Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 BettyThat far back, wouldn't your friend have been on just the interferon shots?? I think I remember a fella here that told me he had to take a shot every day.Gloria MArie, I met a lady once in about 96 when i first was diagnised and she had been on tx 10 years before that with ironically the same Dr i had. Well back then the tx was for only 24 weeks at a higher doseage but with better success. She remains negative to this day. So a big whoo whoooo to u. Betty From: Gloria <gadamscan@...> Sent: Fri, March 11, 2011 10:57:33 PMSubject: Re: [ ] B-12 I'd really like to know about that too, Trudy Wow! Colette! You just summed up how I try to " fake it " about the mind games so that no one will know that my memory just flew out the window to La-La land! Except with Hubs & Becky, I'm safe with them and I don't have to hide or fake it. Still, sometimes I get really frustrated and feel sooo stupid. But that's on me; they just take it in stride. Ya know, since we started this whole B-12 thing, I would be curious to know how much of a connection there is between Brain Fog that we think is from tx or Fibro, and B-12. I know my GP has just recently ( 2 weeks) discovered that my body isn't producing or extracting any B-12. None. So for now, weekly injections. So worth it to feel better. " A well-behaved woman never made history " Mae West http://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Okay, now I am really confused... back in 96 and the person was treated for hep c 10 years earlier... 86... hep c didn't exist in 1986. It was just non a non b hepatitis. When you are up to your ass in alligators it's hard to remember that your initial objective was to drain the swamp. On Sat, Mar 12, 2011 at 10:10 PM, Gloria <gadamscan@...> wrote: BettyThat far back, wouldn't your friend have been on just the interferon shots?? I think I remember a fella here that told me he had to take a shot every day. Gloria MArie, I met a lady once in about 96 when i first was diagnised and she had been on tx 10 years before that with ironically the same Dr i had. Well back then the tx was for only 24 weeks at a higher doseage but with better success. She remains negative to this day. So a big whoo whoooo to u. Betty Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (41) Recent Activity: New Members 10 New Links 43 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Likely, this strain of hepatitis has been around for a very long time. Nobody new what to call it, so it was non hep c or non hep b. When they finally found whatever it was that they needed, we went from C clear through to K.However, I have certainly heard the WWII story along the way. Also, the reason that some Canadians launched a class action suit against whatever agency dispensed the blood, was because during the period between 1986 and 1990, it was known about Hep C. But, the blood people still dispensed blood from the prisons and we all know what happened.Then, I guess there was another class action suit for anyone that could prove their blood was likely tainted when they got it. Didn't matter about years etc. However, any one that had ever used IV drugs, were not even entertained for the suit. What I never could understand about this action was, why did the blood bank get sued for having the blood available BEFORE they knew about Hep C??? Okay, you guys wanna know something horrible? The government knew about hep c way before the 80's. They knew about this virus around the time of WW2. They warned the military not to use blood from prisons for the soldiers because of this virus. The military didn't listen and therefore many soldiers were infected. This virus was kept in the closet like a red headed step-child for a very long time. Hugs,Teri When you are up to your ass in alligators it's hard to remember that your initial objective was to drain the swamp. On Mon, Mar 14, 2011 at 9:55 PM, Gloria <gadamscan@...> wrote: BettyI just looked something up about treatment. Do you know that in 2002, Ribavirin was still being tested. Therefore, we have waited a long time for something a little bit better. But something else, do you realize that in Canada, our blood banks etc. already knew about the Hep C virus in 1986. In fact, a whole lot of people sued the government I believe, in a Class Action for the fact that although they knew about the virus, they didn't start screening for another 4 years. Well, as I just read - I guess this virus couldn't get past the border until 1992. That is the time line that has been fed to folks in the USA. Gloria Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (45) Recent Activity: New Members 10 New Links 27 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 BettyOne of the reasons that I would like to be involved with the pharmaceutical company like Teri and Steve, is so perhaps I could have a bit of an impact about mandatory testing in Canada. Sadly, that's what frustrates a lot of us worldwide - our governments are not recognizing this as an epidemic. Hell, they don't want to even come close to acknowledging this virus. Guess it's gonna have to come right down to the fact that there is a whole lot of us baby boomers that are going to be a heavy weight for the medical plans. I guess that means Medicaid down there. Here, we definitely have a social system and between early pensions, disability needs, medication needs and never mind the cost of a transplant!!! Why is it not logical to throw in the Hep C test whenever the patient is in for some blood work?? Perhaps that way, there is hope of finding the young ones that can be treated long before their livers start dying.OHHH this is a topic that makes me quiver!!Gloria Gloria, I guess that explains a lot of things and why we really haven't come as far as we will with a cure. Why the govt still does not do mandatory testing. I wonder when there will be a vaccine, now thats what will eradicate this the best. One day there will be a cure !! (Wishfull thinking i suppose) Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I wish there was something like that here in the US where there was a payout for being infected. They do that in the UK as well. NOT HERE or I'd be rich by now. Hugs,T When you are up to your ass in alligators it's hard to remember that your initial objective was to drain the swamp. On Tue, Mar 15, 2011 at 10:01 PM, Gloria <gadamscan@...> wrote: Likely, this strain of hepatitis has been around for a very long time. Nobody new what to call it, so it was non hep c or non hep b. When they finally found whatever it was that they needed, we went from C clear through to K. However, I have certainly heard the WWII story along the way. Also, the reason that some Canadians launched a class action suit against whatever agency dispensed the blood, was because during the period between 1986 and 1990, it was known about Hep C. But, the blood people still dispensed blood from the prisons and we all know what happened. Then, I guess there was another class action suit for anyone that could prove their blood was likely tainted when they got it. Didn't matter about years etc. However, any one that had ever used IV drugs, were not even entertained for the suit. What I never could understand about this action was, why did the blood bank get sued for having the blood available BEFORE they knew about Hep C??? Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (50) Recent Activity: New Members 9 New Links 48 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 TeriActually, I was really surprised when I learned of these two class actions. Canadians are not know for making many waves. We usually leave that up to the Americans.You know, I think these people in the class actions, did get several hundred thousand. One lady that I used to converse with, lost all of hers to a man. Now, she's not even alive and I don't know what happened. The minute that the rest of them got their money, there was no support at all on the forum!!! Obviously, not one of them cared about being supportive for all of us others. Nope, they were just worried about paying the mortgage out, as one woman told me. Absolutely no compassion for the larger population that were infected and have to live with it. How were we going to pay our mortgages out?? Yet, we were just as sick. That's why I finally joined an American group. I wish there was something like that here in the US where there was a payout for being infected. They do that in the UK as well. NOT HERE or I'd be rich by now. Hugs,T When you are up to your ass in alligators it's hard to remember that your initial objective was to drain the swamp. On Tue, Mar 15, 2011 at 10:01 PM, Gloria <gadamscan@...> wrote: Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (50) Recent Activity: New Members 9 New Links 48 Visit Your Group Quote Link to comment Share on other sites More sharing options...
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