New Members

[Guest guest]

Hi,

Thanks for being there!! Great site.

Buttttttttttttt..... Will be gone for awhile, so please take me off the email

list until I get back..

Thanks........again :0)

New Members

Hi All-

Please welcome:

fsixtyford <fsixtyford@...>

rebelkuhl <rebelkuhl@...>

happygirltx_2000 <kellismith69@...

twylah_jenkins@...

terrystiefel <terry.stiefel2@...>

Hello new members:

Welcome to Jeanetta's PTCB study group, a very active site where ALL

techs are welcome to learn and to share their existing knowledge.

Please add your name to the database and tell us a bit

about yourself and your practice setting.

Sincerly,

Dora

Group Moderator

[Guest guest]

Name added to database.

[Guest guest]

I join Dora in welcoming the newest members and in letting you know

that there is a wealth of information in the files and link section.

It is Getting Very Close to the exam date! So ask your questions!

Respectfully,

Jeanetta Mastron CPhT

Founder/Owner

> Hello to:

>

> anitajshah1997

> hpracing007

> akskerry

> oldtymer1977

> sueall

> gmgrx

> lindipin

> italypharmtechie

> commjets2003

>

> Welcome to Jeanetta's study group! You will find much information

in

> the files and links sections, and a message board that is lively

AND

> educational. Please add your name to the database and tell us a bit

> about yourself and your practice setting.

> Sincerely,

> Dora

> Group Moderator

[Guest guest]

I will have you off of moderate status by tonight, so that your messages will

appear as you send them.

Connie

[Guest guest]

In a message dated 6/1/2004 12:36:56 PM Eastern Daylight Time,

shaye@... writes:

Its been a little quiet latelly but I think a

lot of people are finally able to get out and do some yardwork.

~~~~~~~~~~~~~~~~~~~~

We had relatives come in for all the doings for our 25th wedding

anniversary. Just sent the last of them off and then I went and bought the

plants for

our veggie garden. While it was wonderful having them here, and we enjoyed

all that came with it, it'll be nice to have things back to normal, too. :-)

Beth

[Guest guest]

In a message dated 6/1/2004 8:07:19 PM Eastern Daylight Time,

shaye@... writes:

Tonite I was out digging in some pots and the mama duck came out and

quacked and flew off to get a bite.

~~~~~~~~~~~~~~~

Cute! It'll be exciting when they hatch. I hope you are around then to see

it. :-)

Beth

[Guest guest]

Beth Happy Anniversary!!!

I cant wait till these baby ducks hatch. I figure it should just be 2 more

weeks. Tonite I was out digging in some pots and the mama duck came out and

quacked and flew off to get a bite.

Shaye

Re: New members

In a message dated 6/1/2004 12:36:56 PM Eastern Daylight Time,

shaye@... writes:

Its been a little quiet latelly but I think a

lot of people are finally able to get out and do some yardwork.

~~~~~~~~~~~~~~~~~~~~

We had relatives come in for all the doings for our 25th wedding

anniversary. Just sent the last of them off and then I went and bought the

plants for

our veggie garden. While it was wonderful having them here, and we enjoyed

all that came with it, it'll be nice to have things back to normal, too.

:-)

Beth

[Guest guest]

Hi, guys! I'm nne, 28, and living in Columbia County. I'm mainly a

melt-and-pour soaper, but I'd like to try crockpot soapmaking sometime. I

also do bath salts, lip balm, you name it. Welcome to our group!

~nne

http://bathtubjunkie.star-shaped.org/

[Guest guest]

Hi new people!!!!!! *waves from amidst the mess and confusion that is

her house*

>

> Over the weekend we have had a couple of new members join us. >> Shaye

>

[Guest guest]

In a message dated 3/13/2005 5:50:40 PM Eastern Standard Time,

firesprite68@... writes:

I can't help much as feel like I'm floundering still a bit, esp. when things

get stressed but can say I have had better health since starting this way of

eating !

It can be daunting because it is a hard diet to stay on sometimes with work

crises, holidays, eating out, (and in my case WEAKNESS FOR AVOIDS), etc, but

remember, you can always start over tomorrow and you reap the benefits

immediately.

[Guest guest]

Another thought is that once you have been on the diet for a while you'll

notice physically when you cheat. This is because your body has detoxed to a

certain extent and is telling you what the avoid foods you've been eating are

doing to your body. Of course, if you persist in eating the avoid your body

will

adjust and it won't make you as sick but avoid foods will still be doing the

same damage.

Some examples for me are that eating a piece of bread puts me to sleep,

eating french fries or potato chips make me a bloat boy, drinking a cup of

coffee

gives me a green apple stomach ache, eating corn causes awful cramps, etc.

Everyone is different so they may react differently to certain avoids.

You may want to buy some DEFLECT to help your body fight off the avoids you

succumb to.

[Guest guest]

Hi Amy and ,

Welcome on to the list !

I can't help much as feel like I'm floundering still a bit, esp. when things get

stressed but can say I have had better health since starting this way of eating

!

Good luck, there is a lot of knowledge floating around on here with various

people so you're in good hands.

)

http://www.freewebs.com/inspire/

[Guest guest]

Thanks, I'll look into the deflect.

)

http://www.freewebs.com/inspire/

[Guest guest]

Welcome to the group!

I am glad that www.infantilescoliosis.org was able to provide you with some info, and ease your worry a little.

Again, I strongly recommend that you get the "early treatment" video. This will explain to you in detail the early treatment casting process. Also, dont ever hesitate to ask the parents on this group questions. Many of us have been through it, and would like to share our experiences/advice to make the road a little easier for you and your family.

**please read the article titled "Growth as a corrective force in the early treatment of progressive infantile scoliosis", in the files section of this group.

Sincerely,

HRH

Re: Our son Cole / newly diagnosed with scoliosis

-

We are right there with you. We just discovered this week that our 4 month old daughter (also a twin) has a 30 degree curve. Our doctor sent us directly to Children's Hospital in Cincinnati and she will be getting a cast put on in a few days. The only test we have had so far was an x-ray. We don't know yet what has caused it but I am glad the ortho specialist at Children's has jumped in and taken action so quickly. I was expecting a brace but totally broke down when I was told she would be in and out of a cast. He said they would alternate between cast and brace every 3 months to postpone surgery as long as possible. Hopefully not till she is around 12 years old and with lots of prayer maybe not at all. I cried my eyes out because all I could picture were the fears for my girl's childhood that you had for your son. I was completely put at ease after getting on this site when I got home and found out that alot of children's curves has been corrected by doing the cast and am thankful it was the first option given to us. Our other twin has a slight curve but to insignificant to call scoliosis as of now. They are going to continue to monitor her. Our stories are very similiar and our fears are exact. I hope you the very best and I hope this site helps ease your mind as much as it did me.

Take care,

michelle_r_baird <michelle_r_baird@...> wrote:

Hi, our son cole was just diagnosed with scoliosis with a 40 degree curve. We have only had a chest x-ray, and are waiting to be scheduled for an mri to tell us more. I am really scared as to what to expect. The only thing familiar to me about scoliosis is that they used to check for it in school growing up. We don't even know if it is congenital or infintile scoliosis. He is 7 months old and is a twin. I am hoping it can be corrected without surgery, but the dr. said at some point he will probably need surgery. So far he has met all his milestones on target. The dr. said we need to wait 3 months to remeasure before we make a tx plan. I am nervous to wait that long, but don't know what the options are. I am nervous about him not being able to play sports, kids making fun of him with a brace, his self esteem, etc. Any advice or stories/experiences are appreciated. I'm sure I'll be on these boards alot. A little about us: My husband and I live in cleveland. I am a speech therapist, and my husband is in law school and mba school. We have a 2 1/2 year old daughter and twin 7 month old boys born at 36 weeks, non identical. Life is good, but we just want little cole to grow up healthy and happy. Thanks for all your replies.

Jim & Abercrombie

Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

This is pretty good Mukul..

I am very sorry for failing to contribute or acknowledge so many mails that keep coming to me..

ly speaking I have my hands full at work and other activities that keep me very occupied.

I wish all the very best for your groups and the efforts you chip in.

Best wishes once again.

Regards.

Vikesh

On 1/26/06, mukulchaudhri <mukulchaudhri@...> wrote:

It's heartening to note that the number of members in our group iscontinuously increasing & has reached 90.I welcome all the new memberson the Group's behalf.The members most recently added are:subhassatish@... Subhash Awasthi,a renowned leathertechnologist based at Kanpur

sanjaytaklikar@... Sanjay Taklikar,heading a major chemicalcompany based at Delhiengineer_c100@...

Anand Singh,A civil engineer based at Kanpurchoudharysumit@... Sonu a sftware engineer with StrategicConsultants New Delhi

jay.bis@... jayendra A software engineer with SAP Bangaloresunnybhatia14@... doing M.B.A.in DehradunI'm sure that all the group members will try to multiply the strength

of the group in the same manner in the future too.Mukul Chaudhri--Group Owner

[Guest guest]

I agree, please don't lurk too much here.

Just as inclusion works because it offers diversity, the lists only work when many voice their viewpoints and experience. It's our experiences that gives the most support to each other.

I love hearing about the older kids, at least older then my daughter as it gives me an idea as to where we are going and what challenges may lie ahead for us. Knowing these things helps me chart my course today. I was able to avoid quite a few issues due to many mom's on a couple of lists who were very free with sharing their lives and what worked and didn't work for them

I also enjoy passing on the things I have learned or done. Not everything is going to work for everyone, but I always seem to find something useful from the posts I read from others.

Would be fun for everyone to do a quick intro and if you have pictures, add them. :-)

--Carol in IL

-------------- Original message -------------- From: "Kathy Ratkiewicz" <Kathy_R@...>

Hi again-

I noticed on quite a few of the applications that people said they ‘lurked’ on other listservs…it is our hope that you will ALL feel comfortable posting here. , Carol and I have discussed this before, and we really do feel that everyone has something of value to contribute…or if you just need to get something off your chest, we want this to be a place for that, too. There is no question too basic to ask….we all had to start somewhere when learning how to help our children, and we are all still learning. So please feel free to share things that worked for your child, didn’t work…whatever. If you have a site, etc, that you have found to be especially helpful, please feel free to add it to the files section (or ask one of us to add it for you)

You are also all encouraged to post a couple of pictures of your children in the photos section.

Thanks for joining…we are all very excited about this new listserv;-)

KathyR

(mom to 7 kids, including Danny, who is almost 8! And has Ds)

[Guest guest]

I have a lengthy journal to share about my experiences with the implant from

surgery onward starting 6 years ago. While the technology has improved since

then, the experiences that we go through do not change. If anyone would like

to read it, please email me at ci92000@....

Welcome newbies!!

hooked and hearing since 2000

[Guest guest]

Robin,

A used copy of the book Eat Right 4 Your Type: The Individualized Diet

Solution to Staying Healthy, Living Longer & Acheiving Your Ideal Weight is on

Amazon.com right now for $4.30 + shipping. The used book Blood Type O Food,

Beverage and Supplemental Lists (Food, Beverage and Supplement) is $3.47+

shipping. You can also find them at some local lending libraries, and at most

regular book stores.

I strongly reccomend that if you don't do anything else you get either a copy

of the

second one to keep, or write down very carefully everything on the O super

beneficial,

beneficial, neutral, and avoid list. It really helps in the beginning to have

a reference that you can take anywhere with you. While you grocery shop, eat

out, etc. It takes

a while to commit these all to memory as it is soooo very different from what

you are

used to as intuitive " healthy " choices.

Here is the link to the Blood Type Diet Encyclopedia. It is a good resource,

but is listed by food group for all types.

http://www.dadamo.com/typebase4/typeindexer.htm

,

After 7 years on the diet I have found two things to be very helpful. One is

to consider what my personal food pyramid / food combining looks like and build

my meals and snacks around that no matter the time of day much like the other

specific foods suggestions. For me that involved throwing out the FDA pyramid

and never looking back. (There are many old posts regarding what ratios to eat

on a daily basis-

I am not at all qualified to give any advice on this but many here are very

helpful with that!)

The second was developing a very thick skin regarding what anyone else says or

thinks about how I eat. I am 37 and in the best shape I have ever been in my

life,

have gotten rid of debiltating sinus headaches, ear " infections " , lifelong

stomache pain, constipation and nearly eliminating colds. As well I started my

infant on the diet and along with breastfeeding, she has had no colic, cold,

flu, vomiting, spit up, ear " infections " , diarrhea, or any other ailments in

her nearly 2 1/2 years. For me the results speak much louder than the critics,

and they will always be there protesting about what can not work. And for that I

would refer you to the perceptive

quote that is on Irene's e-mail signature. " Man who say it cannot be done

should not interrupt one doing it. " This group is a great resource with many

knowledgeable and helpful people. There are sometimes rants and raves as in any

diverse family, but I am sure you both will find it insightful.

Welcome,

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Hi-

We have two sons on the spectrum. Collin is almost 14, going to high

school next year and fairly low functioning, non-verbal. is

turning 12, in 6th grade and in the moderate range with a lot of

behavioral issues including Seasonal Affective Disorder. Although

they're younger than some in this group, I really want to take in as much

information as I can now. Because we have essentially no family support

nor " not-paid-out-of -our-pocket " support, we really have to be on top of

things. We've created letters of intent years ago (updated annually,

I'm proud to say) but we keep having to change guardians so we're never

sure who will be using them. Although they do come in handy as " cheat

sheets " when seeing a new doctor or applying for some service.

Have seen a lot of good information shared here and looking forward to

more.

[Guest guest]

Welcome,

.

Ellen

Ellen Garber Bronfeldegskb@...

Re: New Members

Hi-We have two sons on the spectrum. Collin is almost 14, going to highschool next year and fairly low functioning, non-verbal. isturning 12, in 6th grade and in the moderate range with a lot ofbehavioral issues including Seasonal Affective Disorder. Althoughthey're younger than some in this group, I really want to take in as muchinformation as I can now. Because we have essentially no family supportnor "not-paid-out-of -our-pocket" support, we really have to be on top ofthings. We've created letters of intent years ago (updated annually,I'm proud to say) but we keep having to change guardians so we're neversure who will be using them. Although they do come in handy as "cheatsheets" when seeing a new doctor or applying for some service. Have seen a lot of good information shared here and looking forward tomore.

[Guest guest]

Hi ,

Good for you regarding the letters of intent. We can truly relate to your

concerns about

guardianship - even though we're legal guardians for our nearly 29 yo (past)

foster son.

It's a scary situation out there for adults with DD. Like you (apparently) we're

Luke's

" family " and there are not any good options after we're too old, too sick or too

dead.

BUT, on the bright side, the agency currently providig DT services has offered a

few hours

of respite during their winter break. It's only the second time in 6 or 7 years

that the offer

has been made. Wife and I enjoy great food. so our intent is to head to a

fine

French restaurant for a long lunch on that day. See -- the light at the end of

the tunnel

isn't always an on-coming train.

Good luck to you,

Ron

>

> Hi-

> We have two sons on the spectrum. Collin is almost 14, going to high

> school next year and fairly low functioning, non-verbal. is

> turning 12, in 6th grade and in the moderate range with a lot of

> behavioral issues including Seasonal Affective Disorder. Although

> they're younger than some in this group, I really want to take in as much

> information as I can now. Because we have essentially no family support

> nor " not-paid-out-of -our-pocket " support, we really have to be on top of

> things. We've created letters of intent years ago (updated annually,

> I'm proud to say) but we keep having to change guardians so we're never

> sure who will be using them. Although they do come in handy as " cheat

> sheets " when seeing a new doctor or applying for some service.

> Have seen a lot of good information shared here and looking forward to

> more.

>

>

[Guest guest]

>

> Hi-

> We have two sons on the spectrum. Collin is almost 14, going to

high

> school next year and fairly low functioning, non-verbal. is

> turning 12, in 6th grade and in the moderate range with a lot of

> behavioral issues including Seasonal Affective Disorder. Although

> they're younger than some in this group, I really want to take in

as much

> information as I can now. Because we have essentially no family

support

> nor " not-paid-out-of -our-pocket " support, we really have to be on

top of

> things. We've created letters of intent years ago (updated

annually,

> I'm proud to say) but we keep having to change guardians so we're

never

> sure who will be using them. Although they do come in handy

as " cheat

> sheets " when seeing a new doctor or applying for some service.

> Have seen a lot of good information shared here and looking forward

to

> more.

>

>

Hi ! Fancy meeting you here.

and Angel.

[Guest guest]

,

You should still be eligble for respite at one of the respite districts--everyone needs a break. It has been a while for me--my son is 26--and the free respite districts are something that someone with younger kids can tell you about.

I pay for my son's respite with his SSI--he pays rent every month and for his respite as well. We have family to give us moral support--but no one puts their "money where there mouth is" so we hire folks. And use our other kids (and PAY them)when they are home from college.

Marie>> Hi-> We have two sons on the spectrum. Collin is almost 14, going to high> school next year and fairly low functioning, non-verbal. is> turning 12, in 6th grade and in the moderate range with a lot of> behavioral issues including Seasonal Affective Disorder. Although> they're younger than some in this group, I really want to take in as much> information as I can now. Because we have essentially no family support> nor "not-paid-out-of -our-pocket" support, we really have to be on top of> things. We've created letters of intent years ago (updated annually,> I'm proud to say) but we keep having to change guardians so we're never> sure who will be using them. Although they do come in handy as "cheat> sheets" when seeing a new doctor or applying for some service. > Have seen a lot of good information shared here and looking forward to> more.> >

[Guest guest]

Thanks. Actually, we do qualify for the 72D after lots of letters to Hand are eligible for a total of 22 hours of service per week. We've had 2 workers in the past 11 months for a grand total of 22 hours and they were pretty much a waste of time. We're meeting a new case manager in 2 weeks, so maybe things will get rolling then. We do use the Special Rec departments a lot and have a couple of dedicated sitters that we use other funding for but a portion still comes out of our pockets.

Same extended family situation as you-which is why I'm looking forward to next week's guest!

On Thu, 30 Nov 2006 03:18:18 -0000 "Marie Grass Amenta" <teteme@...> writes:

,

You should still be eligble for respite at one of the respite districts--everyone needs a break. It has been a while for me--my son is 26--and the free respite districts are something that someone with younger kids can tell you about.

I pay for my son's respite with his SSI--he pays rent every month and for his respite as well. We have family to give us moral support--but no one puts their "money where there mouth is" so we hire folks. And use our other kids (and PAY them)when they are home from college.

Marie>> Hi-> We have two sons on the spectrum. Collin is almost 14, going to high> school next year and fairly low functioning, non-verbal. is> turning 12, in 6th grade and in the moderate range with a lot of> behavioral issues including Seasonal Affective Disorder. Although> they're younger than some in this group, I really want to take in as much> information as I can now. Because we have essentially no family support> nor "not-paid-out-of -our-pocket" support, we really have to be on top of> things. We've created letters of intent years ago (updated annually,> I'm proud to say) but we keep having to change guardians so we're never> sure who will be using them. Although they do come in handy as "cheat> sheets" when seeing a new doctor or applying for some service. > Have seen a lot of good information shared here and looking forward to> more.> >

[Guest guest]

>

>

> Good morning group,

>

> I just wanted to welcome all new members.

>

> This is a great group and very informative.

>

> Have a great day.

>

> Gentle Hugs,

>

> Kim

>

Not having a good day today. Feeling a little like I'm by

myself...not because of illness but other concerns....

I'm just TIRED

Candace