Re: Infergen

[Guest guest]

Yep.. it drops the second time to about 10% for someone who is type 1a.  With the addition of the  new protease inhibitor that number goes back up to 45 to 50 percent.. maybe a little higher.

Hugs,

Teri

When you are up to your ass in alligators it's hard to remember that your initial objective was to drain the swamp.

On Sat, Mar 12, 2011 at 4:42 PM, Barrett <barrjohnm@...> wrote:

 

can I ask round 2 of treatment is only a 10% chance?

Hugs♥

ny

On Saturday, March 12, 2011 at 10:37 AM, Theresa Gottlieb wrote:

 

Cynde,I have not used Infergen, I used Peg-Interferon.  I will do some research on this bad boy though.As far as doing treatment for a 3rd time.  These new drugs will make that possible.  Here is what happens when you have a failed attempt at treatment...  When you go thru treatment the first time, there is a percentage of cure rate.  For type 1A that's about 45%.  When the treatment doesn't work and the virus comes back and you try for round two that percentage of cure drops significantly to about 10%.  A third time on the same protocol gives you even less of a chance...  This is why these new drugs have come into play.  With these new drugs your cure percentage goes back up to 45% or better on your next round.  I don't know the exact percentage but I know that it takes you up to at least 45%.  For a person who is type 1A and the first time they attempt treatment they use the new drug, their cure rate goes up to 85% which is outstanding.  The new combo would be Peg-Interferon, Ribavirin and one of the two new Protease inhibitors.  Yes, treatment is more than doable for you.  I have a friend who went thru this treatment 8 times.  The first 7 were with various doses of Interferon and Ribavirin with no results.  The 8th time, he took Peg-Interferon, Ribavirin and Telaprevir on a clinical trial.  He is CURED.  After 8 times, he is cured.  The Telaprevir did it for him and hopefully it will do it for you as well.

Telaprevir has its own side effects so you can expect more rashes and such but it's not anything you can't handle...  My doctor has people waiting for this new drug...  hundreds of them.  All folks who have failed treatment one or more times.  There is hope sweetie.. You can beat this virus.

Hugs,TeriOn Sat, Mar 12, 2011 at 11:28 AM, Cynde Moya <cyndemoya@...> wrote:

 

 

For my second round of treatment, in 2009, a gastro prescribed Infergen. He sold this to me as the new thing.

 

http://www.infergen.com/

 

This Infergen, according to an animation video I saw, is Interferon that has been modified to have several different kinds of, what are they called, the structures that bond to cell receptors. Interferon, from what I can tell, doesn’t do anything in itself. Instead, it is like a finger that turns on a switch. The switch in the on position says, “look for bad things and kill ‘em.†This Infergen has fingers in several different shapes, so it can flip a lot of switches.

 

Anyway, the prescribed frequency is 15 micrograms, 3 x a week. Plus the Ribavirin. In my case, he had me do 15 micrograms 7 x a week. Plus the Ribavirin. After say 12 weeks, my viral load was undetectable. But at the next test at 16 weeks, the virus had broken through and was up around 10,000. After another few weeks, it was back into the millions. So we discontinued the treatment.

 

I wonder if anyone else out there has tried this Infergen, and what their experience was with it. Also, since I have failed two rounds, will I even be able to try any of these newer combination therapies out there?

 

-Cynde

--  

Teri Gottlieb

MOVE ON.  It's just a chapter in the past, but don't close the book.  Just turn the page.

[Guest guest]

Cynde and TeriWhen I failed tx the first time, it was not even suggested to try to same thing again!! It wasn't too long after that failure that we started to hear about these new addition to the same old. However, that gave me the hope!! I figured that it would be at least 5 more years back in 2006. I didn't have a choice but wait for it and I thought this would be the year.Fortunately, I was asked to participate in the clinical trial with exactly what we are waiting for. I not only feel honoured to be given that opportunity and especially when I believe there was only about 600 people in the world that were invited to participate. Even more though, I feel blessed because they found that my liver did indeed

cross the line into cirrhosis. Another great blessing is that I no longer have Hep C. The final blessing has been - that because I was on the clinical trial, the usual Ultra Sounds they did found the liver cancer in very early stages.Cynde, there will always be hope to fight that dragon to death.Gloria

Cynde,I have not used Infergen, I used Peg-Interferon. I will do some research on this bad boy though.As far as doing treatment for a 3rd time. These new drugs will make that possible. Here is what happens when you have a failed attempt at treatment... When you go thru treatment the first time, there is a percentage of cure rate. For type 1A that's about 45%. When the treatment doesn't work and the virus comes back and you try for round two that percentage of cure drops significantly to about 10%. A third time on the same protocol gives you even less of a chance... This is why these new drugs have come into play. With these new drugs your cure percentage goes back up to 45% or better on your next round. I don't know the exact percentage but I know that it takes you up to at least 45%. For a person who is type 1A and the first time

they attempt treatment they use the new drug, their cure rate goes up to 85% which is outstanding. The new combo would be Peg-Interferon, Ribavirin and one of the two new Protease inhibitors. Yes, treatment is more than doable for you. I have a friend who went thru this treatment 8 times. The first 7 were with various doses of Interferon and Ribavirin with no results. The 8th time, he took Peg-Interferon, Ribavirin and Telaprevir on a clinical trial. He is CURED. After 8 times, he is cured. The Telaprevir did it for him and hopefully it will do it for you as well.

Telaprevir has its own side effects so you can expect more rashes and such but it's not anything you can't handle... My doctor has people waiting for this new drug... hundreds of them. All folks who have failed treatment one or more times. There is hope sweetie.. You can beat this virus.

Hugs,TeriOn Sat, Mar 12, 2011 at 11:28 AM, Cynde Moya <cyndemoya@...> wrote:

[Guest guest]

Gloria,I know of many people that have had several go rounds with treatment...  It's really not that unusual.  But since the talk started about the protease inhibitors many doctors are not starting a second round.  They are waiting for the new stuff.  My doc has a list of people, hundreds, waiting for the new meds.

Hugs,TeriOn Sat, Mar 12, 2011 at 9:56 PM, Gloria <gadamscan@...> wrote:

 

Cynde and TeriWhen I failed tx the first time, it was not even suggested to try to same thing again!!  It wasn't too long after that failure that we started to hear about these new addition to the same old.  However, that gave me the hope!!  I figured that it would be at least 5 more years back in 2006.  I didn't have a choice but wait for it and I thought this would be the year.

Fortunately, I was asked to participate in the clinical trial with exactly what we are waiting for.  I not only feel honoured to be given that opportunity and especially when I believe there was only about 600 people in the world that were invited to participate.  Even more though, I feel blessed because they found that my liver did indeed

cross the line into cirrhosis.  Another great blessing is that I no longer have Hep C.  The final blessing has been - that because I was on the clinical trial, the usual Ultra Sounds they did found the liver cancer in very early stages.

Cynde, there will always be hope to fight that dragon to death.Gloria

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