Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 helpful hints>  http://www.livingfuel.com/living_fuel_health_alerts.aspx From: Nindy <nindy327@...> Subject: Re: newbe Hepatitis C Cc: " deborah brown " <heaven_scent_in_55@...> Date: Tuesday, July 20, 2010, 9:09 AM  Hello! My Name is Nilda, you had choose a good group to have support, I started just like you, will all the fears, worries, you name it, so far I havent experienced the symptoms just like you. But you know what the more you know about this disease which I call the monster, the more you learn how to cope with it. Just continue to live your life just like youve been doing, dont stop enjoyning your family, I have 3 kids and 3 grandchildren, but I decided to keep it between my husband, kids and my parents. Some people thinks that it is better to let everyone know, but I decided to keep it that way. The support that I have from this group and my family is enough for me. There is a person in this group her name is Deborah she will cheer you up, she helped me a lot, also Patti and others. Dont be afraid to ask, God still have us here for a reason so just hang on and God bless you.     Hey Deborah I bet you you are proud of me right now. ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 10:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 helpful hints>  http://www.livingfuel.com/living_fuel_health_alerts.aspx From: Nindy <nindy327@...> Subject: Re: newbe Hepatitis C Cc: " deborah brown " <heaven_scent_in_55@...> Date: Tuesday, July 20, 2010, 9:09 AM  Hello! My Name is Nilda, you had choose a good group to have support, I started just like you, will all the fears, worries, you name it, so far I havent experienced the symptoms just like you. But you know what the more you know about this disease which I call the monster, the more you learn how to cope with it. Just continue to live your life just like youve been doing, dont stop enjoyning your family, I have 3 kids and 3 grandchildren, but I decided to keep it between my husband, kids and my parents. Some people thinks that it is better to let everyone know, but I decided to keep it that way. The support that I have from this group and my family is enough for me. There is a person in this group her name is Deborah she will cheer you up, she helped me a lot, also Patti and others. Dont be afraid to ask, God still have us here for a reason so just hang on and God bless you.     Hey Deborah I bet you you are proud of me right now. ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 10:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 helpful hints>  http://www.livingfuel.com/living_fuel_health_alerts.aspx From: Nindy <nindy327@...> Subject: Re: newbe Hepatitis C Cc: " deborah brown " <heaven_scent_in_55@...> Date: Tuesday, July 20, 2010, 9:09 AM  Hello! My Name is Nilda, you had choose a good group to have support, I started just like you, will all the fears, worries, you name it, so far I havent experienced the symptoms just like you. But you know what the more you know about this disease which I call the monster, the more you learn how to cope with it. Just continue to live your life just like youve been doing, dont stop enjoyning your family, I have 3 kids and 3 grandchildren, but I decided to keep it between my husband, kids and my parents. Some people thinks that it is better to let everyone know, but I decided to keep it that way. The support that I have from this group and my family is enough for me. There is a person in this group her name is Deborah she will cheer you up, she helped me a lot, also Patti and others. Dont be afraid to ask, God still have us here for a reason so just hang on and God bless you.     Hey Deborah I bet you you are proud of me right now. ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 10:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 hi patti, you'll find this a miracle...after i found out i had hep c,my daughter said mom ive used your tooth brush/razor off and on since i was 14 and i told her,you know why you didnt get hep from me she said why and i said you are so lucky i was a rince freak,i rinced my tooth brush and razor in hot water for about 30 seconds because it was just a fetish of mine to clean my stuff good for the next time that i use it and i then would pour a little listerine over my tooth brush and put it back in the holder,thank god i was and still am a rince freak i respect how you feel about telling others. i told my sister and she threw it up in my face so how could i get it out to strangers when it was thrown back in my face by a family member.people can be cruel,the devil hides in the hearts of many From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 hi patti, you'll find this a miracle...after i found out i had hep c,my daughter said mom ive used your tooth brush/razor off and on since i was 14 and i told her,you know why you didnt get hep from me she said why and i said you are so lucky i was a rince freak,i rinced my tooth brush and razor in hot water for about 30 seconds because it was just a fetish of mine to clean my stuff good for the next time that i use it and i then would pour a little listerine over my tooth brush and put it back in the holder,thank god i was and still am a rince freak i respect how you feel about telling others. i told my sister and she threw it up in my face so how could i get it out to strangers when it was thrown back in my face by a family member.people can be cruel,the devil hides in the hearts of many From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 hi patti, you'll find this a miracle...after i found out i had hep c,my daughter said mom ive used your tooth brush/razor off and on since i was 14 and i told her,you know why you didnt get hep from me she said why and i said you are so lucky i was a rince freak,i rinced my tooth brush and razor in hot water for about 30 seconds because it was just a fetish of mine to clean my stuff good for the next time that i use it and i then would pour a little listerine over my tooth brush and put it back in the holder,thank god i was and still am a rince freak i respect how you feel about telling others. i told my sister and she threw it up in my face so how could i get it out to strangers when it was thrown back in my face by a family member.people can be cruel,the devil hides in the hearts of many From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 hi patti, you'll find this a miracle...after i found out i had hep c,my daughter said mom ive used your tooth brush/razor off and on since i was 14 and i told her,you know why you didnt get hep from me she said why and i said you are so lucky i was a rince freak,i rinced my tooth brush and razor in hot water for about 30 seconds because it was just a fetish of mine to clean my stuff good for the next time that i use it and i then would pour a little listerine over my tooth brush and put it back in the holder,thank god i was and still am a rince freak i respect how you feel about telling others. i told my sister and she threw it up in my face so how could i get it out to strangers when it was thrown back in my face by a family member.people can be cruel,the devil hides in the hearts of many From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Hi everyone, I to have to agree with patti. I was scared like crazy when I first found out about a year ago. I didn't know if I should say anything to anyone or not but was so afraid that I may have given it to someone that I chose to talk about it, I want people to know why I'm sick all the time, well it's because I'm going through treatment and the shots make me sick. When I tell someone that I have hep c, I also give them information about it to. I was married to my first husband for 14 1/2 yrs. he's hep free. My second husband and I was married for 9 yrs. he to is clean. I have three children and six grandchildren. I am the only one with it and the best of calculation I got it from a blood transfusion in 1984 after my third child was born. Mine was discovered when they ran a colestoral test after I had a mini stroke in may of 09. I'm not ashamed of who I am, I will admit I was a drug addict but never used any needles. I have been clean and sober for 5yrs now. Today I took the shot for begining of month five and still have seven months to go. At last bloodwork my viral load was undetectable but still continue with the shots because just because it don't show up there still can be a few of those little devils floating around in my blood and they want to make sure they are all taken care of. I don't believe people talk about this enough like patti said and in my opinion they should cause then maybe there wouldn't be so many people afraid to speak up and be able to go out in public and yes the medicine for this would be cheaper. When I was in the hospital a month ago I had to take my pills for the hep c with me because the hospital don't carry any sort of the medicine, the pharmasist had heard of hep c but had never had the medication for it available. I had to go through alot of people to get the approval to take them while I was there, it was crazy. I asked them at one point if I had aids or something like that would they have the medicine there to treat me and was told yes, so what is the difference. I guess I just don't understand. Anyways thanks for letting me ramble on, I'm feeling really crappy from my shot and needed to talk and this is the right place for that. Never give up, there is always hope and people here to talk to. God bless you all. Sheri ________________________________ From: patti <fishinggal2008@...> Hepatitis C Sent: Tue, July 20, 2010 9:35:26 PM Subject: Re: newbe  My dear ,  There is a stigma attached to our dsease due to the doctors telling us not to tell anyone and the general public remains uninformed. I was told by a dr not to talk about it as people would think me a druggie. that was 30 years ago and I have shouted to the rooftops and tell everyone I meet I have it, how I got it, which was accupuncture in Thailand before disposable needles. If we keep quiet about it aren't we helping to enable the stigma? Do you remember when AIDS got started and everyone thought u had to be gay?  Noone would talk about AIDS either and thousands upon thousands died before the masses became aware they too could contract it, their children could get it. I admire the courage when they gays and intelligent straight people started marching and guess what? The scientists found a med which now only costs 40 cents a day. Our cost for treatment is astronomical because we haven't joined forces and started marching, telling the media to help us spread the word,, tell our government to inform everyone. The drugs they give us are dangerous with horrible side effects. Everyone in here knows my belief, I have posted my telephone number here several times and 6 have called and asked how to start protesting but hey, that's 6 more than there used to be. Perhaps it's too late for us longtimers. I can't take the treatment again as my platelet count is non existant now but I will continue to tell anyone who will listen for the future sufferors of the Silent Dragon, that hides for years within us before we know we even have it. I teach everyone how NOT to get it. I used to go to NA meetings, AA meetings, rehab centers, churches.  I totally subjected myself in humbleness by talking about it, but if I have saved one life, just one, then I have helped someone down the line.  Mine has now turned to cancer but most of us will die from old age, heart attack, get run over by a bus, or a cold as we have no immunity to simple ailments.  Do use hand sanitizer for your own protection. As far as dating goes, don't do that to yourself. You can live a normal life. Hold your grandchildren, kiss their sweet little faces. Have no fear. Noone will contract it from you except blood to blood. . I was married 18 years. My ex doesn't have it because when I bled, I chased him and everyone else away and cleaned my own blood up and attended to my cut. Use clorox to clean whatever u bleed on or burn it, don't throw it in the trash. I hope you reconsider dating. Tell the man first, educate them. If they run, then they weren't worth your time. Ah but the one who stays, may be the love of your life.  Don't waste a day. Embrase each one with a prayer of thanks. Yes you will be tired, sometimes nausa, sometimes I can't get out of bed, but the next day I may feel great. Take a nap midafternoon if u can. Milk thistle is a must as is probiotics and the best multi vitimin you can find. Lots of veggies. I love my sweets and endulge once in awhile but try to eat healthy. Positive thinking, meditation is excellant. I imagine a pacman going into my blood stream eating up the disease. Total trust and belief in your higher being whom I call God. When I feel crappy, I try to help someone sicker than myself.  Your sister  Patti, a greatgrandmother  From: maria rudloff <mariafrancesr@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 8:24 PM  Wow... I too have chosen to keep this between me and my family, i did tell my boss in confidence, but no one else. I rather deal with it alone than to have to tell. There is a stigma attached to it. I hear it often refered to it as " those people " there is a definite opinion and a condesending attitude.It is mostly from fear. there is definately a lack of knowledge among people. I have even chose to stop dating rather than share. My Doctor assured me that it is not necessary but for now, it is my choice. I may have over reacted to my feeling lousey last week, i don't ever get a cold or flu so this was very unusual for me. but maybe, i really had just an everyday virus. I can hope. I am trying to just go on with my life as usual, who knows I may have had C for 20 years and did not know. I was diagnosed quite by accident. A blood test for a life Ins.policy. Normal tests do not include hep screening but for ins they ck for hep and aids..I use Milk thistle for liver support and a good diet. believe me I love my sweets but I also eat a lot of veggies. I have been reading a lot about nutritional liver health. I used to take a lot of herbs but now that I know that they can also be bad for your liver, i have stopped.My dr. has assured me that there are a lot of women just like me who have C .thanks for confirming that. fondly ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 8:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 nite everyone,sweet dreams.do whats right for you From: Nindy <nindy327@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 9:12 AM  also Jackie is a good help for info on our health problem. Have faith. ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 9:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 nite everyone,sweet dreams.do whats right for you From: Nindy <nindy327@...> Subject: Re: newbe Hepatitis C Date: Tuesday, July 20, 2010, 9:12 AM  also Jackie is a good help for info on our health problem. Have faith. ________________________________ From: Jackie Ware <bchgirl49@...> Hepatitis C Cc: Hepatitis C Sent: Tue, July 20, 2010 9:34:20 AM Subject: Re: newbe  , you're certainly not alone in your thinking. when I was told/mentioned that i had hep c, about 15 years ago, it was in passing from blood tests. No big thing until I started reading up on it. I haven't taken any treatment with the exception of natural supplements. Waiting until more people with genotype a have a better response to the treatment. Read all you can and keep your faith. Jackie  ________________________________ From: maria rudloff <mariafrancesr@...> Hepatitis C Cc: Hepatitis C Sent: Mon, July 19, 2010 9:30:17 PM Subject: newbe     HELLO EVERYONE;I am overwhelmed at the response of the postings. I am really new to this and maybe I have not even accepted that I have hep C. I was quite naive about the severity of it all, and a little imbarassed to say that I have been relatively symptom free until recently. I have decided to not have treatment but maybe it is going to be time to reconsider. I guess I have been just burying my head in the sand. I just recently had my first real bout of fatigue,joint aches and nausea. It lasted for a week. Will this happen again?how often?If it starts to interfere in my life, then what? it is very scarey, especially when you can't share your fears with others. After all, I am the mom and grandmom that everyone counts on. I am about as normal as they come. This is a world that I know nothing about. I have been reading a lot about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what else to say except goodbye for now. Stay strong everyone, its just nice to see the support that you give each other. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.