hello

[Guest guest]

What area did u work? I am an RN on PCU..heart floor. So ready for a change!

Melody

Sent from my Verizon Wireless BlackBerry

Hello

I am from the southern tip of Illinois...right across the

river from Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

had rhuematoid arthritis since I was 26 and I am now 41. I had an mri of my back

and hip this last week and awaiting the results. I had neck surgery 2 years ago

and wish I would not have waited 3 years to get it. Live and learn. Nice to

" meet " everyone here! Melody

=

[Guest guest]

seems to me it came from baxter medical......... occipivot. i'll see ifi can

find the website again. what it does is put pressure on two pressure points in

your neck. you only use it for about 15 minutes at a time. it works 80% of the

time for me.

d

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

seems to me it came from baxter medical......... occipivot. i'll see ifi can

find the website again. what it does is put pressure on two pressure points in

your neck. you only use it for about 15 minutes at a time. it works 80% of the

time for me.

d

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

its by chattanooga medical

http://www99.shopping.com/xPO-Chattanooga-Chattanooga-4500-Pivotal-Therapy-Set-I\

ncludes-4502-Occipivot-4504-Cervical-Pivot-4506-Short-Thoracic-Pivot-4510

going to get the company website for you..........the above link shows the whole

system. i only use the one for upper neck. it works and guess what...no meds.

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

its by chattanooga medical

http://www99.shopping.com/xPO-Chattanooga-Chattanooga-4500-Pivotal-Therapy-Set-I\

ncludes-4502-Occipivot-4504-Cervical-Pivot-4506-Short-Thoracic-Pivot-4510

going to get the company website for you..........the above link shows the whole

system. i only use the one for upper neck. it works and guess what...no meds.

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

www.chattmed.com

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

www.chattmed.com

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

www.chattmed.com and search occipivot i wouldn't suggest it if it didn't work

for me. i only use the top unit and it's only 30 bucks

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

www.chattmed.com and search occipivot i wouldn't suggest it if it didn't work

for me. i only use the top unit and it's only 30 bucks

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

Well....i've had fun in the group today.......thanks for all the

courtesies....... i guess i've got to shower and go do some work. i don't

wanna..........but.

Danny

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

>

>

>

>

>

>

[Guest guest]

hi danny, washington state here but can see oregon across the mighty columbia

river. pop 200 people, about an hour east of portland. wyldhunny

From: fuddster__ <dmj25@...>

Subject: Re: Hello

neck pain

Date: Sunday, November 1, 2009, 11:10 AM

 

Hey Deb .........I've never been there but have always heard great things about

Wisconson's health system. Living in the " armpit " of the country..... ....I

would imagine that just about everyone in here has access to a better health

care system. Don't get me wrong...there are somethings that we have an abundance

of, ignorance, poverty, uneducated dropouts, highest rate of teen pregnancies,

std's, hurricanes, tornadoes, unemployment, let's see....did i leave any

out....hmmmmmm hehe........ .....sad part is...it's all true. Almost

forgot....diabetes from all the fried chicken. Seriously... .....highest rate of

diabetes per capita in the country.

Danny

>

>

> From: Melody <melodysumnlers@ ...>

> Subject: [PainInTheNeck- Back] Hello

> PainInTheNeck- Back@groups .com

> Date: Sunday, November 1, 2009, 12:48 PM

>

>

>  

>

>

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Mayo Clinic is here on the East Coast, but I think it might be in NY.

June

In a message dated 11/1/2009 4:55:10 P.M. Eastern Standard Time,

minnesotareader@... writes:

Mayo. Hopkins - East?

From: fuddster__ <_dmj25@..._ (mailto:dmj25@...) >

Subject: [PainInTheNeck-Subject: [P

_PainInTheNeck-PainInTheNeck-<WPain_

(mailto:neck pain )

Date: Sunday, November 1, 2009, 1:22 PM

Is it Mayo or s Hopkins in MN?

>

> From: Melody <melodysumnlers>

> Subject: [PainInTheNeck- Back] Hello

> PainInTheNeck- Back@groups .com

> Date: Sunday, November 1, 2009, 12:48 PM

>

>

>

> I am from the southern tip of Illinois...right across the river from

Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have had

rhuematoid arthritis since I was 26 and I am now 41. I had an mri of my back

and

hip this last week and awaiting the results. I had neck surgery 2 years

ago and wish I would not have waited 3 years to get it. Live and learn. Nice

to " meet " everyone here! Melody

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

[Guest guest]

Mayo.  Hopkins - East?

From: fuddster__ <dmj25@...>

Subject: Re: Hello

neck pain

Date: Sunday, November 1, 2009, 1:22 PM

 

Is it Mayo or s Hopkins in MN?

>

> From: Melody <melodysumnlers>

> Subject: [PainInTheNeck- Back] Hello

> PainInTheNeck- Back@groups .com

> Date: Sunday, November 1, 2009, 12:48 PM

>

>  

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

[Guest guest]

Welcome Melody,

I am about 50 miles up river from you in Chester, Illinois.

This is a great group..hope you can find what you need!!

Gentle hugs,

Marla

Hello

I am from the southern tip of Illinois...right across the river from Paducah KY.

I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

[Guest guest]

I have heard of Chester but never been there. Nice to meet you! Mel

From: jessiejo10@... <jessiejo10@...>

Subject: Re: Hello

neck pain

Date: Sunday, November 1, 2009, 5:08 PM

 

Welcome Melody,

I am about 50 miles up river from you in Chester, Illinois.

This is a great group..hope you can find what you need!!

Gentle hugs,

Marla

[PainInTheNeck- Back] Hello

I am from the southern tip of Illinois...right across the river from Paducah KY.

I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

[Guest guest]

gotta keep in mind where i'm from as far as some of my questions/posts

hell......we've barely got running water......hehe

> >

> > From: Melody <melodysumnlers>

> > Subject: [PainInTheNeck- Back] Hello

> > PainInTheNeck- Back@groups .com

> > Date: Sunday, November 1, 2009, 12:48 PM

> >

> >  

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

> >

[Guest guest]

No problem.  Mayo Hospital/Clinic in Rochester, MN.  My daughter was fortunate

to do a nursing internship program there this summer.  We've had some

celebrities go there too.

 

Just googled Hopkins, located in Baltimore MD.  Daughter said JH was ranked

#1, Mayo ranked #2.

 

Unless of course there are more than one of these famous hospitals located

elsewhere.

That's all I know for today.

From: fuddster__ <dmj25@...>

Subject: Re: Hello

neck pain

Date: Sunday, November 1, 2009, 6:54 PM

 

gotta keep in mind where i'm from as far as some of my questions/posts

hell......we' ve barely got running water......hehe

> >

> > From: Melody <melodysumnlers>

> > Subject: [PainInTheNeck- Back] Hello

> > PainInTheNeck- Back@groups .com

> > Date: Sunday, November 1, 2009, 12:48 PM

> >

> >  

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

> >

[Guest guest]

Hello

Hopkins is in Baltimore, MD.

RN

> >

> > From: Melody <melodysumnlers>

> > Subject: [PainInTheNeck- Back] Hello

> > PainInTheNeck- Back@groups .com

> > Date: Sunday, November 1, 2009, 12:48 PM

> >

> >  

> >

> > I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

> >

> >

[Guest guest]

At 10:03 PM 11/1/2009, you wrote:

>

>

>I am from the southern tip of Illinois...right across the river from

>Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

>had rhuematoid arthritis since I was 26 and I am now 41. I had an

>mri of my back and hip this last week and awaiting the results. I

>had neck surgery 2 years ago and wish I would not have waited 3

>years to get it. Live and learn. Nice to " meet " everyone here! Melody

Welcome Melody to our group. I saw in a documentary that we talked

about here " The Oxycontin Express " that Oxycontin abuse is rampant in

KY, is that true in the area you work in? Do you see a lot of

OD's? Thanks, Dave

[Guest guest]

I have never heard of that. No I don't see a lot of od.

Sent from my Verizon Wireless BlackBerry

Re: Hello

At 10:03 PM 11/1/2009, you wrote:

>

>

>I am from the southern tip of Illinois...right across the river from

>Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

>had rhuematoid arthritis since I was 26 and I am now 41. I had an

>mri of my back and hip this last week and awaiting the results. I

>had neck surgery 2 years ago and wish I would not have waited 3

>years to get it. Live and learn. Nice to " meet " everyone here! Melody

Welcome Melody to our group. I saw in a documentary that we talked

about here " The Oxycontin Express " that Oxycontin abuse is rampant in

KY, is that true in the area you work in? Do you see a lot of

OD's? Thanks, Dave

[Guest guest]

I am sorry to hear that you are going through this and know this must be very

difficult for your son at the age of 17. It is odd how everything seems to be

" normal " one day and the next things are just totally different. That is how it

was for us but then as we stopped and looked back there were so many signs that

we had just chalked up to something else. I do not know where you are from but

hope you can find a connection for the support you need through this close by as

well as am glad you found our group. We have others on this list with spondy and

I am sure they will chime in to give you the encouragement. If you have a local

arthritis group it would be good to connect there also, you can call your

arthritis foundation and find out. Do not think you are alone in this fight? I

felt that way for a while and then one day was sitting at a table at my

daughters school giving out some sort of information, I cant remember. I was

stressing over the amount of school my daughter had missed and happened to

mention it to the other lady helping me. As we talked I mentioned JIA to her and

she looked at me like I was odd and said that her son also had JIA. While we

were talking another mother walked up and had over heard us and she said she

totally understood our frustrations becasue she had been diagnosed with JIA at a

young age. So here I had two mom's to talk to about this issue that I had known

for years but the subject had never come up. These were not close friends just

acquaintances whos children were in the same class with my daughter since

preschool, and I only see them on rare occasions. I just say this to point out

that there are many out there that will probably never tell you their story if

they do not know you have a story to tell them. We do not have a local group

here but I wish we did. I am not sure how I would find time to be involved but I

know I could find time for it somehow. We have people on this list from all

over the world. What state are you in? I would guess we have people from every

state in the US as well and maybe there is someone close that can help you feel

more connected. I hope things get better for your son soon and that the meds

start working. I think it is really horrible when our kids are hit at such a

young age before they are walking even and all the suffering they go through.

But I also know how devastating it can be for a healthy teenage to get hit and

suddenly have to change their lifestyle to accomodate an illness. My daughter

was 11 at diagnosis and it was not easy, it was certainly not fun, it was scary

with all the testing they did to rule out all the many other horrible things it

could have been. But I almost think her age was easier then if she had be struck

with this at the age of 15, 16 or 17. Prayers for you and your family.

Veri & Jaye 16 poly

Hello

My 17yo son was recently diagnosed with Juvenile Spondyloarthropathy. He was

working a full time job over the summer where he took a couple of days off to

attend wrestling camp. When he came home we noted a skin infection/rash. One

weekend he helped out a friend on a side job where he started pounding his feet

into a shovel repeatedly. About three days later he began with swelling and

severe pain in his heels. Doctor diagnosed plantar fascitis but after a few

weeks and no relief sent him for blood work. Pediatrician was skeptical about

arthritis but we decided to follow up anyway.

Rheum. says he either has reactive or possible ankylosing spondylitis.

Currently, He takes Methotrexate injections, sulfasalazine, prednisone, and

motrin. We are starting Remicade infusions next week since he has had some

relief but not complete yet. He still spends half the day with crutches and

complains of increasing back pain. Mornings and evenings are the worse time of

day.

My husband who has been dealing with back pain for the over 25 years has also

tested positive for HLA-B27 so we have to follow up with a doctor for him as

well.

I look forward to talking with others who understand our issues. There have not

been any others in our area that we are aware of with arthritis.

[Guest guest]

Hi there,

Although my daughter has a different type of arthritis (psoriatic), she

started on the Remicade infusions over the summer, and has really seen a big

difference! Her affected areas are toes, one thumb joint, knees and lower

spine, plus had had recurring bouts of uveitits, losing the sight in one eye

twice. (luckily, it has come back and has been stabilized with the

Remicade). She also takes methtexate injections and liquid Naprosen. She

was on Humira for about a year, but it didn't do much for her. She was

diagnosed at age 5, and is 9 now. Hopefully the Remicade will help your son

as well. I'll say an extra prayer for your family!!

Best wishes,

Lori

On Fri, Dec 3, 2010 at 12:33 PM, tjdtj4 <screamingenie@...> wrote:

>

>

> My 17yo son was recently diagnosed with Juvenile Spondyloarthropathy. He

> was working a full time job over the summer where he took a couple of days

> off to attend wrestling camp. When he came home we noted a skin

> infection/rash. One weekend he helped out a friend on a side job where he

> started pounding his feet into a shovel repeatedly. About three days later

> he began with swelling and severe pain in his heels. Doctor diagnosed

> plantar fascitis but after a few weeks and no relief sent him for blood

> work. Pediatrician was skeptical about arthritis but we decided to follow up

> anyway.

>

> Rheum. says he either has reactive or possible ankylosing spondylitis.

> Currently, He takes Methotrexate injections, sulfasalazine, prednisone, and

> motrin. We are starting Remicade infusions next week since he has had some

> relief but not complete yet. He still spends half the day with crutches and

> complains of increasing back pain. Mornings and evenings are the worse time

> of day.

>

> My husband who has been dealing with back pain for the over 25 years has

> also tested positive for HLA-B27 so we have to follow up with a doctor for

> him as well.

>

> I look forward to talking with others who understand our issues. There have

> not been any others in our area that we are aware of with arthritis.

>

>

>

[Guest guest]

Hello,

I am so sorry. It sounds like the doctors are treating him aggressively, and

doing eveything right on schedule. You are very blessed with that. Sometimes

it takes forever to get a diagnosis and treatment. It takes 6 week here and a

state away to see a ped. rheumy!

This is a great group for support. You may want to contact your local arthritis

foundation, to see if there are any local groups. It is nice for your child to

meet others. My children are young enough to go to arthritis camp. That is

life-changing for them. They LOVE it. Everyone hurts, and everyone takes meds,

so they are not different.

Have a very blessed holiday season.

Audra

14 poly 07

Peyton 12 poly 08

>

> My 17yo son was recently diagnosed with Juvenile

[Guest guest]

Hi and welcome to the list. My son has the same diagnosis as yours, however

tested negative for HLAB 27. My husband too has similar struggles. You

have found a great group with lots of info. There are others here with same

diagnosis; 's son Rob also tested positive as yours did. If you have any

questions feel free to ask away. Or if you just need a safe place to vent, you

have found others who understand exactly what you are going through.

Hugs, Michele ( 23, spondy)

From: [mailto: ] On Behalf Of

tjdtj4

Sent: Friday, December 03, 2010 11:33 AM

Subject: Hello

My 17yo son was recently diagnosed with Juvenile Spondyloarthropathy. He was

working a full time job over the summer where he took a couple of days off to

attend wrestling camp. When he came home we noted a skin infection/rash. One

weekend he helped out a friend on a side job where he started pounding his feet

into a shovel repeatedly. About three days later he began with swelling and

severe pain in his heels. Doctor diagnosed plantar fascitis but after a few

weeks and no relief sent him for blood work. Pediatrician was skeptical about

arthritis but we decided to follow up anyway.

Rheum. says he either has reactive or possible ankylosing spondylitis.

Currently, He takes Methotrexate injections, sulfasalazine, prednisone, and

motrin. We are starting Remicade infusions next week since he has had some

relief but not complete yet. He still spends half the day with crutches and

complains of increasing back pain. Mornings and evenings are the worse time of

day.

My husband who has been dealing with back pain for the over 25 years has also

tested positive for HLA-B27 so we have to follow up with a doctor for him as

well.

I look forward to talking with others who understand our issues. There have not

been any others in our area that we are aware of with arthritis.

[Guest guest]

>

> I was curious to know if eclipta alba(one of the ten flowers) in form of tea

(I drink after meals) and making my own vitamin c from orange, lemon, and lime

peels would have any determent to Bee's Candida program. Today is day one for

me. If you could provide input I would greatly appreciate! Thank yoU!

+++Hi there. Welcome to our group. What is your name please?

I think I just replied to the email you sent to my personal email address.

1) Teas are diuretic, meaning they make your body lose water along with

important minerals, so it isn't a good idea to have more than 2 cups per day.

2) Fruits are high in a sugar called fructose, which is one of the worst kinds

of sugar for anyone, even when they are healthy. My program allows small amount

of lemon and lime, but some people just starting on my program aren't able to

tolerate any for awhile.

There's nothing wrong with take vitamin C supplements that I recommend - see

this page for where to buy them, which helps me if you have not ordered from

iHerb before, if you give them my Rewards Number:

http://www.healingnaturallybybee.com/resource/iherb.php

Since you are new please ensure you read two important articles so you know what

you need to do and why:

How to Successfully Overcome Candida:

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started:

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group:

http://www.healingnaturallybybee.com/success/index.php

The best in health, Bee