hello

[Guest guest]

Hey, Mark, I'm in the Chicago area and am genotype 1B. No liver damage, too.

Much as I'd love to clear the virus, chances are that you and I will never have

to take treatment. The symptoms are something we can live with, not die from,

since there is little to no liver damage. Unlucky for us that genotypes 1 have

a very poor response from the treatment, and have more of a chance of permanent

side effects from the treatment than good responses from it.

I've been living with the diagnosis for almost 3 years now, and keep hoping that

the miracle cure is just over the horizon.

Marilyn

Hello

Hi,

My name is Mark, I live in Nashville, Tn., and I am a Geno-type

1a Hep C+ person that has little to no liver damage to date. I have

been waiting for something new to come along that works better with

my geno-type.. is there anyone with info about anything new that

works well for a 1a Geno-type.?

Thanks... ~Mark

[Guest guest]

Hi, Mark!

Aside from clinical trials, there are no new treatments that have

been released. It does appear that something may be coming out

within the next year.

I too am genotype 1, but I did clear the virus via the Pegasys

treatment. It's a nasty treatment and if you can wait, do so.

Hugs, Suzy

>

> Hi,

> My name is Mark, I live in Nashville, Tn., and I am a Geno-type

> 1a Hep C+ person that has little to no liver damage to date. I

have

> been waiting for something new to come along that works better

with

> my geno-type.. is there anyone with info about anything new that

> works well for a 1a Geno-type.?

>

> Thanks... ~Mark

[Guest guest]

Hey Marilyn,

Thats what my doctors have told me through the years too... they

say I may live to die of old age if I live a clean lifestyle... so I

do, I don't drink, smoke, or do drugs other than prescriptions here

and there. I was diagnoised in 1997, and not much has changed since

that time... so waiting is an option for now I chose to live with,

the treatment appears far worse than the disease. I pray someday we

shall have a new treatment that will be nowhere near as bad as TX,

and will treat our types as well as every type.!!

Take care... ~Mark

> Hey, Mark, I'm in the Chicago area and am genotype 1B. No liver

damage, too. Much as I'd love to clear the virus, chances are that

you and I will never have to take treatment. The symptoms are

something we can live with, not die from, since there is little to

no liver damage. Unlucky for us that genotypes 1 have a very poor

response from the treatment, and have more of a chance of permanent

side effects from the treatment than good responses from it.

>

> I've been living with the diagnosis for almost 3 years now, and

keep hoping that the miracle cure is just over the horizon.

>

> Marilyn

> Hello

>

>

>

> Hi,

> My name is Mark, I live in Nashville, Tn., and I am a Geno-

type

> 1a Hep C+ person that has little to no liver damage to date. I

have

> been waiting for something new to come along that works better

with

> my geno-type.. is there anyone with info about anything new that

> works well for a 1a Geno-type.?

>

> Thanks... ~Mark

>

>

[Guest guest]

Hi Suzy,

That's the first I have heard of something new coming out in

about a year... that is why I have re-joined some of these groups,

to gain info, and make some friends. Glad to hear you did clear the

virus, and yes tx is nasty, I have seen it at work close at hand.!!

Thanks... ~Mark

> >

> > Hi,

> > My name is Mark, I live in Nashville, Tn., and I am a Geno-

type

> > 1a Hep C+ person that has little to no liver damage to date. I

> have

> > been waiting for something new to come along that works better

> with

> > my geno-type.. is there anyone with info about anything new that

> > works well for a 1a Geno-type.?

> >

> > Thanks... ~Mark

[Guest guest]

Hi Diane,

First of all, don't be scared, this is something you can live with, and not die

from. We all freak out when we first get the diagnosis. How did you find out

that you had Hep C? For me, I would have never known, but my doctor had two

friends that were recently diagnosed, so she was checking out all her patients

who had blood transfusions. Lucky me, I told her I had them when I was 10 and

12, and she said, since she had drawn my blood already, how about if we check

it?

There are lots of people on this list who can give you lots of guidance. I have

decided not to get treatment, since I am genotype 1B, not very responsive to

treatment, and I have no liver damage, and maybe never will. What steps is your

doctor taking to see where you are at with this disease?

You aren't alone, there are so many wonderful people on this list with a lot of

good information to offer you. When I got my diagnosis, I thought I heard my

death sentence. The great people on this list set me straight, and I am living

a better life than I did before I found out I was positive for Hep C. Ask any

questions you might have, there are so many people who have gone before you and

can help you deal with this and deal with the doctors, too.

Happy Thanksgiving to you and everyone else, too!

Marilyn

hello

hello,my name is diane,41yrs old female,lives in charlotte nc.i was

diagonise with Hepatitis C last week,and i would very much like some

information on this,and support groups if you know any.please email

me some information.im looking forward to meeting new friends.

hope you all have a wonderfull thanksgiving.........diane

[Guest guest]

And yes, WELCOME. Wildflower has hooked you up, I see. Fantastic.

Browse all of those links and the links they lead you to. When you

get bored, email me and I'll send you more.

Hey, Wildflower, are you a certified advocate? If not, you should

be!

Hugs and prayers to Diane, Marilyn and Wildflower...hope you have a

relaxing evening!

Suzy

[Guest guest]

Hi I'm in Charlotte too. You may want to contact the Carolinas

Center for Liver Disease. Dr. Reindollar. He's very good and

specializes in Hepatology..

>

> hello,my name is diane,41yrs old female,lives in charlotte nc.i was

> diagonise with Hepatitis C last week,and i would very much like some

> information on this,and support groups if you know any.please email

> me some information.im looking forward to meeting new friends.

> hope you all have a wonderfull thanksgiving.........diane

[Guest guest]

hello,i want to thank you very much for your input.ill call this doctor and see

him.hope to make a new friend here.diana

hghlander_28054 <no_reply > wrote:

Hi I'm in Charlotte too. You may want to contact the Carolinas

Center for Liver Disease. Dr. Reindollar. He's very good and

specializes in Hepatology..

>

> hello,my name is diane,41yrs old female,lives in charlotte nc.i was

> diagonise with Hepatitis C last week,and i would very much like some

> information on this,and support groups if you know any.please email

> me some information.im looking forward to meeting new friends.

> hope you all have a wonderfull thanksgiving.........diane

[Guest guest]

Let me know if there is anything I can do.. I'm on my third round of

TX (24 weeks in)..Geesh

> >

> > hello,my name is diane,41yrs old female,lives in charlotte nc.i

was

> > diagonise with Hepatitis C last week,and i would very much like

some

> > information on this,and support groups if you know any.please

email

> > me some information.im looking forward to meeting new friends.

> > hope you all have a wonderfull thanksgiving.........diane

>

>

>

>

>

[Guest guest]

Hi Diane,

I'll be starting on my third 48 week treatment after Christmas. If I can

help, let me know. There are lots of web sites also, including the

American Liver Foundation and lots more.

I'm down in the Florida panhandle and I'm 57. Have you found out your

viral genotype or had a biopsy yet? I get a lot of great information

from this group, too.

Have a great holiday season. I'll be at Disney World from Dec. 4-11, but

before and after that I'd be glad to answer any questions on my experience.

Marie

> > > hello,my name is diane,41yrs old female,lives in charlotte nc.i

>was

> > > diagonise with Hepatitis C last week,and i would very much like

>some

> > > information on this,and support groups if you know any.please

>email

> > > me some information.im looking forward to meeting new friends.

> > > hope you all have a wonderfull thanksgiving.........diane

> >

> >

> >

> >

> >

[Guest guest]

hello,thank you for the letter.no they havent started me on my genotype yet,or

did a biospy.im waiting to hear from doctor soon.yes,i can use all the

information i can.it gets frustrated knowing that im not on my medicine yet,and

being sick all the time.hope u had a nice thanksgiving.love to hear from you

soon,,,,,,,,,,,,diana

Marie Kuhn <mariemk@...> wrote:

Hi Diane,

I'll be starting on my third 48 week treatment after Christmas. If I can

help, let me know. There are lots of web sites also, including the

American Liver Foundation and lots more.

I'm down in the Florida panhandle and I'm 57. Have you found out your

viral genotype or had a biopsy yet? I get a lot of great information

from this group, too.

Have a great holiday season. I'll be at Disney World from Dec. 4-11, but

before and after that I'd be glad to answer any questions on my experience.

Marie

> > > hello,my name is diane,41yrs old female,lives in charlotte nc.i

>was

> > > diagonise with Hepatitis C last week,and i would very much like

>some

> > > information on this,and support groups if you know any.please

>email

> > > me some information.im looking forward to meeting new friends.

> > > hope you all have a wonderfull thanksgiving.........diane

> >

> >

> >

> >

> >

[Guest guest]

HI a..

Welcome, what kind of JRA do you have???

Do you know about the message boards at the Arhtritis foundation

website?? I believe they have some for children too, perhaps you can

join there too and be able to talk to kids just like you... Just an

idea...

Hugs Helen and (7,systemic)

>

>

> Hi my name is a . I am 11 years of age. I have JRA. I

> need some more information on JRA. I go to sleep everynight with

> aching pains. I have the really bad kind of JRA the kind that

swells

> up your organs. I was in the hospital for 1 month beause of the

JRA.

> Please if you have any advice for me please let me know. Or any

> doctors. Atlanta,GA. Thanks for reading my message.

>

>

> a

[Guest guest]

Hi,a. We do have some members who live in Georgia. Hopefully they

will respond with info on drs and support in your state. I am sorry you

are having such pain and difficulty. What kind of medicine do you take?

Sometimes it takes awhile to find the right meds that will work for you.

But with the right things, you can feel better. There are some people

here who have had JRA since they were kids. There is lots of info here

in the old posts you can look through. You can also go to

www.arthritis.org for information. Good luck in your search. I hope you

feel better soon, Michele ( 17, pauci & spondy)

Hello

Hi my name is a . I am 11 years of age. I have JRA. I

need some more information on JRA. I go to sleep everynight with

aching pains. I have the really bad kind of JRA the kind that swells

up your organs. I was in the hospital for 1 month beause of the JRA.

Please if you have any advice for me please let me know. Or any

doctors. Atlanta,GA. Thanks for reading my message.

a

[Guest guest]

Hi,

You are a very mature 11 yr old.I don't know of too many that would look up

their own disease and join a support group.

Yes sweetie,you have the worst kind of JRA, known as systemic JRA or SoJRA

for short also known as Stills disease.

You have already most likely been introduced to the pred and have noticed

your little body changeing.It's not forever and all the Cushingoid symptoms will

go away.Moon face,big belly,hair growth,hump at the base of the neck.You might

want to try and talk to your classmates about whats happening,if they don't

already know.The side effects of the steroids can be quite devestating.The

Arthritis Foundation has materials that will help.

Just know that with the right combo of drugs,some being pills,some being

shots and mayby some being IV infusions you can go back to feeling 100%.There

are

alot of new drugs out there that are working wonders.Many that you might not

like the way they are given but if it makes the pain go away it's worth the

little prick.

As brave as you are and obviously smart you need to have your mom or dad join

the list.FACES can get you in touch with a pen pal but an adult who is in

charge of your medical care realy needs to be involved an educated.It can mean a

world of differance in your care.

You have to understand that moms and dads don't realize that kids can get

arthritis and it's quite a shock.It's heartbreaking and at first they are just

lost.Give them some time to grieve but keep pushing them to do whats best.The

medicines are scarey at first but with labwork all goes well.They can detect

things before anything bad happens which is rare.

You sound amazingly bright for such a young girl so my advise to you is

forYOU to talk to your pediatric rheumatologist at every visit.You ask your

qustions.Parents don't realize how much young children understand.Be honest and

open

about how you have been feeling.Keep your own journal/diary about

fevers,rashes,pain and so on.It's so easy to forget but very useful to the

doctor.

It will take a while to get better.There is no cure and no overnight miricle

pill but something tells me you have spunk and lots of it.I see lots of good

times in your future and mayby a future pediatric rheumatologist.

Quick math quiz.There are around 170 ped rheumies in the whole United States

and around 300,000 kids with arthritis.We are fighting to pass some laws in DC

about this problem.Can you figure out why.

God bless you

Becki and 6 systemic

[Guest guest]

Welcome to the group. I'm one of the newbies so I don't know much,

but I'll tell you this: knowing is a relief, and starting treatment

is a huge relief.

However, naproxen doesn't work most of the time yet doctors have to

try it because it's " standard of care. " What I did is after a couple

of weeks with no change I called the specialist and said naproxen

isn't making any difference as far as the inflamation and it's

upsetting her tummy badly, what can I do? The nurse practitionner

called me back not surprised at all and told me to start giving her

antiacid and come back in sooner than planned. That's when the real

treatment started.

What I'm trying to say is let the doctor know how the disease is

progressing, don't wait to talk to them between appointments,

especially at first.

Good luck to you and Lily!

Annie & nne, almost 7, pauciarticular and jumping on a

neighbor's trampoline as I type. When will she decide for herself

that trampolines are bad news on her ankle? Ever?!

>

>

> Hi.My daughter, Lily was diagnosed with Systemic JRA this past

> Wednesday. Is it wrong that I was a bit relieved that there is

> finally an answer to the questions we have been having about Lily?

> Over the past year we were told that Lily had a " virus " about 15 or

> so times. What is strange is that I have always been the one to

take

> Lily to the doctor, well her father took her for her 3 year check

up

> and he brought up the fact that his sister had JRA. Lily had been

> complaining about her knee hurting " on the inside. " That's when the

> doctor suggested we take her to see the specialist. It took quite

> some time for us to get an appointment and then I cancelled the

first

> one because she had a high fever, (go figure.) I missed 7 days of

> work in the 45 days. Her fever got up to 104.7.

> I don't even know what the doctor said to me the other day... she

is

> going to start out taking Naprosen. She had me take Lily for blood

> work and X-rays and said to come back in 1 month. She also said to

> take Lily to the eye doctor. I don't really know what happens next.

> This forum seems so nice, you all appear to be very comforting for

> one another. I am wondering if any one else felt this odd relief,

and

> if so did you feel guilty for that? I am feeling bad as well,

because

> I feel like we should have researched it as soon as we suspected it.

> Any thoughts are appreciated, thanks for listening.

> Tamara

[Guest guest]

It is nice to know what is happening, especially after fighting the symptoms for

so long. Don't feel guilty for feeling relief. There is nothing worse than not

knowing. Now you have a place to start...find out all you can. The only advise

I can give you is to take it one day at a time.

I'm new here too, but everyone seems great. Good luck!

Gretchen and Skylar (5 yrs w/ Pauci JRA and Uveitis)

PS get those eyes checked!

lilysmom1211 <lilysmom1211@...> wrote:

Hi.My daughter, Lily was diagnosed with Systemic JRA this past

Wednesday. Is it wrong that I was a bit relieved that there is

finally an answer to the questions we have been having about Lily?

Over the past year we were told that Lily had a " virus " about 15 or

so times. What is strange is that I have always been the one to take

Lily to the doctor, well her father took her for her 3 year check up

and he brought up the fact that his sister had JRA. Lily had been

complaining about her knee hurting " on the inside. " That's when the

doctor suggested we take her to see the specialist. It took quite

some time for us to get an appointment and then I cancelled the first

one because she had a high fever, (go figure.) I missed 7 days of

work in the 45 days. Her fever got up to 104.7.

I don't even know what the doctor said to me the other day... she is

going to start out taking Naprosen. She had me take Lily for blood

work and X-rays and said to come back in 1 month. She also said to

take Lily to the eye doctor. I don't really know what happens next.

This forum seems so nice, you all appear to be very comforting for

one another. I am wondering if any one else felt this odd relief, and

if so did you feel guilty for that? I am feeling bad as well, because

I feel like we should have researched it as soon as we suspected it.

Any thoughts are appreciated, thanks for listening.

Tamara

---------------------------------

[Guest guest]

Tamara,

I know this is a late reply, but your statement about " relief to get

the diagnosis of JRA " really struck home with me. My son was 3 1/2

when symptoms began and was 7 1/2 when he got diagnosed. There were

suspicions of JRA and we went to adult rheumys every three months,

but no diagnosis, no treatment other than a little naprosyn every

day the whole time. Those were " dark " years of numerous " systemic "

problems, that I didn't know about. I kept thinking, how are these

symptoms of arhthrits. I had no education about the disease form

any rheumy and the internet wasn't what it is today in 2000. I was

also working full-time. We went to every type of ped. specialist

that I think exists, and nobody could diagnose. He had joint pain,

but not a lot and not consistent. So we just waited and endured the

106 degree fevers, GI problems, swollen liver spleen lymph nodes,

etc. and rashed which I always thought were hives because I wasn't

educated about the systemic aspects of JRA. Lots of things have

changed since then.

I will tell you on the upside that Hunter is now 9 years old,

birthday yesterday, and has been in " medicated remission " since last

fall, and you would never know by looking at him or observing that

he has JRA (other than his own advocacy). You can hopefully reach

the same point as quickly as possible. Latest research shows that

being aggressive early with meds can significantly help. We are

finally with a fabulous rheumy and things are going really well.

Please lean on us for anything you wonder about. Diagnosis is a

relief, but also has many many questions, so keep asking away.

Stacia and Hunter 9 systemic, iritis........PS make sure you get the

eyes checked by a ped. ophthalmologist right away. It is rare for

systemics to get uveitis/iritis, but not unheard of.

>

>

> Hi.My daughter, Lily was diagnosed with Systemic JRA this past

> Wednesday. Is it wrong that I was a bit relieved that there is

> finally an answer to the questions we have been having about Lily?

> Over the past year we were told that Lily had a " virus " about 15

or

> so times. What is strange is that I have always been the one to

take

> Lily to the doctor, well her father took her for her 3 year check

up

> and he brought up the fact that his sister had JRA. Lily had been

> complaining about her knee hurting " on the inside. " That's when

the

> doctor suggested we take her to see the specialist. It took quite

> some time for us to get an appointment and then I cancelled the

first

> one because she had a high fever, (go figure.) I missed 7 days of

> work in the 45 days. Her fever got up to 104.7.

> I don't even know what the doctor said to me the other day... she

is

> going to start out taking Naprosen. She had me take Lily for blood

> work and X-rays and said to come back in 1 month. She also said to

> take Lily to the eye doctor. I don't really know what happens next.

> This forum seems so nice, you all appear to be very comforting for

> one another. I am wondering if any one else felt this odd relief,

and

> if so did you feel guilty for that? I am feeling bad as well,

because

> I feel like we should have researched it as soon as we suspected

it.

> Any thoughts are appreciated, thanks for listening.

> Tamara

[Guest guest]

Tamara,

A belated welcome to the group - I am so sorry to hear that your Lily has this

awful disease. You expressed feelings that so many of us can certainly relate

to. Knowing what you are dealing with is better than the unknown - I know I was

relieved to have 's diagnosis confirmed. From there we go forward to

dealing with it, and the attempt to find what will help our children.

Val

Rob's Mom (7,systemic)

Hello

Hi.My daughter, Lily was diagnosed with Systemic JRA this past

Wednesday. Is it wrong that I was a bit relieved that there is

finally an answer to the questions we have been having about Lily?

Over the past year we were told that Lily had a " virus " about 15 or

so times. What is strange is that I have always been the one to take

Lily to the doctor, well her father took her for her 3 year check up

and he brought up the fact that his sister had JRA. Lily had been

complaining about her knee hurting " on the inside. " That's when the

doctor suggested we take her to see the specialist. It took quite

some time for us to get an appointment and then I cancelled the first

one because she had a high fever, (go figure.) I missed 7 days of

work in the 45 days. Her fever got up to 104.7.

I don't even know what the doctor said to me the other day... she is

going to start out taking Naprosen. She had me take Lily for blood

work and X-rays and said to come back in 1 month. She also said to

take Lily to the eye doctor. I don't really know what happens next.

This forum seems so nice, you all appear to be very comforting for

one another. I am wondering if any one else felt this odd relief, and

if so did you feel guilty for that? I am feeling bad as well, because

I feel like we should have researched it as soon as we suspected it.

Any thoughts are appreciated, thanks for listening.

Tamara

[Guest guest]

A message like this is always welcome. HAVE A GREAT DAY [AT LEAST AS GREAT A DAY AS YOU CAN HAVE]

TAKE AS BEST CARE AS YOU CAN AND BE SAFE

Larry, group moderator

Another year juicier!!!! <missdanigyrl@...> wrote:

Just wanted to wish everyone a less painful day!!!REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

A message like this is always welcome. HAVE A GREAT DAY [AT LEAST AS GREAT A DAY AS YOU CAN HAVE]

TAKE AS BEST CARE AS YOU CAN AND BE SAFE

Larry, group moderator

Another year juicier!!!! <missdanigyrl@...> wrote:

Just wanted to wish everyone a less painful day!!!REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

A message like this is always welcome. HAVE A GREAT DAY [AT LEAST AS GREAT A DAY AS YOU CAN HAVE]

TAKE AS BEST CARE AS YOU CAN AND BE SAFE

Larry, group moderator

Another year juicier!!!! <missdanigyrl@...> wrote:

Just wanted to wish everyone a less painful day!!!REMEMBER ALL OF OUR MEN AND

WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE

AND SOUND IN BODY AND MIND

[Guest guest]

Hi

My husband has neck problems and his bones fused together by themselves according to the MRI's he has had. They said there was nothing that they can do for him. Well anyways he has hearing loss but also works in an automotive plant so it is really hard to say if they are related. Sorry I just thought it was ironic that you had said that and he has hearing troubles.

Sincerely Janine In Cali <smokie1952@...> wrote:

Anyone ever experience some hearing loos after neck fusion surgery ?In January,I had posterior neck fusion. Since then I have had a littlehearing loos,but doctors tell me it is not related to the surgery .

Sell on Auctions - No fees. Bid on great items.

[Guest guest]

Thanks and I wish you the sameHoover Deuce <missdanigyrl@...> wrote:

Just wanted to wish you a Less Painful day!!!

Start your day with - make it your home page

[Guest guest]

Hi we all have bad days as you can see here if you read back

in the post and NO ONE accuses anyone here of having a pity party OR

not hurting as much as someone else. For one how the heck would they

know what your pain is?? they are not in your body, idiots!!! Sorry

for whoever it was hassling you but I can assure you that does not

and will not ever happen here. I've seen that before in groups too,

thats why I made this one because I thought some of the others were

a tad too mmmmmmmmm well you know what I mean Anyway as for her

banning you that was uncalled for I think but she CAN NOT make it so

any post you make in any of your groups has to be approved. For this

one I would have to do that, cause its my group, she has no

authority here. If it happened in other groups then I'd guess they

all know each other and its your choice but I doubt I'd stay, but

thats me. Btw did you read the post I just did yesterday about

chronic pain and depression ?? and the few before that ?? if not and

you have time read them, you will see you are not alone. As for this

group you are safe here she can't touch you here, its my group. But

I hope and pray we do not have a member like her in our group. All

the people here are kind and undertanding and we all have gone thru

bad days when we just want to curl up and cry, thats not a pitty

party its called " hurting like hell with no way to stop it " and it

does get to all of us from time to time. I hope this helps you feel

better,if you need me, email me if you want. I hope your day goes

better from here on out. Best wishes Sharon Group owner

> earlier today I sent a message to the groups I am in about being

in so much

> pain and being depressed. One of the groups responded back rather

nastily

> (it was the owner) basically stating I was having a pity party,

and there

> were other people out there with more severe pain than mine, and

they were

> not crying about it. This upset me terribly! I did reply to her,

but I do

> not think I said or did anything nasty to her. Anyway it ended

with me

> leaving the group voluntarily. Then she sent me a letter banning

me. Now on

> all my groups it says I need approval from the owner for me to

post to the

> group. I am very very upset about this. I have kept every

corrispondance

> between the two of us just to verify I did nothing wrong.

>

>

>

> I just want things back to normal. I don't know if all the group

owners has

> to fix this for me to post, or what. Could you please help me out?

>

> I love being in all the groups and the people are wonderful.

>

>

>

> Please help

>

> Climer

[Guest guest]

Hi we all have bad days as you can see here if you read back

in the post and NO ONE accuses anyone here of having a pity party OR

not hurting as much as someone else. For one how the heck would they

know what your pain is?? they are not in your body, idiots!!! Sorry

for whoever it was hassling you but I can assure you that does not

and will not ever happen here. I've seen that before in groups too,

thats why I made this one because I thought some of the others were

a tad too mmmmmmmmm well you know what I mean Anyway as for her

banning you that was uncalled for I think but she CAN NOT make it so

any post you make in any of your groups has to be approved. For this

one I would have to do that, cause its my group, she has no

authority here. If it happened in other groups then I'd guess they

all know each other and its your choice but I doubt I'd stay, but

thats me. Btw did you read the post I just did yesterday about

chronic pain and depression ?? and the few before that ?? if not and

you have time read them, you will see you are not alone. As for this

group you are safe here she can't touch you here, its my group. But

I hope and pray we do not have a member like her in our group. All

the people here are kind and undertanding and we all have gone thru

bad days when we just want to curl up and cry, thats not a pitty

party its called " hurting like hell with no way to stop it " and it

does get to all of us from time to time. I hope this helps you feel

better,if you need me, email me if you want. I hope your day goes

better from here on out. Best wishes Sharon Group owner

> earlier today I sent a message to the groups I am in about being

in so much

> pain and being depressed. One of the groups responded back rather

nastily

> (it was the owner) basically stating I was having a pity party,

and there

> were other people out there with more severe pain than mine, and

they were

> not crying about it. This upset me terribly! I did reply to her,

but I do

> not think I said or did anything nasty to her. Anyway it ended

with me

> leaving the group voluntarily. Then she sent me a letter banning

me. Now on

> all my groups it says I need approval from the owner for me to

post to the

> group. I am very very upset about this. I have kept every

corrispondance

> between the two of us just to verify I did nothing wrong.

>

>

>

> I just want things back to normal. I don't know if all the group

owners has

> to fix this for me to post, or what. Could you please help me out?

>

> I love being in all the groups and the people are wonderful.

>

>

>

> Please help

>

> Climer