Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Hi Vera This is one reason this group exists - to cry out when we need to, and recieve love in return from those who truely understand and care. I also have run across non-heppers who say that I am being negative because I need to talk about how the HCV is making me feel and think. Vera, like you say - they just dont understand - and it is not their fault. They are not being negative or mean themselves by choice. How can someone know my shoes give me blisters unless they wear them for awhile? This is a big problem for anyone who is sick - 'others just cant relate'. It could be an upset stomach or cancer, it doesnt matter. They may not think about how they personally sound and act, but you do have that choice. Forgive them Vera. Continue treating them with love and respect. I know that you know what I am saying. You are an angel, with a big heart, and its about who you want to be, not who they are. My doctor has me on Oxycontin - as needed [PRN] - up to 20mg a day. He told me that he has some patients on as much as 150mg+ a day. I dont want to deal with addiction or more liver damage either, so I only use them when I really need them. I too, am running out of choices for pain meds. The OTC stuff just doesnt help, and I am alergic to most everything else. When this stuff no longer works for me, I am truely concidering smoking opium. LOL :-) - just kidding Winter here is trying to end, but in the meanwhile the cold snaps, wind, and drizzle are a real bummer. Wait until July, and I will complain about the heat. gad - does it ever end? love don in ks From: vew459 <vew459@...>Subject: [ ] feelings Date: Wednesday, April 20, 2011, 1:10 PM I am home after a long trip which traveling wipes me out anyway. I have come home to drizzle and overcast which is typical on coast. Makes me hurt more. I am in a dilemma about pain medications. I have just given up and guess I have to live in pain. I started with 8mg hydromorphone and weened down to 2mg, than because they give me such a friken stomach ache I started just taking a wee bite off of one. I went to see my pain specialist who gave me zantac to help the tummy but after reading the info on print out it is enough scare to not want to add another med to my protocol. Anti-inflamatories tear up my stomach, I am allergic to codeine, I have heard the approved pain medication nowa days for heppers is methadone, which really scares me. So, I just quit all together. Besides I don't want the complications of addiction and my liver being damaged more. it is all just too much sometimes. Damned if u do n damned if u don't! I am feeling really like I am running out of options since I am allergic to so many things.I have no hepper friends where I live, and my best friend just told me that I am negative abt having HepC, because I talk about it too much, I get that because she has no idea what having this disease feels like, no-body does un-less you have it. If I am so negative than why does she like spending time with me. I feel I am pretty positive despite my circumstances. I just need to talk about sometimes, so from now on I will never bring it up again to a non-hepper because they don't get it no how. Sorry one of those dys , just had to get it out!------------------------------------ Quote Link to comment Share on other sites More sharing options...
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