vew459 re: checking in

[Guest guest]

Hello Warriors, and all new comers. I am so very proud of each and everyone of

you that come here and post. I am so thankful to read all the post I admit, I

get lost in responding indivually, then can't remember names.I think my brain

fog plays a big part in this. however, I am here and i care and I am thankful. I

can't wait to see ur video Don! U r BEAUTIFUL to us! I love the Link for

johnathon, I have a nephew gabriel who has health problems similar, the spinal

issues n such. I love visiting him when I get to, he is my happy face, so much

wrong, yet always smiling. he has never walked, talked, is blind and bed ridden,

my sis and her family has always cared for him, he is 12 now. He is turning L

shape n has had many surgeries, is fed thru a tube n has a trek, when i start to

feel sorry for myself in my suffering, i think of this angel boy n feel shame on

me. is an inspiration to me. I sent the link to my sis for she often

feels so alone in her struggles of being a 24/7 care-giver. Looks like summer

before I can get support group started the rain is taking a toll om my pain

level. yes! I take pain medication (hydromorphone) 2mg. not everyday but often,

I have so much joint, muscle, nerve pain that i can't function without something

sometimes, and yes I do the baths, heating pad, stretching, vitamins, ice,

meditation..ect..I know pain meds r bad for the liver but so is probably

everything else, including radiation coming to my coast from Japan, who knows u

know, I am about living today and making the best of it today. being as

comfortable as i can, if i feel good enough i get out, if not i stay in n

hibernate n rest.Somedays i get on the puter for awhile n somedays i don't. it's

one day at a time. I still believe that an easier tx will come along. We are

expecting another storm and my spine and whole body is in a flare up so yes i

need to take something, I hate it but i don't want to suffer more than I do.I

also take a mood stabilizer for my depression and something to help me sleep. I

did 9wks of tx back in 04, I am still here 7 yrs later. it's been no bed of

roses but I stop n smell the flowers everyday never forgetting how blessed I am,

we can always find something to be thankful for, I am thankful for all of you,

paving the way for others, you are brave, stong and super warriors. Gloria,

teri,Rod, johnny, beth, gloria, don,Tonnie,cmwill,donna,josie,margo n everybody.

blessings to u all! Vera in Ca

[Guest guest]

Hi Vera

Im glad your holding up.

Sometimes life can be hard.

Thank you for always being so cheerful and upbeat.

We all need that from each other.

I saw the news about the radiation hitting the west coast.

The news says its not too bad, but who knows really.

Poor Japan is having such a hard time - God bless them.

Im proud of them for standing strong after such a blow that they have recieved.

Vera, like you say, I too think maybe folks like your nephew exist so that the rest of us have a living example to look at, and remember that our own lives are blessed.

Too many times we tend to forget this because times get tough.

Your right, we can always find 'something' to be thankful for.

We all love you Vera - you are an Angel.

love

don in ks

From: vew459 <vew459@...>Subject: [ ] vew459 re: checking in Date: Monday, March 21, 2011, 9:24 PM

Hello Warriors, and all new comers. I am so very proud of each and everyone of you that come here and post. I am so thankful to read all the post I admit, I get lost in responding indivually, then can't remember names.I think my brain fog plays a big part in this. however, I am here and i care and I am thankful. I can't wait to see ur video Don! U r BEAUTIFUL to us! I love the Link for johnathon, I have a nephew gabriel who has health problems similar, the spinal issues n such. I love visiting him when I get to, he is my happy face, so much wrong, yet always smiling. he has never walked, talked, is blind and bed ridden, my sis and her family has always cared for him, he is 12 now. He is turning L shape n has had many surgeries, is fed thru a tube n has a trek, when i start to feel sorry for myself in my suffering, i think of this angel boy n feel shame on me. is an inspiration to me. I sent the link to my sis for she often

feels so alone in her struggles of being a 24/7 care-giver. Looks like summer before I can get support group started the rain is taking a toll om my pain level. yes! I take pain medication (hydromorphone) 2mg. not everyday but often, I have so much joint, muscle, nerve pain that i can't function without something sometimes, and yes I do the baths, heating pad, stretching, vitamins, ice, meditation..ect..I know pain meds r bad for the liver but so is probably everything else, including radiation coming to my coast from Japan, who knows u know, I am about living today and making the best of it today. being as comfortable as i can, if i feel good enough i get out, if not i stay in n hibernate n rest.Somedays i get on the puter for awhile n somedays i don't. it's one day at a time. I still believe that an easier tx will come along. We are expecting another storm and my spine and whole body is in a flare up so yes i need to take something, I hate it

but i don't want to suffer more than I do.I also take a mood stabilizer for my depression and something to help me sleep. I did 9wks of tx back in 04, I am still here 7 yrs later. it's been no bed of roses but I stop n smell the flowers everyday never forgetting how blessed I am, we can always find something to be thankful for, I am thankful for all of you, paving the way for others, you are brave, stong and super warriors. Gloria, teri,Rod, johnny, beth, gloria, don,Tonnie,cmwill,donna,josie,margo n everybody. blessings to u all! Vera in Ca ------------------------------------