phrases were " I'd have to feel better to die " and " death warmed over pretty much sums it up " .  Did people get tired of hearing that?  I didn't care.  I felt like crap.  I needed any and all encouragement and kind words I could get from people around me.  I told them the truth.  Now those days that I really thought I was going to die.... I didn't let on.  They knew I felt badly but they didn't know how scared I really was.  My family was already scared enough.  My husband used to find relief just going to work...  poor guy.  But he called me every half hour to check on me.  My son...  my poor kid.  His dad has been a cardiac patient for my son's entire life...  He has spent his life knowing that his dad could die at any time.  Then I have this brush with mortality...  He had a rough time.  My step daughter, that little girl, OMG.  She cried herself to sleep every night so afraid that I was going to die.  I had no clue that was going on with her.  I didn't find out until after I was done with treatment.  Her best friends mother told me.  That was a shocker.  So for me, not letting on all the way was a good thing for them.  I sheltered them from what I could.  But I couldn't shelter them from what they could see.. and what they could see wasn't pretty.

You can manage to do laundry?  I couldn't do crap.  It took everything I had just to crawl to the bathroom.  Yep, crawl.   

Tell your boss to take a long walk on a short pier would ya?

Hugs,Teri

 

--  

Teri Gottlieb

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

Hey DonnaI live on my own again and I haven't been on treatment for over 14 months; but, I still can not make my bed!! It's a little embarrassing. I either have to get the door to the bedroom back in place or at least a curtain.Now that my surrogate daughter has moved into our old place, I'll be able to get her to help me with the bed. Likely I will do my laundry in my own washer/dryer too.Gloria

omg terri you hit the nail right on the head with your words. i prefer to say im fine when asked instead of saying i feel like crap because nobody wants to hear it. like today i felt fine and then i started laundry and making my bed and then all my joints started to hurt. who cares. keep going because the laundry isn't going to jump in and out of the machine its self, lol.

my boss just doesnt get it thoough. she acts like this is behind me and i should just get over it and move on. i said hello my dear but i have 16 weeks left. she says no you are fine. the doctor will tell you that next week. that is really getting on my last nerve i must tell you. then she says i bet she will let you stop treatment early too. Hello! you know nothing about this so why say things like that. UGH!

Re: [ ] family issues

I too have my immediate family.. the hubs, the kids. the kids friends who call us Mom and Pop... and close friends. I am content with that. My walk with hep c proved to me who was here for me for real. Those people have a place close to my heart. But you're right, they don't understand what we are dealing with. They can't. Unless you walk in these shoes... Granted, part of that is our fault because if you think about it, we don't let on completely as to what is going on with us. We are almost afraid to. Yep it's bad but we're not going to show just how bad... don't want to scare them... Then there's the self punishment part of it where we suffer in silence a lot. Funny thing is, there is no reason for the self punishment but most of us have done it.

I have aunts and uncles and cousins who I will never speak to again because of how they treated my mother when her brother passed away. Those aunts and uncles, he was their brother too. But he died without a will and money makes people ugly sometimes.

[Guest guest]

Well, my treatment wasn't stopped early the 1st time; but still, Teri is absolutely right. The damn little crappy thing mutated sometime after the 12th week they figure.A friend of mine has been on maintenance doses of interferon for a number of years now. Her body did not allow her to do full treatment. Still, she tries to keep up with herself, even the day after the shot. I get so worried about her.Gloria

Your boss is ignorant. Period. Many people are when it comes to this... Treatment is not something that is stopped early unless you are on the new drugs and in a clinical trial. Stopping early almost always has catastrophic results. The virus is hiding somewhere and hasn't been completely flushed out then the sucker mutates and it comes back meaner than before. I've seen it happen too many times. It JUST happened to Trudy, it's happened to Beth and ny and those are just a few of the people on here that have dealt with treatment being interrupted early. Current protocol is 48 weeks, sometimes longer for folks with 1a and 24 weeks for 1b. I know of 2 people currently going to 72 weeks on treatment. 72 weeks... imagine that. 48 weeks about killed me.

Now as to saying your fine when someone asks you... I just read something today that said if you mask your true feelings and say you're "Great" when you're not, it actually makes you feel worse! I used to be a Kay rep and there was this big thing with them about always putting that smile on whether you felt it or not.... yeah... not so much. When I was going thru treatment, I was brutally honest about how I felt. Two of my favorite phrases were "I'd have to feel better to die" and "death warmed over pretty much sums it up". Did people get tired of hearing that? I didn't care. I felt like crap. I needed any and all encouragement and kind words I could get from people around me. I told them the truth. Now those days that I really thought I was going to die.... I didn't let on. They knew I felt badly but they didn't know how scared I really was. My family was

already scared enough. My husband used to find relief just going to work... poor guy. But he called me every half hour to check on me. My son... my poor kid. His dad has been a cardiac patient for my son's entire life... He has spent his life knowing that his dad could die at any time. Then I have this brush with mortality... He had a rough time. My step daughter, that little girl, OMG. She cried herself to sleep every night so afraid that I was going to die. I had no clue that was going on with her. I didn't find out until after I was done with treatment. Her best friends mother told me. That was a shocker. So for me, not letting on all the way was a good thing for them. I sheltered them from what I could. But I couldn't shelter them from what they could see.. and what they could see wasn't pretty.

You can manage to do laundry? I couldn't do crap. It took everything I had just to crawl to the bathroom. Yep, crawl. Tell your boss to take a long walk on a short pier would ya?

Hugs,Teri

[Guest guest]

My VL started at 1.2 million, I had to stop at 42 weeks, my neutrofils were dangerously low, I think like 3, AT that 42 weeks my VL was Negative, six months later it returnd and now my VL was 1.6 Million, so It is a dragon and comes back with a vengence, which is all the more reason to fight as hard as you can, and if at first we dont succeed, there will be another chance.When they said the word MILLION I thought I as surely dying soon, NOT!!! betty

From: Gloria <gadamscan@...> Sent: Sat, March 5, 2011 11:21:06 PMSubject: Re: [ ] my dumb boss

Well, my treatment wasn't stopped early the 1st time; but still, Teri is absolutely right. The damn little crappy thing mutated sometime after the 12th week they figure.A friend of mine has been on maintenance doses of interferon for a number of years now. Her body did not allow her to do full treatment. Still, she tries to keep up with herself, even the day after the shot. I get so worried about her.Gloria

Your boss is ignorant. Period. Many people are when it comes to this... Treatment is not something that is stopped early unless you are on the new drugs and in a clinical trial. Stopping early almost always has catastrophic results. The virus is hiding somewhere and hasn't been completely flushed out then the sucker mutates and it comes back meaner than before. I've seen it happen too many times. It JUST happened to Trudy, it's happened to Beth and ny and those are just a few of the people on here that have dealt with treatment being interrupted early. Current protocol is 48 weeks, sometimes longer for folks with 1a and 24 weeks for 1b. I know of 2 people currently going to 72 weeks on treatment. 72 weeks... imagine that. 48 weeks about killed me.

Now as to saying your fine when someone asks you... I just read something today that said if you mask your true feelings and say you're "Great" when you're not, it actually makes you feel worse! I used to be a Kay rep and there was this big thing with them about always putting that smile on whether you felt it or not.... yeah... not so much. When I was going thru treatment, I was brutally honest about how I felt. Two of my favorite phrases were "I'd have to feel better to die" and "death warmed over pretty much sums it up". Did people get tired of hearing that? I didn't care. I felt like crap. I needed any and all encouragement and kind words I could get from people around me. I told them the truth. Now those days that I really thought I was going to die.... I didn't let on. They knew I felt badly but they didn't know how scared I really was. My family was already

scared enough. My husband used to find relief just going to work... poor guy. But he called me every half hour to check on me. My son... my poor kid. His dad has been a cardiac patient for my son's entire life... He has spent his life knowing that his dad could die at any time. Then I have this brush with mortality... He had a rough time. My step daughter, that little girl, OMG. She cried herself to sleep every night so afraid that I was going to die. I had no clue that was going on with her. I didn't find out until after I was done with treatment. Her best friends mother told me. That was a shocker. So for me, not letting on all the way was a good thing for them. I sheltered them from what I could. But I couldn't shelter them from what they could see.. and what they could see wasn't pretty.

You can manage to do laundry? I couldn't do crap. It took everything I had just to crawl to the bathroom. Yep, crawl.

Tell your boss to take a long walk on a short pier would ya?

Hugs,Teri