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Shana, I know you're scared. My husband was

diagnosed about 6 years ago. He's had all the treatments

too. Read some of the past messages at this sight.

They'll be a great help, I promise. You have to help him

fight HCV with what education about the symtoms you can

find so you have an understanding of what is

happening. We all have our fingers crossed and our prayers

flying that this will be stopped someday soon. Just

remember you're not alone. Take care.

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  • 6 months later...

hey Les: when you say " undetectable " do you mean that they can find no

active virus only the antibodies for the virus? I am new to this and don't

know all the terminology. Donna G.

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hey Les: when you say " undetectable " do you mean that they can find no

active virus only the antibodies for the virus? I am new to this and don't

know all the terminology. Donna G.

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hey Les: when you say " undetectable " do you mean that they can find no

active virus only the antibodies for the virus? I am new to this and don't

know all the terminology. Donna G.

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hey Les: when you say " undetectable " do you mean that they can find no

active virus only the antibodies for the virus? I am new to this and don't

know all the terminology. Donna G.

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Les, I have had HCV for almost 20 years and I am very afraid of treatment. What

was your viral load and biopsy findings? I don't know what my genotype is but it

is most likely 1 which is suppose to be harder to treat then 3a. Also do you

have alot of side effects from the treatment ? Most of the letters on this list

are from people who had terrible side effects is there anyone out there who

truely had mild or no side effects ? Are the shots painful too? Do you believe

the treatment is worth a year of your life ? How many more years are you going

to get and do you really feel it is going to make a great difference in your

life span ? Thanks

Hello

From: LEST2001@...

I would like to introduce myself; I have had HCV of over 30 years. I

completed 48 weeks of combo therapy at the end of Aug. 1999. I have genotype

3a and was on a high dose protocol treatment with 5 million IU Intron + 800

Ribavirin everyday for my first 6 months of treatment, I went undetectable

the first month of treatment & am still undetectable as of my last month

PCR-RNA. I go for my six month post treatment PCR at the end of Fed, 2000 and

hope to still be undetectable at that time.

I like to stay current with HCV Information; no one can say how long I

can keep the virus a bay. If anyone has questions about combo treatment

please feel free to e-mail me.

Take care,

Les

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Les, I have had HCV for almost 20 years and I am very afraid of treatment. What

was your viral load and biopsy findings? I don't know what my genotype is but it

is most likely 1 which is suppose to be harder to treat then 3a. Also do you

have alot of side effects from the treatment ? Most of the letters on this list

are from people who had terrible side effects is there anyone out there who

truely had mild or no side effects ? Are the shots painful too? Do you believe

the treatment is worth a year of your life ? How many more years are you going

to get and do you really feel it is going to make a great difference in your

life span ? Thanks

Hello

From: LEST2001@...

I would like to introduce myself; I have had HCV of over 30 years. I

completed 48 weeks of combo therapy at the end of Aug. 1999. I have genotype

3a and was on a high dose protocol treatment with 5 million IU Intron + 800

Ribavirin everyday for my first 6 months of treatment, I went undetectable

the first month of treatment & am still undetectable as of my last month

PCR-RNA. I go for my six month post treatment PCR at the end of Fed, 2000 and

hope to still be undetectable at that time.

I like to stay current with HCV Information; no one can say how long I

can keep the virus a bay. If anyone has questions about combo treatment

please feel free to e-mail me.

Take care,

Les

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Les, I have had HCV for almost 20 years and I am very afraid of treatment. What

was your viral load and biopsy findings? I don't know what my genotype is but it

is most likely 1 which is suppose to be harder to treat then 3a. Also do you

have alot of side effects from the treatment ? Most of the letters on this list

are from people who had terrible side effects is there anyone out there who

truely had mild or no side effects ? Are the shots painful too? Do you believe

the treatment is worth a year of your life ? How many more years are you going

to get and do you really feel it is going to make a great difference in your

life span ? Thanks

Hello

From: LEST2001@...

I would like to introduce myself; I have had HCV of over 30 years. I

completed 48 weeks of combo therapy at the end of Aug. 1999. I have genotype

3a and was on a high dose protocol treatment with 5 million IU Intron + 800

Ribavirin everyday for my first 6 months of treatment, I went undetectable

the first month of treatment & am still undetectable as of my last month

PCR-RNA. I go for my six month post treatment PCR at the end of Fed, 2000 and

hope to still be undetectable at that time.

I like to stay current with HCV Information; no one can say how long I

can keep the virus a bay. If anyone has questions about combo treatment

please feel free to e-mail me.

Take care,

Les

------------------------------------------------------------------------------

Please click above to support our sponsor

------------------------------------------------------------------------------

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Les, I have had HCV for almost 20 years and I am very afraid of treatment. What

was your viral load and biopsy findings? I don't know what my genotype is but it

is most likely 1 which is suppose to be harder to treat then 3a. Also do you

have alot of side effects from the treatment ? Most of the letters on this list

are from people who had terrible side effects is there anyone out there who

truely had mild or no side effects ? Are the shots painful too? Do you believe

the treatment is worth a year of your life ? How many more years are you going

to get and do you really feel it is going to make a great difference in your

life span ? Thanks

Hello

From: LEST2001@...

I would like to introduce myself; I have had HCV of over 30 years. I

completed 48 weeks of combo therapy at the end of Aug. 1999. I have genotype

3a and was on a high dose protocol treatment with 5 million IU Intron + 800

Ribavirin everyday for my first 6 months of treatment, I went undetectable

the first month of treatment & am still undetectable as of my last month

PCR-RNA. I go for my six month post treatment PCR at the end of Fed, 2000 and

hope to still be undetectable at that time.

I like to stay current with HCV Information; no one can say how long I

can keep the virus a bay. If anyone has questions about combo treatment

please feel free to e-mail me.

Take care,

Les

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i started the combo on july 12 1999 and i just thought life was bad, tired,

sick can't handle the side effects of this stuff really sick in the 3 shot

days rest of time the capsuels are bad. Had skin irration like agent orange

in fact a friend of mine who was sprayed by agent orange in Vietnam gave me

some cream and told me lie on frezzer packs to keep the skin for burning it

worked when the meds started it went away\, sleept for over a month packed

in ice to stop the burning pain the meds finally worked after 2 months. life

will be better when this is over.

Hello

>

>

> From: LEST2001@...

>

> I would like to introduce myself; I have had HCV of over 30 years. I

> completed 48 weeks of combo therapy at the end of Aug. 1999. I have

genotype

> 3a and was on a high dose protocol treatment with 5 million IU Intron +

800

> Ribavirin everyday for my first 6 months of treatment, I went

undetectable

> the first month of treatment & am still undetectable as of my last month

> PCR-RNA. I go for my six month post treatment PCR at the end of Fed,

2000 and

> hope to still be undetectable at that time.

> I like to stay current with HCV Information; no one can say how long

I

> can keep the virus a bay. If anyone has questions about combo treatment

> please feel free to e-mail me.

> Take care,

> Les

>

> --------------------------------------------------------------------------

----

>

>

> Please click above to support our sponsor

>

>

> --------------------------------------------------------------------------

----

>

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Thing is, if develops to cirrhosis like mine has

then, you have pretty much all those side effects

anyway. So I decided to take the combo with hopes

of prolonging the advancement of damage at least.

You become a survivor. I've learned to be

optimistic and focus on life and the small

things.

--- Benson <bkinfo@...> wrote:

> i started the combo on july 12 1999 and i just

> thought life was bad, tired,

> sick can't handle the side effects of this

> stuff really sick in the 3 shot

> days rest of time the capsuels are bad. Had

> skin irration like agent orange

> in fact a friend of mine who was sprayed by

> agent orange in Vietnam gave me

> some cream and told me lie on frezzer packs to

> keep the skin for burning it

> worked when the meds started it went away\,

> sleept for over a month packed

> in ice to stop the burning pain the meds

> finally worked after 2 months. life

> will be better when this is over.

> Re: Hello

>

>

> > From: " Gross " <linda3604@...>

> >

> > Les, I have had HCV for almost 20 years and I

> am very afraid of treatment.

> What was your viral load and biopsy findings? I

> don't know what my genotype

> is but it is most likely 1 which is suppose to

> be harder to treat then 3a.

> Also do you have alot of side effects from the

> treatment ? Most of the

> letters on this list are from people who had

> terrible side effects is there

> anyone out there who truely had mild or no side

> effects ? Are the shots

> painful too? Do you believe the treatment is

> worth a year of your life ? How

> many more years are you going to get and do you

> really feel it is going to

> make a great difference in your life span ?

> Thanks

> > ----- Original Message -----

=====

My message to you: Don't worry, be happy!!

Love to hear from YOU!

Dawn

__________________________________________________

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  • 2 months later...
Guest guest

I just wanted you to know that I stop by

everyday, but see that nobody really comes by that ofter.

If ya need to chat, I am on at different times in

the day or eve. Take care and key ya later. My e

address is in my profile.<br>Danny

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Guest guest

thanks for the answer.I try to stop in, off and

on also.I like to know about other people and their

hepatitis-c.I need to learn all I can for my husband. It is a

family deal,through sickness and in health so the vows

say.Hope to see you on later,Irish

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  • 2 years later...
Guest guest

Hi Mike,

You are not a piece of you know what so don't feel that way. Many

people try the herbal remedies before going on to treatment. The Peg

does have better results, depending on your genotype so you may want

to have your dr give you a genotype blood test.

You also do not need to do treatment until you have a liver biopsy.

Don't start treatment without it. It's a possiblity that you do not

have enough liver damage to warrant doing the treatment at this

time. Get the biopsy done then decide. If you do not have Stage 3

Fibrosis, you can wait on treatment. If you are a genotype 2 or 3

you have a better chance of responding to treatment as well.

The viral load really doesn't mean alot and has nothing to do with

liver damage. It will fluctuate all the time. The ALT is an

indicator of liver inflammation but not of any certain liver damage

either. If your ALT is elevated, you have an inflammed liver. The

other liver enzymes such as GGTP or AST aren't really looked at

closely because other things can factor in to a raised number for

them.

Definitely get the dental stuff out of the way first. Because this

stuff is a form of chemo, it can cause bone loss, even in your

teeth. I've seen studies on this and after doing 4 yrs of treatment

myself I wound up losing 3 teeth due to the bone loss.

Hang in there, get the genotype test and biopsy, then make your

decision.

LeighAnn

http://www.geocities.com/1Leighann

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Guest guest

Hi Mike,

You are not a piece of you know what so don't feel that way. Many

people try the herbal remedies before going on to treatment. The Peg

does have better results, depending on your genotype so you may want

to have your dr give you a genotype blood test.

You also do not need to do treatment until you have a liver biopsy.

Don't start treatment without it. It's a possiblity that you do not

have enough liver damage to warrant doing the treatment at this

time. Get the biopsy done then decide. If you do not have Stage 3

Fibrosis, you can wait on treatment. If you are a genotype 2 or 3

you have a better chance of responding to treatment as well.

The viral load really doesn't mean alot and has nothing to do with

liver damage. It will fluctuate all the time. The ALT is an

indicator of liver inflammation but not of any certain liver damage

either. If your ALT is elevated, you have an inflammed liver. The

other liver enzymes such as GGTP or AST aren't really looked at

closely because other things can factor in to a raised number for

them.

Definitely get the dental stuff out of the way first. Because this

stuff is a form of chemo, it can cause bone loss, even in your

teeth. I've seen studies on this and after doing 4 yrs of treatment

myself I wound up losing 3 teeth due to the bone loss.

Hang in there, get the genotype test and biopsy, then make your

decision.

LeighAnn

http://www.geocities.com/1Leighann

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Guest guest

<P> Hey, we all have tried all these home made stuff

)black coffe and orange juice,all kinds of leafs,

trees and God knows what else. & nbsp; That is good that

means you have high hopes*** Just take one day at a

time. & nbsp; I am also kind of knew at the site also

and it has help me in many ways.I always say: go one

with God and a smile. & nbsp; Good Luck

<P> & nbsp; <B><I>jimandi2002

& lt;jimandi2002@... & gt;</I></B> wrote:

<BLOCKQUOTE style= " PADDING-LEFT: 5px; MARGIN-LEFT:

5px; BORDER-LEFT: #1010ff 2px solid " ><TT>hi, my name

is mike and i live in tampa, fl. i contracted hcv

fromablood transfusion in 1989. until the mid 90's

however, i was notaware of this until i tested pos for

the antibodies in aroutinephysical exam. & nbsp; the

doctor at the time was not all thatconcerned, asmy

blood levels appeared only slightly elevated. about

ayear ago myenzymes levels increased and a viral load

of about1,000,000 was determined. my dr sent me to a

specialist who advisedme at the time to take the

interferon chemo treatment. i searchedaround for

info,and at the time the results people were getting

wasactually very poor. (around 20% success rate with

awful side effects)soooooo, insept of 2001 i started

with & nbsp; chinese traditional medicine.i drank a tea

made up of over a dozen roots, herbs, barks, and

whoknows whatelse twice daily for almost 7 months. he

adjusted theformula each visit, (every 8 days) by

taking my pulse and looking atmy tongue.the herbs made

me feel better almost immediately, but alas,it must

have been a placebo effect. & nbsp; my viral load

actually increasedto1,600,000. i was shocked, to say

the least. so here i am,feelinglike a piece of you

know what, trying to figure out what to donext.i have

been looking at all the messages in this group,

andeveryone here seems so nice and helpful in their

correspondence andreplies. i have an appt. with

another dr to get a second opinion in acoupledays, but

from the look of things, it looks like i will betrying

thepeg treatment soon. i have some & nbsp; dental work

that shouldprobably bedone before taking the chemo,

but should be ready by earlyjuly.thanks for your time

reading this post, and any commentsorsuggestions would

be greatly appreciated. & nbsp; peace,

mike & nbsp; & nbsp; & nbsp; <BR><BR></TT><BR><!-- |**|begin

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Guest guest

<P> Hey, we all have tried all these home made stuff

)black coffe and orange juice,all kinds of leafs,

trees and God knows what else. & nbsp; That is good that

means you have high hopes*** Just take one day at a

time. & nbsp; I am also kind of knew at the site also

and it has help me in many ways.I always say: go one

with God and a smile. & nbsp; Good Luck

<P> & nbsp; <B><I>jimandi2002

& lt;jimandi2002@... & gt;</I></B> wrote:

<BLOCKQUOTE style= " PADDING-LEFT: 5px; MARGIN-LEFT:

5px; BORDER-LEFT: #1010ff 2px solid " ><TT>hi, my name

is mike and i live in tampa, fl. i contracted hcv

fromablood transfusion in 1989. until the mid 90's

however, i was notaware of this until i tested pos for

the antibodies in aroutinephysical exam. & nbsp; the

doctor at the time was not all thatconcerned, asmy

blood levels appeared only slightly elevated. about

ayear ago myenzymes levels increased and a viral load

of about1,000,000 was determined. my dr sent me to a

specialist who advisedme at the time to take the

interferon chemo treatment. i searchedaround for

info,and at the time the results people were getting

wasactually very poor. (around 20% success rate with

awful side effects)soooooo, insept of 2001 i started

with & nbsp; chinese traditional medicine.i drank a tea

made up of over a dozen roots, herbs, barks, and

whoknows whatelse twice daily for almost 7 months. he

adjusted theformula each visit, (every 8 days) by

taking my pulse and looking atmy tongue.the herbs made

me feel better almost immediately, but alas,it must

have been a placebo effect. & nbsp; my viral load

actually increasedto1,600,000. i was shocked, to say

the least. so here i am,feelinglike a piece of you

know what, trying to figure out what to donext.i have

been looking at all the messages in this group,

andeveryone here seems so nice and helpful in their

correspondence andreplies. i have an appt. with

another dr to get a second opinion in acoupledays, but

from the look of things, it looks like i will betrying

thepeg treatment soon. i have some & nbsp; dental work

that shouldprobably bedone before taking the chemo,

but should be ready by earlyjuly.thanks for your time

reading this post, and any commentsorsuggestions would

be greatly appreciated. & nbsp; peace,

mike & nbsp; & nbsp; & nbsp; <BR><BR></TT><BR><!-- |**|begin

egp html banner|**| -->

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  • 4 months later...

" giglebutt2002 " <giglebutt2002@...> wrote:

>Hello I have benn out of the group for some time now, I am back now

>and happy to join in or just listen to everyone again. well just

>wanted to let you all know that I am back

>take care Debbie

> hi Debbie

Welcome , I am new to the group a couple of weeks, where are you from,

kathy b, pa

>

>

>

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  • 1 month later...

HI.Doing 52 weeks is good,I did 15 months,the longer the better to kill any

remnants of the virus.After tx there is nothing you can do or the doc. except

waiting for the PCR which only makes sense when it.s done minimal 3 months after

tx.So go to Norway take yr Doc. with you!..

Hello

Hi, How is everyone doing? I am on week 28 and doing good. The room has been

quiet. I wanted to tell you all that my Dr. just surprised me with the 52

week course of pegintron. It has screwed up a lot of my plans:(. I was

wondering if anyone knew the answer to this question. He didn't want me to

leave the country at the end of treatment, which was to be Easter. Now that

it is 4 weeks longer. I would like to go back to the original plans and go to

Norway. Is there any reason I shouldn't leave the country?

I am confused, I found out about the 52 weeks treatment plan just this week.

How is everyone doing?

Your hepper friend who is doing good. My enzymes are normal ... finally.

Donna

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  • 2 months later...

Hi Kerry,

Thanks for the link to your site. I'll add it to our links page here

too. You are so right about laughter! It makes such a difference,

even if you are on treatment.

LeighAnn

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  • 1 month later...
  • 1 month later...
Guest guest

Hey Hutch howsit! I would have liked to be the first to welcome u

but I like to sleep till the crack of noon. I am in the no

detectable virus category now (1B), waiting for my 6 mo. blood work.

It's pretty exciting, I was diagnosed 11 years ago and have been

fighting this for a long time. This TX has been pretty good at doing

it's job so far, for a lot o' folks. Good luck with yours. We're all

here to help you, so give a holler if you want to talk. Any subjects

OK (except maybe politics lol).

" I find the harder I work, the more luck I seem to have. "

THOMAS JEFFERSON

> I was diagnosed in 9/2002 with a enzyme count of 13

Million.......I

> am getting ready to start my treatment with peg-itron and rebetol.

Am

> scared a little bit.......ya know the uncertainty on how I will

react

> to the treatment/medication......I wanted to be the first to post

> this month...looks like I made it on y debut....I am from

Hutchinson,

> Kansas if there are any people close to me please e-mail me and

let's

> shoot dachit!looking forward to gaining alot of support from you

all

> here in the group......

>

> Have a Nive day

> Happy May

> Huchinsonhepper

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