Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me "You're dying, I'm dying, we're all dying!" I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time! Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'??I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Colette.I hate your Gastro. That man is an ass. Sometimes these guys get MD after their names and they think they are the end all be all and they are NOT. I'd replace him in a heartbeat. What a jerk. He's one of those gastro's that doesn't want to work with people... They become gastro's because they can hide in a GI lab all day and not have to see patients awake. I think I'd have made a scene if that would have happened to me. Yep... I'd probably have had security called on me. I'd have gone off. Hugs,TeriOn Thu, Mar 10, 2011 at 8:22 AM, Colette Wise <scwise@...> wrote: Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me " You're dying, I'm dying, we're all dying! " I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time! Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800 Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'?? I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 -- Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Geez and you actually had two appointments with him? Don't they tell us that we should write down all our questions, so we don't forget?Wait a moment here! Ahh the way the specialist and the Gastro that we now have, use the services of a Society of Nurses that are well educated about Hep C. That way, the Dr. doesn't have to spend time answering all those questions.Those nurses were my lifeline when I was on my first tx. To this day, I have never met that I talked to. Yet, she could calm my fears or questions easily over the telephone.In fact, even though it was a clinical trial the 2nd time, I often needed to talk to . After all, she was the one that knew my personality the best and she was the one that recommended me for the clinical.Gloria Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me "You're dying, I'm dying, we're all dying!" I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time! Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'??I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 I love you Teri! Wish you were closer so you could go to my appts. with me! S. Colette Wise From: theresagottlieb@...Date: Thu, 10 Mar 2011 13:58:27 -0600Subject: Re: [ ] Collette / hepc tx Colette. I hate your Gastro. That man is an ass. Sometimes these guys get MD after their names and they think they are the end all be all and they are NOT. I'd replace him in a heartbeat. What a jerk. He's one of those gastro's that doesn't want to work with people... They become gastro's because they can hide in a GI lab all day and not have to see patients awake. I think I'd have made a scene if that would have happened to me. Yep... I'd probably have had security called on me. I'd have gone off. Hugs,Teri On Thu, Mar 10, 2011 at 8:22 AM, Colette Wise <scwise@...> wrote: Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me "You're dying, I'm dying, we're all dying!" I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time!Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'??I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 -- Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 And I would go with you in a heartbeat!And I love you right back girlfriend!Hugs,TeriOn Thu, Mar 10, 2011 at 11:59 PM, Colette Wise <scwise@...> wrote: I love you Teri! Wish you were closer so you could go to my appts. with me! S. Colette Wise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Great !!! I think you're on to something! LOL! I believe most serious nurses are often more knowledgeable than the Doc, especially with regard to the patient. The Doc is supposed to take care of the big picture but something has gone awry. The big picture has gotten all fuzzy and ill-defined. Wait, I thought that only happened after a few too many! LOL!S. Colette Wise From: gadamscan@...Date: Thu, 10 Mar 2011 18:45:44 -0800Subject: Re: [ ] Collette / hepc tx Geez and you actually had two appointments with him? Don't they tell us that we should write down all our questions, so we don't forget?Wait a moment here! Ahh the way the specialist and the Gastro that we now have, use the services of a Society of Nurses that are well educated about Hep C. That way, the Dr. doesn't have to spend time answering all those questions.Those nurses were my lifeline when I was on my first tx. To this day, I have never met that I talked to. Yet, she could calm my fears or questions easily over the telephone.In fact, even though it was a clinical trial the 2nd time, I often needed to talk to . After all, she was the one that knew my personality the best and she was the one that recommended me for the clinical.Gloria Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me "You're dying, I'm dying, we're all dying!" I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time!Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'??I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 When I was going thru treatment my doc's nurse called me DAILY. She checked on me and we talked about my side effects and she reminded me of my limitations.. She always told me to drink more water.... I never realized how key it was til treatment was over. I could have avoided a lot of side effects if I had just pushed more water... My nurse got me thru treatment, she really did. And I love her for it! Hugs,TeriOn Fri, Mar 11, 2011 at 12:22 AM, Colette Wise <scwise@...> wrote: Great !!! I think you're on to something! LOL! I believe most serious nurses are often more knowledgeable than the Doc, especially with regard to the patient. The Doc is supposed to take care of the big picture but something has gone awry. The big picture has gotten all fuzzy and ill-defined. Wait, I thought that only happened after a few too many! LOL!S. Colette Wise __._,_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 I am so glad you brought up the B-12 issue. I had most of those symptoms before I was diagnosed with HCV, but of course no-one paid attention except my Daddy. (Especially when he witnessed my weight loss, staggering and bruising.) I only see my Daddy once, twice a year at the most and he knew something was terribly wrong. I have been loathe to mention this to you for fear of making up symptoms as they come available. I've been performing due-diligence on this issue so I can bring it up with my new Hep guy on Tuesday. Wish you could come! I only have my husband to accompany me and he's still in the extreme denial and clueless phase. He won't even know what's going on. Hopefully he'll pay attention at this appt. He'll probably be going over the med bills in his mind the whole time. I've become a strain on the family resources and am reminded of this often. I've started a Life's Pros and Cons list and thankfully it's still weighing heavy on the Pro side! S. Colette Wise From: theresagottlieb@...Date: Fri, 11 Mar 2011 00:10:15 -0600Subject: Re: [ ] Collette / hepc tx And I would go with you in a heartbeat!And I love you right back girlfriend!Hugs,Teri On Thu, Mar 10, 2011 at 11:59 PM, Colette Wise <scwise@...> wrote: I love you Teri! Wish you were closer so you could go to my appts. with me! S. Colette Wise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 That's so cool! That's what I'm hoping to find at MUSC. Just a little acknowledgement that this is real and I'm not crazy! (Any more than usual.)S. Colette Wise From: theresagottlieb@...Date: Fri, 11 Mar 2011 00:33:07 -0600Subject: Re: [ ] Collette / hepc tx When I was going thru treatment my doc's nurse called me DAILY. She checked on me and we talked about my side effects and she reminded me of my limitations.. She always told me to drink more water.... I never realized how key it was til treatment was over. I could have avoided a lot of side effects if I had just pushed more water... My nurse got me thru treatment, she really did. And I love her for it! Hugs,Teri On Fri, Mar 11, 2011 at 12:22 AM, Colette Wise <scwise@...> wrote: Great !!! I think you're on to something! LOL! I believe most serious nurses are often more knowledgeable than the Doc, especially with regard to the patient. The Doc is supposed to take care of the big picture but something has gone awry. The big picture has gotten all fuzzy and ill-defined. Wait, I thought that only happened after a few too many! LOL!S. Colette Wise __._,_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Colette,My hubs knew nothing about hep c when I was diagnosed. He went to almost every appointment with me before I started treatment and once I started he was there all the time. Never missed. He took an active role in my treatment. We had only been married a few years when I was diagnosed. I still say the poor man got for worse, in sickness and in poorer way too quickly. Before I got sick, I was the main breadwinner in the household. I made more than double what he did. Now, things have changed drastically. I have to tell you that every day it bothers me that our whole way of life has changed. I can't go back and do that job that paid me 72G a year anymore. Instead, I get SS Disability and it's just a drop in the bucket compared to what it costs to live every month. I take it personally and he talks me out of it daily. So I totally understand that part. You may have a B-12 deficiency and if that is taken care of you just might start feeling a whole lot better. I hope it's that easy.Hugs,Teri On Fri, Mar 11, 2011 at 12:42 AM, Colette Wise <scwise@...> wrote: I am so glad you brought up the B-12 issue. I had most of those symptoms before I was diagnosed with HCV, but of course no-one paid attention except my Daddy. (Especially when he witnessed my weight loss, staggering and bruising.) I only see my Daddy once, twice a year at the most and he knew something was terribly wrong. I have been loathe to mention this to you for fear of making up symptoms as they come available. I've been performing due-diligence on this issue so I can bring it up with my new Hep guy on Tuesday. Wish you could come! I only have my husband to accompany me and he's still in the extreme denial and clueless phase. He won't even know what's going on. Hopefully he'll pay attention at this appt. He'll probably be going over the med bills in his mind the whole time. I've become a strain on the family resources and am reminded of this often. I've started a Life's Pros and Cons list and thankfully it's still weighing heavy on the Pro side! S. Colette Wise Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (9) Recent Activity: New Members 7 New Links 47 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 It's real and you're not crazy. On Fri, Mar 11, 2011 at 12:54 AM, Colette Wise <scwise@...> wrote: That's so cool! That's what I'm hoping to find at MUSC. Just a little acknowledgement that this is real and I'm not crazy! (Any more than usual.)S. Colette Wise p | Reply via web post | Start a New Topic Messages in this topic (11) Recent Activity: New Members 7 New Links 47 Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 No, actually I wouldn't be speechless. But you may not want to hear exactly what I would say as I was on my way out. Been in this ball game too long & have seen many ways Drs can be jerks." A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 On Mar 10, 2011, at 8:22 AM, Colette Wise <scwise@...> wrote: Thanks for the advice, but got that take-home message a long time ago. Great Advice for Anyone!!!! However, my Gastro doesn't like it at all! LOL! He actually told me one day as I was going down my list that he had other patients and took his leave. Wow! That was a first! I don't normally freeze up but that day I was utterly speechless! Of course, there was no longer anyone in the room to talk to. Another time, same doc, used his now-infamous line on me "You're dying, I'm dying, we're all dying!" I'm still confused where that came from! Maybe his strategy is to come up with things that will render people like us speechless. I bet it works every time! Hope you have a day of happyness!!!!!! Colette From: trudykinsey@...Date: Thu, 10 Mar 2011 05:34:02 -0800Subject: [ ] Collette / hepc tx The first thing that comes to mind is that when your liver is compromised you tend to bleed extra and could have low clotting factor. Make surgeries a higher risk.Now it really helps if you can have a friend go with you to all visits. Someone you can confide in TOTALLY. They can ask the questions for you when you freeze up. And they can help you understand every thing after the visit. Most everybody cannot recall all of info after visit. And especcialy when this is so new & foriegn to you, you may have a tendancy to clam up at Drs- your head is spinning from it all.If you have to go alone, sit before hand and write down EVERY thing you are confused about, have questions about, i.e. Like what does Hep and Hep tx have to do with the tennis ball in your goin'??I know it's hard , especcialy now. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 A woman after my own heart!On Fri, Mar 11, 2011 at 1:43 AM, trudykinsey@... <trudykinsey@...> wrote: No, actually I wouldn't be speechless. But you may not want to hear exactly what I would say as I was on my way out. Been in this ball game too long & have seen many ways Drs can be jerks. " A well-behaved woman never made history " Mae Westhttp://facebook.com/people/andTrudy-Kinsey/1340460877 Teri Gottlieb MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 LOL! You're so bad! I think I'll leave it alone and let the powers that be sort it out. I hate to burn bridges.S. Colette Wise From: gadamscan@...Date: Fri, 11 Mar 2011 18:37:32 -0800Subject: Re: [ ] Collette / hepc tx Yup, I totally agree with Trudy!! On your next visit, why don't you brush him off like he does with you? Just make sure that you have your file first. No, actually I wouldn't be speechless. But you may not want to hear exactly what I would say as I was on my way out. Been in this ball game too long & have seen many ways Drs can be jerks. " A well-behaved woman never made history " Mae West http://facebook.com/people/andTrudy-Kinsey/1340460877 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.