post-treatment - Ramona

[Guest guest]

Hi Ramona

I would like to give you my thoughts about what you have said, if that is ok.

First off, it does no good to worry about the future, without something more than fears to go on.

Not everybody has delayed or bad health issues after ending treatment.

You may be just fine, long term.

What you are feeling [thinking] is perfectly normal.

Pretty much everyone is worried about what their 6 month post-TX results will be.

[Please read the post-TX link I gave you.]

You stand a very good chance of being cured though.

You were un-detectable at 12 weeks, and did not relaspe through to the end of treatment.

Im not saying that it wont happen, but I personally think you are on the up and up.

Think positive as much as possible.

Your Cirrhosis [liver] will heal as time goes by, if you stay un-detectable.

Already just by doing treatment, you have mostly temporarly stopped further damage.

[Remember that article I posted a few months ago about the benefits of treatment, even for non-responders?]

The liver and skin are the two parts of our bodys that truely regenerate themselves [like magic].

I have read that the liver will totally regenerate in up to 8 years time, and the scarring [cirrhosis] will mostly re-absorb into your body, leaving you with a new liver.

About your illness right now -

Your body is still weak from the meds Ramona.

Your immune system is still compromised at 4 weeks post-TX, and will probably be so for several months until your immune system gets back to functioning fully.

During this time, just like during treatment, you might be susceptible to germs, colds, and flus [infections].

Dont push yourself, or expose yourself to other peoples germs, if you can help it.

Working in a college, you will be around some sick folks, who may not be real real sick themselves, but with your compromised immune system, you are definately a target.

It sounds to me like you have caught a bug, and hopefully your doctor can help you get rid of it.

Like physically, 'mentally' you are not truely ok......yet.

Are you taking any anti-depressants? [They do help.]

You have the worries I listed above, and that will cause some depression, Im sure.

Your sick right now, and that causes the blues too.

Then you state that your looking for some other lifestyle [work-path], and this is going to cause pressure also.

Try to relax, and not stress out over anything, if you can.

Just take it one day at a time - try to eat right, keep drinking lots of water, and get enough rest.

Remember that God [fate?] will put you on the right path in time, when you are ready.

Basically, pretend that your still on treatment for a few more months, even though you are not taking the meds anymore.

Keep babying your mind and body.

One really good thing is that your husband and you are re-connecting.

I know that the treatment was very hard on both of you, and this new bonding will be very welcome.

Some place I read that sex is good post-TX, but cuddling is also very helpful.

Love and bonding heals.

Its great that your taking all of these suppliments.

I personally love Vitamin D, Glutathione, and ALA, which I also take.

You might also add a one-a-day multi-vitamin, just because.

You mention acid reflux, which I also suffer from.

I have learned some tricks that help.

- After you eat, do not lay down for at least 2 hours.

Allow the food to move into your intestines.

- If you lay on your LEFT side, you will experiance less acid reflux.

Food enters your stomach on the left side, and enters the intestines on the right side.

Picture in your mind, your stomach while your laying on your left side.

The food in your stomach will block anything [acid] moving into your esophagus, while the acid will be moving 'up' into your intestines.

- Stay away from fried, fatty, acidy [coffee], and spicy foods.

Beef, bacon, and sausage are hard to digest, and may sit in your stomach for days.

Cut way way back on sugar, dairy, and breadstuffs [wheat and pizza dough].

- Ask your doctor about acid reflux meds [scripts and OTC].

I use Prevacid [script] daily, and Rolaids or Tums w/calcium [OTC] as needed [before bed].

Ramona, you will heal.

But not overnight - you have gone through a MAJOR health ordeal.

I know that you want all this crap behind you, yesterday.

Be patent - it is happening my friend.

love

don in ks

---------------------------------------------------

Hey Don,

I'm worried about what illnesses are going to pop their nasty little heads in the next year or so. I, like , understand that all this may shorten my life span. I also have cirrohsis from this. I worry that I will leave this life so sick and/or in pain that my family can only remember me being so sick. I told my daughter that I wanted my granddaughter to remember me dancing with her not laying in bed. It has been four week tomorrow that I took my last shot and pills. I started with a load of 16 million. I was undetectable at 12 weeks but know that this not an absolute. I won't be tested again until October. Mentally, I think I'm OK. I can't wait to feel better and get a life back. I am very unsettled about my life in general. I don't want to be at my job. There is something bigger for me out there...something bigger than me and I want to be a part of it. I'm working hard to get myself in a financial position so that I can start my own business

and leave the college. I feel stagnated there. I feel like they are holding me back. My marriage is OK. My husband and I are working at reconnecting...long year. Physically, I have been pretty sick the past couple weeks. I've been fighting intestinal issues, horrific acid reflux, and now respitory issues. I go to the doctor today at 3. I hope it is just something that anitbiotics can fix. I'm concerned that it might be pnemonia. My chest hurts. I am taking 5000IU of vitaman D daily. Also taking Milk Thistle 360mg, Citracal, Red Yeast Rice 2400mg, N-Acetyl-Cysteine1500 mg, Alpha R-Lipoic Acid 200mg and a complex that contains NT Factor, Phosphoglycolipids,Bifido Bacterium & L. Bacillus, Silymarin Phytosome.

I will get into the links and do some reading. Thanks for those.

Ramona

[Guest guest]

Hi Ramona,

First, take a deep breath and relax a bit. Neither you nor Don nor I can

predict the future--for ourselves or anyone else. You've been through an ordeal

with your treatment, Take some time to enjoy today.

Some of the supps you are taking might upset your stomach. I sometimes have a

problem with milk thistle. I have found that if I take Sam-E first thing in the

morning, I am calmer all day.

If you are worried about your viral load--insist that it get tested earlier than

October. There is no rule about how often you get tested. IF I had treated I

would want to know how it is going every couple of months. Waiting is a

bitch--and I have no patience with waiting.

I don't know that cirrhosis will cut your life short--and neither do you. A

friend of mine who did alternative--and had cirrhosis--is in her mid 70's and

going strong. I will be 77 in August. What a shame to waste a life worrying

about when it will end or how or why. Somewhere along the way I have learned to

live in today--and that is a great way to live. I put ALL my bills on auto pay

and the bank sends my balance each morning and I check my autopay to see that I

have enough that day. I do keep a savings that I can instantly transfer money

into my checking--if I need to--not a lot. I used to worry about that a

lot--now I don't.

You can still make plans and have dreams--but live for today. Stress and worry

are NOT good for your health. Dream up solutions and live in those dreams for a

few moments everyday. It will brighten your day!!!!

Sorry you are not feeling well. Hope the doc can find your problem and it goes

away.

SuziQ

>  

>  

> ---------------------------------------------------

> Hey Don,

> I'm worried about what illnesses are going to pop their nasty little heads in

the next year or so. I, like , understand that all this may shorten my

life span. I also have cirrohsis from this. I worry that I will leave this life

so sick and/or in pain that my family can only remember me being so sick. I told

my daughter that I wanted my granddaughter to remember me dancing with her not

laying in bed. It has been four week tomorrow that I took my last shot and

pills. I started with a load of 16 million. I was undetectable at 12 weeks but

know that this not an absolute. I won't be tested again until October. Mentally,

I think I'm OK. I can't wait to feel better and get a life back. I am very

unsettled about my life in general. I don't want to be at my job. There is

something bigger for me out there...something bigger than me and I want to be a

part of it. I'm working hard to get myself in a financial position so that I can

start my own business and

> leave the college. I feel stagnated there. I feel like they are holding me

back. My marriage is OK. My husband and I are working at reconnecting...long

year. Physically, I have been pretty sick the past couple weeks. I've been

fighting intestinal issues, horrific acid reflux, and now respitory issues. I go

to the doctor today at 3. I hope it is just something that anitbiotics can fix.

I'm concerned that it might be pnemonia. My chest hurts. I am taking 5000IU of

vitaman D daily. Also taking Milk Thistle 360mg, Citracal, Red Yeast Rice

2400mg, N-Acetyl-Cysteine1500 mg, Alpha R-Lipoic Acid 200mg and a complex that

contains NT Factor, Phosphoglycolipids,Bifido Bacterium & L. Bacillus, Silymarin

Phytosome.

>  

> I will get into the links and do some reading. Thanks for those.

> Ramona

>

>  

>  

>

[Guest guest]

Don,

This is exactly why your presence is so important in this group. WOW...you said things that my doctor said today. He said I needed to baby myself and stop pushing myself so much. He said it would take months for me to feel better. I have an upper respitory infection. He took me off work until Monday, gave me antibiotics, and a pill to help with the cough. If I'm not feeling better by Tuesday, he wants me back in his office. He emphasized the rest that I needed, the water that I needed and a healthy diet.

I think the worrying is just part of the healing process. I know in time it will ease up. But after reading the after treatment articles the other day, it made it worse. That information was a bit doom and gloom. I'm a pretty tough cookie (peanut butter...my favorite) so I will process this and be fine with it. It is exciting to think that the body would absorb the cirrohsis. It scares me.

Post treatment sex is at least more frequent...HAHAHAHA...I just embarrassed myself.

Thank you for being there for me. You are my greatest cheerleader. OH...I just had visuals of you in a tiny skirt and pom-poms. HAHAHAHAHAHAHAHA

Ramona

From: Christ <ludichrist2000@...>WebWarriors grp < >Sent: Wed, April 20, 2011 7:04:57 PMSubject: [ ] post-treatment - Ramona

Hi Ramona

I would like to give you my thoughts about what you have said, if that is ok.

First off, it does no good to worry about the future, without something more than fears to go on.

Not everybody has delayed or bad health issues after ending treatment.

You may be just fine, long term.

What you are feeling [thinking] is perfectly normal.

Pretty much everyone is worried about what their 6 month post-TX results will be.

[Please read the post-TX link I gave you.]

You stand a very good chance of being cured though.

You were un-detectable at 12 weeks, and did not relaspe through to the end of treatment.

Im not saying that it wont happen, but I personally think you are on the up and up.

Think positive as much as possible.

Your Cirrhosis [liver] will heal as time goes by, if you stay un-detectable.

Already just by doing treatment, you have mostly temporarly stopped further damage.

[Remember that article I posted a few months ago about the benefits of treatment, even for non-responders?]

The liver and skin are the two parts of our bodys that truely regenerate themselves [like magic].

I have read that the liver will totally regenerate in up to 8 years time, and the scarring [cirrhosis] will mostly re-absorb into your body, leaving you with a new liver.

About your illness right now -

Your body is still weak from the meds Ramona.

Your immune system is still compromised at 4 weeks post-TX, and will probably be so for several months until your immune system gets back to functioning fully.

During this time, just like during treatment, you might be susceptible to germs, colds, and flus [infections].

Dont push yourself, or expose yourself to other peoples germs, if you can help it.

Working in a college, you will be around some sick folks, who may not be real real sick themselves, but with your compromised immune system, you are definately a target.

It sounds to me like you have caught a bug, and hopefully your doctor can help you get rid of it.

Like physically, 'mentally' you are not truely ok......yet.

Are you taking any anti-depressants? [They do help.]

You have the worries I listed above, and that will cause some depression, Im sure.

Your sick right now, and that causes the blues too.

Then you state that your looking for some other lifestyle [work-path], and this is going to cause pressure also.

Try to relax, and not stress out over anything, if you can.

Just take it one day at a time - try to eat right, keep drinking lots of water, and get enough rest.

Remember that God [fate?] will put you on the right path in time, when you are ready.

Basically, pretend that your still on treatment for a few more months, even though you are not taking the meds anymore.

Keep babying your mind and body.

One really good thing is that your husband and you are re-connecting.

I know that the treatment was very hard on both of you, and this new bonding will be very welcome.

Some place I read that sex is good post-TX, but cuddling is also very helpful.

Love and bonding heals.

Its great that your taking all of these suppliments.

I personally love Vitamin D, Glutathione, and ALA, which I also take.

You might also add a one-a-day multi-vitamin, just because.

You mention acid reflux, which I also suffer from.

I have learned some tricks that help.

- After you eat, do not lay down for at least 2 hours.

Allow the food to move into your intestines.

- If you lay on your LEFT side, you will experiance less acid reflux.

Food enters your stomach on the left side, and enters the intestines on the right side.

Picture in your mind, your stomach while your laying on your left side.

The food in your stomach will block anything [acid] moving into your esophagus, while the acid will be moving 'up' into your intestines.

- Stay away from fried, fatty, acidy [coffee], and spicy foods.

Beef, bacon, and sausage are hard to digest, and may sit in your stomach for days.

Cut way way back on sugar, dairy, and breadstuffs [wheat and pizza dough].

- Ask your doctor about acid reflux meds [scripts and OTC].

I use Prevacid [script] daily, and Rolaids or Tums w/calcium [OTC] as needed [before bed].

Ramona, you will heal.

But not overnight - you have gone through a MAJOR health ordeal.

I know that you want all this crap behind you, yesterday.

Be patent - it is happening my friend.

love

don in ks

---------------------------------------------------

Hey Don,

I'm worried about what illnesses are going to pop their nasty little heads in the next year or so. I, like , understand that all this may shorten my life span. I also have cirrohsis from this. I worry that I will leave this life so sick and/or in pain that my family can only remember me being so sick. I told my daughter that I wanted my granddaughter to remember me dancing with her not laying in bed. It has been four week tomorrow that I took my last shot and pills. I started with a load of 16 million. I was undetectable at 12 weeks but know that this not an absolute. I won't be tested again until October. Mentally, I think I'm OK. I can't wait to feel better and get a life back. I am very unsettled about my life in general. I don't want to be at my job. There is something bigger for me out there...something bigger than me and I want to be a part of it. I'm working hard to get myself in a financial position so that I can start my own business

and leave the college. I feel stagnated there. I feel like they are holding me back. My marriage is OK. My husband and I are working at reconnecting...long year. Physically, I have been pretty sick the past couple weeks. I've been fighting intestinal issues, horrific acid reflux, and now respitory issues. I go to the doctor today at 3. I hope it is just something that anitbiotics can fix. I'm concerned that it might be pnemonia. My chest hurts. I am taking 5000IU of vitaman D daily. Also taking Milk Thistle 360mg, Citracal, Red Yeast Rice 2400mg, N-Acetyl-Cysteine1500 mg, Alpha R-Lipoic Acid 200mg and a complex that contains NT Factor, Phosphoglycolipids,Bifido Bacterium & L. Bacillus, Silymarin Phytosome.

I will get into the links and do some reading. Thanks for those.

Ramona