hello

[Guest guest]

Hi ,

I'm so sorry that you had an experience like that. People like that ~

you don't need! Keep posting here, we're here for you and we

understand! You'll never be accused of having a " pity party "

here...that is the purpose of belonging to a support group, so you

can feel free to vent and not be judged!

Do I understand correctly that now with any group that you belong to

that each post needs to be approved now? (THAT'S NOT RIGHT!) Or is it

when you join a new group?

Either way...You're welcome here to ramble, babble or vent!

Sending you a smile and a ((Hug))!

Debbie

> >

> > earlier today I sent a message to the groups I am in about being

> in so much

> > pain and being depressed. One of the groups responded back

rather

> nastily

> > (it was the owner) basically stating I was having a pity party,

> and there

> > were other people out there with more severe pain than mine, and

> they were

> > not crying about it. This upset me terribly! I did reply to her,

> but I do

> > not think I said or did anything nasty to her. Anyway it ended

> with me

> > leaving the group voluntarily. Then she sent me a letter banning

> me. Now on

> > all my groups it says I need approval from the owner for me to

> post to the

> > group. I am very very upset about this. I have kept every

> corrispondance

> > between the two of us just to verify I did nothing wrong.

> >

> >

> >

> > I just want things back to normal. I don't know if all the group

> owners has

> > to fix this for me to post, or what. Could you please help me

out?

> >

> > I love being in all the groups and the people are wonderful.

> >

> >

> >

> > Please help

> >

> > Climer

> >

>

>

>

>

>

>

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

>

>

[Guest guest]

,

Where have you been young man? lololol. Good to read a post from you.

Hope you get good news with the test. Please keep us informed.

Robbin

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out

(http://local.mapquest.com/?ncid=emlcntnew00000002)

[Guest guest]

Hi - it has been a long time! Glad to hear the arthritis is doing

well overall. Just to sort of relieve your mind, my daughter was treated

for MRSA in the spring and she did ok with it. The antibiotics did the

trick quite well. She did have a lot of pain from it, and did feel

somewhat sick as well. But she did recover and no one else in the house

came down with it.

would probably love to wash and polish the truck! He still loves

doing detail work on cars and often does the big rigs of his dad's and

the guys my dh works with. He can really make them shine! He does it as

a side job to his regular one, so you know he enjoys it. He probably

wouldn't mind a trip to Montana either! LOL.

Please let us know the results and keep in touch more often. Michele

( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of

Sent: Monday, October 20, 2008 3:34 PM

Subject: Hello

Hello everyone,

I know it's been a very long time since I have posted, and I bet many

of you thought I dropped off the face of the earth. lol. I didn't I am

still here somewhere.

My arthritis is doing really great. Not a whole lot of problems with

it for well over a year now. I little bit of stiffness with the

changing weather here in Montana. I hadn't even been sick in well over

a year, until aug when I got some stomach bug and by the 5th day I was

going through morphine withdrawls so I had to be hospitalized for

that. But that is really the only problem in a very long time. I have

needed a big long vaction from arthur.

For the last week or so I had a pretty rash in my left armpit. Bet you

wanted to know that lol. But it started not looking right to me so I

decided to go to my doctors today without an appt. they love it when I

do that. lol. It turns out it's not a rash, but an infection. I can

deal with the infection or at least I thought I could. the say I have

a yeast infection and possible a staph or bactiera infection and

because of the love immune system they wanted to check and make sure I

don't have MRSA. I was fine with it all until I Heard they were going

to check for MRSA. I am suppose to have the results later today.

Anxity has been high since I left the doctors office. And I have

became a chain smoker all of a sudden. But enough of that for now.

Been really busy the last month getting ready for hunting season here.

I do a lot of scouting before the season starts here next sunday. Been

looking forward to this since the end of last years season lol. My

truck needs a serious washing (and if any of you want to come and wash

it for me you can!!!!) . Been giving the truck a weekly mud bath

lol. Makes it look really pretty lol. and kinda a blue brown color lol.

Well I have taken up enough of all of your guys time. I will go for

now. I will post results of test later today after I get them.

[Guest guest]

, we are waiting. Any word???

Smiles!

Donna

[Guest guest]

Hi,

Sorry to hear of all the pain you are having! Geez, you broke your neck when you

were a kid and the hospital just sent you home?? Have you had pain since your

neck injury or has it been come & go?

I am also appaulded that with the level of pain you have they won't prescribe

any pain meds! Are your Dr's supportive? Do they know how much pain you are in?

Have you talked to them about the need of pain control?

Wishing you the best!

 

 

From: frazmandemo <frazmandemo@...>

Subject: hello

neck pain

Date: Saturday, April 11, 2009, 12:00 PM

in response to my last post,the medicine takes the edge off,but not that much.i

have bulging discs all down my back.i have all the vertabre in my neck out of

whack.the nerve to my right arm is being pinched.it flares up and really causes

trouble.it apparently started when i bro ke my neck at age 12.they just sent me

home(no insurance,the head of the hospital explaned it to me when i was 28!)i

have foot drop,like one responder,and i lost the feeling on my left thigh;and my

left foot.the only medicine they will give me is the neurotine.my doctor says

any surgery will make it worse,i just wish he would of told me before i had the

first one.i just go one day at a time

[Guest guest]

Hi,

Sorry to hear of all the pain you are having! Geez, you broke your neck when you

were a kid and the hospital just sent you home?? Have you had pain since your

neck injury or has it been come & go?

I am also appaulded that with the level of pain you have they won't prescribe

any pain meds! Are your Dr's supportive? Do they know how much pain you are in?

Have you talked to them about the need of pain control?

Wishing you the best!

 

 

From: frazmandemo <frazmandemo@...>

Subject: hello

neck pain

Date: Saturday, April 11, 2009, 12:00 PM

in response to my last post,the medicine takes the edge off,but not that much.i

have bulging discs all down my back.i have all the vertabre in my neck out of

whack.the nerve to my right arm is being pinched.it flares up and really causes

trouble.it apparently started when i bro ke my neck at age 12.they just sent me

home(no insurance,the head of the hospital explaned it to me when i was 28!)i

have foot drop,like one responder,and i lost the feeling on my left thigh;and my

left foot.the only medicine they will give me is the neurotine.my doctor says

any surgery will make it worse,i just wish he would of told me before i had the

first one.i just go one day at a time

[Guest guest]

At 04:44 PM 4/11/2009, you wrote:

>Hi,

>Sorry to hear of all the pain you are having! Geez, you broke your

>neck when you were a kid and the hospital just sent you home?? Have

>you had pain since your neck injury or has it been come & go?

>I am also appaulded that with the level of pain you have they won't

>prescribe any pain meds! Are your Dr's supportive? Do they know how

>much pain you are in? Have you talked to them about the need of pain control?

>Wishing you the best!

>

Yes Fraz, not to push meds on you but to be in that much pain and

only be on Nuerontin is under treatment if you ask me. It is a

Doctors Job to make you as comfortable as possible. Many of us here

are on opiates such as Hydrocodone (Vicoden) Oxycodon, muscle

relxers etc. I'm on 7 a day to keep the pain and depression from the

long term pain in check. Have you asked your Doctor for more pain

relief. Also for me one thing that REALLY HELPS are packs of iced

blue GELL bought from the pharmacy first aid counter. I keep ten

frozen all the time. I wrap them in a thin towel like a dishtowel to

avoid frostbite and put them on the area that hurts, I would get NO

REST if not for those gell packs. Another non medicinal help is a

TENS stimulator. It sends a small electrical shock in the area of

the pain. It confuses the nerves and helps block the pain. I've had

one of those for 8 years also. Sometimes it helps much, sometime it

doesn't., Sitting in a hot tub or pool. I have a massaging LA-Z-BOY

chair. My Wife gives me massages with a handheld percussion massage

unit by Homedics, about $25 in Walmart. Just some ideas. Dave

[Guest guest]

At 04:44 PM 4/11/2009, you wrote:

>Hi,

>Sorry to hear of all the pain you are having! Geez, you broke your

>neck when you were a kid and the hospital just sent you home?? Have

>you had pain since your neck injury or has it been come & go?

>I am also appaulded that with the level of pain you have they won't

>prescribe any pain meds! Are your Dr's supportive? Do they know how

>much pain you are in? Have you talked to them about the need of pain control?

>Wishing you the best!

>

Yes Fraz, not to push meds on you but to be in that much pain and

only be on Nuerontin is under treatment if you ask me. It is a

Doctors Job to make you as comfortable as possible. Many of us here

are on opiates such as Hydrocodone (Vicoden) Oxycodon, muscle

relxers etc. I'm on 7 a day to keep the pain and depression from the

long term pain in check. Have you asked your Doctor for more pain

relief. Also for me one thing that REALLY HELPS are packs of iced

blue GELL bought from the pharmacy first aid counter. I keep ten

frozen all the time. I wrap them in a thin towel like a dishtowel to

avoid frostbite and put them on the area that hurts, I would get NO

REST if not for those gell packs. Another non medicinal help is a

TENS stimulator. It sends a small electrical shock in the area of

the pain. It confuses the nerves and helps block the pain. I've had

one of those for 8 years also. Sometimes it helps much, sometime it

doesn't., Sitting in a hot tub or pool. I have a massaging LA-Z-BOY

chair. My Wife gives me massages with a handheld percussion massage

unit by Homedics, about $25 in Walmart. Just some ideas. Dave

[Guest guest]

If your pain and paralysis are getting worse, then something must be done. Very

few spine surgeons are reconstructive spine surgeons, who do complex surgeries

on people with scoliosis or other large spine defects. Try to get an opinion

from one of them.

 

                                                                   Rochelle

[Guest guest]

If your pain and paralysis are getting worse, then something must be done. Very

few spine surgeons are reconstructive spine surgeons, who do complex surgeries

on people with scoliosis or other large spine defects. Try to get an opinion

from one of them.

 

                                                                   Rochelle

[Guest guest]

yeah,they just sewed me up and sent me home.the doctors here were i live have

had people sueing them left and right over pain mediceine addiction.and as far

as my neck,it has always caused problems with my arms.and right now ,i am having

trouble just sitting up.my muscles are stiff and i am in a lot of pain.

>

>

> >Hi,

> >Sorry to hear of all the pain you are having! Geez, you broke your

> >neck when you were a kid and the hospital just sent you home?? Have

> >you had pain since your neck injury or has it been come & go?

> >I am also appaulded that with the level of pain you have they won't

> >prescribe any pain meds! Are your Dr's supportive? Do they know how

> >much pain you are in? Have you talked to them about the need of pain control?

> >Wishing you the best!

> >

>

> Yes Fraz, not to push meds on you but to be in that much pain and

> only be on Nuerontin is under treatment if you ask me. It is a

> Doctors Job to make you as comfortable as possible. Many of us here

> are on opiates such as Hydrocodone (Vicoden) Oxycodon, muscle

> relxers etc. I'm on 7 a day to keep the pain and depression from the

> long term pain in check. Have you asked your Doctor for more pain

> relief. Also for me one thing that REALLY HELPS are packs of iced

> blue GELL bought from the pharmacy first aid counter. I keep ten

> frozen all the time. I wrap them in a thin towel like a dishtowel to

> avoid frostbite and put them on the area that hurts, I would get NO

> REST if not for those gell packs. Another non medicinal help is a

> TENS stimulator. It sends a small electrical shock in the area of

> the pain. It confuses the nerves and helps block the pain. I've had

> one of those for 8 years also. Sometimes it helps much, sometime it

> doesn't., Sitting in a hot tub or pool. I have a massaging LA-Z-BOY

> chair. My Wife gives me massages with a handheld percussion massage

> unit by Homedics, about $25 in Walmart. Just some ideas. Dave

>

[Guest guest]

yeah,they just sewed me up and sent me home.the doctors here were i live have

had people sueing them left and right over pain mediceine addiction.and as far

as my neck,it has always caused problems with my arms.and right now ,i am having

trouble just sitting up.my muscles are stiff and i am in a lot of pain.

>

>

> >Hi,

> >Sorry to hear of all the pain you are having! Geez, you broke your

> >neck when you were a kid and the hospital just sent you home?? Have

> >you had pain since your neck injury or has it been come & go?

> >I am also appaulded that with the level of pain you have they won't

> >prescribe any pain meds! Are your Dr's supportive? Do they know how

> >much pain you are in? Have you talked to them about the need of pain control?

> >Wishing you the best!

> >

>

> Yes Fraz, not to push meds on you but to be in that much pain and

> only be on Nuerontin is under treatment if you ask me. It is a

> Doctors Job to make you as comfortable as possible. Many of us here

> are on opiates such as Hydrocodone (Vicoden) Oxycodon, muscle

> relxers etc. I'm on 7 a day to keep the pain and depression from the

> long term pain in check. Have you asked your Doctor for more pain

> relief. Also for me one thing that REALLY HELPS are packs of iced

> blue GELL bought from the pharmacy first aid counter. I keep ten

> frozen all the time. I wrap them in a thin towel like a dishtowel to

> avoid frostbite and put them on the area that hurts, I would get NO

> REST if not for those gell packs. Another non medicinal help is a

> TENS stimulator. It sends a small electrical shock in the area of

> the pain. It confuses the nerves and helps block the pain. I've had

> one of those for 8 years also. Sometimes it helps much, sometime it

> doesn't., Sitting in a hot tub or pool. I have a massaging LA-Z-BOY

> chair. My Wife gives me massages with a handheld percussion massage

> unit by Homedics, about $25 in Walmart. Just some ideas. Dave

>

[Guest guest]

Hi Melody..........i don't have RA, thank God,...but I too have had 2 neck

surgeries and have just recently found out one of them didn't take. that

particular surgery was done in oct of 01 and after 8 years of bitching about the

pain they finally did another myleogram just to find out it didn't take. And

that's just the tip of the iceberg. I was given something when all this started

that temporarily helps with neck pain called an " Occipivot " cushion. Has anyone

else in here heard of it? It does work especially good for the headaches

associated with your neck. Is there a way to post a picture in here in case

someone wants to see it?

Danny

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

[Guest guest]

Hi Melody..........i don't have RA, thank God,...but I too have had 2 neck

surgeries and have just recently found out one of them didn't take. that

particular surgery was done in oct of 01 and after 8 years of bitching about the

pain they finally did another myleogram just to find out it didn't take. And

that's just the tip of the iceberg. I was given something when all this started

that temporarily helps with neck pain called an " Occipivot " cushion. Has anyone

else in here heard of it? It does work especially good for the headaches

associated with your neck. Is there a way to post a picture in here in case

someone wants to see it?

Danny

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

[Guest guest]

Hi Deb and everyone

From MN, hence my name.  Not far from Mpls/St. . 

Finally a somewhat nice day here in MN in the low 50's!

 

Football fan?  Have fun watching.

From: Melody <melodysumnlers>

Subject: [PainInTheNeck- Back] Hello

PainInTheNeck- Back@groups .com

Date: Sunday, November 1, 2009, 12:48 PM

 

I am from the southern tip of Illinois...right across the river from Paducah KY.

I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

[Guest guest]

Hi Deb and everyone

From MN, hence my name.  Not far from Mpls/St. . 

Finally a somewhat nice day here in MN in the low 50's!

 

Football fan?  Have fun watching.

From: Melody <melodysumnlers>

Subject: [PainInTheNeck- Back] Hello

PainInTheNeck- Back@groups .com

Date: Sunday, November 1, 2009, 12:48 PM

 

I am from the southern tip of Illinois...right across the river from Paducah KY.

I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

[Guest guest]

Hey Deb .........I've never been there but have always heard great things about

Wisconson's health system. Living in the " armpit " of the country.........I

would imagine that just about everyone in here has access to a better health

care system. Don't get me wrong...there are somethings that we have an

abundance of, ignorance, poverty, uneducated dropouts, highest rate of teen

pregnancies, std's, hurricanes, tornadoes, unemployment, let's see....did i

leave any out....hmmmmmm hehe.............sad part is...it's all true. Almost

forgot....diabetes from all the fried chicken. Seriously........highest rate of

diabetes per capita in the country.

Danny

>

>

> From: Melody <melodysumnlers@...>

> Subject: Hello

> neck pain

> Date: Sunday, November 1, 2009, 12:48 PM

>

>

>  

>

>

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hey Deb .........I've never been there but have always heard great things about

Wisconson's health system. Living in the " armpit " of the country.........I

would imagine that just about everyone in here has access to a better health

care system. Don't get me wrong...there are somethings that we have an

abundance of, ignorance, poverty, uneducated dropouts, highest rate of teen

pregnancies, std's, hurricanes, tornadoes, unemployment, let's see....did i

leave any out....hmmmmmm hehe.............sad part is...it's all true. Almost

forgot....diabetes from all the fried chicken. Seriously........highest rate of

diabetes per capita in the country.

Danny

>

>

> From: Melody <melodysumnlers@...>

> Subject: Hello

> neck pain

> Date: Sunday, November 1, 2009, 12:48 PM

>

>

>  

>

>

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Is it Mayo or s Hopkins in MN?

>

> From: Melody <melodysumnlers>

> Subject: [PainInTheNeck- Back] Hello

> PainInTheNeck- Back@groups .com

> Date: Sunday, November 1, 2009, 12:48 PM

>

>  

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

[Guest guest]

Is it Mayo or s Hopkins in MN?

>

> From: Melody <melodysumnlers>

> Subject: [PainInTheNeck- Back] Hello

> PainInTheNeck- Back@groups .com

> Date: Sunday, November 1, 2009, 12:48 PM

>

>  

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

>

[Guest guest]

Melody, I have been an RN for 33 years, but I am not currently

working as a nurse. I live in MASS. June

Hello

I am from the southern tip of Illinois...right across the

river from Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

had rhuematoid arthritis since I was 26 and I am now 41. I had an mri of my back

and hip this last week and awaiting the results. I had neck surgery 2 years ago

and wish I would not have waited 3 years to get it. Live and learn. Nice to

" meet " everyone here! Melody

=

[Guest guest]

Melody, I have been an RN for 33 years, but I am not currently

working as a nurse. I live in MASS. June

Hello

I am from the southern tip of Illinois...right across the

river from Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

had rhuematoid arthritis since I was 26 and I am now 41. I had an mri of my back

and hip this last week and awaiting the results. I had neck surgery 2 years ago

and wish I would not have waited 3 years to get it. Live and learn. Nice to

" meet " everyone here! Melody

=

[Guest guest]

Thanks for the welcome June! Melody

Sent from my Verizon Wireless BlackBerry

Re: Hello

Hi Melody..........i don't have RA, thank God,...but I too

have had 2 neck surgeries and have just recently found out one of them didn't

take. that particular surgery was done in oct of 01 and after 8 years of

bitching about the pain they finally did another myleogram just to find out it

didn't take. And that's just the tip of the iceberg. I was given something

when all this started that temporarily helps with neck pain called an

" Occipivot " cushion. Has anyone else in here heard of it? It does work

especially good for the headaches associated with your neck. Is there a way

to post a picture in here in case someone wants to see it?

Danny

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

[Guest guest]

Thanks for the welcome June! Melody

Sent from my Verizon Wireless BlackBerry

Re: Hello

Hi Melody..........i don't have RA, thank God,...but I too

have had 2 neck surgeries and have just recently found out one of them didn't

take. that particular surgery was done in oct of 01 and after 8 years of

bitching about the pain they finally did another myleogram just to find out it

didn't take. And that's just the tip of the iceberg. I was given something

when all this started that temporarily helps with neck pain called an

" Occipivot " cushion. Has anyone else in here heard of it? It does work

especially good for the headaches associated with your neck. Is there a way

to post a picture in here in case someone wants to see it?

Danny

>

> I am from the southern tip of Illinois...right across the river from Paducah

KY. I am a nurse and work 2 nights a week in Paducah. I have had rhuematoid

arthritis since I was 26 and I am now 41. I had an mri of my back and hip this

last week and awaiting the results. I had neck surgery 2 years ago and wish I

would not have waited 3 years to get it. Live and learn. Nice to " meet " everyone

here! Melody

>

[Guest guest]

What area did u work? I am an RN on PCU..heart floor. So ready for a change!

Melody

Sent from my Verizon Wireless BlackBerry

Hello

I am from the southern tip of Illinois...right across the

river from Paducah KY. I am a nurse and work 2 nights a week in Paducah. I have

had rhuematoid arthritis since I was 26 and I am now 41. I had an mri of my back

and hip this last week and awaiting the results. I had neck surgery 2 years ago

and wish I would not have waited 3 years to get it. Live and learn. Nice to

" meet " everyone here! Melody

=